Shows
The Caregiver's JourneyWhen To Call In Hospice: Four Essential Tips / Alzheimer’s and Other DementiasAs caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that there are many misconceptions about hospice care. Today, we're joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they've developed four essential tips to help you navigate this important transition in your caregiving journey.
Connect with us and share your tips:
Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan...
2025-02-2527 min
The Caregiver's JourneyWhen To Call In Hospice: Four Essential Tips / Alzheimer’s and Other DementiasAs caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that there are many misconceptions about hospice care. Today, we're joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they've developed four essential tips to help you navigate this important transition in your caregiving journey. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com...
2025-02-2527 min
The Whole Care NetworkQuality Care is the Goal at Residential Hospice HomesMy guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving
https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes
Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.
Susan has a passion for serving hospice and palliative care patients...
2024-10-2048 min
The Heart of Hospice PodcastQuality Care is the Goal at Residential Hospice HomesMy guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregiving
https://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes
Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a hospice home, and why she stays in this industry.
Susan has a passion for serving hospice and palliative car...
2024-10-1148 min
The Whole Care NetworkGrief Coach Shelby Forsythia on How to Grow Through Grief, Part 1Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
Website...
2024-08-2544 min
The Heart of Hospice PodcastGrief Coach Shelby Forsythia on How to Grow Through Grief, Part 1Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her book Your Grief, Your Way.
Connect with Shelby Forsythia:
2024-08-1644 min
The Whole Care NetworkHow to Navigate the Dementia Journey With CompassionDementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.
Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host...
2024-08-1057 min
The Heart of Hospice PodcastHow to Navigate the Dementia Journey With CompassionDementia practitioner Mary Anne Oglesby-Sutherly is on a mission to transform the landscape of dementia care. As co-founder of Veranda Ministries, a 501(c)3, Mary Anne has spent two decades telling the stories of people dealing with dementia. Supporting dementia caregivers is her gift, and helping them to remember their person’s legacy is a top priority.
Mary Anne got her start as a family practice nurse, and is now a Certified Dementia Practitioner as well as holding a triple certification as a PAC trainer, consultant, and coach in Teepa Snow’s “Positive Approach to Care” (PAC). As the host of t...
2024-08-0957 min
The Whole Care NetworkOccupational Therapists are an Important Part of Hospice CareWelcome to Season 9 of The Heart of Hospice Podcast! Occupational Therapists Emilia Bourland and Dr. Brandy Archie are sharing how OTs can improve the quality of life for patients and caregivers on hospice care. OTs are underutilized in end-of-life care, but they’re an essential part of the hospice interdisciplinary team.
There’s a lot of support OTs can offer to make caregiving tasks easier, practical solutions to everyday issues for activities of daily living. Occupational Therapy interventions can include managing equipment, setting up meals, and transfer techniques. It’s about problem-solving to make caregiving tasks easier and pr...
2024-08-0252 min
The Whole Care NetworkHelping End of Life Professionals Fill Their CupErin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitigate burnout, enabling the teams to continue providing care for those who are dying.
Erin understands grief, loss, and the importance of caring for ourselves as we care for others. Erin lived her whole life in a state of anticipatory grief for the loss of h...
2024-07-2858 min
The Heart of Hospice PodcastHelping End of Life Professionals Fill Their CupErin Whalen, founder of Compassionate Coaching, is working to help end of life and grief professionals love their work again. Using her unique gifts, Erin and the Compassionate Coaching theater troop employ “playback theater” to develop engaging programming that centers around giving and receiving empathy. They work with end of life teams to mitigate burnout, enabling the teams to continue providing care for those who are dying.
Erin understands grief, loss, and the importance of caring for ourselves as we care for others. Erin lived her whole life in a state of anticipatory grief for the loss of her...
2024-07-2658 min
The Whole Care NetworkWhat You Need to Know About Hospice Medications with Pharmacist Ellen FulpPharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunderstand how medication is used in hospice care. Ellen believes in symptom resolution, keeping the patient’s goals of care in mind.
In hospice care, pharmacists do more than just review medications for side effects or adverse effects. They help the clinical team find the...
