Shows
About IBDHow To Build Resilience and Manage Life With IBD Featuring Kinsey BeagleyEpisode transcript and more information at: https://bit.ly/AIBD191 Kinsey Beagley, a pediatric medical assistant diagnosed with ulcerative colitis at 15, shares about her experiences with IBD, including struggling with symptoms, multiple medication failures, and eventually having J-pouch surgery. Kinsey shares how reframing difficult experiences and adopting a positive mindset—her mantra is "I can do hard things"—has helped her cope. Chapters 00:04 Introduction and Guest Introduction 02:05 Kinsey's Diagnosis Story 04:42 Initial Treatments and Medication Journey 06:06 Decision for Surgery 07:09 Emotional Impact of Taking a Gap Year 09:05 How and When Surgery Was Discussed 10:12 Life After J-Pouch Surg...
2025-12-0229 min
About IBDThe Truth About Surviving IBD and IncontinenceKatryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She discusses the emotional and physical challenges of living with IBD, the stigma of ostomies, and how these experiences shaped her life, relationships, and career. Katryna also describes managing her mental health, planning her wedding, and preparing for motherhood, offering hope and practical advice to others with IBD. Episode transcript and more information at: https://bit.ly/AIBD190 Chapters: 00:04 Introduction and Guest Background 02:09 Katrina's Nursing Career 03:08 Ulcerative...
2025-11-1845 min
About IBDHow To Stay Active With IBD Featuring Sean LochranSean Lochran, who lives with IBD and an ileostomy, describes his IBD journey, including complications such as blood clots and adrenal insufficiency. Sean shares advice for staying active on difficult days, including the importance of personalization, hydration, and tracking health data. He debunks misconceptions about exercise with IBD or an ostomy and describes his client-centered approach to fitness coaching, grounded in empathy and lived experience. Episode transcript and more information at: https://bit.ly/AIBD187 This episode sponsored by Fathom Care! Fathom is an AI-powered wellness companion made for patients with inflammatory bowel disease. Over 2.4...
2025-10-0737 min
About IBDCommunity In IBD: How to Stop Being Isolated Featuring Aaron BlockerEpisode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to o...
2025-09-1042 min
Andy Cooney's NY Irish Music HourAndy Cooney's NY Irish Hour (80)Hi Friends,It gives me great pleasure to bring you Episode 80 of The New York Irish Music Hour. Alot of new recordings this episode and new artists to the program. Enjoy!Andy CooneyPart 1: Olivia Douglas (latest single), The Rebel Hearts (New Release), Nial Teague & Padraic Joyce (New Release), One For The Road (New Single), Me!Part 2: Lauren McCrory, Gavin Gribben Chrissy Mac and Daniel O'Donnell (recent live concert appearance), Rhythm & Sticks (new Single), Darren Bourke (New Single), Susan & Gerard, Drops of Green (Seamus Pick)Part 3: Marc Roberts (New Si...
2025-06-2959 min
About IBDBehind the Scenes of About IBDFind Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD YouTube: @AboutIBD Threads: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio YouTube: @MacCooneyComposer Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD169
2025-02-2514 min
About IBDWhy Representation Matters for the LGBTQ+ CommunityThere's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people's health outcomes. Plus, we talk about Cass' web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma. Find Cass Condray at: Web: Pride and Poop Bluesky: @cdalecondray.b...
2025-02-1151 min
About IBD"Fine" Dining With Crohn's Disease Featuring Michael OrnelasWhat's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and later, maybe, with ulcerative colitis. Michael shares his experiences with symptoms, treatments, and the impact IBD has on life. But it's not all serious! Michael also talks about his comedy podcast, "Fine" Dining, which encompasses the search for mediocrity...
2024-12-101h 02
About IBD"3 Kidneys, No Colon" With Dave PiontkowskiFor people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fighting for his life with kidney disease. He also tells us how his comedy is connecting the chronic illness community, but there are some audience members who find it can...
2024-11-2640 min
About IBDThe Hosts of Bowel MomentsAlicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the podcast, the importance of therapy, and keeping up a social media presence. The conversation highlights the emotional and logistical aspects of creating a podcast about IBD. Select episodes of Bowel Moments: Bowel Moments Episode 1: Get to know your co-host Robin and A...
2024-11-1236 min
About IBDFinding the Balance - Honoring Veteran's Day With Stephanie GishStephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach. Buy "Crohn's, Fitness, Food and My Rock Road to...
2024-10-2959 min
About IBDParenting With IBD (With Alison McGauley)Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison's book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society. Buy Alison's...
2024-10-1534 min
About IBDChoosing Ostomy Surgery With Hannah Martin-SpencerIs it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and...
2024-10-0158 min
About IBDStarting College After a Crohn's DiagnosisChristina King shares her journey with being diagnosed with Crohn's disease in 2021. She was misdiagnosed with gastritis and hemorrhoids, until her severe symptoms of rectal bleeding and weight loss, plus multiple trips to the emergency department led to a hospitalization. An in-patient colonoscopy finally led to a diagnosis of Crohn's, and she was finally able to get treatment and improve. She was unable to go to school with her high school graduating class, and is now ready to start pursuing her dream of becoming a nurse. Christina tells Amber where she went for information in the early days after...
