Shows
NETWiseNETWise Episode 46: Understanding Neuroendocrine Carcinoma
In this episode of NETWise, we’re diving into one of the more aggressive forms of neuroendocrine cancer: neuroendocrine carcinoma (NEC). While many neuroendocrine tumors are slow-growing and manageable over time, NEC is different—fast-moving and requiring swift, specialized care.We’ll guide you through the essential information about NEC, including:What neuroendocrine carcinoma is and how it differs from other NETsThe diagnostic process: what to expect and how doctors identify this diseaseCurrent treatment options and what patients and caregivers should know
If you or a loved one has recently received an NEC diagnosis, this episode is des...2025-05-2134 minNETWiseManaging the Financial Burden of Neuroendocrine Cancer
This episode is part of a collaboration with the FlaNET Carcinoid Community, focusing on financial toxicity. We explore some of the major costs that can arise throughout the neuroendocrine cancer journey and share guidance on how to find helpful resources.
NET specialists included in this episodeUse our episode infographics to get a visual picture of some of the things we have discussed.
2025-04-2129 minNETWiseRadiopharmaceutical Treatment – FAQs & Insights
When it comes to PRRT (Peptide Receptor Radionuclide Therapy), patients often have big questions and concerns. In this episode, we dive into the most common questions surrounding PRRT and the broader field of radiopharmaceutical treatments for neuroendocrine cancer. This is an exciting field as there is much more research being done into radiopharmaceuticals for neuroendocrine cancer. Tune in as we break down key insights from doctors and researchers to help you better understand this important treatment option.
NET specialists included in this episodeUse our episode infographics to get a visual picture of some of the things...2025-03-1827 minNETWiseNETWise Episode 43: How Could AI Change Neuroendocrine Cancer?
Artificial intelligence (AI) has become a hot topic, making its way into everyday conversations and industries worldwide. While AI technologies have been around for years, recent advancements are accelerating their impact—especially in healthcare. From improving cancer research to enhancing diagnosis and treatment, AI is reshaping the future of medicine. In this episode of NETWise, we dive into how AI is driving progress in neuroendocrine cancer research and explore its potential applications in the clinic. Could AI revolutionize the way NETs are diagnosed and managed? Join us as we uncover the possibilities.To access the NET Clinical Tr...2025-02-2528 minNETWiseNETWise Episode 42: Finding Happiness While Living with Neuroendocrine Cancer
Happiness is something that can be difficult to find in life, no matter what. Having an uncommon cancer can make it infinitely harder. In this episode of NETWise, we’re going to talk about what happiness means, and how cancer can affect the way we think about it. We’ll also talk about the things we all can do to be more resilient.
NET specialists included in this episodeUse our episode infographics to get a visual picture of some of the things we have discussed.
2025-01-2836 minNETWiseNETWise Episode 41: 2024 Year in Review
Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we will bring you into one of our most exciting yearly events: NETRF’s 2024 Neuroendocrine Cancer Research Symposium. You will hear ways the needle has been pushed in each area of research in the past year. We’ll start with advances in basic research and move through the spectrum to finish with updates that have clinical applications.
Click here to download a transcript of this episode.
The...2024-12-1625 minNETWiseNETWise Episode 40: Managing Symptoms of NENs—Updated Episode
In this episode, we’re diving deep into the symptoms caused by functional neuroendocrine tumors (NENs) and, more importantly, how to effectively manage them. Whether you’re navigating symptomatic NETs yourself or supporting someone who is, this conversation will arm you with fresh insights and practical tools to take control. This is a revamped and enriched update of an episode originally released in 2020. A special thank you to Dr. Eric Nakakura for lending his expertise to this valuable update.
Thank you to Maureen Edwards and Cy Ball for sharing their stories. Cy Ball, whose story we heard, passed away. We appr...2024-11-1536 minNETWiseNETWise Episode 39: What Could Immunotherapy Mean for NENs?
Lately, there’s been a lot of talk about immunotherapy, which has transformed treatment for patients with some kinds of cancer. So far, patients with NETs and NECs have largely been excluded from these developments. But there’s hope that the benefits of immunotherapy could one day extend to NENs. In this episode of NETWise, we’re going to explore current research into immunotherapy, and what it might mean for patients.
