Shows
PediPalEpisode 41: BookendsThere's a member of the pediatric palliative care team we all love but rarely acknowledge: The children's books we share with families that help them cope and process the terrible situations they face. In this episode, Sarah and Dan talk with Joanna Rowland, author of The Memory Box, The Memory Book, and The Memory Tree; and Brennan Wood, author of A Kid's Book About Grief and Executive Director of Portland's Dougy Center (dougy.org).Click on the links in the titles above to learn more and purchase their books!2025-07-0133 minPediPalEpisode 40: NonfictionDan and Sarah welcome back to the podcast two previous guests, Dr. Bob Macauley and Dr. Chris Adrian, to discuss writing books about pediatric palliative care, as well as how our clinical practice, narratives, and personal trauma can all interact in sometimes unexpected ways.Content warning: This episode includes discussion of child sexual abuse.Click the link here to buy Dr. Macauley's new book: Because I Knew YouProceeds from book sales benefit the OHSU Pediatric Palliative Care Team and Darkness to Light (https://www.d2l.org/), an organization dedicated to ending...2025-06-0132 minPediPalEpisode 39: This Marrow SpaceWe're back! Where did we go and why did we pause in the first place? You'll have to listen to the episode to find out all the details, but let's just say Dan conducted an extended and very personal investigation into the intersections of palliative care and bone marrow transplant. In this episode, Sarah interviews Dan about his experience as a patient and the take-home points he's bringing back to his practice.(Apologies to Elisha Waldman for the episode title. Read his book; it's excellent.)If you'd like to sign up to...2025-05-0122 minPediPalEpisode 38: About Suffering"About suffering they were never wrong, / the old Masters: how well they understood / Its human position..." wrote W.H. Auden. For all that suffering seems to be central to our practice, how do we in pediatric palliative care actually stack up against Brueghel et al when it comes to understanding it, though? Dan and Sarah dig deep with guests Erica Salter, PhD, and Lauren Draper, MD to explore what suffering really means for children, families, and the clinicians who care for them.2024-08-0838 minPediPalEpisode 37: Homeward BoundEven before heading homeward from the Annual Assembly, Dan and Sarah decided that we needed to do an episode about one of our favorite presentations, palliative home transports. So in this interview, Ashley Autrey from Children's Hospital New Orleans and Lindsay Ragsdale from Kentucky Children's Hospital bring it on home to you, our audience, sharing their wisdom and expertise about how to get some of our most complex and fragile patients out of the hospital, and what it means to honor death location preference.This episode also features some exciting new AI integrations...2024-07-0132 minPediPalEpisode 36: PerivariabilityPerinatal Palliative Care! Thanks to a healthy dose of serendipity, PediPal finally wades into the ever-changing waters of palliative care before, during, and after birth. Sarah and Dan talk with Brian Carter, Kelstan Ellis, and Jenni Linebarger about their collaborative, creative work at the Children's Mercy Kansas City Fetal Health Center and beyond. So come for the birth planning, stay for the unrivaled power of narrative, everyone's favorite pediatric bioethical Zone, hot-button political issues, and 18th-century etymologies!2024-05-0644 minPediPalEpisode 35: Take-Home PointsPediPal goes on the road! Dan brings his microphone to Phoenix, AZ, for the 2024 Annual Assembly of Hospice and Palliative Medicine, ambushing unsuspecting guests with that classic PediPal question, "What are your take-home points?" Sarah, unable to attend the conference, shares her take-homes from home.Major thanks to AAHPM and all our enthusiastic participants: Tyler Badding, Gabe Daniels, Kelstan Ellis, Rachel Kentor, Jen Hwang, Matt McEvoy, Jennifer Salant, Alexis Santos, Meghna Singh, and Claire Slusarz, as well as #1 Fan Jared Rubenstein and #1 Fan Conrad Williams.2024-04-0116 minPediPalEpisode 34: PrognosticautionWhere do the fields of Palliative Care, Neurology, and PM&R overlap? Where can we learn more about how to approach the dreaded uncertainty of neurologic prognostication? In this episode! Overcoming some technical difficulties, Dan (kinda) and Sarah discuss the field of Pediatric Neuropalliative Care with Marina Ma and Lauren Treat.2024-03-0425 minPediPalEpisode 33: Art and CraftThe episode we really wanted to call "2 Julie 2 Hauer."Julie Hauer is back on PediPal! This time, she's here to discuss