2024-09-1741 minAndy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (76)Hi Friends,Enjoy Episode 76 of The New York Irish Hour! It was a fun show to put together. Some great new recordings from Derek Ryan and Olivia Douglas and I played a couple of recordings going back a few years from Erin's Pride and Martin Flynn. I know you'll also enjoy a bit of comedy from Noel V Ginnity.Part 1: The Young Wolfetones, The Tumbling Paddies (New Single), Noelle Shevlin (New Release), Derek Ryan & Olivia Douglas (New Single), Me!Part 2: The High Kings, Noel V Ginnity (Comedy Relief), Mike Denver, Erins Pride, Bryan Mur...
2024-09-0757 min
About IBDIBD and the Patient-Physician RelationshipThe relationship between patient and physician in inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis) is so critical to the success of the management of the disease. Both the patient and the physician have roles to play in developing and maintaining a good working relationship. One such example of a truly special and inspirational patient-physician relationship is illustrated here between Dr Julie Spivack, a gastroenterologist with Connecticut GI, and Rosa, her patient. Rosa and Dr Spivack discuss their close bond and how the listening, empathy, honesty, and open-mindedness work to build trust and achieve successful outcomes in patient-physician relationships
2024-08-1325 min
About IBDIBD and Accommodations at Work With Katie ConnellyAmber Tresca and Katie Connelly discuss the challenges and importance of workplace accommodations for individuals with inflammatory bowel disease (IBD). Katie has been through the process of asking for accommodations with different employers and shares her personal experience, emphasizing the need for understanding the Americans with Disabilities Act (ADA). She relates her experience and gives advice to both employers and employees on how to manage the accommodation journey. Plus, she gives the resources that she found most helpful to help her learn about her rights as an employee. Find Katie Connelly at: Spotify: Katie Connelly Web...
2024-07-3051 min
Brad Cooney PodcastTHE MELLOW MAC - ONE WAY TICKETFor over two decades, The Mellow Mac has written and produced a large body of work, from R&B rap—hip-hop, pop, reggaeton, EDM, neo soul, country and more—for various artists and labels.“One Way Ticket,” single released July 2024, features The Mellow Mac on an R&B love song, with harmonic vocals telling his love interest he’s ready to go to the next level if she is.“Yeah, yeah. I wanted that sensual kind of feel, where I only use a kick drum, snare & hat. I played all...
2024-07-1821 min
About IBDConnecting to Cure Crohn's and Colitis With Stacy DylanAmber is joined by Stacy Dylan, co-founder and executive director of Connecting to Cure Crohn's and Colitis (CtoC). CtoC is a patient advocacy group focused on addressing unmet needs in the IBD community. Stacy founded CtoC to help other families after her son was diagnosed with Crohn's disease. CtoC offers support groups, mentorship programs, and gut-friendly workouts. Stacy offers advice to parents of children with IBD, encouraging them to take things one step at a time and not be overwhelmed by information from the internet. Follow Connecting to Cure: Web: https://www.connectingtocure.org Twitter: @connecttocure...
2024-07-0953 min
About IBDMen's Health and IBDThere tend to be more women than men who share their journey with inflammatory bowel disease (IBD, Crohn's disease, ulcerative colitis). The reasons are challenging to uncover, but what's clear is that more can be done to raise the visibility of men living with an IBD, ostomy, or other digestive condition. My guest is Jordan William Henry Aggen, also known as Crohn's Trooper. Jordan emphasizes the importance of open communication, pre-planning, and finding support from friends, family, and social media to cope with the disease. Concepts discussed on this episode: Which is Nerdier: Star Wars or...
2024-06-2538 min
About IBD"Boo Can't Poo!" With Iris Wang, MDDr Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr Wang shares the experience of writing a children's book focused on preventing and managing constipation titled "Boo Can't Poo!" They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get "Boo Can't...
2024-06-0432 min
About IBDThe GEM Project With Chantel WicksWhat is being done to help prevent inflammatory bowel disease (IBD) in the next generation? The Genetic, Environmental, Microbial (GEM) Project is a research study from Crohn's and Colitis Canada (CCC) focused on finding possible causes for Crohn's disease by following healthy people who are at a higher risk for developing the disease. To talk about GEM, Amber interviews CCC volunteer Chantel Wicks. Chantel is the chapter president for the Durham Region in Ontario and the Chair of their Gutsy Walk, which is a fundraiser and event that takes place every year in the first weekend of June. Learn...
2024-05-1442 min
About IBDIBD and Somatic Therapy With Abri BernsteinPeople with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy...
2024-04-1653 min
About IBDColorectal Cancer Awareness Month With Dan "Dry Dock" ShockleyDiagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others. Find Dan "Dry Dock" Shockley at: Twitter: @Dryshockley Instagram: @DanDryDock LinkedIn: @Dan Dry Dock S...
2024-03-2632 min
About IBDMaking Crohn's Disease Funny With Matt NaginWe can hold two truths: Crohn's disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn's disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can be challenging to find those comedic moments. Especially when most people don't know what IBD is, and even among those who do, they kind of don't want to hear about it sometimes. Get tips from Matt on...
2024-02-1336 min
About IBDIBD Connect With Lisa FournierA diagnosis of inflammatory bowel disease (Crohn's disease, ulcerative colitis, IBD) affects the entire family. When it's a child that's diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local hospital to start a support group and eventually founded IBD Connect. Learn about the programs IBD...
2024-01-1636 min
About IBDIBD in the Hispanic Community With Oriana Damas, MDAs an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn's and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights into the challenges of studying the role of diet in IBD, revealing key findings from her research and explaining how her work...
