Shows
Slice of LymeHealing from Mold and Lyme through Nervous system regulation with Amanda RuotoloIn this conversation, Amanda Rotolo shares her profound journey through chronic Lyme disease and mold exposure, detailing her experiences from the onset of symptoms during pregnancy to her eventual remission. She discusses the challenges of finding a proper diagnosis, the various treatment protocols she underwent, and the significant role of mindset and nervous system regulation in her healing process. Amanda also highlights the importance of community support and her decision to start a health coaching business to help others navigate similar struggles.takeawaysAmanda navigated chronic Lyme and mold for years.She experienced...
2025-12-2449 min
The Lyme+ PodcastBehind the Scenes in Washington: The Lyme Legislation You Need to KnowWhat’s actually happening in Washington for Lyme and tick-borne diseases—and does it ever really move the needle?In this episode of the Lyme+ Podcast, host Kenzie Vath sits down with Megan Bradshaw, Government Relations Manager for Center for Lyme Action, to pull back the curtain on how federal funding, legislation, and advocacy campaigns are changing the landscape for Lyme patients and their families.Megan shares her personal “patient-to-advocate” story, how a virtual congressional briefing from her parents’ recliner turned into a full-time mission on Capitol Hill, and why she believes we’re entering the “golden...
2025-11-2037 min
Looking at Lyme76. Discussing pets, ticks, and Lyme disease, with veterinarian, Michael HowlettIn this episode, we speak with Dr. Michael Howlett, a veterinarian based out of Cumberland County, Nova Scotia. When Dr. Mike returned to Nova Scotia to practice veterinary medicine, he did not expect to see so much Lyme disease; however, his location on the South Shore proved to be a hot spot for Lyme. Dr. Mike has become very passionate about increasing awareness and prevention of Lyme disease during his time as a veterinarian. We are very interested in what goes on for non-human animals and how this might affect the human experience.
2025-11-0721 min
The Lyme+ Podcast"It’s Never Just Lyme": Dr. Casey Kelley on Co-Infections, POTS & What Actually HealsFunctional-medicine physician Dr. Casey Kelley, MD (Case Integrative Health) joins hosts Dan Wagner and Kenzie Vath to unpack why chronic Lyme is rarely “just Lyme.” We dig into co-infections (Babesia, Bartonella), POTS/dysautonomia, mold + MCAS, nervous-system regulation, and the biggest myths about testing and treatment. Dr. Kelley explains when antibiotics vs. herbs make sense (minocycline, rifampin/rifabutin, malarone/tafenoquine, dapsone, pulsing strategies), why gut + liver support determine tolerance, and how diet (gluten/dairy/sugar), vagus nerve work, and 80/20 consistency accelerate recovery. We also cover long-COVID overlap, ILADS clinician training, and what a “medical detective” intake actually looks like.If you or a...
2025-10-1844 minLooking at Lyme74. Dr. Tim Cook on approaches to Lyme disease treatment and also diagnosisDr. Tim Cook is an Internal Medicine Specialist who has spent decades helping patients with complex illnesses. He worked abroad with the Canadian Armed Forces and he has been the physician for multiple officials at Rideau Hall. In today’s episode, we hear how medicine is evolving to handle Lyme Disease, and learn more about an upcoming conference for medical professionals all about tick-borne diseases.ResourcesHorowitz questionnaire (PDF)Geneticks tick testingPractitioner’s conference (tell your family practitioner!)CTD Conference poster (PDF) to share with your health practitioner
2025-10-0442 minThe Lyme+ PodcastThe Voice of the Patient: Jennifer Cyrstal on Writing, Healing, and Living with Lyme DiseaseIn this episode of Lyme+, hosts Kenzie Vath and Dan Wagner sit down with writer and advocate Jennifer Crystal to explore her journey through Lyme disease and the impact her words have had on the community. From her early diagnosis and treatment choices to her ongoing role as a patient voice for the Global Lyme Alliance, Jen opens up about the challenges and resilience that define her story.Jennifer is also the author of One Tick Stopped the Clock: A Memoir of Lyme Disease — her powerful personal story of resilience, advocacy, and hope. 📚 Order the book here...
2025-10-0243 min
The Lyme+ PodcastWhen Lyme Looks Like Alzheimer’s: From Caregiver to Advocate with Nicole Bell of Galaxy Diagnostics Nicole Bell’s family faced a devastating reality when her husband, Russ, was diagnosed with late-stage Alzheimer’s along with Lyme, Babesia, and Bartonella. Nicole shares her path from caregiver to author and advocate. She discusses the painful moment of telling her children “Daddy is sick,” the lessons she’s learned about asking for help, and why she wrote What Lurks in the Woods.Nicole also offers critical insights into the evolving science of tick-borne disease testing through her work with Galaxy Diagnostics- exploring advanced PCR, strategic plans for insurance coverage, and new multi-pathogen tests coming to market.
2025-09-1052 minLooking at Lyme72. Pathology, Lyme disease, biobanks and moreIn this podcast, we talk with Dr. Sarah Keating. As an anatomic pathologist for more than 35 years, Sarah worked on staff at a number of hospitals in Ontario as well as at Ontario Forensic Pathology Services. She is recently retired but is passionate about learning as much as possible about tick borne diseases in order to help improve the access to care for suffering patients. She maintains her affiliation with the University of Toronto as an Associate Professor Emeritus in the Department of Laboratory Medicine and Pathobiology. Sarah has been a member of the CanLyme board since 2022 and she...
2025-09-0320 minSlice of LymeIt's Not Just In Your Head: Lyme and Mental Health (part 2)#lymedisease #mentalhealthmatters #mentalhealth In this episode of Slice of Lyme, Abby shares her personal journey with mental health, discussing her experiences with anxiety, suicidal ideation, and the impact of physical health on her mental well-being. She emphasizes the importance of sharing stories, seeking help, and building support systems. The conversation explores the challenges of navigating mental health treatment, the significance of emotional regulation, and the journey towards finding joy and recovery. Abby also offers advice to her former self, highlighting the importance of acknowledging and addressing feelings.Takeaways1. Mental health challenges can be...
2025-09-0345 min
The Lyme+ PodcastFierce Fashion is Fighting Lyme: Inside Project Lab Coat at NYFWWhat happens when the world of high fashion collides with the urgent need for Lyme disease awareness? Project Lab Coat is transforming the runway into a platform for Lyme disease awareness, research, and patient support.In this episode, Dan sits down with co-host Kenzie Vath, Christina Kovacs (Runway7), Ali Moresco (Board Chair, Project Lyme), and Phyllis Bedford (Co-founder & Executive Director, Lymelight Foundation ) to discuss the vision, challenges, and hopes behind Project Lab Coat. From the spark of an idea to its debut on the NYFW platform, they share how this collaboration can uplift advocacy, connect communities, and...
2025-08-2742 minSlice of LymeIt's Not Just in Your Head: Lyme and Mental Health (part 1)In this conversation, Christen shares her deeply personal journey through the challenges of Lyme disease and its profound impact on her mental health. She discusses the struggles with various treatments, the role of medication, and the importance of self-advocacy in navigating the healthcare system. The conversation highlights the complexities of co-infections, the experiences in mental health facilities, and the ongoing battle with anxiety and depression. Ultimately, Christen emphasizes the need for hope, healing, and the importance of being taken seriously in the pursuit of health.takeawaysMental health challenges can be exacerbated by Lyme disease.Advocating for oneself...
