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Showing episodes and shows of
Sheryl Lowenhar
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The Parkinson's Experience podcast
120 Vestibular Therapy - Your Inner Ear and You
The range of symptoms and affected body systems in Parkinson’s disease is extensive. One area that is less frequently discussed is the vestibular system—the inner ear structure directly connected to the brain, responsible for balance and spatial orientation. When this system malfunctions, individuals may experience dizziness, balance problems and an increased risk of falls, highlighting its importance in your overall health. With aging, the inner ear naturally becomes less robust. Although current research has not yet identified a definitive cause for the higher incidence of vestibular dysfunction in people with Parkinson's disease, effective interventions are avai...
2025-08-05
44 min
The Parkinson's Experience podcast
119 Driving Advice for Parkinson's
One of the possibilities along the Parkinson’s journey is losing the ability to drive safely. This possibility is a scary one. For many, driving equals independence. So, it means more than just the hassle of getting around. It means losing your independence. It can lead to depression and anxiety. However, it is important to be safe on the road while driving a multi-ton vehicle. We must protect ourselves, our family, and others on the road. So, we are talking today with an Occupational Therapist who is so passionate about this topic that she started a business fo...
2025-07-22
30 min
The Parkinson's Experience podcast
118 FREE Parkinson's Wellness in Austin & Online
Where do you exercise? Is there a place you can take classes specific for people with Parkinson’s? Is it convenient? I know of only a handful of cities where there is a one stop fits all approach to PD wellness. Most are created and managed by someone stepping up and doing the work to make it happen for their community and beyond. I am excited to highlight some of these magical places where people with Parkinson’s take classes designed for their needs, provide social support, and community. I am thrilled to bring. you this first magi...
2025-07-09
38 min
The Parkinson's Experience podcast
117 Why We Struggle with Sleep
Do you have trouble falling asleep, staying asleep, getting enough sleep? Well, you are not alone. It seems lack of sleep is an epidemic in the US. In particular, getting a restful night’s sleep is very difficult for the majority of people with Parkinson’s. Why? What is going on and how can we improve our the quantity and quality of our sleep? This is a meaty topic to tackle. It is very important to understand it and make changes to improve your situation. Luckly, we were able to get a highly qualified expert on sleep disor...
2025-06-18
52 min
The Parkinson's Experience podcast
116 Smell Loss and the Brain
Did you know there is a connection between loss of smell and Parkinson’s disease? In fact, it may turn out to be a predictor of the disease up to 10 years before a clinic diagnosis of PD. Here are some interesting stats: · 100% of major brain disorders are associated with smell loss · 96% of newly diagnosed people with Parkinson’s have lost some ability to smell · 70% of people living with smell loss don’t know it until they are tested · 50% of people over the age of 60 may be living with smell loss I am fortunate to have spoken to a leader in the research of sme...
2025-05-28
25 min
The Parkinson's Experience podcast
115 Make Your Voices Heard: Ban Chemicals that Cause Diseases
This is a very important topic and one in which you can make a difference. Our environment is sickening the population. Parkinson’s disease is one example of a condition that likely was caused by pesticides and other toxic chemicals in our water, food, air and soil. All of us can contribute to preventing future generations from getting Parkinson’s and other diseases. Those already diagnosed may benefit as well. If we avoid these chemicals now, we may slow the progression of the disease just as exercise has been proven to do so. Bottom line: we need to work toge...
2025-05-07
32 min
The Parkinson's Experience podcast
114 World's Toughest Row - a story of endurance, strength and friendship
$41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World’s Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson’s to finish the race. They raised over $41M for the Michael J Fox Foundation for Parkinson’s research. Amazing. We spoke with Patrick and his skipper, Brendan Cusick about their experiences, challenges, commitment, and learnings on the trip. What did it reveal about working together and becomi...
2025-04-08
46 min
The Parkinson's Experience podcast
113 Gait and Balance Explained
It is difficult to believe that in the over 100 episodes of the Parkinson's Experience, we have not talked extensively about gait and balance. Gait and balance is something a lot of us Parkies face at some point in our journey. This symptom can be very scary and life limiting and, therefore, important. Why does this happen and what can we do? I spoke with a researcher in this space, Dr. Dan Peterson, who has a lab and studies people with movement disorders and making some progress on finding some help. The discussion is next. Stay tuned. Resources:
2025-03-27
53 min
The Parkinson's Experience podcast
112 Owning Your Truth - a YOPD Story
Some of my favorite episodes are when we hear personal stories from people on the same journey as us. Every story is different but all of them can help us find our way, learn from each other and get motivated to live your best life. On today’s episode, I have a conversation with Lisa Volenec. She was diagnosed as young onset PD which is defined as diagnosed at age of less than 50. It is estimated that only about 10% of the PD population is diagnosed with young onset. However, we know this is growing due to many factors including pe...
2025-03-10
42 min
The Parkinson's Experience podcast
111 The New Medication Delivery Pumps Explained
Have you heard about the new medication delivery systems or pumps recently approved by the FDA? It has generated a lot of buzz at support groups, clinics and social media. What do these pumps do that makes them different and a new tool for our Movement Disorder Specialist to use to help People with Parkinson's live well with Parkinson’s? What can you expect? When should I ask my doctor about if its right for me? I asked Dr. Ospina these questions and more, including the new long-acting oral levodopa called Crexont. She has answered other important que...