2023-12-0539 min
About IBDPositivity Beats IBD With Josef MillerWhat is it like to be a teen living with Crohn's disease? If you're like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book. Find Josef Miller at: Instagram — Positivity Beats IBD: @positivity_beats_ibd Instagram — Josef Miller: @josefjm13 Book...
2023-11-2839 min
About IBDDesigner $hit: A Microbiome Love Story With Saffron CassadayWhat options are you wiling to try to manage your ulcerative colitis or Crohn's disease? How about putting someone else's stool into your own colon? Fecal microbiota transplants (FMTs) — using stool from a donor to repopulate bacteria in the colon — are being studied for use in treating inflammatory bowel disease (IBD). Filmmaker Saffron Cassady decided to try do-it-yourself FMT to treat her ulcerative colitis, using stool from the healthiest person she could find: her husband. The journey is captured in her film, Designer $hit, which explores both the science and potential behind FMT. Learn about why she decided to take a ch...
2023-11-1427 min
About IBDIBD and MenopauseMenopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn's disease and ulcerative colitis). October is World menopause Awareness Month. World Menopause Day is on October 18 every year. The purpose of the day is to raise awareness of menopause and the support options available for improving health and well being. Learn more about how IBD may affect perimenopause and menopause, as well as the reverse. Concepts discussed on this episode: World Menopause Day: https://www.imsociety.org/education/world-menopause-day/ The North American Menopause Society...
2023-10-1714 min
About IBDHaving a Screening ColonoscopyColon cancer is being diagnosed more frequently in younger people. It's now recommended that most people get a screening colonoscopy at the age of 45. For people who have a family history of colon cancer, the first screening should be when they are 10 years younger than the family member was when they were diagnosed. My guest is my husband, Michael Tresca, who recently had a screening colonoscopy after turning 50. He details his experiences in using a newer prep and how he managed the process. If there is a person in your life that is due for their screening, I hope you'll share...
2023-09-2639 min
About IBDManaging IBD Diet and Lifestyle With Clemmie OliverDiet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD. For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important. To discuss how diet relates to IBD, Amber talks to Clemmie Oliver, IBD Specialist Registered Associate Nutritionist and Nutritional Therapist (MSc, ANutr, Dip ION, mBANT, CNHC). Clemmie shares her per...
2023-09-1251 minAndy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (62)Hi Friends,So many new releases this week in the Irish Music World! Also a celebration tribute in Part 2 to my daughter Shannon who is getting married on September 15th! Enjoy...Andy CooneyPart 1: Sean Wilson & Tony Mac, Sean Magee (New Single), Siobhan Miller, Sean Keane & Ann Jimi Jini (New Single), Trad Lib (New Single)Part 2:Nathan Carter, ME, Derek Ryan (New Single), Mike Denver, Rose Betts (New Single & Seamus Pick)Part 3:The Tumbling Paddies (Latest Release), Gary Gamble (New Single), Nolan, Reynolds & Foley (New Release), TR...
2023-09-0958 min
About IBDPregnancy and IBD: The PIANO Study With Uma Mahadevan, MDPregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the...
2023-06-0625 min
About IBDYoga for IBD With Desiree SchmidtDesiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety...
2023-05-2338 min
About IBDAn Ostomy Is a Beginning With Brad Watson-DavelaarBrad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn's disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming...
2023-05-0943 min
About IBDI Pooped My Pants With April Michelle HarrisWhen is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness. We also dive into April's new book "I Pooped My Pants", where she shares her story and those of 20 other IBD warriors who have bravely shared their experiences with living...
2023-04-2541 min
About IBDRunPee: The App That Tells You the Best Time to Use the Bathroom During a MovieGoing to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it's difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while still ensuring that users do not miss any critical moments in the...
2023-04-1837 min
Music of Mac CooneyJourney to the IslandCUE 1M3 "Journey to the Island"
A re-score of a scene from the film "Seen From Above" by Patrick Brooks
Recorded at Bulgarian National Radio
Българско национално радио
by the European Recording Orchestra
Film Scoring Academy of Europe
Sofia, Bulgaria
Many thanks to the following crew:
ORCHESTRA:
Concertmaster: Negina Stoyanova
Violin I: Gergana Velichkova, Zdravka Komitova, Alena Chehova, Iva Dhzadzheva, Doroteya Kristeva, Lilia Koeva, Militza Knezevic, Dimitar Raychev, Miro Bozhinov
Violin II: Petia Dimitrova, Kiril Minov, Kiril Minchev, Rossen Kazandziev, Diana Stancheva, Diana Koleva, Elena Ganova, Nikolinka Yordanova
Viola: Stefaniya Yankova, Anna Draganova, Maria Valchanova, Ralitza Cherneva, Ralitza Dimova, Evgenia Bauer
Cello: Teodora Atanasova, Marina Hinova...
2023-04-0101 min
Music of Mac CooneyThe King's Speech - RescoredThis is my rescore of the "World War Speech" which, in the film from 2010, was accompanied by Beethoven's 7th symphony. This is my submission for the "Heroism and High Drama" assignment while studying at the Film Scoring Academy of Europe
Special thanks to the musicians and crew:
The European Recording Orchestra Brass
French Horn 1: Cara Watson
French Horn 2: Diana Yotkova
French Horn 3: Hristo Tzachev
French Horn 4: Gabriela Kostova
Trumpet 1: Donald Greech
Trumpet 2: Georgi Stoykov
Trumpet 3: Hristian Radoev
Trumpet 4: Yordan Koev
Trombone 1: Mincho Tomanov
Trombone 2: Petar Karakashev
Trombone 3: Yavor Kostov
Bass Trombone: Petko Kolev
Tuba: Nikolay Temniskov
Conductor: Mac Cooney & Derek...
