Shows
Cracking the Cancer CodeSharing Data for the Common GoodSend us a textThis episode of "Cracking the Cancer Code" explores the critical role of data sharing in cancer research, particularly in pediatric oncology. Featuring interviews with experts from the "Data for the Common Good" initiative at the University of Chicago, the podcast highlights how collaborative data sharing is essential for meaningful research in rare diseases. The initiative focuses on building community, creating data standards, and developing governance structures to facilitate effective data sharing across institutions and countries. The episode discusses the challenges of changing academic culture from data hoarding to sharing, and proposes v...
2024-10-2120 min
Help and Hope Happen HereRuby and her parents, Dr. Jonathan Kaufman and Christine, along with Dr. Sam Volchenboum, talk about Ruby's successful battle against Rhabdomyosarcoma10 year old Ruby Kaufman was diagnosed with Rhabdomyosarcoma in 2015. After one year of grueling treatment , Ruby decided that she wanted to help other kids who were diagnosed with some type of cancer so she created a fundraiser called Ruby's Dance Till You Drop. That fundraiser raised $72,000. Eventually, through the efforts of Ruby's family, the Rally Foundation, and Dr. Sam Volchenboum, a grant was awarded with the money that Ruby raised from her fundraiser to help with research in the fight against this cancer. This initial grant proved successful, and now millions of dollars in grant money has been received beca...
2021-02-0150 min
Digital Health Today 360 with Dan KendallCoffee Talk: Training Professionals to Lead Healthcare’s Evolution with Biomedical InformaticsFor this special Coffee Talk I invited two leaders from one of our sponsors to share some of their insights and expertise on one of the most important areas of healthcare right now, Biomedical Informatics. Organizing, analyzing, and utilizing vast amounts of information for translational research to connect discovery with clinical care is one of the biggest challenges facing the current generation of data scientists, which is particularly being highlighted during the current COVID-19 pandemic.The University of Chicago Master of Science in Biomedical Informatics is an amazing program that goes deep in informatics methodology. It also t...
2020-04-2220 min
Faces of Digital HealthF034 How are AI and wearables disrupting clinical trials? (Dr. Sam Volchenboum, University of Chicago)ClinicalTrials.gov currently lists 302,091 clinical studies in the US. It is impossible for patients and their doctors to be aware of all clinical trials an individual might be eligible for. While one would expect the trials to be run and supported by sophisticated software, the reality is often far from that expectation. Patients often come to doctors inquiring about trials doctors might not even have been aware of. Trials data is managed manually, in old fashion way — clinical trials are written in a word format, transmitted to sites in pdf files, later on along the process, the data are often man...
2019-04-0546 min