Daniel M. Halperin, MD, Associate Professor and Vice Chair for Clinical Affairs in the Department of Hematology and Medical Oncology at Emory University
2024-10-1732 minNETWiseNETWise Episode 38: Rural Care
Whether or not a patient has access to care is one of the most important factors in how their cancer journey plays out. It is crucial for timely diagnosis and effective treatment of neuroendocrine neoplasms. And when you live in a rural place, that access can be complicated. We often talk about how important it is to seek out specialized care for NENs – but we don’t often talk about how challenging it can be to access that kind of care. In this episode, we’re going to focus on barriers to care that people in rural areas tend to fac...2024-09-1742 min
The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer expertsEpisode 36: "NEN Treatments: Focus on Immunotherapy" with Dr. Jennifer EadsABOUT THIS EPISODEWhat is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. TOP TEN QUESTIONS ABOUT IMMUNOTHERAPY FOR NENS:What is immunotherapy? How does it work? How does immunotherapy differ from other treatments? When is immunotherapy used? Which neuroendocrine cancers are they used for? What are the various immunotherapy drugs used for neuroendocrine cancer and how do they work? What are immune checkpoint inhi...2024-08-1639 minNETWiseNETWise Episode 37: Uncommon Neuroendocrine Neoplasms (NENs)
Neuroendocrine neoplasms (NENs) can arise in many locations throughout the body; they can grow rapidly; and they can occur under unique circumstances. In this episode of NETWise, we talk through some of the more uncommon locations – and situations – where neuroendocrine neoplasms arise. This episode is devoted to some of those more uncommon situations.Thank you to the NET specialists who helped with this episode:
Will Pegna, MD, is GI medical oncologist and Assistant Professor of Medicine at Oregon Health and Science University in Portland.
2024-07-2228 minNETWiseEpisode 1: What You Need to Know About NETs & NECs – Updated Episode
If you’re new to this show, welcome. You’re in the right place. Maybe you’ve been recently diagnosed, or maybe you’re a longtime patient. Maybe someone you care about has neuroendocrine cancer. In any case, you probably have questions. What exactly is this disease? What is it doing in your body right now? And what should you be doing about it? This series will help you find answers to those questions. We’ll speak with some of the best experts on neuroendocrine tumors from all around the world, and you’ll hear NET patients share their e...2024-06-1642 minNETWiseNETWise Episode 35: Histotripsy
In the past few months, there’s been a lot of buzz in the NET community about histotripsy. This newly-approved procedure holds a lot of promise for treating NETs, and may prove to be even more exciting in the future. In this episode of NETwise, we’re going to tell you everything we know about this new treatment: how it works, how it came to be, and what it means for NET patients. Thank you to Mary Seibert for sharing her NET story.
Experts in this episode:
Osman Ahmed, MD is an interventional radiologist at t...2024-05-1722 minNETWiseNETWise Episode 34: Young Adults Living with NETs: Updated Episode
In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to Dr. Aman Chauhan, a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program and Dr. Jaydira Del Rivero, a medical oncologist and a board-certified endocrinologist at the National Institute of Health, for their help with this episode update.
These patients face a specific set of challenges unique to their age and need particular kinds of help navigating the NET journey. This group of...2024-04-1149 minNETWiseNETWise Episode 33: The Power of Knowing: Mortality & End of Life
When one is diagnosed with an illness, like NETs, mortality can come to the forefront. Even if your NET journey presents a trajectory of being chronic and is stable, it is not uncommon to have thoughts about disease progression and mortality. There is also a lot of stigma and discomfort in talking about end of life. The complex nature of neuroendocrine cancer and the variability in its progression can make it hard to predict outcomes, adding to the uncertainty and difficulty in discussing the topic. There is also power in knowing more about this journey and especially t...2024-02-1436 minNETWiseNETWise Episode 32: Pheos & Paras (updated episode)
Some of the rarest, most complex, and difficult NETs are known as pheochromocytomas and paragangliomas. This is an updated version of an episode that first aired in 2021. A special thank you to Dr. Erik Mittra Chief of Nuclear Medicine and Molecular Imaging at Oregon Health and Science University for his expert assistance with this episode update. This episode update addresses some changes in treated pheos and paras. Between 2018 and 2023, there was an FDA-approved treatment on the market for unresectable, metastatic pheos and paras. This medication was called Azedra. It used similar technology to PRRT, delivering radioactive isotopes to the...2024-01-2233 minNETWiseNETWise Episode 31: 2023 Year in Review
Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we share some of the most important developments in NET research that happened in 2023, and look back on the progress made in the past year. Lastly, we’ll look ahead to new developments on the horizon.