2023-03-3101 min
About IBDAccommodations for IBD in College With Sari GrossmanWhat happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition. Find Sari Grossman at: Twitter: @saribari99 Instagram: @saribari99 LinkedIn: @Sari Grossman
2023-03-2844 min
About IBDUp and Adam: A Patient's Experience on Winning with IBDIs it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips for helping kids develop positive associations with going to the doctor, which include building trust with healthcare professionals, being honest about what to expect during appointments, and creating a comfortable environment for kids. Adam's book, "Up and Adam," is a resource for children with IBD and their families. ...
2023-03-1429 min
About IBDLiving with IBD: How Caitlin McGinnis, LCSW Supports Mental HealthCaitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences and connecting with support groups, Caitlin has learned the importance of creating communities, bringing awareness, and being a source of support for those going through similar struggles. She strives to provide her patients with the support she did not have when she was diagnosed. Find Caitlin McGinnis, LCSW on: Psychology Today...
2023-02-2828 min
About IBDCDPATH: A Prognostic Tool for Crohn's DiseaseAre we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options. Find Corey Siegel, MD on: Twitter: @DrCoreySiegel Find Jessica Caron at: Instagram: @chronicallyjess_ Twitter: @ChronicallyJess Facebook...
2023-02-1426 min
About IBDThe Plant-Based Crohn's and Colitis CookbookFor years we were told that diet doesn't matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What's still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn's disease patient who brought her skills and experience to writing a book entitled, "The Plant-Based Crohn's and Colitis Cookbook." She shares her secret to publishing her book, as well as how her life has changed since being diagnosed with Crohn's disease. Find Helena Murphy at: Instagram: @helenarose_photography...
2023-01-3137 min
About IBDPelvic Health With Amanda Olson, DPT, PRPCCaring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn's disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions. Find Amanda Olson, DPT, PRPC at: Instagram: @intimaterose Twitter: @IntimateRose Web: Intimate Rose Buy: Restoring The Pelvic Floor...
2023-01-2428 minAbout IBDAmber's Year in Books 2022What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you'll want to pick them up for yourself. Creativity: A Short and Cheerful Guide The Comfort Book Born a Crime: Stories from a South African Childhood It's Trevor Noah: Born a Crime: Stories from a South African Childhood (Adapted for Young Readers...
2022-12-2625 min
Music of Mac CooneyJenny's Funeral - Forrest GumpRe-score of Jenny's funeral scene from Forrest Gump
2022-12-1901 min
Music of Mac CooneyEnd Scene - The FoundlingOriginal score for the ending scene of the film "The Foundling" - a 2010 short film produced by Sir Ridley Scott.
For orchestra.
https://www.imdb.com/title/tt1794994/
2022-12-1901 min
Music of Mac CooneyThank You - The Theory of EverythingMockup/Rescore of the final scene for The Theory Of Everything
For solo piano.
Video: https://youtu.be/bmEoMbkXlaE
2022-12-1902 min
About IBDRecovering from Medical CatatoniaFor some people living with Crohn's disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing better than ever. Lauren shares what kept her motivated during the long and difficult recovery...
2022-12-1337 min
Music of Mac CooneyWeee - OoohA little demo created live while teaching a class at Fairfield University.
2022-12-1303 min
About IBDUnderstanding Resilience With Mara ShapiroDoes living with Crohn's disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disease (IBD) or other chronic illnesses? Mara Shapiro, healthcare journalist and Crohn's disease patient, has had no other choice but to find a way towards resilience in her life, having lived through grief and loss early in life, followed by the diagnosis of several chronic illnesses. She provides deep insight on coping mechanisms and resilience, including the various ways we can look at these ideas to fit our own...
2022-11-2135 min
Teen CreepsCaroline B. Cooney's Driver's EdThis week Kelly and Katai read "Driver's Ed" by Caroline B. Cooney, the touching story of a pair of teens who steal a stop sign and ruin everyone's life. They talk psychological trauma, cold moms, forgiveness, how Mac is MVP of the book, and just generally gush over Cooney's writing.SUBSCRIBE TO THE TEEN CREEPS PATREON to get bonus episodes like this one, merch, and more:https://www.patreon.com/teencreepsCONNECT W/ TEEN CREEPS:https://twitter.com/teencreepspodhttps://www.instagram.com/teencreepspodhttps...
2022-10-121h 12Andy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (25) Interview with Denise Deegan (Aimee Alexander) about her top selling book on Amazon "Little Book of Irishisms"You're very welcome to our Season One Finale of The New York Irish Hour! I'm going to play some of my favorite tracks I came across these past 8 months doing this show. I'm also featuring a couple of brand new artists to The New York Irish Hour like Sinead Black, Caitlin and Ciaran and the debut single from our New York local favorites Susan & Gerard... I also caught up with Denise Deegan (Aimee Alexander) about her top selling book on Amazon "Little Book of Irishisms"! Thank you all for your support and I hope enjoyed... AndyPart 1: Sinea...
2021-10-3058 minAndy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (19)You're very welcome to The NY Irish Hour. This episode features some artist new to my show; from Canada, The Irish Descendants, Mac & O from Tipperary, Kevin McKrell from New York, Davey Arthur and The Fury Brothers, Gaelic Storm and sad farewell to Nanci Griffith. I also featured new singles from Bernie Heaney & David James. Enjoy....Part 1: The Irish Descendants, David James (New Single), Andy Cooney, Derek RyanPart 2: Mac & O, Bernie Heaney (New Single), Kevin McKrell, Davey Arthur & The Fury Brothers (Seamus Pick)Part 3: Gaelic Storm (New Release), Mary O'Dowd, Nathan Carter & Cherish The Lad...