2025-08-201h 21Slice of LymeLyme Disease and Holistic Healing with Amy BennettIn this episode, Abby, Christen, and Amy discuss Amy's journey with Lyme disease, starting from her beekeeping days to her struggles with misdiagnosis and the eventual shift to holistic health. They explore the importance of community support, the challenges of navigating the healthcare system, and the emotional aspects of healing. Amy shares her insights on the role of functional medicine, the significance of addressing trauma, and her motivation to start a health coaching business to help others on similar journeys.TakeawaysAmy's journey with Lyme disease began after a tick bite while beekeeping.Misdiagnosis and lack...
2025-07-2342 minSlice of LymeLyme UnfilteredIn this episode, the hosts discuss their emotional and physical experiences related to chronic illness, particularly during the full moon. They explore various coping mechanisms, including brain spotting, meditation, and journaling, while addressing the challenges of food sensitivities, mold exposure, and mineral deficiencies. The conversation emphasizes the importance of radical acceptance and the shared grief of losing one's previous life due to chronic illness, ultimately highlighting the journey of healing and the hope for better days ahead.Takeaways1. Navigating emotions during the full moon can be challenging.2. Journaling and meditation help in processing...
2025-07-0943 minLooking at Lyme68. New chronic Lyme research from the National Academies of Sciences, Engineering, and MedicineHello, and welcome to season six of Looking at Lyme! We’re thrilled to be kicking off this season talking with contributors of an important new research report from the National Academies of Sciences, Engineering and Medicine, which studied current gaps in research and treatments for Lyme Infection-Associated Chronic Illnesses.Dr. Kent Kester is board certified in both internal medicine and infectious diseases, is the chair of the publication committee, and is the vice chair of the National Academy of Medicine Forum on Microbial Threats. During his 24-year career in the U.S. Army, Kent led multiple re...
2025-07-0836 minSlice of LymeRunning With LymeIn this conversation, Bebe and Abby, both marathon runners, discuss their personal journeys with Lyme disease. They share their experiences of transitioning from being active marathon runners to navigating the challenges of illness, including the emotional and mental health aspects of recovery. The discussion emphasizes the importance of movement as a form of healing, the significance of setting new goals, and the necessity of listening to one's body during the recovery process. They also touch on heart rate training, the flexibility needed in fitness routines, and the value of community support.00:00 Listener Question: Lyme...
2025-06-2547 minThe Lyme+ PodcastDr. Bill Rawls on the "Recipe for Health:" Resilience, Recovery and the Future of Lyme CareIn Episode 14 of Lyme+, we kick off a powerful three-part series with Dr. Bill Rawls—renowned integrative physician, bestselling author, and founder of Vital Plan. Dr. Rawls opens up about his personal journey from chronic illness to recovery and the pivotal shift that led him to embrace herbal therapies and holistic healing for Lyme and tick-borne diseases.In this episode, Dr. Rawls and Kenzie explore:His passion for surfing and kite surfing (0:14)How Lyme microbes operate in the body and why they’re so disruptive (19:00)The potential of chronic Lyme to unlo...
2025-05-2949 minLooking at LymeAnnouncing season six of Looking at LymeWe’re excited to announce season six of the Looking at Lyme podcast! New conversations with scientists, advocates, experts, and others will bring you interesting and fresh perspectives from across Canada and around the world.The more we learn, the better equipped we’ll be to create positive change. Building Lyme literacy that places the patient first is what our podcast is about in so many ways. To better understand where we’re at in diagnosing, and treating Lyme, and other tick-borne diseases and exploring possible solutions.Wherever we go, we...
2025-05-2001 minThe Lyme+ PodcastThe Chronic Lyme/ Long COVID Connection with Dr. Keith BerkowitzDr. Keith Berkowitz joins Kenzie and Dan for a deep dive into the overlapping worlds of chronic Lyme and Long COVID. In this episode, they explore how fasting, glucose regulation, mitochondrial support, and cortisol management play roles in chronic illness recovery. Dr. Berkowitz also breaks down the MTHFR mutation, MCAS, and the importance of being your own health advocate. From misunderstood inflammation markers to personalized treatment approaches, this conversation sheds light on the complexities of post-infectious disease care and the need for individualized healing paths.The deck, "How to Approach Long Covid and Vaccine Injured...
2025-04-2140 minThe Lyme+ PodcastThe GLA Way: How GLA is Approaching Lyme Research with CSO Dr. Armin AlaediniGLA CSO Dr. Armin Alaedini is the next guest on the Lyme+ Podcast. He is joined by co-hosts Kenzie and Dan on this conversation where they dive into the out-of-the-box process and approach to research and grants approval at GLA. Learn how GLA research is shaping the landscape of Lyme and tickborne disease research, and how GLA's newly tenured CSO plans to man the helm. Visit gla.org to learn more about Dr. Alaedini
2025-04-0439 minThe Lyme+ PodcastThe Art of Healing: Jon James' Fight With Lyme DiseaseIn this episode of the Lyme+ Podcast, hosts Kenzie Vath and Dan Wagner sit down with artist and casting director Jon James to explore his intense journey with Lyme disease. Jon shares the emotional and physical toll Lyme has taken on his life, including severe isolation, weight loss, and misdiagnoses that left him in and out of the hospital. He opens up about his struggle to maintain his career in fashion and art while navigating extreme fatigue, depression, and memory loss. Jon’s story highlights the complexities of Lyme treatment, from doubts about his diagnosis to breakthroughs with antibiotics th...
2025-03-2057 minThe Lyme+ PodcastAn Eastern Medicine Approach to Lyme disease with Dr. Christina BurnsCo-hosts Kenzie and Dan are joined by Dr. Christina Burns, a doctor of eastern medicine, herbalist, and a lifestyle coach. Dr. Christina has been treating Lyme patients since her two year old son was infected, the same week her husband was also infected. Antibiotics worked well for her husband, but her son became chronically ill. After taking him to every conventional and holistic Lyme specialist, nothing helped. Dr Christina kept trying different angles with Chinese herbal medicine to ultimately help him recover, and has gone on to help many others since. Learn the tricks of her trade when it c...
2025-03-0455 minThe Lyme+ PodcastHolistic Healing from Lyme Disease with Theresa Haselmayer of Foundations WellnessCo-host Dan Wagner sits down with the founder of Foundations Wellness, Theresa Haselmayer, R.N., to discuss her journey from patient to healer. With over 33 years of varied clinical experience, Theresa trained for 4 years at the Uprooting Lyme Clinic in Hudson Valley NY, a hotbed of Lyme Disease. She is currently one of dozens of highly knowledgeable certified Uprooting Lyme practitioners nationwide. Theresa is also a member of ILADS, the International Lyme and Associated Diseases Society, as well as ISEAI – The International Society of Environmentally Acquired Illness.
From the arrows in her quiver as a holistic practitioner, to her...
2024-12-1957 minThe Lyme+ PodcastFighting Lyme and Chasing the Dream: JUJ Seeley & Kiana Tebyani of Z3LLA MusicAs a young adult, just hitting the high note of your career, being sidelined by the symptoms of Lyme and co-infections can be devastating.
Meet JUJ Seeley. She and her best friend, music partner, and health advocate- Kiana Tebyani, compose the up-and-coming electronic/ dance tandem Z3LLA Music. Today Z3LLA is scaling up the billboard music charts at breakneck speed, delivering their unique brand of energy and feeling to the house music scene; a genre often dominated by legendary male artists, JUJ and Kiana are poised to disrupt the party.
In the face of thr...