2025-02-26
29 min
The Parkinson's Experience podcast
109 Connect and Prepare for the Heat
As the earth continues to get warmer and we see record high temperatures across the globe, scientists tell us that this pattern is going to continue and be more common. Higher temperatures, more frequently has led to more heat strokes and other conditions when people aren’t prepared for this situation. Additionally, people with neurodegenerative diseases like Parkinson’s are at greater risk for heat related complications, A recent article published in JAMA Neurology, describes the issue, what to look for, and how we, as individuals and community, can help to prevent people from heat related complications. It wa...
2025-02-13
34 min
The Parkinson's Experience podcast
108 Parkinson's Research Update - The Future Is Bright
We are well into 2025 so saying Happy New Year is not appropriate anymore. I think now people are asking others how they are doing with their resolutions. I have just one goal this year and that is to learn something new. I’ll let you know how I do. Send me your resolutions in the comment section. I am excited for you to listen to my conversation with Dr. Brian Fiske, Chief Scientist for the MJFF. I like to kick off the new year/new season with a medication update. This year we are going to get an...
2025-01-28
56 min
The Parkinson's Experience podcast
107 Is Your Hearing Loss Related to Parkinson's?
I had a random request from a listener a few months ago. She was struggling with her hearing and wondered if it could be another symptom of Parkinson’s. My first thought was no, I hadn’t heard of that before. But, I told her I would look into it. To my surprise, hearing loss and Auditory Processing Disorder (APD) is another gift PD can give. So, let’s explore the what, how, and why People with Parkinson’s may experience hearing loss or APD. First we will learn about the differences between hearing loss and APD which is...
2024-12-17
41 min
The Parkinson's Experience podcast
106 Care Partner Stories
As we wind down the year with a final couple of episodes, this may be the most important topic. November is caregivers’ awareness month. The Caregiver Action Network (CAN) mission is to promote resourcefulness and respect for tens of millions of family caregivers across the country. This not-for-profit organization is responsible for caregivers’ awareness month. It is vital that we recognize this important person in our lives. They are the unsung heroes in our journey with Parkinson’s or any other chronic disease. They are often overworked, overlooked, and overwhelmed. These important people are part of the care team and shoul...
2024-11-26
33 min
The Parkinson's Experience podcast
105 Hacks - Strategies for Life's Challenges
This episode is one of the reasons I started this podcast called the Parkinson’s Experience. We have four people with Parkinson’s including myself sharing their lived experiences with all of you. The subject is the hacks we use to compensate for challenges we face while living our best life with Parkinson’s. So, what is the definition of “hacks’? If you Google it, you will first see links to the HBO show of the same name. Not helpful for this purpose. Basically, most definitions I found were of negative connotations like hacking a computer or IT system...
2024-11-21
41 min
The Parkinson's Experience podcast
104 Brain on Art
After the series on Art Therapy, I was reflecting on all the great stories of how each guest truly benefited from their experiences with their mode of creative expression. It isn’t just people with Parkinson’s benefiting. Everyone can benefit from attempting a new art activity or going back to what you used to enjoy. Then I started thinking what happens in our brains and body? How do these activities provide such joy and symptom relief? I spoke with the Chair of the Department of Neurosurgery at University of Arizona about the effects of the arts on t...
2024-10-02
26 min
The Parkinson's Experience podcast
103 Art Therapy Part 4 The Joy and Benefits of Music
I’ve had a wonderful time this summer speaking with people with Parkinson’s who have found joy, meaning and symptom relief using one or more forms of artistic expression - let’s call it art therapy. If you haven’t listened to the first three, please do. I found inspiration and information in each one. I hope you will as well. This is the fourth episode in our art series and the topic is music. Just like the others we have discussed; music therapy involves no pills and side effects. There are ongoing research on music’s effect on...
2024-09-12
35 min
The Parkinson's Experience podcast
102 Art Therapy Part 3 Writing Keeps Your Brain Active and Learning
Welcome to Part 3 of our series on the influence the Arts have on people with Parkinson’s and frankly most other conditions. It’s amazing what scientists are discovering about how much music, dance, painting, etc can be beneficial for brain health. I’ve been humbled by our guests. The more I listen to these amazing, brave people, the more I’m impressed by their skills, reliance and courage. It takes guts and dedication to start something new or continue to hone your craft while managing a progressive neurodegenerative disease. In this episode, we are really l...
2024-08-27
23 min
The Parkinson's Experience podcast
101 Art Therapy Part 2 - Dancing the Symptoms Away
Welcome to part two of our four-part series on the arts and Parkinson’s disease. If you haven’t listened to part one, you can definitely listen to this one but I encourage you to listen to part 1 on photography and hearing from our guest, Torrance York, who spoke passionately about photography and how it helps her gain perspective on her journey with Parkinson’s. In this episode, I am thrilled to have Pat Beilman as my guest to discuss dancing and it’s benefits for PwP and others. Dancing can help with your coordination, balance, core strength...