2024-07-2051 min
The Heart of Hospice PodcastWhat You Need to Know About Hospice Medications withPharmacist Ellen FulpPharmacist Ellen Fulp is passionate about using medications appropriately to care for patients who are at their most vulnerable. As a part of the hospice interdisciplinary team, Ellen collaborates with the hospice director and nurse to ensure quality of life is supported, and a patient’s suffering is reduced. Caregivers and patients often misunderstand how medication is used in hospice care. Ellen believes in symptom resolution, keeping the patient’s goals of care in mind.
In hospice care, pharmacists do more than just review medications for side effects or adverse effects. They help the clinical team find the best m...
2024-07-1951 min
The Whole Care NetworkWhat You Need to Know About Finding Your Grief StyleFuneral director and author Jodi Clock knows personally how each person finds a grief style that’s the best, healthy fit for themselves. As host of the “I Woke Up Dead - Now What?” podcast, Jodi is having conversations about our common experiences with death, shares best practices, and asks the tough questions in order to prepare for end-of-life realities we all will face.
Jodi learned valuable life lessons about grief and loss after experiencing the death of both her parents when Jodi was in her 20’s. As a funeral director, she’s seen all the aspects of grief a...
2024-07-1352 min
The Whole Care NetworkHow to Have the Hard Conversations Before the Hard Things HappenHospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunteer, a Meditation Teacher, and an Active Travel Guide. She has been at the bedside of many as they transition through the dying process and cares very deeply about this topic.
On the Befriending Death website, Eileen writes that “if we have conversations ab...
2024-07-1154 min
The Heart of Hospice PodcastHow to Have the Hard Conversations Before the Hard Things HappenHospice nurse Eileen Spillane of Befriending Death has learned to be comfortable with the uncomfortable. Eileen is the Founder of Befriending Death and has been a Registered Nurse for over thirty years, specializing in Oncology, Critical Care, and Obstetrics. She is a certified Life Coach from New Ventures West, a former Zen Hospice Project Volunteer, a Meditation Teacher, and an Active Travel Guide. She has been at the bedside of many as they transition through the dying process and cares very deeply about this topic.
On the Befriending Death website, Eileen writes that “if we have conversations abou...
2024-07-0554 min
The Whole Care NetworkWhat You Need to Know About Integrative Palliative Care“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Ddr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole person.
Dr. Delia Chiaramonte is a caregiver coach as well as an integrative palliative medicine physician. She’s the founder of the Integrative Palliative Institute and host of The Integrative Palliative Podcast. Dr. Chiaramonte is an adjunct...
2024-06-301h 00
The Heart of Hospice PodcastWhat You Need to Know About Integrative Palliative Care“What do I need to know about you as a person to take the best care of you?” This is how integrative palliative medicine physician Dr. Delia Chiaramonte starts conversations with her patients. It’s a Dignity Question that lets her patients know she cares about them as a person. Delia works in integrative palliative medicine to care for the whole person.
Dr. Delia Chiaramonte is a caregiver coach as well as an integrative palliative medicine physician. She’s the founder of the Integrative Palliative Institute and host of The Integrative Palliative Podcast. Dr. Chiaramonte is an adjunct ass...
2024-06-281h 00
The Whole Care NetworkEnd of Life Doula Provides Beautiful Family-Involved Home FuneralsEnd of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death.
After working in the corporate world, Trina was drawn to the work of an end of life doula. She volunteered at a hospice agency with their bereavement program, and completed training at the Conscious Dying Institute. The deep and meaningful conversations had great meaning for her. She was fascinated by how individual people...
2024-06-2454 min
The Whole Care NetworkRevolutionary Advocacy for Military Veterans at End of LifeToday’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers.
1 in 4 Medicare hospice patients is a U.S. military veteran - a quarter of the Medicare hospice population. Those veterans have special needs when it comes to the end of their lives. Qwynn recognizes the importance of identifying moral injury, a history of combat se...