2021-08-2157 minAndy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (16)Lots of new music this episode and new artist to The New York Irish Hour!Part 1 Sean Wilson & Tony Mac, Owen Mac, Derek Ryan, The Young WolfeTones (New Single), Andy CooneyPart 2Dolores Keane, Seamus Kennedy, Ardú (New Single), PJ Murrihy (Seamus Pick), Marie FrancisPart 3Ailish McBride, Nathan Carter, Shane Owens, Kathy Durkin (New Single), Dessie HynesSupport the showSpecial Thanks to All Our Sponsors!Tourism Ireland / Ireland.comIrishCentral.comConnolly StationIrish Music MagazineThe Irish Examiner USA
2021-07-0957 minAndy Cooney's NY Irish Music HourAndy Cooney's New York Irish Hour (14)On this show I have some new artists to the New York Irish Hour, Frank Hennessy with Noel McLoughlin and Denis Carey with The Old Dungarvan Oak, The Druids with their new single, Kate Purcell, Barry Kirwan, Stocktons Wing and Mac & O. Enjoy...Part 1: Stuart Moyles, Frank Hennessy with Noel McLoughlin and Denis Carey, The Druids, Kate PurcellPart 2Barry Kirwan, Alan Kelly, High Kings, Stocktons Wing, Derek RyanPart 3: Michael English, Mac & O, Nathan CarterSupport the showSpecial Thanks to All Our Spon...
2021-06-1950 min2021-04-0114 minAbout IBDPromo: Crohn's VeteranI'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That's why I'm sharing a new IBD podcast with you, called Crohn's Veteran. You can find Crohn's Veteran in any podcast app as well as on Facebook, YouTube, Instagram, and Twitter. The Crohn's Veteran hosts are Jordan McConnell, CJ Cabrera, and Renika Wood, who give their perspective on life with IBD and interview guests from the IBD community. Subscribe to Crohn's Veteran in your favorite podcast app, including Apple...
2020-09-0701 min
About IBDSending Chronically Ill Kids to School, Featuring Dr Brad JersonKids with chronic illness face special issues when going back to school because they're at risk of their accommodations becoming eroded. In particular, children who live with Crohn's disease or ulcerative colitis, might be in danger of not being granted appropriate bathroom access. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children's and an Assistant Professor of Pediatrics at the University of Connecticut School of Medicine. We discuss the worrying behaviors that parents should watch out for in their kids and how we can help kids who...
2020-08-1725 min
About IBDBack to School in a Pandemic With Dr Brad JersonBack to school will be quite different for families across the United States and the world this year. There aren't many answers to be had to our questions, yet we must make decisions with the best information that we have at this time. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children's and an Assistant Professor of Pediatrics at the University of Connecticut School of Medicine about how we can prepare our kids, and ourselves, for the school year. We discuss the behaviors we can model for...
2020-08-1027 minAbout IBDAbout IBD Preview - Crohn's Disease and Ulcerative ColitisWhile everyone who lives with inflammatory bowel disease (Crohn's disease, ulcerative colitis, indeterminate colitis), or IBD, has their own story, there are major themes. Finding someone whose story is similar to yours is both validating and empowering. This is why Amber Tresca, who lives with ulcerative colitis and a j-pouch, developed the About IBD Podcast. IBD is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relationships, finances, and careers. On About IBD, Amber talks to caregivers and people living with IBD to get their stories so that t...
2020-08-0901 min
About IBDThe Footprints Program with Arielle Radin of Gali HealthWhat's in your microbiome and how does it interact with your IBD? The bacteria that's in the gut of someone that lives with IBD is different from the bacteria in the the gut of someone that doesn't have IBD. This is a major area of study because it may help researchers not only in developing new treatments but also in better understanding IBD. That's why I asked Arielle Radin, Director of Clinical Research for Gali Health, to talk to me about the Footprints Program. The Footprints Program is an ambitious research project that is going to sequence poop and...
2020-07-2740 min
About IBDThe Sherman Prize With Dr Dermot McGovernThe Sherman Prize is an award created by Bruce and Cynthia Sherman to recognize those who are making great contributions to the field of research and care in inflammatory bowel disease (IBD). The Sherman family has been touched by IBD and their goal is to create a ripple effect that spreads awareness, fosters innovation, and provides inspiration in the hope that in the future, other families won't have to contend with IBD in the way that theirs has. Dr Dermot McGovern, Professor of Medicine at the David Geffen School of Medicine at the University of California in Los Angeles...
2020-07-0323 min
About IBDFind Those Things That Make You HappyBeing diagnosed with inflammatory bowel disease (Crohn's disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease? It could truly leave you feeling hopeless. But that's not what happened to Jenna Ziegler of The Comical Colon. Not long after her ulcerative colitis diagnosis, her doctor was concerned about her liver test levels. With more testing and a lot of patient empowerment, Jenna now has a presumed diagnosis of primary sclerosing cholangitis, or PSC. She tells how she has fought to get the tests she needed to understand her level of risk, and...