2024-08-20
26 min
The Parkinson's Experience podcast
100 Reverse Mic in Recognition of 100 Episodes
So, I hope you enjoyed the first episode in our four-part series on the Arts and their potential for a better quality of life for people with Parkinson’s. We are going to take a quick brake in the series since this is the 100th episode of the Parkinson’s Experience. To celebrate and acknowledge he 100th episode, the interviewer became the interviewee. One of my fellow support group attendees and an upcoming guest on the podcast , asks if she could interview me for the 100th episode. So, we are reversing the mic. Let's learn more about the...
2024-08-01
25 min
The Parkinson's Experience podcast
099 Art Therapy Part 1 - Photography
This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the research on why the arts can be an important part of your Parkinson’s therapy. So, each episode will be a personal story about that person’s challenges and struggles with their PD journey and how each used a different art to find under...
2024-07-22
41 min
The Parkinson's Experience podcast
098 Parkinson's Together Student Power
Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one. This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson’s Together. It brings students from multiple disciplines to help with patient care. That may include law students, engineers, finance but mainly students interested in the medical field and with interest in helping others. I had a delightful conversation with Mallik...
2024-06-25
33 min
The Parkinson's Experience podcast
097 Benefits of Integrative Medicine
What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time pursuing a fellowship in Integrative Medicine at University of Arizona. She will describe how clinicians can work together with the families of people with Parkinson’s to make for a better experience and a healthier outcome. Sh...
2024-06-18
37 min
The Parkinson's Experience podcast
096 Living with PD and Finding Love
In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a diagnosis of Young Onset Parkinson's Disease (YOPD). It took another 4 1/2 years, and 2 1/2 months after Allison's divorce before she, too, was diagnosed with YOPD New Year's Eve of 2014. Allison went on to make history by becoming the first person with Parkinson's to...
2024-06-04
37 min
The Parkinson's Experience podcast
095 Parkinson's Stages Explained
What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking the progression of the disease is, I think, important. So, today we are going to speak with a movement disorder specialist. He will explain the stages of Parkinson’s disease. What they...
2024-05-23
28 min
The Parkinson's Experience podcast
094 Answers in the Skin
Earlier this season on episode number 088 titled “the Skinny on Skin” we learned about the various skin disorders that can manifest in people with Parkinson’s. Well, on the flip side, the skin is the largest organ in our body. It must hold all kinds of secrets to our health. It turns out alpha-synuclein gets deposited in the skin of patients with synucleinopathies, which includes Parkinson’s and related diseases. Therefore, a skin biopsy can be used to diagnose and confirm these diseases. Not only can this advancement in the diagnosis important, the skin biopsy can also be used to speed u...
2024-05-15
39 min
The Parkinson's Experience podcast
093 Follow Your Gut - The Importance of your microbiome on your health
What do you know about your gut? In the last several years, research has led us to a more detailed understanding of the role of the gut – which includes the stomach, intestines, and colon. This isn’t your father’s understanding of the gut. So, what does the gut have to do with it? It being the possible cause of many diseases including Parkinson’s disease. In this episode we will learn about how the gut has a direct communication with the brain. We all know the saying, “follow your gut”. The direct connection explains why this saying is me...
2024-05-07
26 min
The Parkinson's Experience podcast
092 Innovative Approach for Bladder Relief
The topic today is one of those difficult to discuss symptoms that most of us try to avoid and deal with it on our own. Not a great idea. So, let’s learn about and discuss our bladders. You might have an overactive one which is also referred to as hyperactive or underactive one also referred to as hypoactive. Unfortunately, the probably of anyone having bladder problems grows as we get older. However, people with Parkinson’s have an even higher incident. Listen on to learn why bladder problems occur in people with Parkinson’s and treatments availa...
2024-04-18
38 min
The Parkinson's Experience podcast
091 The Dean Team - Exercise Part 3
Welcome to the third episode in our three-episode series on exercise. During the process of researching for this episode, I have found more and more studies showing that exercise does help reduce symptoms of PD. Very exciting to be able to take control of your journey by including certain exercises in your day and week. My guest today, Dean Laws, did just that. After a period of denial and apathy, his buddies, or mates since Dean lives in Australia, urged him to take control and start running again. They went even further and formed The Dean Team to support...
2024-03-29
43 min
The Parkinson's Experience podcast
090 Exercise Cocktail Part 2
Welcome to part two in our series on exercise and how it has been proven to reduce the symptoms of PD. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” In this episode, Kristine Meldrum and Dr. Corcos, authors of the book “Parkinson’s: How to Reduce Symptoms Through Exercise,” continue to discuss the research and real life experiences of the positive effects realized from a personalized exercise “cocktail”. What should PWP be focused on achieving with our exercise cocktail in order to maximize our time and the benefits...
2024-03-21
29 min
The Parkinson's Experience podcast
089 Exercise Cocktail Part 1
OK, I know what you are thinking. Another exercise episode, really? Yes, but this isn’t your run of the mill plead for people with Parkinson’s to exercise more. Up until now, we have been told to exercise but not given any direction on which exercises are best for us. Recently friends recommended a book that is filling this deficit. It is based on research completed over 30 years in this area. As one of my guests, Dr. Daniel Corcos, explains, “It is crystal clear, exercise slows the progression of Parkinson’s.” I found the book very useful. The author, Kr...