2024-11-2736 minThe Lyme+ PodcastObserving Immune Responses to Lyme using Metagenomics with Dr. Charles ChiuCo-Host Kenzie Vath joins Dr. Charles Chiu, a Scientific Advisory Board Member at GLA. Dr. Chiu leads a fascinating conversation that weaves through the landscape of Lyme diagnostics, and some of the fascinating work on metagenomics coming out of Dr. Chiu's lab. Dr. Chiu is a Professor of Laboratory Medicine and Medicine Divergent of Infectious Disease at the University of California San Fransisco and Director of UCSF Clinical Microbiology Laboratory.
Dr. Chiu currently leads a transitional research laboratory focused on the development and clinical validation of metagenomic next generation sequencing for diagnostics of infection, outbreak investigation, and...
2024-11-1438 minThe Lyme+ PodcastHer Promise: Caring for a Child with Lyme Disease with Jody Hudson of the Alex Hudson FoundationIn the 3rd episode of Lyme+, Kenzie sits down with the incomparable Jody Hudson of the Alex Hudson Foundation. Jody shares her incredibly powerful story of a mother's love for her child, and the inspired action that ultimately came from the tragic passing of her daughter, Alex. This is a story of courage, loss, and faith, and we sincerely hope you are as moved as we are. Learn more about the Alex Hudson Foundation here
2024-10-0247 minThe Lyme+ PodcastCongenital Lyme Disease: What You Need to Know with LymeLight Foundation's Phyllis BedfordIn this episode of Lyme+, Kenzie sits with co-founder and Executive Director of the Lymelight Foundation to discuss congenital Lyme disease. From mother to mother, what do you need to know? We dive in to Phyllis' very own story, from her experience pregnant with Lyme, to her establishment of the LymeLight foundation: a nonprofit whose mission is to advance awareness and provide grants for children and young adults to pursue Lyme disease treatment. Learn more about the Lymelight Foundation here
2024-10-021h 04
The Lyme+ PodcastWelcome to Lyme+: In Conversation with GLA CEO Laura MacNeillWelcome to the Lyme+ Podcast with hosts Kenzie Vath and Dan Wagner. Join us as we embark on a journey through the world of Lyme disease, a tapestry of patient stories, expertise, and the latest research around the enigma of Lyme disease. In our pilot episode, we discuss the organization behind Lyme+: Global Lyme Alliance, and chat with its CEO, Laura McNeill. Our discussion explores the current landscape of research, and GLA's efforts to redefine patient support through community engagement.
2024-10-0245 minLooking at Lyme60. Lyme persistence and combination antibiotic research with Monica EmbersIn this podcast, we're excited to speak with Dr. Monica Embers, associate professor in the division of immunology, director of vector borne disease research, and director of the education and training program at the Tulane Primate Research Center. Dr. Embers’ research is focused on the detection of persistent Lyme disease in human autopsy tissues, identifying treatments to eradicate Borrelia infection and immunodiagnosis of Borrelia burgdorferi infection and cure. Her team is also developing research models for Bartonella infection.Show notes: lookingatlyme.ca/2024/04/lyme-persistence-combination-antibiotic-research-monica-embersMonica E. Embers, Phd, at Tulane University
2024-04-0929 minLooking at Lyme59. Reflecting on Lyme disease in Canada with Janet SperlingJanet Sperling is an entomologist, researcher and president of the Canadian Lyme Disease Foundation. During her early years studying entomology, she recalls that at that time, Lyme disease seemed very simple. When living in the US, Janet interacted with several people that had a much broader understanding of the disease. When her son contracted Lyme disease years later, it became evident how complicated the disease could be. She points out that not only is it very complicated, it can be very different from one person to the next. www.canlyme.com/janet-sperling/Show notes: www.lookingatlyme.ca/2024/03/59-lyme-disease-canada-janet-sperling/
2024-03-2626 min
Looking at LymeSeason Five of Looking at Lyme, coming soon!Welcome to Season 5 of the Looking at Lyme podcast! As we move forward with Season 5, we’d like to thank Sarah Cormode for the incredible work she’s done over the past several years, leading the way with the podcast and several other CanLyme educational initiatives. Sarah carried the podcast from our first episode of Season 1 to the end of Season 4. In Season 5 we welcome Sofia Osborne, podcast host and science journalist, along with Catherine Kinsella, who has been working behind the scenes on the podcast for the past four seasons. We have an exciting lineup...
2024-03-2402 minLooking at Lyme56. PANS, PANDAS and Lyme with Dr. Nancy O’HaraIn this episode of Looking at Lyme, we explore how Lyme disease and other infections can appear dramatically different in children. Sometimes strep and other infections can even cause a sudden onset of neurological and behavioral changes in children. We welcome a world leader in this field to the podcast, Dr. Nancy O’Hara. Read the full show notes at www.lookingatlyme.ca.
2023-09-2735 min
The Generation Lyme PodcastCommunicating About Lyme Disease - Ep 19There's so much to say about Lyme and other tick-borne diseases. As individuals and as a community, we fight hard to explain what we're going through, what Lyme disease is, what we need for things to get better, and a lot more.
Combined with complex social dynamics that come up when you get sick, plus potential personal communication issues that people with Lyme often have due to neurological symptoms, the whole thing becomes a lot to unpack.
That's why we wanted to talk about it! It's also why we (at Gen Lyme) provide the resources...
2023-07-1258 minThe Generation Lyme PodcastHow to Set Boundaries When You Have Lyme Disease - Ep 18Has Lyme disease made it harder for you to set & maintain boundaries? Has it complicated your relationships with people and made it harder to communicate and feel heard by the people in your life? If so, you're not alone--and this episode is for you.
We talk about our experiences setting, communicating, and changing boundaries through our Lyme journeys, and we share tips that may help you navigate what you’re going through.
This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease.
Your subscriptions and reviews pro...
2023-05-0853 minLooking at Lyme55. Mental health and Lyme disease with Dr. Brian FallonIn this podcast, Sarah talks with Dr. Brian Fallon about the cognitive and mental health manifestations of Lyme disease, and about some of his past and future research collaborations. Dr. Fallon is a physician, researcher, author, and Director of the Lyme and Tick-borne Diseases (TBD) Research Center and the Lyme and TBD Clinical Trials Coordinating Center at the Columbia University Irving Medical Center in New York City. His work is focussed on the neuropsychiatric and persistent symptoms related to Lyme disease. www.lookingatlyme.caFull show notesCurrent research collaborationsDr. Brian A Fallon
2023-04-1843 minLooking at LymeLooking at Lyme Podcast Survey!We are approaching the end of Season 4, and Looking at Lyme is looking for your feedback in our new podcast survey! We have interviewed so many interesting guests over the past few years: it’s hard to believe that we are finishing up our 4th Season with our 55th podcast! We want to hear from you. We want to know what content you are enjoying and ideas about who we might interview in future episodes. Please fill out the survey and let us know! Take our survey: www.canlyme.com/survey/
2023-04-1400 minThe Generation Lyme PodcastWhy Lyme Stories Matter - Ep 17Has another person's Lyme story helped you in your journey? Has a story of any kind (a favorite movie, tv show, book, etc.) helped you get through a hard time? If so, you're not alone.
Join us for this incredible conversation about how stories have shaped and changed our lives. We share how sharing our own Lyme stories has helped us heal and find community—and why we're so passionate about helping others share their stories.
If you want to share your story with the Gen Lyme community, email us at info@genlyme.org!
T...
2023-03-2657 minThe Generation Lyme PodcastReflecting on Recent Lyme News, Treatment Plans, & Our Progress Together - Ep 16Around times of illness, reflecting can bring all kinds of emotions. Some phases bring heartbreak. Others are cause for celebration. In every part of our journey, it can be helpful for us to reflect.