2024-06-2456 min
The Heart of Hospice PodcastEnd of Life Doula Provides Beautiful Family-Involved Home FuneralsEnd of Life Doula Trina Wacasey works to ensure that clients and families have the kind of personalized death care they want. Using family-guided care customized to fit their beliefs, needs, and wants, Trina guides caregivers through deaths, post-mortem care, and rituals after death.
After working in the corporate world, Trina was drawn to the work of an end of life doula. She volunteered at a hospice agency with their bereavement program, and completed training at the Conscious Dying Institute. The deep and meaningful conversations had great meaning for her. She was fascinated by how individual people feel a...
2024-06-2154 min
The Heart of Hospice PodcastRevolutionary Advocacy for Military Veterans at End of LifeToday’s guest Dr. Qwynn Galloway-Salazar is a Veteran, death doula, compassionate educator, and the founder of In Their Honor, a national initiative raising awareness and addressing Veterans' unique challenges as they approach the end of life. Qwynn is also the spouse of a combat veteran and understands the role of veteran caregivers.
1 in 4 Medicare hospice patients is a U.S. military veteran - a quarter of the Medicare hospice population. Those veterans have special needs when it comes to the end of their lives. Qwynn recognizes the importance of identifying moral injury, a history of combat service...
2024-06-1456 min
The Whole Care NetworkLearning the Truth About Autism and GriefDr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavement.
Alex Lamorie is an undergraduate student at the University of Maryland Global Campus and an autism advocate. He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. Alex's expressive grief artwork was featured in 2021 in th...
2024-06-1241 min
The Heart of Hospice PodcastLearning the Truth About Autism and GriefDr. Kenneth Doka and Alex Lamorie of the Hospice Foundation of America’s Autism and Grief Project are advocates for people with autism. Dr. Doka is a prolific author, editor, and lecturer, past president of the Association for Death Education and Counseling, and a member and past chair of the International Work Group on Death, Dying, and Bereavement.
Alex Lamorie is an undergraduate student at the University of Maryland Global Campus and an autism advocate. He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. Alex's expressive grief artwork was featured in 2021 in the te...
2024-06-0741 min
Dare To Do Nursing DifferentlyNURSE ENTREPRENEUR SPOTLIGHT FEATURING NANCY HEYERMAN & BRENDA KIZZIRENURSE ENTREPRENEUR SPOTLIGHT: FEATURING NANCY HEYERMAN & BRENDA KIZZIRE
Nancy Heyerman and Brenda Kizzire are both RNs with certification in hospice and palliative care: CHPN. They have a combined experience in hospice care of over 45 years. They continue to work full time at the beside as hospice case manager nurses while building their business, Odonata Care.
Their mission is to transform the end of life experience through education and support. As their company has evolved they have adopted the motto they share and provide every day to their patients, families...
2024-06-0629 min
The Whole Care NetworkThe Remarkable Story of Humanist Chaplain D.S. MossDevin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs. He doesn’t believe in God. Turns out the Zen Master didn’t believe in God, either.
Despite a religious upbringing, Devin embraces nontheistic, or humanist, beliefs. His sense of exploration led him to...
2024-06-0459 min
The Heart of Hospice PodcastThe Remarkable Story of Humanist Chaplain D.S. MossDevin (D.S.) Moss brings a sense of reverence for life and a curiosity about death to his work as a chaplain. During a conversation with a Zen Master about Buddhist beliefs about the afterlife, the suggestion was made to him that he would make a good chaplain. Devin didn’t think he could do the work of spiritual care because of his humanist beliefs. He doesn’t believe in God. Turns out the Zen Master didn’t believe in God, either.
Despite a religious upbringing, Devin embraces nontheistic, or humanist, beliefs. His sense of exploration led him to atte...
2024-05-3159 min
The Whole Care NetworkHow to Provide LGBTQ Inclusive Care From Kimberly AcquavivaThe story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where they lived had LGBTQ - inclusive non-discrimination statements. Both Kathy and Kim were determined not to settle for anything less than the best care. They made the decision not to use hospice.
In this interview, Kimberly shares the detail...