2020-06-2931 min
About IBDYou've Got to Find the Humor in ThingsDo you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with ulcerative colitis in college. After fighting her way back to health after severe flare-ups and carving out the life she wanted for herself, Jenna received another stunning diagnosis: a rare liver condition called primary sclerosing cholangitis, or PSC. Over the years she has done the hard work to learn how to be an empowered patient and she shares her 5 tips on how you can...
2020-06-2228 min
About IBDI Had Contemplated Keeping It a SecretWhat has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you'll likely get your impression about having a stoma from them. But what if that person struggles to accept their stoma? When Amber Wallace Ogle of The Ostomy Diaries was faced with ileostomy surgery to treat her Crohn's disease, she was reminded of the negative experiences of her family members who lived with an ostomy. However, it didn't take long after her surgery before she was embracing life again and working to show others that life with an ostomy...
2020-06-0131 min
About IBDI Evaluated What Was Really Important to MeHow does being diagnosed with a chronic illness affect your path in life? For Mariah Leach, a rheumatoid arthritis diagnosis came out of the blue and put her at a crossroads. She decided to take the road towards patient advocacy. What started as a way to process her feelings and keep family and friends updated about her condition through her writing has evolved into a calling. Today, she has become a tireless advocate for people living with rheumatoid arthritis and as a resource for parents with chronic illness. It's Mariah's goal to ensure no one feels alone in their...
2020-05-1836 min
About IBDI'm Not Doing This By MyselfHow would you answer these questions about your inflammatory bowel disease (IBD)? What is the best part of having IBD? What is the hardest part of your day? What is your least favorite treatment? If you could choose one dance for your doctor, what would it be and why? What is one thing you wish people knew about your condition? Amber answers these questions, posed by Shawntel Bethea of Crohn's & Stuff, for fun and also to get the conversation started about how Crohn's disease and ulcerative colitis affect our lives. Find Shawntel Bethea of Crohn's...
2020-05-0423 min
About IBDTips for Telehealth Appointments During the PandemicTelehealth has become part of our new normal as we practice physical distancing during the COVID-19 pandemic. Several of the barriers that prevented us from being able to see our doctors for an appointment via a telephone call or a video call have now been managed. However, it's still a new way to receive healthcare, and both patients and clinicians are adjusting. Learn from Neilanjan Nandi, MD, gastroenterologist and Associate Professor of Clinical Medicine at Penn Presbyterian Medical Center and the University of Pennsylvania about what patients can do to be ready for their telehealth appointments and what it's...
2020-04-2727 min
About IBDWhat It's Like to Have IBD and COVID-19People living with IBD who have suppressed immune systems because of medication are understandably concerned about their risks surrounding the novel coronavirus and COVID-19. Jamie Horrigan, a medical student and founder of "Sweetened By Nature," lives with Crohn's disease and gastroparesis and was diagnosed with COVID-19. She describes her experiences with symptoms, diagnosis, isolation, and recovery. She also gives some insight on why a common complication of coronaviruses, called a cytokine storm, may be an important factor of COVID-19 for people with IBD. Concepts discussed on this episode: Coronavirus (COVID-19) testing: What you should know (UC...
2020-04-1331 min
About IBDTips on Getting An Infusion During the PandemicWe're living through an usual time and people living with Crohn's disease or ulcerative colitis have many questions about how the pandemic may affect them. IBD experts agree that it's important to continue receiving medications during this time to avoid a flare-up. That might mean traveling to an infusion center, hospital, or doctor's office for treatment. Julie Kennedy of The Semicolon Girl recounts her experience in receiving her infusion of her Crohn's disease medication in the era of COVID-19, including how the procedure was different, and gives her tips on how to make the process go as smoothly as...
2020-04-0120 min
About IBDI Just Needed Something to ChangeThis is the second episode of my series talking to people who live with a permanent ostomy and exploring why they share their stories publicly and what it means to the ostomy community. I connected with Austin Powers on Twitter where he goes by Ostomy Guy. He has a podcast of the same name where he interviews people who live with an ostomy or who have other serious medical conditions. His path to becoming public about his ostomy started unexpectedly when he sat down to write about his disease journey. What started as a vague idea about writing a...
2020-03-2429 min
About IBDI'm Going to Make the Best of ThisOstomy surgery is a life-saving procedure that can improve quality of life, but that doesn't mean it is always easy to accept. Stephanie Hughes founded The Stolen Colon after having surgery to place an ileostomy to treat her Crohn's disease. She's an ostomate, but she's also a writer, a woman, a wife, a mother, and a resource for people in the IBD and the ostomy community. She shares her journey through Crohn's disease and acceptance of her ostomy with me, including what her kids think of her stoma, how she manages issues around privacy, and what happened when a...
2020-03-1724 min
About IBDMy Life Would Never Be the SameFinding meaning in an illness journey can be a catalyst for purpose and hope. Dr Selvi Vasudevan endured severe Crohn's disease that resulted in several surgeries and a relentless series of complications. She was on her chosen path when the disease stole her aspirations and left her without direction. A recommitment to herself and her own healing journey helped her find her purpose again as a healer and prompted her to found Cooking With Crohn's in order to share what she's learned with the IBD community. Information discussed in this episode includes erythrocyte sedimentation rate (sed rate...
2020-02-2530 min
About IBDManaging IBD and a CareerHow does having Crohn's disease or ulcerative colitis have an impact on your career? The symptoms of IBD, as well as the cost, can affect the ability to work in the same way as healthy people. Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about coping with college, first jobs, and career derailment as a result of their disease. Information discussed in this episode includes Clostridium difficile (C diff) Infection, Short-Term Disability Insurance, Colectomy Surgery, J-pouch Surgery, and IBD and the Americans With Disabilities Act. F...