Sometimes, we have to step back to see how we're moving forward. Other times, stepping back to reflect helps us see the whole picture.
Whatever comes up for you when reflecting (or just seeing the word), it’s ok. In this episode, we talk about all of it: personal reflection, Lyme disease representation, and our commitment to the Lyme community.
...
2023-02-2454 min
Looking at LymeFlashback: Lyme and outdoor safety for teaching childrenThis flashback episode is from season two! Sarah announces an Educator Resource for Lyme disease, and speaks with the lead resource developer, Lauren Hudson. Lauren is an educator and parent with a passion for science, life and for going into nature with her students and her family. She took a deep dive into the world of Lyme disease to help develop an educator resource to help other teachers both learn and teach about ticks and tick-borne illnesses. Lauren recalls her own journey of learning about tick-borne illnesses from members of the Lyme Education Awareness and Prevention (LEAP) team.
2023-02-0718 minLooking at LymeFlashback: Dr. Ralph Hawkins explains the challenges of detecting Lyme disease through testingThis interview with Dr. Ralph Hawkins is from season one! Dr. Hawkins has been treating Lyme patients in Canada for many years, gaining a wealth of knowledge about the disease. He recounts his introduction to the shortcomings of Lyme disease testing in Canada while treating a patient with a history of multiple previous tick bites, many common symptoms of Lyme disease, but a negative Canadian Lyme test. Dr. Hawkins had the patient’s blood tested at a University Lab in New York, revealing test band patterns consistent with Lyme disease. He referred this patient to Infectious Diseases colleagues for tr...
2023-01-2420 minThe Generation Lyme PodcastCoping When Lyme Makes Life Feel Out Of Control: "What Are We Gonna Do Without Bagels?!" - Ep 14Have you ever struggled with control issues (either your own or imposed on you?) If so, you're not alone.
Control issues are extremely common in the Lyme/chronic illness/disability communities (and so many others), yet they aren't talked about nearly as much as they should be. This episode tackles a huge topic we deal with on a daily basis in a variety of ways, covering everything from Lyme rage episodes, dietary and lifestyle adjustments, relationships, chemical sensitivities, *laundry,* and advice for what to do when everything feels overwhelming.
And, to stay on theme, there...
2022-12-0556 minLooking at Lyme49. Mold, Lyme and Bartonella with Dr. Neil NathanDr. Neil Nathan is a physician and author, and is a Founding Diplomate of the American Board of Integrative Holistic Medicine, and the International Society for Environmentally Acquired Illness (ISEAI). He has practiced medicine for over 50 years including 30 years treating patients with chronic complex illnesses, and 20 years treating patients with Lyme disease. He has written several several books about chronic illness, mold toxicity and other environmental illnesses, Lyme and energetic diagnosis. He joins us from Northern California to explore the foundations of mold toxicity, Lyme disease and other infections, and the impact they have on our cells and our...
2022-11-1526 min
The Generation Lyme PodcastGen Lyme Day 2022! We Talk About Compassion & Answer Your Questions - Ep 12In this special episode, Jesse Ruben, Brooke Stoddard, Haley DiBiase, and Jennifer Hoffmann (the Gen Lyme Board) meet for the SECOND-ever in-person, live recording of The Generation Lyme Podcast to talk about Generation Lyme Day, a brand new holiday to celebrate the people of the Lyme community. We chat about the monthly topic - compassion - as well as answer some questions sent in by community members. Don't miss this one! We celebrated Gen Lyme Day this year on September 24, 2022.
Click here to learn more about Gen Lyme Day.
To read about why we created Gen...
2022-10-1352 minLooking at Lyme47. Meditation and Lyme with Nicholas ArsenaultInterest in meditation has grown by leaps and bounds in recent years and is now practiced by millions of people worldwide. In this podcast, we find out how meditation can help people throughout their health challenges and beyond. Nicholas Arsenault is an outdoor educator who discovered the healing power of meditation through his own journey with Lyme disease, and is now drawing on what he has learned to help others.Nicholas turned to meditation in order to address the mental health component of Lyme disease. He wanted to be able to direct his own...
2022-08-2331 min
The Generation Lyme PodcastSelf Care: A (Surprisingly?) Hot Topic for the Gen Lyme Community! - Ep 10For our community, self-care isn't luxury; it's survival. When self-care is our monthly topic at Gen Lyme, our community feels some type of way--and has a lot to say about it! In this episode, we discuss what self-care means to us, why it's both triggering and essential, and how we feel about reclaiming the phrase from an influencer-centered wellness industry.
This episode features Haley DiBiase, Jennifer Hoffmann, and Jesse Ruben (host) from Generation Lyme.
You can stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and all of your other favorite...
2022-08-2259 min
The Generation Lyme PodcastCommunication Issues with Lyme & How We've Navigated Them - Ep 9Has Lyme disease caused communication issues for you or your loved ones? In this episode, we talk about why communication is important to us, what it means to our community, issues we have faced surrounding the topic, and how we have navigated them. We chose this topic for May, which is Lyme Disease Awareness Month. Share your thoughts and experiences in the comments, and remember to like, leave a review, and subscribe to the Generation Lyme Podcast!
Features Haley DiBiase, Jennifer Hoffmann, and Jesse Ruben (host) from Generation Lyme.
You can stream the audio version...
2022-06-231h 00The Generation Lyme PodcastHow Community Helps When You Have Lyme Disease: Gen Lyme Meet-Ups & Combatting Isolation - Ep 8Has being part of a community impacted your Lyme journey? This episode is all about community: what it means to us, what happens when we find it, and how it feels to create one at Generation Lyme. Share your thoughts and experiences in the comments, and remember to like, leave a review, and subscribe to the Generation Lyme Podcast!
Features Grace Shults, Brooke Stoddard, Fallon Tegman, and Jesse Ruben (host) from Generation Lyme.
Connect with us at Generation Lyme!
Follow Generation Lyme on Instagram.
2022-05-2453 min
In It Together - Ride Out LymeNavigating Lyme as a Family with Amanda DahlIn this episode, Patricia Cosulich interviews Amanda Dahl about how she navigated her family’s experience with Lyme. Her perspective is unique as a patient, spouse, and mother – she has seen it all.
Amanda and her husband, Christopher, co-own Dahl Holistic Health, where they use energy healing, health and soul coaching, muscle testing, energy sensing, somatic exercises, and mindset work to activate people's vitality so they can thrive! With her gentle guidance and fresh approach, clients who have "tried everything," enjoy accelerated healing and renewed hope. Physical, emotional, and spiritual needs are considered as Amanda leads clients to a...
2022-05-1850 minThe Generation Lyme PodcastHow to Support People with Lyme: Types of Support & Our Experiences - Ep 7Welcome to our brand-new series of roundtable discussions! In this episode, we talk about all things support in the Lyme community: the kind we need, the kind we give, what we get, what we wish we got, and lessons we've learned.
Every month, many of our Gen Lyme Meet-Ups center on a topic of the month. Our March topic was Support. So, for our first Monthly Topic podcast episode (recorded and posted a little late because, hey, life happens!), we're chatting about support. Share your thoughts and experiences in the comments, and remember to like, leave a...
2022-04-1459 minLooking at Lyme44. Exploring Lyme antibiotics with Dr. Kim LewisSarah explores the latest advances in Lyme disease treatment with Dr. Kim Lewis, a researcher, author, University Distinguished Professor and director of Antimicrobial Discovery Center at Northeastern University in Boston. He specializes in molecular science and is currently researching persister cells that lead to tolerance to antibiotics, uncultured bacteria of the environment and the microbiome and the search for new drugs. We’ll find out what role nature plays in all of this important work.Dr. Lewis became interested in studying Borrelia burgdorferi, the pathogen responsible for Lyme disease, when he realized that some people who had be...
