Shows
Through Our EyesThrough David’s Eyes: Thriving in School with a Rare Retinal Condition | Ep #36Join us on this heartfelt episode of Through Our Eyes by the Pediatric Retinal Research Foundation, where Megan, a devoted mother, shares her journey raising her visually impaired son, David. Diagnosed with a rare pediatric retinal condition at six weeks old, David faced significant challenges, but with the support of an exceptional Teacher of the Visually Impaired (TVI), an inclusive school, and a tailored Individualized Education Program (IEP), he’s thriving in first grade. From learning Braille to playing goalball with classmates, David’s story highlights resilience, advocacy, and the power of community in ensuring every child can succeed. Tune...2025-06-1618 min
Through Our EyesUndefined by FEVR : Laura’s Inspiring Path | Ep #35🎙️ Meet Laura, a remarkable young woman from Michigan living with FEVR, a rare retinal disease. Diagnosed at 18 months, she’s blind in one eye but embraces life fully, from her job in memory care to training her service dog. Laura shares how her family’s support and an IEP helped her thrive, urging others: “FEVR doesn’t define you—it’s just part of your story.” Tune in for her inspiring journey and visit PRRF.org for more on pediatric retinal research! #RareDisease #Podcast #ThroughOurEyes Don’t forget to like, share, and leave a comment to help us spread hope to mor...2025-05-2113 min
Through Our Eyes25 Years of progress: A Fireside Chat with Dr. Capone & Wallace Stuckey | Ep. #34Wallace Stuckey returns to the Through Our Eyes podcast for an in-depth conversation with Dr. Capone of the PRRF. From early childhood surgeries to navigating significant milestones like high school, college, and grad school at King's College in London, Wallace discusses overcoming challenges with the support of his family, medical team, and assistive technology. He offers insights on advocating for accessibility, embracing technology, and building a robust support system, while also sharing his passion for public service and personal hobbies like walking accessible trails and traveling. This fireside chat highlights resilience, determination, and the power of community in achieving...2025-05-0931 min
Through Our EyesUPDATES!! - What's Going On At The PRRF, The Podcast, & The Life Of Bri!!! | Ep #23Welcome to season 2 of the Through Our Eyes Podcast by the Pediatric Retinal Research Foundation! In this episode, Bri gives a life update and fills you in on everything coming up in season 2 of the podcast and some news and events with the PRRF! 2024-02-2108 min
Power to the PatientsPatient advocacy with Stephanie E. Saville, Foundation Manager for the Pediatric Retinal Research FoundationAs the dedicated Foundation Manager for the Pediatric Retinal Research Foundation (PRRF), Stephanie Saville offers a unique and enlightening perspective into the specialized area of pediatric retinal research. The PRRF is a volunteer-driven organization that focuses on rare pediatric retinal diseases, offering support for children and adults who experience vision loss.Throughout our conversation, Stephanie emphasized the challenges rare diseases face and explored the complexities of rare disease research.
Stephanie believes in the importance of understanding the 'why' behind the diagnosis, and the power of patient stories in driving change. Stephanie offers insights on how organizations can...2023-10-1126 minThrough Our EyesEpisode #7 - Overcoming Impossible Circumstances /w Jennifer ZuckermanJennifer & Ashley Zuckerman have lived lives of overcoming impossible circumstances. Now seniors in High School, these fraternal twins were born 28 weeks premature with less than a 25% chance of survival. This was the first of many challenges that Jennifer, Ashly, and their family would face together. Due to Jennifer's premature birth, she developed retinopathy of prematurity (ROP), yet her sister Ashley had relatively normal eyesight. And that's how their story starts - one sighted sister and one blind sister. Despite this challenge, a beautiful relationship emerged that is a shining example for all siblings from all walks of l...2023-01-0548 min
A roscachapa podcastCoaching de veganismo glaseado REDUX¡Hola, rosketors! Aquí estamos de nuevo con un episodio de improvisación (prrf, como si los demás estuvieran guionizados) en el que nos damos crédito por la subida de BOCS y en el que encontramos una nueva manera de torturar a la inocencia de La Rubia. También abrimos el melón de la peli de imagen real de Sonic y entramos en el turbio mundo de los Deep Fakes.2019-03-1358 min