2024-03-12
36 min
The Parkinson's Experience podcast
088 The Skinny on Skin
Did you know that people with Parkinson’s disease have a higher risk of developing certain skin disorders than the rest of the population including melanomas? Have you had a skin issue pop up on you and not know what it is or how you got it? There is a good chance you were experiencing a manifestation of the Parkinson’s disease process or a side effect of the medication you are taking. Just one more thing to worry about. Right? On the other hand, our skin might provide a non-invasive way to help with the diagnosis of Parkinson’s disea...
2024-03-01
48 min
The Parkinson's Experience podcast
087 Tips for Managing Stress
My guest from the last episode on Nutrition, Debbie Polisky, is back to talk about stress and stress management. Research has shown stress can reduce a person’s life expectancy. How many years are we losing is determined by other factors and lifestyle choices. However, I am pretty sure everyone experiences stress in their lives so this episode is important and relevant to all listeners. Specific to People with Parkinson’s, we have many stressors that come with living daily with PD. And, there are other kinds of stressors in our lives – family issues, work issues, the weathe...
2024-02-14
35 min
The Parkinson's Experience podcast
086 Lifestyles and Nutrition
It’s our first episode of 2024. How many of you have already stopped working on your New Year’s resolutions? History would suggest most people fail early. Some of you probably are striving to eat better for your Parkinson’s health and for your overall health. Therefore, it is the perfect time to discuss nutrition and diet. My guest is a dietician who helps the Parkinson’s community understand and practice good nutrition. She breaks down what is good and bad for us and why. She teaches how to shop for the ingredients that are healthy and suggests ways to throw...
2024-02-06
38 min
The Parkinson's Experience podcast
085 Resolution Follow Up
Well, I can’t believe we find ourselves at the end of 2023. Where did the time go? I hope you had a good year. It was a fantastic year for Parkinson’s research and for this podcast. We witnessed a breakthrough in the study of PD with the discovery of a biomarker and how to test for it. That is a game changer. And this is my 85th episode of the Parkinson’s Experience. I’m kind of an old pro at this (emphasis on old). Who knew? On this episode, I follow up on this year’...
2023-12-20
27 min
The Parkinson's Experience podcast
084 Speech Accessibility Project
This episode is about communication via your voice. Are you being heard? Speech issues is one of those symptoms People with Parkinson’s most likely will need to address as part of the journey with this disease. Does Siri or Alexa understand you? Is it frustrating to use these smart voice assistants? Well, my guests are working to change all of that. This episode is about how technology may be able to help us with communicating when our speech isn’t as understandable as it once was. A very smart team at the University of Illinois Beckman Inst...
2023-12-05
31 min
The Parkinson's Experience podcast
083 Community Camaraderie
When you or a loved one has a chronic condition, where do you go to find support, information and your “community”? People with Parkinson’s may not all have the combination of symptoms, but we are all better off when we seek out and find others like us who will be there for you and lift you up. I am grateful to have found a couple groups that have helped me along the way. I’ve formed friendships that go beyond the confines of my disease journey. As I have heard others say, I didn’t want Parkinson’s disease, but...
2023-11-14
39 min
The Parkinson's Experience podcast
082 A DBS Story
This episode is a feel good, inspirational story about the decision to have Deep Brain Stimulation (DBS) surgery. Basically, it’s brain surgery and a major decision. I have the privilege of knowing my guest today and have followed her decision-making process and outcomes. As we know, every person with Parkinson’s is different. However, the decision process will mostly be similar. We focus on that as well as her circumstances and outcomes. This episode is for everyone – people thinking about getting DBS, people who haven’t heard about it and their family and friends. https...
2023-10-10
30 min
The Parkinson's Experience podcast
081 Gene Therapy Explained
Gene therapy has been a previous topic on this podcast. However, it was from a neurosurgeon’s perspective. I continue to be very excited about the possibility’s gene therapy might have for modifying the effects of Parkinson’s disease - stopping the progression. My guest and the company he works for are on the cutting edge of gene therapy research. In this episode, I speak with someone in the trenches of making this possibility into a reality. So, what is gene therapy? How is it different from stem cell replacement? Where are we on knowing more about...
2023-09-19
35 min
The Parkinson's Experience podcast
080 Biomarker Breakthrough
One of the most important problems to solve in the treatment of a disease is to find out how to measure its status in the person. In order to do that you need a biomarker to measure. For example, we take a blood test to measure cholesterol. If it is higher than normal, the physician can prescribe a diet and medication to treat it. Then, measure it again to see if it is working. Well, for Parkinson’s we didn’t have a biomarker. Diagnosis and progression of PD have been mostly measured subjectively with various visual test...
2023-08-02
27 min
The Parkinson's Experience podcast
079 Fatigue
Have you ever felt completely exhausted or fatigued during the day? Does this happen frequently? Not sleepy but totally fatigued or tired. Well, this could be one of those non-motor symptoms of Parkinson’s disease or a medication side effect or something else. Either way, it is really annoying and can affect our quality of life. We discuss fatigue with an expert on the topic during this episode. He tells us what science has discovered about the causes of fatigue and what has yet to be learned. Listen to find out the difference between fatigue and sleepiness as...