2021-11-3022 minLooking at Lyme42. Illness uncertainty in chronic Lyme disease with Maddie GravelleIn today’s podcast, Sarah speaks with Maddie Gravelle about her research into the consequences of illness uncertainty for Lyme disease patients. Maddie is a student and researcher at Queen’s University in Kingston. She shifted her research focus from cancer to Lyme disease after witnessing the challenges her mother faced in dealing with both of these diseases. Her mother noticed that some aspects of Lyme disease were more challenging when compared to similar aspects of dealing with cancer. When Maddie discovered that there was very little research regarding the psychological effects of Lyme disease, she decided to make that...
2021-11-0215 minLooking at Lyme41. Looking at Lyme carditis with Dr. Adrian BaranchukIn today’s podcast Sarah explores Lyme carditis with Dr. Adrian Baranchuk, a cardiologist from Kingston, Ontario. Lyme carditis is inflammation of the heart and can cause lightheadedness, palpitations, fainting, chest pain and shortness of breath. In severe cases, it can be fatal. Dr. Baranchuk tells Sarah he has now seen 16 patients with Lyme carditis. He met his first patient when a physician in a nearby hospital requested transfer of a young 14 year old patient with something called AV block, a disruption of the electrical pathway that stimulates the heart to contract. The young pat...
2021-10-1925 minIn It Together - Ride Out LymeStorytellers With Lyme Part 2Join us for a dialogue with artists and communicators who, through their respective mediums, share their Lyme stories. We will share excerpts of our work, and talk about the creative process. Creative mediums include theatre, film, literature, and music.
Brandi Dean, Host
@brandi.j.dean
https://brandidean.com/
Patricia Cosulich, Playwright
@patricia.cosulich, @greatimitatorplay
www.patriciacosulich.com
Winslow Murdoch, Filmmaker
@winmurdoch, @thelymetrials
http://www.thelymetrials.com/
https://www.winslowcranemurdoch.com/
Lindsay Keys, Filmmaker
@lindsaykeys, @thelymetrials
http://www.thelymetrials.com/
Jesse...
2021-09-141h 03The Generation Lyme PodcastGeneration Lyme Day! - Ep 6In this special episode, Jesse Ruben, Brooke Stoddard, Haley DiBiase, and Jennifer Hoffmann (the Gen Lyme Board) meet for the first-ever in-person, live recording of The Generation Lyme Podcast to talk about Generation Lyme Day, a brand new holiday to celebrate the people of the Lyme community. We chat about why we created this holiday, our experiences at Generation Lyme, and thank you--our incredible community. Don't miss this one! We celebrated Gen Lyme Day this year on August 21, 2021.
Click here to learn more about Gen Lyme Day.
To read about why we created Gen Lyme...
2021-08-3044 min
In It Together - Ride Out LymeStorytellers With Lyme Part 1Join us for a dialogue with artists and communicators who, through their respective mediums, share their Lyme stories. We talk about storytelling, the decision to go public & what to share, the process, & more. Creative mediums include: theatre, film, literature, and music.
Brandi Dean, Host
@brandi.j.dean
https://brandidean.com/
Patricia Cosulich, Playwright
@patricia.cosulich, @greatimitatorplay
www.patriciacosulich.com
Winslow Murdoch, Filmmaker
@winmurdoch, @thelymetrials
http://www.thelymetrials.com/
https://www.winslowcranemurdoch.com/
Lindsay Keys, Filmmaker
...
2021-07-201h 21The Generation Lyme PodcastBrooke's Story: Career, Chemical Sensitivities, & Connecting with Lyme Patients - Ep 5Brooke tells his Lyme story. At 26, he experienced sudden-onset symptoms that didn’t go away. As time passed and he searched for answers, those symptoms magnified and interfered with his life. Now, years after his Lyme diagnosis and eventual treatment, Brooke is 95% better and here to tell his story of tenacity, community, and hope.
Featuring Brooke Stoddard and Jesse Ruben (host) from Generation Lyme.
Connect with Generation Lyme on Instagram @generation_lyme.
2021-06-1754 min
LYME Voice129 Breaking The Chronic Nightmare of Lyme Disease with Author Brad Montague, PSc.DBreaking the Chronic Nightmare of Lyme Disease brings a common-sense reality into the subject of Lyme.It explains what is going on with the body processes that cause all of the problems that arise with Lyme disease. Once the interactive breakdown of body processes is identified and understood, these same processes can be tested for the best support to nurture healing and recovery. It is working with the body to heal that restores health.Talking Points:-Diagnosis, the double edge sword (IgG vs. IgM).-The biggest predisposition for Lyme is Candida.-The...
2021-06-011h 05Looking at Lyme37. Navigating Lyme disease with scientist and author Dr. Shelley BallThis week Sarah is joined by Dr. Shelley Ball, an evolutionary ecologist, fellow of the Royal Canadian Geographical Society, and Founder and President of Biosphere Environmental Education, a social enterprise focused on connecting people with nature. She was also a founding member of the inaugural Homeward Bound Women In Science Leadership Expedition to Antarctica. In this episode, Sarah and Dr. Ball discuss her newly-published book: Lyme Disease, Ticks and You: A Guide To Navigating Tick Bites, Lyme Disease And Other Tick-borne Infections.Dr. Ball became involved with Lyme disease as a person suffering from Lyme and other...
2021-05-2524 minLooking at Lyme36. Turning pain into strength with Lyme warrior Gina VallesThis week Sarah is joined by Gina Valles, a fitness coach with a degree in exercise science who founded Gina’s Total Fitness in Connecticut. In 2018, Gina was diagnosed with Lyme disease, which changed her life and outlook on fitness. Through her Instagram account, which has almost 180,000 followers, Gina shares her journey, workouts, and inspiration.Gina explains that she lived with undiagnosed Lyme disease for a year in 2017 before being diagnosed. She knew nothing about the disease then, but has educated herself and learned how to adjust her exercise routine and manage on a day-to-day basis. Gina wa...
2021-05-1819 minLooking at Lyme35. Innovation in Lyme disease research and treatment with Rossana MagnottaIn this episode, Sarah speaks with Rossana Magnotta, who established the G. Magnotta Foundation in honour of her late husband, Gabe, who passed away after a courageous battle with Lyme disease. The G. Magnotta Foundation leads scientific research into Lyme disease at the University of Guelph in Ontario.Rossana tells Sarah that Gabe was an avid outdoorsman who spent much of his life camping, hunting, and fishing. When he developed symptoms including balance issues, eye problems, and memory loss, he was tested for everything from Alzheimer’s to ALS, before finally being tested for Lyme disease. However, th...
2021-05-1121 minLooking at Lyme33. Diagnosing and treating Lyme disease, with Dr. Joseph JemsekIn this episode, Sarah is joined by Dr. Joseph Jemsek, an infectious disease physician who runs the Jemsek Specialty Clinic in Washington, DC. Dr. Jemsek has been on the leading edge of both the HIV and Lyme disease epidemics. He became intrigued by reports of a small cluster of patients with outbreaks of Kaposi Sarcoma and Pneumocystis pneumonia in New York and San Francisco. He intuitively felt that this was an indication of something much bigger.He recalls diagnosing the first HIV patient in North Carolina in 1983, before the disease was even called HIV. In the years...