NET experts in this episode:
2023-12-2024 minNETWiseNETWise Episode 30: Understanding Fatigue & NETs
If you’re dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of frustration, stress, and, at times, a feeling of isolation, as it may not be readily apparent to others. Despite its prevalence, fatigue often takes a backseat to the primary cancer concerns. However, delving into the distinct causes of fatigue affecting NET patients and exploring effective strategies to manage it can prove beneficial. In this installment of NETWise, our focus shifts to the often-overlooked aspect of fatigue....2023-11-1535 minNETWiseNETWise Episode 29: Merkel Cell Carcinoma
One of the things that sets neuroendocrine tumors apart from other kinds of cancer is that they can occur almost anywhere in the body. Those different locations — or primary sites — can mean the NET takes on different characteristics, and requires different kinds of treatment. In previous episodes of this show, we’ve talked about lung NETs, pancreatic NETs, small bowel NETs, and gynecological NETs. Today, we’re going to be talking about skin NETs. These are known as Merkel cell carcinomas. Merkel cell carcinoma can be challenging to diagnose and treat, making early detection and medical attention crucial...2023-10-2043 minNETWiseNETWise Episode 28: PRRT Revisited
In this episode, we’re talking in depth about one of the most exciting and widely discussed treatments for NETs: PRRT.This is a revised version of an episode that originally released in 2020. A lot has happened since then in the development of nuclear medicine treatments like PRRT, and we’re excited to bring you information that is updated and current. A special thank you to Dr. Courtney Lawhn Heath, a nuclear radiologist at the University of California, San Francisco for helping to update this NETWise episode.This NETWise podcast discusses Peptide Receptor Radi...2023-09-2533 minNETWiseNETWise Episode 27: NETs & Race
We hear a lot about the need for diversity and inclusion in health care, and we know there is a need for more diversity in NET clinical trials. In looking at the issue of race and medicine there are four major factors that influence health outcomes and that deserve scientific investigation. First, is your genes and your specific ancestry. Second is epigenetics, which is the study of how your behaviors and environment can cause changes that affect the way your genes work. Third, is how you are treated by others, especially how you are treated by health care staff...2023-08-2952 minNETWiseNETWise Episode 26: LungNETs – Updated Episode
This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update.Did you know that about 1 in 4 NETs develop in the lungs?Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health care professional to work with. This special episode of NETWise covers all things Lung NETs.2023-07-2500 minNETWiseNETWise Episode 25: Small Bowel NETs
This is a revised version of an episode that first aired in December of 2020, where we focused on diagnosis and treatment of NETs that start in the most common site: the small intestine.A special thank you to Dr. Mark Lewis for his expert knowledge and help with this special NETWise update.Did you know that 12% of gastrointestinal (GI) NETs are found in the small bowel? The small bowel, or the small intestine, is one of the most common places NETs form. If you are living with a small bowel NET, this episode...2023-04-1937 minNETWiseEpisode 24: Gynecologic NETs
This episode of NETWise expands our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs.
https://netrf.org/wp-content/uploads/2023/03/NETWise-EP-24-Ready5-JB.mp3
After the episode, test your knowledge by taking the LACNETS quiz here
2023-03-1339 minNETWiseEpisode 23: Parenting with NETs
As we end our mini-series about adjusting to the new normal of your life with NETs, we wanted to take an episode to highlight one of the most emotionally challenging situations that might confront a person who is newly diagnosed — learning you have cancer while you are raising children.Parenting is already one of the most challenging and emotionally fraught things anyone can do, and then adding a serious illness on top of it can be downright overwhelming. If this is the situation you find yourself in, we hope this episode will help you to find the st...2023-02-0756 minNETWiseNETs 101: En EspanolThe post NETs 101: En Espanol appeared first on NETRF.
2023-01-2339 minNETWiseEpisode 22: Navigating The New Normal
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.After you’ve listened to the episode, test your NET Knowledge by talking the LACNETS quiz here.
NET expe...2022-12-131h 08NETWiseNETs 101: En Español: Lo que necesitas saber
Nos complace ofrecer este podcast NETs 101 en español.We are pleased to offer this NETs 101 podcast in spanish.
https://netrf.org/wp-content/uploads/2022/11/NETWise-en-Espanol-Ep1-Ready2-1.mp3
https://netrf.org/wp-content/uploads/2022/11/compressed-NETWise-en-Espaol-Ep1-Ready3-WIT.mp3
The post NETs 101: En Español: Lo que necesitas saber appeared first on NETRF.