2023-07-19
32 min
The Parkinson's Experience podcast
078 Strive for Symptom Objectivity with This Tool
This is the fourth and final episode in our tech series. We could probably highlight many more innovative ideas and companies. It is a very exciting time for the use of technology in the treatment of Parkinson’s disease. In this episode, we talk with a company whose product, StrivePD, is really cool and very useful. It is an app which communicates with the Apple Watch to monitor your motor symptoms throughout the day. You can monitor your symptoms, set medication reminders, and even share your progress with your care team using the app. Providing your neurologist wi...
2023-07-06
40 min
The Parkinson's Experience podcast
077 Modern Day Doctor House Call: Telehealth for PD
This is our third episode in our series on the topic of using technology to assist you along your journey of living with Parkinson’s disease. In this episode, I speak with a representative of a company offering a telehealth platform specifically for neurodegenerative diseases including Parkinson’s. We all quickly adopted to seeing our doctors via the Internet during the pandemic. Some of us grew to like it or even prefer it over in person appointments. It offers conveniency, expertise and a care team approach. Who might be interested in utilizing such a service? Anyone. More specifically, someone with...
2023-06-20
39 min
The Parkinson's Experience podcast
076 PD Tech Part 2: Remote Patient Monitoring
This is our second episode in our tech series. In the first episode we introduced you to a couple of physical items developed to help People with Parkinson’s improve their gait and avoid freezing. The other episodes, including this one, will be more about using the internet and software/apps to help you and your doctor monitor your symptoms and provide you with the best care possible. What if all you had to do is push a button and remote monitoring of your symptoms would begin? You and your doctor will know the exact times you ar...
2023-06-06
31 min
The Parkinson's Experience podcast
075 PD Tech Part 1: Tech for your feet?
We are kicking off our tech series with this episode. Technology has changed the way we interact with the world over the last couple of decades. The pace of change keeps accelerating. We can ask a small box any question and get an answer within seconds. We can pay for items with our phones. The list goes on. However, the healthcare environment hasn’t really caught up to the other sectors when it comes to using tech to assist consumers/patients in improving their lives. We have definitely seen tech improvements when it comes to surgeries like DBS as we...
2023-05-23
28 min
The Parkinson's Experience podcast
074 Rehabilitation: Use it or lose it
When we hear the word “rehab,” what do we think of first? Some might think of a place where addicts go to get clean. Others might think of traumatic injuries sustained in an accident and the road to recovery. And still others might think of the place you go after a hospital stay of any length. In this episode, we will focus on rehab or rehabilitation for People with Parkinson’s no matter what the reason for which you were admitted to the facility. However, the principles we discuss are basically the same for any illness or injury...
2023-05-09
38 min
The Parkinson's Experience podcast
073 Pickleball for Parkinson's
I really like the story you are about to hear. It’s uplifting because my guest is uplifting and inspiring with a nonstop positive outlook and genuine desire to help others. And, I also have come to love the sport of Pickleball. Pickleball is quite the popular sport and growing. About 48 million people in the US play. But, can it help with your Parkinson’s symptoms. Is it safe to play? Let’s explore Pickleball for Parkinson’s with my guest and find out. Oh, and be sure to listen to the end. We had a great conversation after we stopp...
2023-04-26
26 min
The Parkinson's Experience podcast
072 How to Best Manage Your Pain
Pain. We have all felt it over the course of living our lives. However, it isn’t often discussed or attributed as a non-motor symptom of Parkinson’s disease. And yet, it can be one of those symptoms that most negatively impacts our quality of life. How common is it that people with Parkinson’s experience pain? Is it due to the disease or another cause? Does it matter in how to treat the pain? Where should we go for help? In this episode, we talk with an expert specialist in pain management who will break down the fi...
2023-04-11
36 min
The Parkinson's Experience podcast
071 Healthy Mouth Healthy You
Maintaining good overall health and quality of life is important to everyone. Part of the maintenance, my parents always taught me, is regularly visiting the dentist for cleanings and cavity checks. It turns out dental care is particularly important for people with Parkinson’s. Dental hygiene can be challenging for people with Parkinson’s due to their symptoms, both motor and non-motor like apathy and depression. It is so critical to have a healthy oral environment. An unhealthy one can lead to bigger issues. Luckily, there are solutions to some of these challenges. We will break it all down for...
2023-03-27
28 min
The Parkinson's Experience podcast
070 Parkinsonism Explained
It wasn’t that long ago that I heard the word Parkinsonism. What is that? Is that what I have? Why am I just now hearing this term? It turns out that a couple of friends were reassessed and found to have a different, but related, diagnosis than Parkinson’s disease. Each had a different variant of PD. There are several conditions that have similar symptoms as PD. They fall under the umbrella term of Parkinsonism. It is very important to get the correct diagnosis in order to get the appropriate treatment. In this episode, Dr. Holly Shil...
2023-03-14
28 min
The Parkinson's Experience podcast
069 Dual Roles - A Love Story
Someone suggested I read a book titled “Dancing in Small Spaces.” I downloaded it from Amazon and read it quickly. It is a gripping true story of a couple’s life together. Leslie Davidson and her husband Lincoln get diagnosed with Parkinson’s disease and Lewy Body dementia, respectively, around the same time. Although it can be tough to read if you are currently a person with either Parkinson’s disease or Lewy Body dementia, in the end it is a story of love, support and compassion. I really wanted to speak with the author after I finished the book and b...