2021-04-2734 minLooking at Lyme32. Past, present and future of Lyme disease in Canada with Jim Wilson of CanLymeIn today’s podcast, Sarah is joined by Jim Wilson, founder and President of CanLyme — the Canadian Lyme Disease Foundation. After contracting Lyme disease 30 years ago in Nova Scotia, Canada, Jim dedicated his time and energy to improving the lives of Lyme patients and their families, helping to bring a balanced perspective of Lyme disease to the forefront. Jim began to question the understanding of Lyme disease when his daughter and several others were diagnosed with Lyme disease in British Columbia, despite the perception that Lyme disease was only prevalent in the eastern United States. He notes that even now...
2021-04-2018 minLooking at Lyme31. A whole body approach to Lyme, with medical detective Dr. Kenneth BockSarah explores an integrative approach to medicine with Dr. Kenneth Bock from the Hudson Valley, in New York. Dr. Bock’s natural curiosity, investigative approach, along with his appreciation for complex medical cases set the foundation for his integrative practice. His first Lyme patient in 1985 initially came in with a swollen toe that didn’t seem to have a medical cause. After a thorough investigation which included researching Lyme disease, he discovered that the patient had travelled to Block Island, an area known to be endemic for Lyme. The patient was subsequently diagnosed with Lyme disease and was successfully trea...
2021-04-1332 minLooking at Lyme28. Dr. Ginger Savely on the role of nurses in the prevention, diagnosis, and treatment of Lyme diseaseIn today’s podcast, Sarah explores Lyme disease from a nursing perspective with Nurse Practitioner Dr. Ginger Savely. Dr. Savely has specialized in the treatment of patients with tick-borne illnesses for the past two decades, and has authored and co-authored many articles in nursing and medical journals. Now living in Washington, DC, she first started researching Lyme while living in Texas, when her 16 year old daughter became very ill with the disease. Dr. Savely later became quite ill with the disease, eventually leading her to make it the focus of her own practice. She notes that many healthcare providers re...
2021-03-2525 minThe Generation Lyme PodcastAdvocacy and the 2021 Lyme Fly-In - Ep 4We discuss our experiences at the Center For Lyme Action virtual Fly-In held on February 24, 2021. We talk about how the day went, what we learned, and where we hope to take Lyme advocacy in the future.
Featuring Jennifer Hoffmann, Brooke Stoddard, and Jesse Ruben (host) from Generation Lyme.
More about the CLA Fly-In: "A fly-in is an advocacy event where participants from across the United States meet with the DC staff of their elected Representatives and Senators to advocate for increases in federal funding for Lyme disease."
2021-03-1752 minLooking at Lyme25. Optometry, eye-brain connections and Lyme diseaseIn the words of Optometrist Dr. Cameron McCrodan, “you don’t see with your eyes, you see with your brain.” What is the relationship between the eyes, the brain and some symptoms of Lyme disease? Dr. McCrodan explains that our brains are not only tasked with receiving visual stimuli, they also influence how the information is interpreted and how our eyes function. Although these topics were touched upon during his optometry education, his engineering mindset drew him to further explore this relationship between the eyes and the brain. As his knowledge expanded, he found that some of the symptoms his ow...
2021-03-0221 minLooking at Lyme23. Angela Naeth tells us about life as a triathlete with Lyme diseaseJoin us for a candid conversation with Ironman athlete, Angela Naeth. Angela contracted Lyme disease in 2018, the same year she completed the Ironman race in Kona, Hawaii. Born in Prince George BC, and now living in Massachusetts, Angela has had to continually adapt and evolve in order to optimize both her own health and her performance as an athlete. She describes the learning curve that many Lyme patients are faced with in trying to navigate this complicated disease. After seeing many doctors and finally receiving a Lyme diagnosis, she had to research various treatments and be her own advocate...
2021-02-1719 minThe Generation Lyme PodcastJohn's Story: Biking Across America for Lyme Awareness - Ep 3John tells his Lyme story. From Bell's palsy to a cross-country bike trip, John shows how far a Lyme patient can come with the right treatment and how far our community is willing to go for broader solutions.
Featuring John Donnally and Jesse Ruben from Generation Lyme.
2021-02-1251 minLooking at Lyme22. Lyme and outdoor safety for teaching childrenSarah is excited to announce a new Educator Resource for Lyme disease, and speak with the lead resource developer, Lauren Hudson. Lauren is an educator and parent with a passion for science, life and for going into nature with her students and her family. She took a deep dive into the world of Lyme disease to help develop an educator resource to help other teachers both learn and teach about ticks and tick-borne illnesses. Lauren recalls her own journey of learning about tick-borne illnesses from members of the Lyme Education Awareness and Prevention (LEAP) team, through her own research...
2021-02-0918 min
LYME Voice114 You don't get Lyme, until you get Lyme - and we get it, with Dr. Douglas Wine of Lyme Laser.Products like apple cider vinegar or even stevia can kill a Lyme spirochete. So again, why are people so sick? Why is this illness endlessly complicated? • Let’s talk biofilms, or in official terms, Amino polysaccharide. (10:00) • Did you know that the Lyme spirochete has the ability to create its own protection in the form of what is called a biofilm, much like a spider, creating a web? • A misconception about biofilm is that it is floating around each bacterium, that’s not how it works. Just like a spider that can leave its web and return later (12:00)...
2021-01-211h 05
In It Together - Ride Out LymeIntroduction Episode with the Ride Out Lyme Health & Wellness TeamWelcome to In it Together! In this intro episode we introduce our wellness team Brandi Dean, Sharon Leggio Falchuk, Garett Larson, and Ashley Booker, as we discuss our joineries and how this podcast came to be. Be sure to connect with us on social media and visit our website for more information on how you can get involved with Ride Out Lyme!
Instagram: @rideoutlyme
Website: https://www.rideoutlyme.org
Our team on Instagram:
@brandi.j.dean
@intendedwell
@garett.l...
2020-11-1846 minLooking at Lyme17. Speaking with Mary Beth Pfeiffer, author of Lyme: the First Epidemic of Climate ChangeIn today’s podcast, Sarah talks about ticks, Lyme disease and climate change with investigative reporter Mary Beth Pfeiffer. She lives in New York State, an area of the US which is highly endemic for Lyme disease, and has been investigating this disease for the past 8 years. Her search for answers revealed that there was not only a denial from the US CDC and Infectious Diseases Society of America (IDSA) regarding what patients were telling them about Lyme disease but also a disdain for this patient population. Mary Beth describes how her own book, Lyme: the First Epidemic of Cl...
2020-11-1021 minLooking at Lyme16. Wilderness first aid training and Lyme preventionIn today’s podcast, Sarah examines the importance of adequate training in wilderness first aid skills. She speaks with expert Michael Crawford, an instructor at Slipstream Wilderness First Aid in Victoria, BC. Michael points out some of the differences between regular first aid and wilderness first aid. Anyone performing first aid on a patient in a wilderness setting will likely need to care for them for a longer period of time than in a city situation. It is also important to know and differentiate between which health issues need to be addressed immediately and those that can wait....
2020-11-0317 minLooking at Lyme13. Back to the lab with Dr. Melanie Wills from the G. Magnotta Research Lab at the University of GuelphIn this episode Sarah talks research, Canadian research that is, with Dr. Melanie Wills. She is the Director of the G. Magnotta Lab at the University of Guelph, conducting research and studying the diagnosis, prognosis and treatment of Lyme disease. She became interested in researching Lyme disease while working on her PhD, when her own health history intersected with her research interests. When a doctor suggested she may have symptoms of Lyme disease, Dr. Wills agreed that her symptoms were similar, but she had been tested, and Lyme disease had been ruled out. At the doctor’s recommendation, she ex...