2024-04-0453 min
The Heart of Hospice PodcastHow to Provide LGBTQ Inclusive Care From Kimberly AcquavivaThe story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where they lived had LGBTQ - inclusive non-discrimination statements. Both Kathy and Kim were determined not to settle for anything less than the best care. They made the decision not to use hospice.
In this interview, Kimberly shares the details of t...
2024-03-2953 min
The Whole Care NetworkHow a State Senator Improved Hospice Care in Her Home StateSenator Meg Kappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state.
Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are. As a caregiver along with her siblings, Meg experienced all the nuances of caregiving for her mom. Her mom chose hospice care when her ovarian cancer grew beyond treatment. Meg advocated for her mother...
2024-03-2656 min
The Heart of Hospice PodcastHow a State Senator Improved Hospice Care in Her Home StateSenator Meg Cappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state.
Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are. As a caregiver along with her siblings, Meg experienced all the nuances of caregiving for her mom. Her mom chose hospice care when her ovarian cancer grew beyond treatment. Meg advocated for her mother and...
2024-03-2256 min
The Heart of Hospice PodcastHelp Texts Offers Expert Grief Support With Text MessagesSupporting people who are grieving is fulfilling, joyful work. Just ask Help Texts founder Emma Payne. After having a personal loss, Emma realized how much we could improve how we support grievers. She’d spent years working in the tech space. That knowledge helped launch Help Texts. Their service provides grief support for events like pregnancy loss, pet loss, and death of a loved one.
The needs of grievers came into sharp focus for Emma when she was asked to deliver a eulogy for a close friend, ten years after the loss of her husband by suicide. The funer...
2024-03-1552 min
The Whole Care NetworkHow to Improve Patient Care With Pastoral Thanatolgist Joelle JohnsJoelle Johns believes telling people they’re dying allows them to say their goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). She also holds a certificate in Death Midwifery.
As a pastoral thanatologist, Joelle supports those dying and those grieving, coaching them in healthy psychospiritual habits. Advance care plan conversations are also part of her work. Joelle’s seen the impact of avoiding those disc...
2024-03-1459 min
The Heart of Hospice PodcastHow to Improve Patient Care With Pastoral Thanatologist Joelle JohnsJoelle Johns believes telling people they’re dying gives them an opportunity to say the goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). She also holds a certificate in Death Midwifery.
As a pastoral thanatologist, Joelle supports those dying and those grieving, coaching them in healthy psychospiritual habits. Advance care plan conversations are also part of her work. Joelle’s seen the impact of avoiding t...
2024-03-0859 min
The Whole Care NetworkLife Experiences Offer Opportunities for Death Doula Jo-Anne HaunDeath Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a little fun into a discussion about end of life wishes is a gentle lead-in to deeper conversations about dying and death.
You can connect with Jo-Anne Haun at eola.ca.
Find Death Doula Network International at ddnint.co...
2024-03-0555 min
The Heart of Hospice PodcastLife Experiences Offer Opportunities for Death Doula Jo-Anne HaunDeath Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a little fun into a discussion about end of life wishes is a gentle lead-in to deeper conversations about dying and death.
You can connect with Jo-Anne Haun at eola.ca.
Find Death Doula Network International at ddnint.com. ...
2024-03-0155 min
The Whole Care NetworkA Doula's Guide to End of Life Planning with Francesca ArnoldyDeath literacy advocate and Community Doula Francesca Arnoldy is sharing the role of a death doula and how to support someone through a time of intensity. She’s the author of The Death Doula's Guide to Living Fully and Dying Prepared, a workbook that offers the opportunity to explore mortality and end-of-life care planning. In her work as an end-of-life doula, Francesca focuses on end-of-life planning conversations. She’s seen the benefits of exploring those EOL wishes, freeing us to live more fully and recognize the opportunities in the time that’s left.
Francesca recognizes the value of convers...
2024-02-2859 min
The Heart of Hospice PodcastFrancesca Arnoldy Is A Guide For End Of Life PlanningDeath literacy advocate and Community Doula Francesca Arnoldy is sharing the role of a death doula and how to support someone through a time of intensity. She’s the author of The Death Doula's Guide to Living Fully and Dying Prepared, a workbook that offers the opportunity to explore mortality and end-of-life care planning. In her work as an end of life doula, Francesca focuses on end of life planning conversations. She’s seen the benefits of exploring those EOL wishes, freeing us to live more fully and recognize the opportunities in the time that’s left.