2022-11-2240 minNETWiseEpisode 21: Adjusting to the New Normal
A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can be an intensely emotional experience and learning to deal with the emotions can be just as difficult, but as important as treating the disease itself. After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...2022-09-2748 min
I Never Knew (INK) But My Dog Did! By Lifecoach Maureen"An Everlasting Tribute to Paris" - Episode 15- Guest Jeannie Buckman discusses the sudden loss of her daughter and raising awareness of NETJoin me today as I speak with Jeannie Buckman, Health & Wellness Coach, founder of eannie B Well and NET Advocate about the sudden heartbreaking loss of her daughter, Paris. Misdiagnosed with Panic and Eating disorders, Paris passed suddeny and Jeannie's family was devastated. She now raises funding and awareness about this rare cancer and advocates for pediatric diagnosing. TO CONTRIBUTE: www.netrf.og/Paris Buckman Tribute PageBecome a supporter of this podcast: https://www.spreaker.com/podcast/i-never-knew-ink-but-my-dog-did-by-lifecoach-maureen--5602763/support.2022-09-2153 minNETWiseEpisode 20: NET Research—Part Two
Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for NETs. This episode will also look specifically at the vital role NETRF plays in this process and how and why we choose the researchers we support.After you’ve listened to the episode, test your NET Knowledge by taking the LACNETS quiz here...2022-08-0530 minNETWiseEpisode 19: NET Research—Part One
Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn about them.
How do scientists do research, from beginning to end? And what are some of the challenges that specifically face NET researchers as they work through that process? Learn why basic research in the laboratory is crucial to discovering new treatments. Clin...2022-06-2836 minNETWiseEpisode 18: High-Grade NETs and NECs
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis. Listen above.
Net experts featured in this podcast:
Dr. Thor Halfdanarson, Medical Oncologist, Mayo Clinic, Minnesota
Dr. Namrata Vijayvergia, Medical Oncologist, Fox Chase Cancer Center
Dr. Laura Tang, Pathologist, Memorial Sloan Kettering Cancer Institute
Special thanks to Hilary Hammel...2022-04-2646 min
123 Momsquad: Secrets for Thriving with Chronic Illness18. Talking everything health & wellness, managing health conditions & learning about Neuroendocrine Cancer with Jeannie BuckmanSend us a textThis episode may need a TRIGGR WARNING for anyone that has lost a child due to cancer.My guest gets real and vulnerable, Jeannie’s 17-year-old daughter, Paris passed away suddenly in July 2021. Paris had a rare cancer called Neuroendocrine Tumor (NET). Part of the proceeds from her business will be donated to Neuroendocrine Tumor Research Foundation (NETRF). She’s on a mission to spread awareness and improve pediatric diagnostics. Please see the link below for website details on how to donate!************Jeannie is an Exercise Physiologist, Nati...2022-03-2452 minNETWiseEpisode 17: Focus on Liver NETs
The liver is very often the first and most significant site of neuroendocrine tumor metastasis and for many people, managing the disease in the liver is the most challenging part of their NET journey. In this episode of NETWise, we’re going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver.
First, you’ll learn that the liver is a unique organ with a resiliency that is remarkable. Why is the liver such a frequent site for NET metastases? Hear about the var...2022-03-0749 min
Brianna’s Bandwagon : The Podcast2021 NET Cancer Day !Listen to the full story from my previous podcast episode: https://anchor.fm/briannasbandwagon/episodes/It-All-Started-With-A-Cough-e176e8v NET Cancer Day Official Page : https://incalliance.org/net-cancer-day/ Organizations The Healing Net Foundation https://www.thehealingnet.org/ Neuroendocrine Cancer Awareness Network (NCAN) https://www.netcancerawareness.org/ Neuroendocrine Tumor Research Foundation (NETRF) https://netrf.org/ Carcinoid Cancer Foundation https://www.carcinoid.org/ North American Neuroendocrine Tumor Society (NANETS) Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) lacnets.org Neuroendocrine Cancer UK neuroendocrinecancer.org.uk Canadian Neuroendocrine Tumor Society cnets.ca/ International Neuroendocrine Cancer Alliance (INCA) incalliance.org Ronny Allan–Living with Neuroendocrine Can...2021-11-1008 minNETWiseEpisode 16: NETs and Nutrition
They say “you are what you eat”, and that can be a real challenge for people with neuroendocrine tumors. In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life.Learn about how neuroendocrine tumors can complicate digestion and how to identify food triggers that may cause symptoms. You’ll hear about enzymes and supplements, and why what may be a...2021-09-2146 minNETWiseEpisode 15: Supportive Care for the Mind, Body, and Soul
When you’re fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person – mind, body, and spirit – is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don’t be scared of the “P” word! Palliative care addresses all the issues impacting a person’s quality of life. These might include managing symptoms and side effects, managing pain, and dealing with the psychological and emotional ramifications of living with a serious illness. A lan...2021-07-1438 minNETWiseEpisode 14: Pheos and Paras — NETs Known as “the Great Mimic”
Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are unique tumors in that they can produce excessive amounts of “fight or flight” hormones that can cause over 100 different signs and symptoms. The symptoms can come and go and without warning but if left untreated can cause life-threatening damage. In this episode of NETWise, we will explain what these tumors are and how they are different from other NETs, the genetic aspects of these tumors; why it’s so important for pheochromocytoma and paraganglioma patient...2021-06-0237 minNETWiseEpisode 13: NETs and Genetic Screening
Understanding the Relationship Between NETs and Genetics
What role do genetics play in neuroendocrine tumors (NETs)? Is genetic screening right for you? Should you have your family members screened for a hereditary gene? In this episode of NETWise, we will explore the relationship between NETs and DNA and explain why your genetic code might hold important implications for treatment strategies, prognosis, and the health of family members.You’ll hear from Gretchen Thone, a genetic counselor at Geisinger Medical Center about how hereditary conditions can be passed from parents to children and the importance of se...2021-03-3035 minNETWiseEpisode 12: The Importance of Caregivers
Caregivers Share the Burden of a NET Diagnosis
A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love. A spouse, child, or friend may take on the role of caregiver—a partner to the patient on the NET journey and advocate for their loved one. It’s a job they did not anticipate or prepare for. This episode of NETWise focuses on caregivers to recognize and celebrate their essential place in the care team. Hear their unique perspectives and what their support means to a patient.
Download a...2021-01-2639 minNETWiseEpisode 11: AYA (Adolescents and Young Adults) and NETs
Unique challenges for young people with NETs
Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can you have children?
In this episode, hear from NET experts Dr. Jaydira Del Rivero and Dr. Manisha Shah about the diagnosis of NETs and prognosis in young people. Kalen Fletcher, a Licensed Independent Clinical Social Worker, talks about young people’s e...2020-12-1545 minNETWiseEpisode 10: Pancreatic NETs
Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs?
While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms. PNETs are complex because the pancreas plays an essential role in our bodies’ functions. If you or someone you know has a PNET, this episode of NETWise discusses the importance of the pancreas and how PNETs are diagnosed. You’ll also learn that there are several genetic syndromes that can increase vulnerab...2020-11-1833 minNETWiseSpecial Episode: Small Bowel NETs
Did you know that 12% of gastrointestinal (GI) NETs are found in the small bowel?The small bowel, or the small intestine, is one of the most common places NETs form. If you are living with a small bowel NET, this episode is for you. In this episode, you will learn more about the anatomy of the GI system and the different parts and functions of the small bowel. You will also learn more about tumor biology and how small bowel NETs can greatly differ from one another. Finally, this episode details how small bowel NETs g...2020-10-1932 minNETWiseSpecial Episode: Lung NETs
Did you know that about 1 in 4 NETs develop in the lungs?Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health care professional to work with. This special episode of NETWise covers all things Lung NETs.Do you want to learn more about the classification of the different types of lung NETs? In this episode, we map out the lung NET classification system...2020-08-2738 minNETWiseEpisode 7: Clinical Trials
New Ways to Detect and Treat NETs What are clinical trials? In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll learn about the different stages of research and how promising drug compounds progress through them.You will also learn how clinical trials determine whether new or improved treatments are safe and effective and work better than current therapies.Have you ever thought about joining a clinical trial? You will hear from NET specialists like Drs. Satya Das, Daniel Hal...2020-07-3046 minNETWiseSpecial Episode: COVID-19 and the Rise of Telemedicine
Using Virtual Appointments to Care for NET PatientsIn this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and stay-at-home orders, NET specialists are switching to telemedicine visits as a new option.The increased use of telemedicine over the past few months is creating new opportunities for NET patients. We recognize that not all NET patients have access to a NET specialist. Traveling to faraway appointments may not be an option. But virtual appointments via telemedicine are now helping NET patients across...2020-06-3024 minNETWiseEpisode 6: Managing Symptoms of NETs
Functional and Non-Functional NETs
This episode is about managing the symptoms of functional NETs. To understand these symptoms, we start by talking about hormones. What role do hormones play in the human body? And what do they have to do with NETs?