2020-10-1321 minLooking at Lyme12. The importance of prevention and adequate early treatment of Lyme diseaseIn this episode, Sarah hears from Alexis Chesney, a naturopathic physician in Vermont who specializes in Lyme disease and other tick-borne illnesses. She is also author of the book “Preventing Lyme and Other Tick-Borne Diseases”. Alexis became interested in Lyme disease when a previously healthy friend and colleague developed many mysterious symptoms which turned out to be caused by Lyme disease.Dr. Chesney describes some of the treatments she has found effective over the years including antibiotics and herbal medicines. She also explains a Herxheimer reaction, a worsening of symptoms, which is caused by toxins that are rele...
2020-10-0618 minLooking at Lyme11. Exploring co-infections, Bartonella, and mental health effects of Lyme diseaseIn this week’s podcast, Sarah speaks with Dr. Thomas Moorcroft, a physician from Connecticut who specializes in Lyme disease and Lyme-related infections. He explains what co-infections are and differentiates between infections that are contracted from a tick bite, and concurrent infections that people with Lyme disease may experience. During the 2020 International Lyme and Associated Diseases Society (ILADS) conference, he presented several cases of known tick bites in which individuals tested positive for 3-5 different pathogens. He explains the implications of having more than one infection on disease expression and test accuracy. Dr. Moorcroft talks about Bartonella, a c...
2020-09-2919 minLooking at Lyme10. Discussing the effects of Lyme disease on the brain with Dr. Leo Shea IIIIn this episode Sarah talks about the effects of Lyme disease on the brain with Dr. Shea, a senior staff psychologist, professor and President of Neuropsychological Evaluation and Treatment Services in New York City and Boston. Dr. Shea starts off by explaining many of the effects that Lyme disease has on the brain including the ability to process information, changes in memory, multitasking and high level reasoning. He also explains the importance of understanding the effects on the brain and mental health in terms of what is going on physically to cause these changes. He uses neuropsychological evaluation to...
2020-09-2222 minLooking at Lyme9. Elizabeth May speaks to the challenge of updating medical best practices and the continued rise of ticks and Lyme diseaseIn this episode, Sarah speaks with another champion for Canadians living with Lyme, Green MP Elizabeth May. She describes how she first learned about the severity of Lyme disease when speaking to a woman from Pictou, Nova Scotia who required a wheelchair for mobility. After moving to British Columbia, Elizabeth met others who were experiencing life-altering illness due to the tick-borne diseases. She was frustrated to learn that these patients were dismissed and told there was no Lyme disease where they lived. Elizabeth was determined to develop a Private Member’s Bill to address Lyme disease in Canada after me...
2020-09-1518 minLooking at Lyme8. How to protect your pet from Lyme diseaseIn today’s episode, Sarah speaks with veterinarian Dr. Joe Bloom to find out more about Lyme disease and other tick-borne illnesses, and how they could affect our pets. Dr. Bloom works in an endemic area of the United States and sees many dogs with Lyme disease in his practice, explaining signs and symptoms that dogs might experience. He also describes the different kinds of tests he uses to diagnose Lyme and other tick-borne diseases in dogs. Did you know that some dogs can have Lyme disease but not show symptoms? Dr. Bloom explains how further testing can...
2020-09-0818 minLooking at Lyme7. Dr. Ralph Hawkins explains the challenges of detecting Lyme disease through testingIn this episode of Looking at Lyme, Sarah speaks with Internal Medicine Specialist and Canadian Lyme expert, Dr. Ralph Hawkins. Dr. Hawkins has been treating Lyme patients in Canada for many years, gaining a wealth of knowledge about the disease. He recounts his introduction to the shortcomings of Lyme disease testing in Canada while treating a patient with a history of multiple previous tick bites, many common symptoms of Lyme disease, but a negative Canadian Lyme test. Dr. Hawkins had the patient’s blood tested at a University Lab in New York, revealing test band patterns consistent with Lyme di...
2020-09-0120 min
LYME Voice108 Fighting For A Cure with Lauren Lovejoy of Lyme Warrior and Suzanne Burden Bio-From Grad Student and workaholic to bed-bound Lyme patient, Lauren started Lyme Warrior four years ago when she learned the struggle of Lyme first hand and knew she had to help. Lauren holds a Masters in Analytics and has years of experience in promotion and the legal field. She is working to empower those with Lyme Disease and help others to join together to make a change while still fighting her personal battle with Lyme Disease. To date, Lyme Warrior has given over $70,000 to Lyme research, Lyme patients in need, and shipped over 300 Kid's Smile boxes to children suffering f...
2020-08-3148 minLooking at Lyme6. Talking research, testing, and treatment of Lyme disease with Dr. Sam DontaIn this episode, Sarah interviews an Infectious Disease Physician who has treated Lyme patients in the US state where Lyme disease was first identified - Connecticut. Dr. Sam Donta has gained a wealth of knowledge and expertise treating Lyme patients for almost 40 years. As a result of his expertise, he was appointed as one of 14 members of the Tick-Borne Disease Working Group, established by the US Congress in 2016. Dr. Sam Donta emphasizes the importance of early treatment for Lyme disease, noting that as time passes, the disease becomes much more difficult to treat. He discusses some of t...
2020-08-2520 min
LYME Voice107 Becoming A "Lyme Mom" with Tricia SoderstromTricia Soderstrom is a wife and mom of four. Tricia and her husband Scott have been married for 30 years and live in Maryland. She is a career homeschool mom, a writer, speaker, virtual assistant and is the creator of Abounding in Hope with Lyme. She and her family suffered from chronic Lyme disease for over ten years. Tricia is passionate about health, nutrition, gardening, and helping women walk with Jesus through the uncertainty and difficulty of living with Lyme! Key Takeaways: After being bedridden for 2 years, Tricia finally got a diagnosis of Lyme disease. Explaining the d...
2020-08-2051 minLooking at Lyme5. How Lyme disease can impact children and familyIn today’s podcast, we start to explore Lyme disease in children. Sarah welcomes her father, Dr. Ted Cormode, to the podcast. He understands Lyme disease both as a pediatrician and as a parent supporting and advocating for his child. Dr. Cormode talks about his experience as a parent when Sarah first became ill. In medical school, he did not learn about Lyme disease so he spent the next years digging deeper into medical research.Dr. Cormode walks us through some of the unique challenges of understanding Lyme disease in children. He describes an interesting case study of...
2020-08-1817 minLooking at Lyme3. Entomologist Janet Sperling tells us about the spread of ticks and Lyme diseaseIn this episode, Sarah speaks with Canadian entomologist Janet Sperling, who specializes in tick microbiomes. Sarah sets the stage with a quick history of Lyme disease, including how it got its name and how long it’s been around. We’ll find out why it’s important to know the different kinds of ticks found in Canada and what habitats they need to survive. Janet Sperling explains how ticks are able to stay attached for days and how they transmit pathogens to us. Did you know ticks can travel thousands of miles on birds? That’s one of the re...
2020-08-0419 minLooking at Lyme1. Exploring Lyme disease with Dr. Liz ZubekIn this episode, we meet host Sarah Cormode and explore Lyme disease through the perspective of a Canadian family physician during her interview with Dr. Liz Zubek. Sarah draws upon her expertise in education, research and outdoor adventure to explore all things Lyme. She reflects back on her own experience with Lyme disease after being bitten by a tick in her backyard in 2012, then ventures out to speak with a wide variety of experts to better understand this disease. Guided by her own experience with Lyme disease, Sarah reveals a distinctly Canadian perspective of Lyme disease.