2020-01-2822 min
About IBDReporting from Advances in IBD 2019: Getting Out of the BathroomIn December 2019 I went to Advances in IBD, which is a medical meeting that's focused entirely on Crohn's disease and ulcerative colitis. The understanding that IBD is more than a "bathroom disease" has finally hit home, and attendees (which include healthcare professionals such as nurses, dietitians, gastroenterologists, GI psychologists, and colorectal surgeons) were educated on a variety of topics. In this episode I provide some of the highlights of the meeting including sessions on diet, medication risks, and pregnancy. Articles and information discussed in this episode include a discussion of absolute risk, "Don't Forget that 5-ASAs Also...
2020-01-1415 min
About IBDEpisode 60: Managing IBD Is a Team Sport With Dr Aline CharabatyThis episode is sponsored by AbbVie. How do you think about your connection with your gastroenterologist? The patient/physician relationship is important in managing inflammatory bowel disease. I talk with Dr. Aline Charabaty, Associate Professor of Medicine, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital, and winner of the 2019 Healio Gastroenterology Social Media Influencer Award, about how patients and doctors can better understand one another and better communicate about managing your disease. Find out how doctors can help patients in addition to finding the appropriate treatment for them, including what kinds of questions both...
2019-12-0229 min
About IBDProviding the Best Start for Baby With MotherToBabyCrohn's disease and ulcerative colitis are diseases of young people. Women are often diagnosed during their childbearing years, which means that inflammatory bowel disease (IBD) enters into the equation when considering becoming pregnant. I talk with Beth Kiernan, a Teratogen Information Specialist at MotherToBaby about how women can learn more about how to manage IBD medications before conception, during pregnancy, and while breastfeeding. Get in touch with the experts at Mother to Baby via email, phone (866-626-6847), or text (855-999-3525). Follow them on Facebook, Twitter, Pinterest, LinkedIn, YouTube, and Instagram. Find Amber J Tresca at AboutIBD.co...
2019-11-1927 minAbout IBDDon't Stop the Things That You LoveBeing diagnosed with ulcerative colitis as a child and undergoing j-pouch surgery in high school hasn't slowed Sneha Dave down at all. In fact, it spurred her to found two groups that are focused on bringing young people into the patient advocacy space: the Crohn's and Colitis Young Adults Network (CCYA) and the Health Advocacy Summit (HAS). Learn how Sneha grew the CCYA from its humble start as a newsletter, the opportunities that CCYA and HAS offer to young patients, and Sneha's secret to managing a work/life balance. Find the Health Advocacy Summit at Facebook, Twitter, Instagram...
2019-11-0531 minAbout IBDI Really Don't Think About My Ostomy AnymoreLiving with a permanent ileostomy as a result of Crohn's disease hasn't stopped Ryan Stevens from participating in the sport he loves. He worked his way back from crushing IBD flare-ups and multiple surgeries in order to train for the ultimate triathlon: the IRONMAN. In this second part of Ryan's story, hear what happened to him while on the bike route, why the ostomy may actually provide an advantage, and Amber's unfiltered thoughts on the competitiveness of the triathlon community. Find Ryan Stevens of IBD Swimming & Me at Facebook, Twitter, and Instagram. Find Amber J Tre...
2019-10-2929 minAbout IBDThis Is Still Better Than SurgeryA diagnosis of Crohn's disease and an ileostomy hasn't stopped Ryan Stevens from competing in triathlon races. He swam through high school and college and was sidelined by Crohn's just after falling in love with triathlon. He's worked his way back twice from devastating flare-ups to get back to swim, bike, run, and now to the ultimate race: the IRONMAN. Come with us as we relive the IRONMAN Triathlon in Madison, Wisconsin and discuss how Ryan prepared and competed while living with IBD and a permanent ostomy. Find Ryan Stevens of IBD Swimming & Me, at: Facebook...
2019-10-2228 minAbout IBDYou Have to Take Care of YourselfBeing diagnosed with inflammatory bowel disease (IBD) at any time or at any age is challenging. However, the pre-biologic era was especially difficult because of the lack of treatment options and the absence of some of the legal protections that are in place today. Danielle O'Connor tells her story of being diagnosed with ulcerative colitis at a young age and how she managed her career as a special education teacher through many hospitalizations and surgeries. Concepts discussed in this episode: Family Medical Leave Act (FMLA): https://www.verywellfamily.com/understanding-family-medical-leave-act-4628330 Affordable Care Act (ACA): https://www...
2019-10-0833 minAbout IBDI Would Have Missed the Window for a ChildPeople with IBD are often faced with unexpected challenges that are outside of those being experienced by their peer group. Jen Mcgregor of Crohnie Clothing found herself grappling with questions about her fertility while still in her early 20s. She had to act quickly in order to preserve her ability to have a biological child. Jen tells her personal story of working through the emotional, physical, financial, and even legal aspects of planning for her future fertility. Find Jen Mcgregor of Crohnie Clothing at: Blog: https://crohnieclothing.com/ YouTube: https://www.youtube.com/channel/UCHJBsqBLOFD0...
2019-09-2424 minAbout IBDHe Would Do the Same for Me Caregivers play an important role in the disease journey. For Rebecca Kaplan, whose husband, Dan, lives with Crohn's disease, caregiving has been a large part of her life at times. When she went looking for support for herself as a caregiver, what she found was a need for more resources. She went on to not only create a support space for caregivers but also to take a leadership role in the inflammatory bowel disease community that benefits everyone who is touched by these diseases. For more information: Sitz Bath Live Vaccines (Measles) Ally Bain a...