Francesca reco...
2024-02-2359 min
The Whole Care NetworkBarbara Karnes on How to Care for a Person With DementiaAward-winning End of Life Educator Barbara Karnes takes a deep dive into the unique challenges of caring for someone with dementia at end of life. Caregivers often find their responsibilities accumulating over time as the disease trajectory continues. They’re forced to live in the present, to see their loved one as who they are today. The goal is to bring joy and quality of life to a beloved today, in this moment.
Hospice care for a person with end stage dementia can be tricky. The timing of the admission is often difficult to determine, and patients ar...
2024-02-2146 min
The Heart of Hospice PodcastBarbara Karnes on How to Care for a Person With DementiaAward-winning End of Life Educator Barbara Karnes takes a deep dive into the unique challenges of caring for someone with dementia at end of life. Caregivers often find their responsibilities accumulating over time as the disease trajectory continues. They’re forced to live in the present, to see their loved one as who they are today. The goal is to bring joy and quality of life to a beloved today, in this moment.
Hospice care for a person with end stage dementia can be tricky. The timing of the admission is often difficult to determine, and patients are oft...
2024-02-1646 min
The Whole Care NetworkValuable Lessons Learned From a Mom Who Lost a Child*Trigger warning - this episode contains a description of an intense death event and the death of a child. Please make space for your self care if you find the topic overwhelming.
Juli Henderson has turned the loss of her son into meaningful advocacy, sharing her wisdom with other caregivers. Juli and her husband Chris were the parents of a son, Robert. Robert had a rare mitochondrial disorder. Genetic testing revealed that he had a gene alteration that predisposed him to seizures and developmental disorders. Robert’s disease was progressive, and he was eventually diagnosed with cerebral pa...
2024-02-1459 min
The Heart of Hospice PodcastValuable Lessons Learned From a Mom Who Lost a Child*Trigger warning - this episode contains a description of an intense death event and the death of a child. Please make space for your self care if you find the topic overwhelming.
Juli Henderson has turned the loss of her son into meaningful advocacy, sharing her wisdom with other caregivers. Juli and her husband Chris were the parents of a son, Robert. Robert had a rare mitochondrial disorder. Genetic testing revealed that he had a gene alteration that predisposed him to seizures and developmental disorders. Robert’s disease was progressive, and he was eventually diagnosed with cerebral palsy...
2024-02-0959 min
The Whole Care NetworkDr. Karen Wyatt Shares a Physician's Perspective on Hospice and HealthcareHospice physician Dr. Karen Wyatt wants people to get comfortable thinking about death, and have time to plan for the end of their lives. Karen is the host of the End of Life University podcast and author of 7 Lessons for Living from the Dying. She’s considered a thought leader in end of life care. We talked about lots of topics related to hospice in this great conversation, including trends in the industry, advance care planning, and how bedside hospice professionals are giving their best to patients and caregivers.
Listen to the End of Life University podcast he...
2024-02-0758 min
The Heart of Hospice PodcastDr. Karen Wyatt Shares a Physician's Perspective on Hospice and HealthcareHospice physician Dr. Karen Wyatt wants people to get comfortable thinking about death, and have time to plan for the end of their lives. Karen is the host of the End of Life University podcast and author of 7 Lessons for Living from the Dying. She’s considered a thought leader in end of life care. We talked about lots of topics related to hospice in this great conversation, including trends in the industry, advance care planning, and how bedside hospice professionals are giving their best to patients and caregivers.
Listen to the End of Life University podcast here.
2024-02-0258 min
The Whole Care NetworkDoula Karen Hendrickson Shares Her Powerful Story of Grief as a Teen*Trigger warning - this episode contains a description of an intense death event. Please make space for your self care if you find the topic overwhelming.