2023-02-28
37 min
The Parkinson's Experience podcast
068 You Can Do (Almost) Anything with Bill Bucklew
This episode is about one person’s persistence, resilience, and positivity and how these characteristics can lead to be more friendly with your Parkinson’s disease. My guest has many amazing accomplishments that most of us will never even attempt but are interesting to learn about. The message he communicates to all of us is one of self-advocacy, exercise by doing something you like to do, and the importance of community and research. I met Bill Bucklew through the Michael J Fox Foundation Patient Council. His story is inspiring in my opinion. He has walked across the U.S...
2023-02-15
38 min
The Parkinson's Experience podcast
067 PD Medication Review - The Art and The Science
It’s been over a year since we have focused an episode of the Parkinson’s Experience on medication. These episodes are always popular. Even if you think you know a lot about the choices available to treat the motor and non-motor symptoms of PD, I urge you to still listen in. There is always new information and new medications and something for everyone to learn. So, my guest, a movement disorder specialist, and I discuss that getting the correct combination of medications for each individual is as much of an art as it is a science. We w...
2023-01-31
51 min
The Parkinson's Experience podcast
066 Six People Talk New Year's Resolutions
Are you a resolution person? Do you set yearly goals for yourself each January 1st? Do you regularly accomplish your goals? Don’t worry, this isn’t an episode whose goal is to shame you into making resolutions. It can be fascinating what people choose as their resolutions each year. Do they accomplish their goals? For the people with Parkinson's community, are their resolutions related to their journey with the disease? What follows are six brave people with Parkinson’s who tell us their New Year’s resolutions. We will be checking in with them in Decem...
2023-01-18
31 min
The Parkinson's Experience podcast
065 The Present and Future of Surgical Options Explained
This is our final episode of 2022 and we have covered a lot of topics this year and heard from a few of you as well. However, this topic is an important one to understand as we all keep our therapy options open. Neuromodulation, which mostly means neurosurgery and includes Deep Brain Stimulation, may be a perfectly normal option either in the short term or longer time frame. Neuromodulation is the technology that delivers treatment directly to the affected nerves. So, this may include gene therapy or stem cells in the future. It’s exciting to think about. Let’s find...
2022-12-06
52 min
The Parkinson's Experience podcast
064 What Should I Eat?
We weren't sure what the title of this episode should be at first. However, we get a lot of questions from fellow Parkies and others asking what they should eat for better disease outcomes. Thus, the title. Have you ever wondered what would be a good diet for people with Parkinson’s? What foods to eat, what to avoid and why? Do you plan your meals to live your best life? How can a slight change in your food selection make a big difference in your overall outcomes? Well, this is your podcast. We speak with a re...
2022-10-20
36 min
The Parkinson's Experience podcast
063 Brain and Body Donation
This episode is an important research topic. We interview one of the most significant and relevant brain and body donation research programs in the country. Some might find this topic tough to think about since people need to donate their bodies upon their death. However, it is one of the least selfish things to do. Since the brain is difficult to study during the life of the person, it is crucial to research it after death. Therefore, this type of research is essential to discovering what causes Parkinson’s disease to develop therapies, hopefully, to slow the pr...
2022-09-27
34 min
The Parkinson's Experience podcast
062 What Is It Like Living with Parkinson's? Six People Respond
Each person experiences the symptoms of Parkinson's and living with Parkinson's uniquely and it changes as the disease progresses. So the saying goes "if you see one person with Parkinson's, you have seen one person with Parkinson's". No one can assume they will live the same as others with the disease. However, what does it feel like to live with this neurodegenerative disease? Can it be described? Is it any different on a daily basis then how others feel? We asked six people living with Parkinson's from different parts of the country, different ages and b...
2022-09-07
34 min
The Parkinson's Experience podcast
061 6 Marathons in 6 Weeks
The headline read “Six marathons in six weeks.” That hooked me in. Then I read a person with Parkinson’s disease was the runner. Wow. I had to learn more. Everyone reacts differently to the PD diagnosis. Some don’t know what to do or where to start. Some are in denial for as long as they can stay that way. Others tackle it with all they have and find they can take more control over their symptoms and life and accomplish more than they ever imagined with or without the diagnosis. This is the inspirational story about on...
2022-08-23
38 min
The Parkinson's Experience podcast
060 To Drive or Not To Drive
One of the possibilities along the Parkinson’s journey is losing the ability to drive safely. This possibility is a scary one. For many, driving equals independence. So, it means more than just the hassle of getting around. It means losing your independence. It can lead to depression and anxiety. However, it is important to be safe on the road while driving a multi-ton vehicle. We must protect ourselves, our family, and others on the road. So, we are talking today with an Occupational Therapist about when, why, how of driving while diagnosed with Parkinson’s. OT's...