with Sarah and Dan what we do when we're beyond the guidelines, short on evidence, and way past the point of randomized control. What influences do culture and anecdote have on our prescribing? How much of pediatric palliative care is science and how much is art... and how much does the difference matter?Julie's forthcoming book:Childhood Onset Severe Neurological Impairment: Where Medical Complexity and Uncertainty Meet (Oxford University Press) [W...2024-02-0134 minPediPalEpisode 32: RetrospectiveIt's 2024! As PediPal enters its fourth year, we want to take a moment to look back on what we've learned over the last three years. So for the first time (and hopefully the last), we have no guests, just the reflections, opinions, and bad jokes of the two pedi pals ourselves.2024-01-0116 minPediPalEpisode 31: BoundariesHow and where do we draw the boundaries between ourselves and our patients and families? What other boundaries do we draw--or not draw so well--in pediatric palliative care? Here to discuss these questions and more are Stacy Remke, MSW, and Rev. Bentley Stewart.2023-11-0126 minPediPalEpisode 30: ConcreteDeath. Dying. Simple words, but often hard to say, and even harder to say to a child. In this episode, Sarah and Dan turn to some experts on saying difficult things to children, Certified Child Life Specialists Kelley Gavel and Nicole MackDiaz. Find out why Child Life is particularly adept at helping kids grapple with the toughest questions, and then stick around for a special guest who tries his best to stump Kelley and Nicole...Books mentioned by our guests:All About the Intensive Care Unit - Alexandria FriesenLifetimes - Bryan Mellonie 2023-10-0144 minPediPalEpisode 29: Magic?Turn on, tune in, and drop your preconceptions, because in this episode, Sarah and Dan are your guides on a trip into the realm of psychedelics in pediatric palliative care. We join Dingle Spence, Chris Adrian, and Elisha Waldman to learn about how they came to do this work, how psilocybin is helping some bereaved parents on their journeys of grief, and what the future might hold for psychedelic therapies in pediatrics.2023-09-0141 min
PediPalEpisode 28: PawdiPalInterdisciplinary teams are so vital to the practice of palliative care, and in today's episode, the PediPal team explores a new kind of team member: What has four paws, has mastered the art of being present, and is guaranteed to increase the popularity of your palliative care team? A therapy dog!Join Sarah and Dan as they hear two tales of wagging tails who are dedicated members of Peds Palliative teams in British Columbia (Gaia) and Michigan (Fawn). We hear mostly from the humans who work closely with them, but if you listen extra carefully, you can...2023-08-0146 minPediPalEpisode 27: CompetentGet psyched because PediPal is back! In this episode, Sarah and Dan interview two psychologists, Amanda Thompson and Rachel Kentor, about creating competencies for pediatric palliative psychology and how we can bring more psychology into the world of pediatric palliative care.You can read their recent paper here:https://pubmed.ncbi.nlm.nih.gov/37141582/And if you're interested in contacting them for more information about how to involve psychology in your pediatric palliative care practice, our guests have graciously shared their contact information:Amanda.Thompson AT inova DOT orgrxkentor...2023-07-0127 min
GeriPal - A Geriatrics and Palliative Care PodcastWhy is working with adolescents and young adults so hard? Abby Rosenberg, Nick Purol, Daniel Eison, & Andrea ThachI haven’t worked with many adolescents and young adults (AYA, roughly teens to twenties). But when I have, I find that they’re often some of the hardest patients to care for. Why? We talk about why it’s so hard with Abby Rosenberg (chief of PC at DFCI and Boston Childrens), Nick Purol (clinical social worker at DFCI and Boston Childrens), Daniel Eison (pediatric PC doc and co-host of PediPal). We are grateful to Andrea Thach (PC doc at Sutter East Bay) for bringing this topic to our attention and for asking questions as a guest host. Here are ju...2023-05-0449 minPediPalEpisode 26: PermissionIf you're working in pediatric palliative care and you haven't heard of Courageous Parents Network, put down this podcast immediately and go make yourself familiar with the amazing resource that is CPN. Sarah and Dan are thrilled to have three courageous parents - Blyth Lord, Amy Graver, and Liz Morris - discuss how their children's stories intersected with palliative care.And if you haven't heard the CPN podcast, make sure to check it out here: https://courageousparentsnetwork.org/podcasts/ 2023-04-0338 min