Death doula Karen Hendrickson’s brother died suddenly when she was sixteen years old. That event became a lifelong lesson in death and dying, grief, and how to support teens during a loss.
As co-founder of Death Doula Network International, Karen Hendrickson specializes in end of life planning and education. As a death doula, she provides grief support and guidance for those who are dying and their caregivers. In he...
2024-01-3158 min
The Heart of Hospice PodcastDoula Karen Hendrickson Shares Her Powerful Story of Grief as a Teen*Trigger warning - this episode contains a description of an intense death event. Please make space for your self care if you find the topic overwhelming.
Death doula Karen Hendrickson’s brother died suddenly when she was sixteen years old. That event became a lifelong lesson in death and dying, grief, and how to support teens during a loss.
As co-founder of Death Doula Network International, Karen Hendrickson specializes in end of life planning and education. As a death doula, she provides grief support and guidance for those who are dying and their caregivers. In her pers...
2024-01-2658 min
The Heart of Hospice PodcastWhat You Need to Know About Creating Connections in Dementia with MusicTara Jenkins, founder of Harmony in Dementia, is connecting patients and caregivers with meaningful music one song at a time. As a Board Certified Music Therapist (MT-BC), Tara knows the power of music for reaching those patients dealing with Alzheimer’s and dementia. She knows it takes a team of people to care for someone with dementia, working in harmony to provide quality of life. That’s where the name of her company, Harmony in Dementia, comes in. Tara trains volunteers and caregivers to utilize music in care, and reap those benefits for patients. She teaches that music experiences aren’t u...
2023-10-2752 min
The Whole Care NetworkA Death Doula Offers Pracital Help at End of LifeAn End of Life Doula is a great source of support for someone as they die, and for families after the death has occurred. Anna Adams, End of Life Doula and founder of International Doula Life Movement believes everyone should have a doula. Through vigils, education, rituals, and compassionate presence, doulas help dispel the fear that can come during a death. When someone is dying, an End of Life Doula can offer individualized support that’s a good fit for the patient and caregiver. While the dying process can be very similar for most people, each person’s labor of d...
2023-10-2347 min
The Heart of Hospice PodcastDeath Doulas Offer Powerful Support During Death and BereavementAn End of Life Doula is a great source of support for someone as they die, and for families after the death has occurred. Anna Adams, End of Life Doula and founder of International Doula Life Movement believes everyone should have a doula. Through vigils, education, rituals, and compassionate presence, doulas help dispel the fear that can come during a death. When someone is dying, an End of Life Doula can offer individualized support that’s a good fit for the patient and caregiver. While the dying process can be very similar for most people, each person’s labor of dying...
2023-10-2047 min
The Heart of Hospice PodcastEnd of Life Doulas Specialize in Advance Care PlanningEnd of Life Doulas are experts in managing advance care planning conversations. EOL Doula Pam Carter of International Doula Life Movement knows how to get those discussions going. As an EOL Doula, Pam works with people with serious illness and their families to determine their end of life wishes. Choices are often made by weighing benefit vs burden. That means considering questions like “What will I get out of this? Is this what I want to do?”, “Is this something that contributes to my quality of life?”, or “If I spend my time like this, what will it take from me?”, and “...
2023-10-1351 min
The Heart of Hospice PodcastGet to Know the Special Work of a Death DoulaAnna Adams, death doula and founder of International Doula Life Movement, is educating her community about how doulas support patients and families dealing with serious illness. She’s been a volunteer, a CNA, and now she’s working with hospice agencies as a death doula. Doulas bring a special set of skills to the care of hospice patients. They support, educate, and guide patients (and caregivers) through the experiences at the end of life. Doulas are also part of advance care planning conversations.
Exploring spiritual beliefs and rituals are part of doula work as well. Doulas help those who a...
2023-10-0649 min
The Heart of Hospice PodcastHow To Create A Caregiver Team With The Sisterhood Of CareThe Sisterhood of Care is using their superpowers to create a caregiving team. Their podcast, Confessions of a Reluctant Caregiver, is a safe space for anyone who has a role as a caregiver for someone they love.
