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Sarah Forsman

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It\'s a Rare StoryIt's a Rare StoryFinding Gratitude with Being Born with a Cleft Lip and Palate | Ep. 07On this week's episode, Sarah sat down with Darcey. She was born with a Unilateral Cleft Lip and Palate. Darcey is 20 years old and currently entering her third year at the University of Missouri, where she is majoring in biochemistry. Her goal is to attend medical school and become a pediatric plastic surgeon with a focus on craniofacial reconstruction, inspired by her own journey.To learn more about the ELSA Act please visit: https://acpacares.org/advocacy/elsa/To support and to help advocate about the ELSA Act please visit: https://ujoin.co/campaigns/2473/actions/public?action_id=5391To...2025-06-1632 minIt\'s a Rare StoryIt's a Rare StoryKat's Story with TAR Syndrome - Episode 06On this week's episode, Sarah sat down with Kat. She was born with Thrombocytopenia-Absent Radius (TAR) Syndrome and shares how navigating life has been.Kat is a campus staff minister with InterVarsity Christian Fellowship at Rider University and Rowan College of South Jersey. She is a mom to a two year old boy and has been married for 5 years to her college sweet heart. She hosts a podcast called No Day is Normal where she shares about her experience with Ableism and accessibility in today's culture.Instagram: @kathlyn.roffinaPodcast Instagram: @nodayisnormal ...Want your story to be featured on It's...2025-05-0942 minIt\'s a Rare StoryIt's a Rare StoryShannon's Story with a Traumatic Brain Injury - Episode 05On this week’s episode, Sarah sat down with Shannon. She sustained a traumatic brain injury when she was three and shares how life has been since then.Meet Shannon!Shannon is a graduate of Washington Township High School and Rowan College of South Jersey. She is a personal trainer at RiverWinds Community Center and has a certification in NASM, Women's Fitness Specialist and Senior Fitness Specialist. Shannon loves country music, fashion, arts and crafts, true crime, and cats.She has not let the traumatic brain injury stop her from pursuing all the things in life. Her story shines a...2025-04-2520 minIt\'s a Rare StoryIt's a Rare StoryJireh's Story with Fabry Disease - Episode 04On this week’s episode, Sarah sat down with Jireh. Within the past few years, he was diagnosed with Fabry Disease aa rare genetic lysosomal storage disorder, where you don't have enough of a certain enzyme that breaks down fats. These fats collect in blood vessels and tissues, raising the risk of heart attack, stroke and kidney failure.Meet Jireh!I’m living with a rare genetic condition called Fabry disease. Three years ago, my life changed completely when I survived a subarachnoid hemorrhage and a right pontine stroke. These 2 strokes lead to my Fabry Disease diagnosis and a long...2025-04-1138 minIt\'s a Rare StoryIt's a Rare StoryWesley & M.E.'s Story with Pfeiffer Syndrome - Episode 03On this week’s episode, Sarah sat down with Wesley & M.E. They’re twins and were born with Pfeiffer Syndrome which is a rare genetic disorder characterized by premature fusion of certain bones in the skull, hands, and feet. Meet Wesley and M.E.!!!Wesley and M.E. are from South Carolina. They both graduated from the College of Charleston with degrees in Communications and now are Program Coordinators for FACES: The National Craniofacial Association. They’ve been to different Children’s Craniofacial Association (CCA) events. They love traveling and living their best lives!!!Wesl...2025-03-2846 minLE BLUES CAFELE BLUES CAFECAFE LUNGO - MARS 2025🎧 Café Lungo est une playlist avec des titres choisis par les animateurs du Blues CaféLester Butler – So Mean To Me - Album ‘13’ (1997)Ex-leader des Red Devils, l’harmoniciste Lester Butler poursuivit sa carrière accompagné du guitariste Alex Schultz dans une formation nommée 13. Big Joe Williams & Sonny Boy Williamson - Baby Please Don't Go - Single (1941)Big Joe Williams est le créateur de ce standard du blues. Voici le second enregistrement qu'il en a fait, accompagné à l'harmonica par Sonny Boy Williamson I.AC/DC - Bab...2025-03-1743 minIt\'s a Rare StoryIt's a Rare StorySaida's Story with Partial Trisomy 8q Duplication Syndrome - Episode 02On this week's episode, Sarah sat down with Saida. Saida was born with Partial Trisomy 8q Duplication Syndrome that causes multiple rare diseases multiple chronic medical conditions and multiple chronic disabilities.Meet Saida!Saida Mahoney is a Rare Disease Warrior and Advocate. She loves doing everything she can to help people and advocate for all. She is a proud National Disability Advocate and Activist, a National Disability Advocate and Activist, a National Beauty Pageant Queen, Writer and Author of 9 Books and so much more. She is passionate about helping people in all ways and communities!To see what she...2025-03-1424 minIt\'s a Rare StoryIt's a Rare StoryEpisode 1 - Sarah's Story with Alpha-MannosidosisEver wondered what it's like to live with an ultra-rare disease? In this episode, Sarah, host of It's a Rare Story, opens up about her journey with