We’ll help you understand the differences between functional and non-functional NETs. You’ll also learn why their shared characteristics make it hard to tell them apart.
A panel of NET specialists discusses ways to manage the many symptoms caused by functional NETs, including:
Diarrhea
Flushing
Raci...2020-05-2241 minNETWiseEpisode 5: Medical Management of NETs
Understanding SSAs, Chemotherapy, and Targeted TherapyWhat treatments do oncologists use to slow or stop neuroendocrine tumor growth? What role do newer approaches like targeted therapy or immunotherapy play in treating neuroendocrine cancer? And what drugs can be used to alleviate symptoms caused by hormone-producing tumors? In this episode of NETWise, we explore multiple medical treatments for neuroendocrine tumors. We’ll look at the different roles chemotherapy, targeted therapy, and hormone therapy play in managing the spread of disease…and in managing the disruptive symptoms caused by some NETs. You’ll gain insight into the...2020-04-1435 minNETWiseSpecial Episode: COVID-19 and NETs – What You Need to Know
In this special episode of NETWise, listen as we talk about COVID-19. As a NET patient, you may have additional risk for serious illness from COVID-19, so we share some tips for avoiding infection, managing your NET treatment, and staying mentally healthy during this challenging time.NETRF CEO, Elyse Gellerman, chatted with Dr. Mark Lewis, NET patient and the Director of Gastrointestinal Oncology at Intermountain Healthcare, about the ten things patients and caregivers want to know about NETs and COVID-19. Portions of that interview are included in this podcast. Watch the entire interview on NETRF’s YouTube pa...2020-04-1323 minNETWiseEpisode 4: Nuclear Medicine for NETs: What is PRRT?
Treating NETs with Nuclear Medicine
This episode of NETRF’s NETWise podcast discusses Peptide Receptor Radionuclide Therapy (PRRT) a targeted form of radiotherapy approved in the U.S. in 2018. Listen in as NET experts like Josh Mailman, Drs. George Fisher, Thor Halfdanarson, Ed Wolin, Richard Baum, and others explain what it is, how it works, and who is most likely to benefit from PRRT. This therapy relies on a tumor’s expression of somatostatin receptors. We explain what they are and how to know if you have them.
Then, we’ll take an objective look at the...2020-03-1734 minNETWiseEpisode 3: Surgery and Interventional Radiology for NETs
Direct NET TreatmentsIn this episode of NETWise, we discuss two common treatments for neuroendocrine tumors. Treatment, like surgery and interventional radiology, can reduce the number and size of NETs as well as reduce some of the symptoms caused by tumors.Did you know that almost 70% of NET patients have surgery? In this episode, NET surgeons describe surgical procedures like “debulking” and the whipple procedure. We also hear how endoscopies are used to treat NETs. Here is a hint. Have you ever played Pac-Man?You will also learn more about “multi-focal primaries” in the smal...2019-12-2646 minNETWiseEpisode 2: Imaging, Testing, and Building a Care Team
Detecting and Monitoring NETsLearn about important neuroendocrine tumor diagnostic tests including Gallium 68, Ki-67, and 5-HIAA. Listen as NETWise takes you on a journey to diagnose neuroendocrine cancer. This episode discusses some common NET tests so you can understand their role in your treatment planning and be better able to understand what the results mean. You will hear from two patients about their experiences with diagnosis and monitoring. We explore imaging in this episode, describing CT and MRI scans, PET-CT scans, FDG-PET, octreotide scans, and Gallium-68 (Ga-68) dotatate PET. You will hear about endoscopy and biopsy. Pathology...2019-11-1952 min
Audio Only The Nuclear Medicine and Molecular Medicine PodcastEpisode 79 Josh Mailman - Patient Advocate - AudioEpisode 79 Josh Mailman - Patient Advocate - AudioIn this podcast we talk to Josh Mailman - Patient Advocate.https://netrf.org/people/josh-mailman/What can we learn from him? What does he want from us?Catch me at the SNMMI 2018 in Philadelphia message me via the meeting appTagsRob Williams, WFNMB, NIF, Nuclear Medicine, Podcast, Nucast.com, SPECT, CT, SPECT/CT, PET, theranostics, radioactive, molecular medicine, nuccast.com, oncology, Patient advocate.The first part will come as medium quality video for iphones...2018-06-1300 min