The three sisters - JJ, Natalie, and Emilie - have created a caregiver village to support their mom, who lives with Parkinson’s disease. The journey hasn’t been easy. They’ve learned a lot about themselves, and how to bring their best skills to the care of their mom. As caregivers, the women know the value of humor and offer each o...
2023-09-2959 min
The Heart of Hospice PodcastWhat You Need To Know About Caregiving: A Conversation With Amy Goyer Of AARPAmy Goyer knows a few things about caregiving. Her journey as a family caregiver began early in her 20’s, caring for great-grandparents, and then each generation after. She holds a bachelor's degree in music therapy, and has held multiple positions of advocacy for older adults, children, and families. Amy is also a Certified Aging-in-Place Specialist (CAPS). Through the years she’s balanced caregiving responsibilities and roles with her personal and professional life. Amy currently serves as AARP’s national Family and Caregiving Expert.
Amy’s learned lessons about caring for others and caring for herself at the same time. Car...
2023-09-2257 min
The Whole Care NetworkMaking End of Life Care Better with Dr. Sammy WinemakerDr. Sammy Winemaker is starting a social healthcare revolution with The Waiting Room Revolution podcast. On The Waiting Room Revolution podcast, Sammy is having insightful conversations about palliative care, advance care planning, and change-making for end-of-life care with co-host Dr. Hsien Seow. Sammy is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to healthcare professionals.
Here’s what The Waiting Room Revolution website says about their mission: They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experi...
2023-09-151h 02
The Heart of Hospice PodcastMaking End of Life Care Better with Dr. Sammy Winemaker, Epi. 176Dr. Sammy Winemaker is starting a social healthcare revolution with The Waiting Room Revolution podcast. On The Waiting Room Revolution podcast, Sammy is having insightful conversations about palliative care, advance care planning, and change-making for end-of-life care with co-host Dr. Hsien Seow. Sammy is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to healthcare professionals.
Here’s what The Waiting Room Revolution website says about their mission: They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experi...
2023-09-151h 02
The Whole Care NetworkFive Wishes Empowers the Heart of Advance Care PlanningJoanne Eason, President of Five Wishes, knows it’s important to document our end of life wishes so our voices are heard when we can’t speak for ourselves. Five Wishes was established over 25 years ago through a series of listening tours, asking people what was important to them. From those results, the Five Wishes document was formed with guidance from the American Bar Association and other palliative care providers across the U.S. It's designed for individuals to use when sitting down with their families, a tool for talking about what’s important to the person.
Five W...
2023-09-1251 min
The Heart of Hospice PodcastHow to Use Five Wishes to Make Your End of Life Wishes HeardJoanne Eason, President of Five Wishes, knows it’s important to document our end of life wishes so our voices are heard when we can’t speak for ourselves. Five Wishes was established over 25 years ago through a series of listening tours, asking people what was important to them. From those results, the Five Wishes document was formed with guidance from the American Bar Association and other palliative care providers across the U.S. It's designed for individuals to use when sitting down with their families, a tool for talking about what’s important to the person.
Five Wishes...
2023-09-0851 min
The Heart of Hospice PodcastHome Funeral Director Glenda Villegas Educates About Home FuneralsHome funeral director Glenda Villegas helps families to create meaning with home funerals.
After learning valuable lessons about what it’s like to plan a funeral for the unexpected loss of a loved one, Glenda started a career working in the funeral industry. She first worked in pre-need cemetery sales, then moved on to family services where she learned how to serve families at death. During these years, Glenda learned the funeral industry inside and out. She realized her path led to providing home funerals for families after a death. Her desire to serve families through education about l...
2023-09-0154 min
The Heart of Hospice PodcastSociavi is a Revolutionary Device to Keep Older Adults ConnectedSociavi founder Paula Muller realized the need to keep her mother connected with all the activities of her family living internationally. That need planted the seed for the Sociavi device. #senioradult #cognitivedecline #dementiacaregiver
https://theheartofhospice.libsyn.com/sociavi-is-a-revolutionary-device-keeping-older-adults-connected
The name Sociavi comes from the Latin word “share” and “unite”, demonstrating their mission of keeping seniors and their families closer together despite cognitive decline. Certified in Alzheimer’s and Dementia Care, Paula used her knowledge of cognitive decline to design the features of the Sociavi device. She refers to it as a “picture frame”, avoiding a technology label...