Alpha-Mannosidosis. Hear the highs and lows of her journey, and how she's turned challenges into opportunities.Sarah takes you through the diagnosis journey, school experiences, and where she is today. Alpha-Mannosidosis is a degenerative genetic lysosomal disease which falls under the Glycoprotein Storage Disease category. Sarah went through a bone marrow transplant in hopes to stop Alpha-Mannosidosis from progressing.Today, she is finishing her Bachelors degree in Marketing, has a blog, Achieve...2025-02-2831 minThese Kids Can\'t WaitThese Kids Can't WaitEpisode 3: Living with Alpha-Mannosidosis – A Patient’s Perspective🎙️ Host: Erin Hubbard🎤 Guest: Sarah Forsman📅 Release Date: 2/28/2025🔬 Topic: Life with Alpha-Mannosidosis and the Impact of Early TreatmentEpisode OverviewIn this episode of These Kids Can’t Wait, host Erin Hubbard speaks with Sarah Forsman, a patient living with Alpha-Mannosidosis. Sarah shares her personal journey, including undergoing a bone marrow transplant at the age of four, and how this early intervention has shaped her life.From navigating the challenges of a rare disease to advocating for greater awareness, Sarah offers a unique and inspiring perspective on w...2025-02-2829 minIt\'s a Rare StoryIt's a Rare StoryIt's a Rare Story - TrailerJoin Sarah as she introduces It's a Rare Story! You won't want to miss this trailer. Learn about where this podcast started, where it is currently, and where it is heading. To stay up to date, make sure to give us a subscribe!2025-02-2806 minTHE GENIUS OF NOTHINGTHE GENIUS OF NOTHINGGENIUS OF NOTHING PODCAST 5 Interview with Sarah FingerIn this episode we chat to Sarah Platt-Finger, Alan Finger's wife and business partner, and hear all about her journey through yoga and what she does for her daily practice.If you have any questions or want to get in touch with us, email us at : sebastian@ishtayoga.comThank you for listening and please don't forget to subscribe. Namaste2025-02-0942 minYour Bookstore BestiesYour Bookstore BestiesEp. 77 | Meet our dadsWe have both our dads on this episode and chat about all things books. Also, watch Rachele’s dad’s award winning film : https://www.youtube.com/watch?v=Yoks0mlyFTg&t=118s&ab_channel=KevinGillespie All the books we mentioned: Dick and Jane | Scott Forsman The Hardy Boys | Edward Stratemeyer Tom Swift | Victor Appleton The Seven-Per-Cent Solution | Nichola Meyer 1984 | George Orwell Animal Farm | George Orwell The Andromeda Strain | Michael Crichton 2001 Space Odyssey | Arthur C. Clarke 2024-06-1439 minblauschwarzberlin - Der Literaturpodcastblauschwarzberlin - Der Literaturpodcastblauschwarzberlin. Der Literaturpodcast Folge #50Zum Indiebookday 2023, unserer 50. Folge!, sprachen wir sehr schnell über: Kerstin Becker: Das gesamte hunrige Dunkel ringsum. Edition Azur Julia Friese: MTTR. Wallstein Verlag Helen Wolff: Hintergrund für Liebe. Weidle Rebecca Buxton & Lisa Whiting (Hg.): Philosophinnen. (übersetzt von Roberta Schneider, Daniel Beskos & Nefeli Kavouras) Mairisch. Jean-Luc Nancy: Vom Schlaf. (Aus dem Französischen übersetzt von Esther von den Osten) Diaphanes Dino Pešut: Daddy Issues (übersetzt von Alida Bremer) Text/Rahmen Ling Ma: New York Ghost. (übersetzt von Zoë Beck) CulturBooks Eva Tepest: Power Bottom. März Qiu Miaojin: Aufzeichnungen eines Krokodils. (übersetzt von Martina Hasse) Ulrike Helmer Verlag Jo Frank: Gewa...2023-04-011h 28Escape Hatch (formerly Dune Pod)Escape Hatch (formerly Dune Pod)Southland Tales (2006)In the latest installment of Dune Pod, Haitch and Jason are joined by co-host of the Ammonite Movie Night and Austin Danger Podcast, and the star of Dune Pod’s own letter’s segment Kev’s Questions, Kev. We cover Richard Kelly’s absolutely perfect(?) follow up to Donnie Darko, featuring the Rock, Stiffler, Justin Timberlake, Sarah Michelle Gellar, and Cheri Oteri! Southland Tales. Chapters Introduction (00:00:00) Dune News (00:14:20) Roundtable Discussion (00:17:13) Your Letters (01:03:20) Notes and Links Check out the Dune Pod Merch Store! Great swag and every order includes a free Cameo style shoutout from Haitch o...2022-07-181h 22GudstjänstenGudstjänstenVilken värld det ska bliGudstjänst från Barnens Katedral i Karlstad, med Katarina Bergdahl, Anni Naumansson och barnkör, ungdomskör och vuxenkör. Lyssna på alla avsnitt i Sveriges Radio Play. Varje gång som någon mot mig lerkänns det som all kyla smälter ner.Är varje vänligt ord som talas på vår jordett frö som gror?Jag ser det i min fantasi,vilken värld det ska bli. Per-Erik Hallin Medverkande Katarina Bergdahl: prästMirjam Öberg: tex...2021-10-2410 minBlack-Eyed N BluesBlack-Eyed N BluesHotel Coral Essex | BEB 353Playlist: Forward Motion, I’ll Understand, The Scones, big Blue Planet, Kelly Richey, Afraid To Die, Willa Vincitore, Just Ain’t The Same, Sarah Grace And The Soul, What I Came For, The Spear Shakers, I Went Down Easy, Andras Jones, Natalie Wood Said, Charley Crockett, Here Am I, Benny Turner And Cash McCall, Money, Seth Rosenbloom, Heartbreaker, The Trevor B. Power Band, Future Plans, Vin Mott, Give Me Cornbread, The Dee Miller Band, Back In The Saddle, Ina Forsman, Genius, Chris O’Leary...2019-01-172h 16