2019-09-1032 minAbout IBDSummer of Activism: Connecting the Numbers to a StoryIn the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn's and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy. See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/cc...
2019-08-2716 minAbout IBDSummer of Activism: It's Now or NeverIf you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a right to attend a day on the hill event with the Crohn's and Colitis Foundation and lobby in Washington DC on behalf of the IBD community. Her experiences while she was on the hill helped her to understand that not only did she have the right, but she also had a responsibility to tell her story — and the stories of others living with IBD. Learn how Ke...
2019-08-1928 minAbout IBDSummer of Activism: Have Your Voice Heard on the HillThe inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back control and have your voice heard by those who can help affect change. Hear from Jaime Holland of Pretty Rotten Guts, who describes her experiences in lobbying on Capital Hill including why it's important to her, how she navigates the day with mobility issues, and why the experience is empowering. Download your FREE copy of the new single, "IBD Dance Party," by signing up for...
2019-08-1317 minAbout IBDSummer of Activism: Attending Day on the HillHow does an IBD patient attend Day on the Hill events and meet with the offices of congressional representatives in Washington DC? What is it like to go to these events? In this episode I describe how I got involved in hill day meetings, why I do it, and what the process is like to attend. I also offer you my tips on how to make the best of the time spent in the capital in order to make the biggest impact on the people who can affect change in the lives of IBD patients. How to Get Involved: Crohn's an...
2019-07-3016 minAbout IBDSummer of Activism: Getting Kids Involved in ActivismHow young is "too young" to get kids involved in activism? Gastroenterologist and activist Dr Meenakshi Bewtra started her kids on their activism journey at birth and continues by bringing them to marches, voter registration events, and postcard writing parties. Dr Bewtra shares her tips on how you can involve your kids in activism, why you should, and how it might make your life as a parent — and activist — a bit easier. Find Meenakshi Bewtra, MD, MPH at: Twitter: https://twitter.com/DrsMeena Penn Medicine: https://www.pennmedicine.org/providers/profile/meenakshi-bewtra Find Amber J Tresca of Abou...
2019-07-2325 minAbout IBDSummer of Activism: Attending a Town HallWorking with our local elected officials is important to having our voices heard. But attending local town hall meetings held by state or federal congressional representatives is daunting, especially if you've never done it before. Shawntel Bethea of Chronically Strong describes her journey from sending an email to asking for support from her Congresswoman at a meeting in her district. She gives her tips on how you can make an impact in your community for people living with IBD. Find Shawntel Bethea of Chronically Strong, at: Blog: https://chronicallystrong.com/ YouTube: https://www.youtube.com/channel...
2019-07-1613 minAbout IBDWhere Do We Go From Here?What's new in inflammatory bowel disease (IBD) treatments and what's next on the horizon? Dr Peter Higgins, a gastroenterologist, IBD specialist, and researcher at the University of Michigan discusses what's new in IBD from the Crohn's and Colitis Congress meeting in 2019. We talk fecal transplants, healing strictures in the intestines, and the feasibility of custom ostomy products. It's a conversation about cutting edge research on Crohn's disease and ulcerative colitis mixed with the practicality of using these treatments in the real world. Concepts and ideas discussed: Fecal transplants: https://www.verywellhealth.com/fecal-bacteriotherapy-fb-1942426 Stem cells for IBD: https://ww...
2019-06-2425 minAbout IBDPrincesses Poop TooDoes having inflammatory bowel disease (IBD) make you feel like a princess? Crohn's disease and ulcerative colitis are not only painful, serious conditions, but they also carry stigma which leads to patients feeling isolated. Sophia Vicari, the founder of The Princess Promise, is creating a community that challenges the perception society has about digestive disease. Diagnosed with ulcerative colitis while in college, it didn't take long before Sophia decided she needed to work to help others in the IBD community become more comfortable talking about poop. Hear Sophia's disease journey, what it was like for her to be Miss Camden...
2019-06-1138 minAbout IBDWe Still Don't Know What HappenedEvery person that lives with Crohn's disease or ulcerative colitis in the United States knows the challenges of dealing with health insurance companies. Denials of service are common, particularly when diagnostic tests are ordered or when a new drug is prescribed. A change in insurance carrier, which can come after a life event (such as getting married or changing jobs) or at the start of the calendar year is another time when patients may find themselves in the appeal process in order to get needed tests or medication. For Jaime Holland, a life change, an insurance change, a calendar...
2019-05-2137 min
About IBDWe Are Not Unique With Christy Stone of Crohnie BolognaAre you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she's not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate. Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
2018-02-0638 min
Music of Mac CooneyOculi OmniumMy setting of the communion antiphon for the 12th Sunday in ordinary time.
Psalm 145 (144): 15
Oculi omnium in te sperant, Domine,
et tu das illis escam in tempore oportuno.
The eyes of all look to you, Lord,
and you give them their food in due season.
Performed by the St. Cecilia Consort during Vespers II
2017-06-2602 min
2017-01-0501 min
Music of Mac CooneyWhere They TurnEnd credit music for the documentary about helping veterans.
Watch the film online: http://ctmirror.org/?p=809818
2014-08-0601 min
Music of Mac CooneyRiding for NepalMusic for a promotional slide show for team dZi. More info about the charity and the team: https://www.endlessascent.org/team.php
2014-06-1101 min