2023-08-2543 min
The Heart of Hospice PodcastMy Modern Tribute Helps You Tell Your Life StoryToday’s guest is Sarah Turner, CEO and founder of My Modern Tribute. They’re writing life tributes that provide opportunities to celebrate and honor a life while we’re still alive.
Over the years, Sarah learned that we all have stories to share. We’re all interconnected by a shared human story. Sarah believes that everyone deserves a space to express their feelings, and understands the importance of empathy and warmth.
My Modern Tribute offers writing services for anyone looking to have a written tribute, featuring any information about their lives that clients wa...
2023-08-1846 min
The Whole Care NetworkMelanie McMillion Finds Meaning After Decades of Working in HospiceMelanie McMillion has found meaning in her decades working as a hospice counselor and community educator. Melanie is a Licensed Mental Health Counselor, and has worn a lot of hats as a hospice worker. She worked as the Director of Psychosocial Services, leading a 45-person interdisciplinary team of social workers, counselors, and spiritual care counselors to coordinate psychosocial, spiritual, and bereavement services. As a hospice worker, she was an advocate for her team. Educating her community became Melanie’s focus later in her career. Her work in hospice gave Melanie an understanding of how compassion fatigue affects each member of th...
2023-08-1347 min
The Heart of Hospice PodcastMelanie McMillion Finds Meaning After Decades of Working in HospiceMelanie McMillion has found meaning in her decades working as a hospice counselor and community educator. Melanie is a Licensed Mental Health Counselor, and has worn a lot of hats as a hospice worker. She worked as the Director of Psychosocial Services, leading a 45-person interdisciplinary team of social workers, counselors, and spiritual care counselors to coordinate psychosocial, spiritual, and bereavement services. As a hospice worker, she was an advocate for her team. Educating her community became Melanie’s focus later in her career. Her work in hospice gave Melanie an understanding of how compassion fatigue affects each member of th...
2023-08-1147 min
The Whole Care NetworkHospice Nurses Created The Care Plan to Make Caregiving EasierHospice nurses Nancy Heyerman and Brenda Kizzire are on a mission to transform the end-of-life experience through education and support. They know what it takes to be a caregiver for someone with a serious illness. Between them Nancy and Brenda have over 40 years of hospice nursing experience. They’re The Hospice Queens! Like so many hospice nurses in the US, Brenda and Nancy have watched caregivers struggle with providing the best care at home. The two nurses designed the Care Plan booklet to support and educate hospice caregivers, as well as clinicians who were new to the hospice...
2023-04-2855 min
The Heart of Hospice PodcastHospice Nurses Created The Care Plan to Make Caregiving Easier, Episode 156Hospice nurses Nancy Heyerman and Brenda Kizzire are on a mission to transform the end-of-life experience through education and support. They know what it takes to be a caregiver for someone with a serious illness. Between them Nancy and Brenda have over 40 years of hospice nursing experience. They’re The Hospice Queens! Like so many hospice nurses in the US, Brenda and Nancy have watched caregivers struggle with providing the best care at home. The two nurses designed the Care Plan booklet to support and educate hospice caregivers, as well as clinicians who were new to the hospice team. Accordin...
2023-04-281h 51
The Heart of Hospice PodcastHospice Nurses Created The Care Plan to Make Caregiving Easier, Episode 156Hospice nurses Nancy Heyerman and Brenda Kizzire are on a mission to transform the end-of-life experience through education and support. They know what it takes to be a caregiver for someone with a serious illness. Between them Nancy and Brenda have over 40 years of hospice nursing experience. They’re The Hospice Queens! Like so many hospice nurses in the US, Brenda and Nancy have watched caregivers struggle with providing the best care at home. The two nurses designed the Care Plan booklet to support and educate hospice caregivers, as well as clinicians who were new to the hospice...
2023-04-2855 min