2022-08-01
35 min
The Parkinson's Experience podcast
059 Home Sweet Home (Safety)
The topic of this episode is home safety and how we might think about what we can modify in our homes to be safer in them as we age or as our Parkinson’s progresses. I don’t think of myself as an anxious person or someone who worries excessively. However, I do like to have information stored away for when I need it. After speaking to our expert on this topic, I feel like I have a resource for when I need it. The trick is to have someone help you figure out what modification you shou...
2022-07-19
32 min
The Parkinson's Experience podcast
058 The Eyes Have it - PD and Vision Changes
I often get questions from people in the Parkinson’s community about various symptoms they are experiencing. Is it the Parkinson’s or something else they ask. I usually refer them to their neurologist. Recently, I had a few people ask about changes in their vision which led to challenges in their daily living. I had never thought about vision changes being a thing. So, I sought an expert to explain what vision changes may occur with a Parkinson’s diagnosis, why they may occur and what can be done about it. Whether you are currently having issues or not, I...
2022-06-24
29 min
The Parkinson's Experience podcast
057 The Young and The Diagnosed
What is Young Onset Parkinson’s Disease or YOPD? Are YOPD people experiences different than the majority who are diagnosis at a later stage in their lives? How do they manage all the other challenges and blessings that life offers while dealing with this progressive illness? How do you navigate life with the PD symptoms you are experiencing in an ever-changing environment? We will answer these questions and more with an expert Movement Disorder Specialist, Dr. Sana Aslam, and an inspirational young woman living her best life with Parkinson’s. More information on YOPD visit:
2022-06-03
38 min
The Parkinson's Experience podcast
056 Let's Talk Mental Health Part 2
In this episode, we continue our discussion with Dr. Daniel Weintraub on the topic is mental health and the non-motor symptoms of mood disorders that some people with Parkinson’s experience. This is part two of our discussion. I hope you were able to listen to part one. In part one’s episode, we got a general overview on the topic of mood and thinking disorders in Parkinson’s as well as more specific information on the symptoms of depression and anxiety and possible treatments. In this episode, we address the symptoms of psychosis and cognition along with t...
2022-05-19
41 min
The Parkinson's Experience podcast
055 Let's Talk Mental Health Part 1
Our next topic is so important we are taking two episodes to tackle it. The topic is mental health and the non-motor symptoms of mood and thinking disorders that some people with Parkinson’s experience. It is a very sensitive and tough subject for some people. However, I always subscribe to wanting to understand as much as I can about my condition in order to be best informed and prepared. We have an excellent physician expert, Dr. Daniel Weintraub from the University of Pennsylvania, to walk us through this topic and the various disorders under the broader um...
2022-05-05
32 min
The Parkinson's Experience podcast
054 Social Security Disability Explained
Here at the Parkinson’s Experience, we try to cover every topic that may help even one person out there in podcast land. So, that includes not just the clinical or physical issues that can arise and not just the social and mental challenges that can be difficult but also the financial and work-related strains that can exist for people with a progressive neurological disease. That leads me to introducing this episode’s topic – Social Security Disability (SSD). Because most Parkinson’s patients are over 65 years old, this topic might not be discussed much within support groups. However...
2022-04-21
36 min
The Parkinson's Experience podcast
053 Travel While PD
Summer travel season is around the corner. Although we are still Covid aware, it looks like travel is back. Whether by train, plane or automobile, Americans will be moving again. So, it is a fantastic time to check in with a Movement Disorder Specialist neurologist on how best to travel when you have Parkinson’s disease or are traveling with someone who does. We discuss general tips that can save time and frustrations as well as how to manage your meds. I get a lot of questions about the latter so stay tuned and take notes. I truly hope yo...
2022-04-07
23 min
The Parkinson's Experience podcast
052 Occupational Therapy
OT is third in our 3-part series on the therapies most important to people with Parkinson’s. We covered physical therapy and speech therapy. If you haven’t listened to those two yet, please find episodes 49 and 51. They are very educational. OT, of course, stands for Occupational Therapy. Wait, don’t stop listening. OT does not mean occupational training. It does mean therapy or treating patients how to recover and get back to doing their everyday activities. Occupational therapists like the one you’ll hear next listen to what activities of daily living you are struggling with and work wi...
2022-03-24
37 min
The Parkinson's Experience podcast
051 Speech Therapy
Next up is part two in our three-part series on the therapies that are important to understand if diagnosed with Parkinson’s disease. This episode we focus on speech language pathology or therapy. I am guessing a lot of this information will be new to most of you. It was to me. The speech language pathologist professionals help with communications disorders, cognitive-communication disorders, voice disorders, and swallowing disorders. We may encounter any or all of these at some point on our journey with this disease. So, listen in to learn from an expert speech language pat...
2022-03-10
38 min
The Parkinson's Experience podcast
050 Reverse Mic
So, listeners, we made it to the 50th episode of The Parkinson’s Experience podcast. Wow. I am absolutely thrilled to have made it this far and am encouraged that we will still be talking about our Parkinson’s experiences on this podcast for years to come. Of course, I couldn’t have done this without your support and the support of my exclusive sponsor, Boston Scientific. I am continuedly humbled and touched to learn from listeners who send in comments about how this podcast has made a difference in their lives. That is its purpose and mine. Please keep se...