2020-07-2017 min
LYME Voice105 Dear Lyme Disease (Transforming your pain into purpose)Ep.105 In 2015, Wendi’s life drastically changed when she was diagnosed with Lyme disease and other life-threatening infections. Each chapter of her new book “Dear Lyme Disease” takes you from theory to practice so you can start learning alternative healing tools and engaging in experiential exercises to start implementing a new way of thinking, living, finding your “new normal” and HOPE. Key Takeaways: “I discovered how strong I was when my body was at it’s weakest.” No one teaches you how to live within a weak and broken body. I went f...
2020-07-031h 13
LYME Voice103 Inflammatory Mechanisms And Biomarkers In The Chronic Manifestations of Lyme Disease-Alaedini, ArminEp.103 Dr. Armin Alaedini is a professor at Columbia University, where he leads a research laboratory focused on studying the role of the immune system, host-microbe interaction, and diet in complex disorders. His team’s research on Lyme disease in the past 15 years has focused on the chronic and post-treatment manifestations of the infection, leading to seminal findings that provide molecular evidence of a biological basis for the patient’s symptoms. He is currently a member of the Scientific Advisory Board of Global Lyme Alliance and a Working Group Member of the NIH Advisory Council on Chronic Fati...
2020-05-131h 12
LYME VoiceEp.100 Covid 19 + Chronic Lyme with Dr. Darin IngelsWhat is really going on? How does the COVID 19 pandemic impact people with Chronic Lyme? Should you be worried, how will this impact ongoing care, and how to cope with the panic...Dr. Darin Ingels shares his experiences. Key Takeaways: The overwhelming majority of cases are in 3 states. Lockdown vs. shelter in place The media is focused on panic...however the mortality rate is still very low at 1.5%-1.7%. If you get exposed you have a 98% chance of recovering. What do we do know to keep ourselves safe? Washing your hands...
2020-03-291h 00
LYME Voice099 Lyme Literate Counselor’s (It’s true, they really do exist!) About My Guest: Julie Parker gets the complexities of Lyme and counseling. Too many times, Lyme patients have been told their symptoms are imaginary. They've been referred to multiple specialists, had more tests run than they can count, and are told to seek psychiatric help because nothing is really wrong physically. Then, when a Lyme diagnosis is made, family and friends don't understand the disease or why treatment can make you feel worse before you get better. You can end up isolated and with minimal support. Julie Parker understands what you're going through. Not only is she L...
2020-03-091h 33
LYME Voice089 Bitten, The Secret History of Lyme Disease and Biological WeaponsAbout My Guest: Kris Newby is an award-winning science writer at Stanford University and the senior producer of the Lyme disease documentary, Under Our Skin, which premiered at the Tribeca Film Festival and was a 2010 Oscar semifinalist. She has two degrees in engineering, a Bachelor’s degree from the University of Utah and a Master’s degree from Stanford University. Previously, Newby was a technology writer for Apple and other Silicon Valley companies. She lives in Palo Alto. And now…my interview with Kris Newby. Key Takeaways: Her husband and she both have a personal...
2019-11-061h 13
LYME Voice086 Lyme Mind ConferenceLymeMIND is designed to enable a systems medicine approach to identify novel biomarkers and new therapeutic opportunities. Through our network of collaborators, we are able to interrogate the complex biology of samples collected from Lyme-affected individuals using molecular profiling technologies and applying advanced statistical and machine learning approaches to move rapidly from “Big Data” to knowledge and improved understanding of the disease. About My Guest: Patricia Savi Glowe is the Director of Operations for the Institute for Next Generation Healthcare (INGH) in the Icahn School of Medicine Mount Sinai, and the Director of Strat...
2019-10-0850 min
LYME Voice082 Kyle J. Willis-Fitness Model and Chronic Lyme Disease warrior!About My Guest: Kyle J. Willis is a 26-year-old Nationally Published Fitness Model and Chronic Lyme Disease warrior. In 2011, Kyle was infected with Lyme Disease, a tick-borne illness, in his hometown of Londonderry, New Hampshire. After undergoing 3.5 years of high-dose antibiotic treatment, Kyle made the decision to get off of all medicine and began his healing journey through fitness and nutrition. Despite suffering from neurological and cardiac complications, Kyle puts his faith in God and continues onward in the Fitness Industry, landing on the cover of Men’s Fitness Magazine and frequently featured in Mu...
2019-08-211h 21
LYME Voice080 Lyme Disease Treatments At Envita Medical In this episode, Aaron and Sarah talk about the primary treatments used at Envita Medical for treating neurological Lyme disease. Sarah went to treatment in 2013 for late-stage neurological Lyme disease and Envita saved her life. After being reinfected in 2018 she returned and did a second round of treatment in 2019. Segment 1 FIGHTING is a mindset! ~Patient Care Coordinators are a vital link between you and all your physicians. They keep tabs on you throughout your entire visit, make sure you are getting to your outside appointments. So many times throughout my...
2019-07-231h 04
LYME Voice073 Lyme Southern Belle- I'm Still UNDEFEATED with Jessica DonaldsonWelcome Ya’ll! I’m Jessica Donaldson, Lyme Southern Belle. In this episode we talk about: Losing hope (Orphan) and finding your inner Warrior Trust vs hope The reality of suicide in the Lyme community Push yourself to be better Be an information junkie Whole body wellness Get out of "the pit" It's ok to be sad It's ok to be sick & happy Writing as therapy I'm searching for the words to try to explain my journey fighting Lyme Disease and all that go along with this life-altering diagnosis. In 2013 I was diagnose...
2019-01-3139 min
LYME Voice066 Lyme disease, Mold, Shame, Building Emotional Strength and Stories Of Healing In This Episode: (Snippet) Building Emotional Strength. The complexity of shame. Mold symptoms & testing. Almost impossible to heal from Lyme living in mold. Build a “Healing Team". Stories of healing. Extended version: Guest: Stephen Grooters, is an engineer and advocate within the chronic illness community. How do life changing difficulties play a role in developing emotional strength? Surviving the “trauma” is only one part of the recovery process.You have to unlearn to the survival side of things and when you have been sick for decades, the longevity of Lyme is unfathomable. Traumatic experiences that impact multiple generations of famili...
2018-09-172h 19
LYME Voice065 Tools For Overcoming Lyme Disease Symptoms In This Episode: (Snippet) Get Back To Living Life"Without-Pain" Tackling Lyme like Cancer with Author Jennifer Heath. Using a Life Coach and Finding Tools To Heal like the MINDSET that says "Life is happening FOR me and not TO me." And also how to form a deeper appreciation for all of life. Autonomic Response Testing or A.R.T. gives you guidance on how to treat your body specifically, takes away the guessing game, helps to detect foods/medications that aren't helpful. Ionic Foot Baths and how helpful they are to people with the MTHFR genes. Alkaline Water Gerso...
2018-08-271h 38
LYME Voice046 Parenting With Chronic Lyme DiseaseTalking Points: Reconnecting with your kids in the aftermath of being in survival mode. Tackling chores as a household. Recognize that any “system” is only as good as the person managing it. (Consider giving that responsibility to someone who is capable of implementing, training and following up with the chores) Everything we face is either an opportunity to change or opportunity to let it defeat you. Having a victim mentality or a victory mentality. Creating boundaries that enable health and healing. Healing isn’t linear, it has ups and downs. Bio: Heather M. Getty contracted Lyme disease sometime early in child...
2017-11-0258 min