2022-02-24
21 min
The Parkinson's Experience podcast
049 Physical Therapy
This is the first of our three-part series on the rehab therapies – physical, occupational and speech. All three of these therapies are extremely important throughout our journey with Parkinson’s disease. Most people with Parkinson’s will end up interacting with all three and the trained professionals in each discipline. Up first, physical therapy or PT. This might be the one you think of first when you think of rehab or symptoms associated with Parkinson’s. You may see your physical therapist more frequently than your neurologist some years, so it is important you understand the benefits and goals. We speak...
2022-02-11
31 min
The Parkinson's Experience podcast
048 Cannabis Explained
Someone suggested the title of this episode be “potcast” which would have been cute. However, this is a serious topic so we resisted the urge to be cute on this one. This is not an endorsement of a therapy for Parkinson’s (you should always speak with your doctor before taking any medication). Rather it is meant to be educational and informational – a good, quick reference to the use of cannabis in the treatment of some of the symptoms of PD. In fact, we have included important reference links in the episode description if you want to learn more. In this epi...
2022-01-28
34 min
The Parkinson's Experience podcast
047 Taking Care of our Veterans
The topic for our end of 2021 podcast episode is how the Veterans Administration in the U.S., services the needs of our veterans with Parkinson’s disease. And it is good news for our heroes. Additionally, everyone can learn something from our speaker, Dr. Paul Larson a neurosurgeon. It isn’t just for our vets and their care partners, friends, and family. Listen to learn more about the VA program called PADRECC and cutting-edge research that has helped all of us. It played a key role in bringing us Deep Brain Stimulation surgery and some awesome neurosurgeons. https...
2021-12-28
25 min
The Parkinson's Experience podcast
046 Improv for the Soul and Brain
Most of us people with Parkinson’s know that exercise is essential to living well with PD. We may not realize how important it is to exercise our brain as well. Yet, it is just as vital to challenge our brain as we do our bodies. Improvisation is a fun way to check this box. Improv might not be what you think it is. It isn’t stand-up comedy, and it really isn’t scary. It is an unplanned collaborative response to others using games and play to illicit reactions. Anyone can do it and it seems to improve quality...
2021-12-04
37 min
The Parkinson's Experience podcast
045 Rethinking Your Approach to Care
This episode introduces us to Palliative Care and is one of the most important topics we have covered on the Parkinson’s Experience podcast. Don’t be deterred by the subject. I guarantee you will learn a lot from our guest, and it will make you rethink how you manage your health and pick your care team. This is not about hospice care. Palliative care is defined as an approach to care that addresses the person as a whole, not just their disease. The goal is to prevent or treat, as early as possible, the symptoms and side effects of the...
2021-11-09
27 min
The Parkinson's Experience podcast
044 Why Boxing
Why is boxing one of the exercises recommended for People with Parkinson's? The list of benefits from this fun fitness activity is long and includes a link to cognition, stretching, balance and strength. It's the whole package. Learn more as you listen to the owner and head trainer of Pound Gym. https://poundgyms.com/ Also, 17 Branches is holding it's annual fundraiser, Box4Bucks, on October 23rd in Scottsdale, AZ and virtual on Facebook Live. For more information, visit https://fundraise.michaeljfox.org/box-4-bucks/
2021-10-20
20 min
The Parkinson's Experience podcast
Gene Therapy Explained
In the category of what treatment options are on the horizon for Parkinson’s disease, gene therapy is one of the exciting ones. It can also be difficult to understand what it is and how it might help our brain function more normally. Never fear dear listener, we found a guy, well a brain surgeon super smart guy, to explain it to us so we can get it. So, stay tuned as we learn all about gene therapy as a potential treatment for Parkinson’s disease and how close we are to possibly adding it to the options available to n...
2021-10-05
35 min
The Parkinson's Experience podcast
Off Medication Update
It’s been over a year since we have had an episode of the Parkinson’s Experience on medication. So, we are focusing this episode on motor symptoms medication and, specifically, medication to help during the "off times". We begin the episode by having our Movement Disorder Specialist neurologist define off times and dyskinesias. Then, we break down the medications used during off times and for dyskinesias by category or mechanism of action. This is a great reference and important information for all People with Parkinson's. Please share with your friends who have questions.
2021-09-20
36 min
The Parkinson's Experience podcast
041 Improve Your Golf Swing Improve Your Life
We often talk about exercise and activities as a great way to slow the progress of Parkinson's symptoms. Golf may not be one that comes to mind. Until now. In this episode I speak with a golf instructor who specializes in the biomechanics of the golf swing. His father had Parkinson’s disease. This led him to a passion for helping PWP. It just so happens the correct way to stand and swing a club and even the best way to putt aligns with the best posture for PwP to help with balance, core, and flexibility. I’m a...
2021-09-09
30 min
The Parkinson's Experience podcast
040 The Many Benefits of Indoor Cycling (No Head Wind)
I was introduced to my guest today by a past guest who takes her forced exercise cycling online classes for People with Parkinson's (PwP). Forced exercise isn’t exercise at gun point which is kinda what it sounds like. It is exercise with goals of hitting certain higher watts or rpms (revolutions per minute) so you maximize your heart rate. In other words, it isn’t sitting on a bike and reading a book. You may have heard of the now famous tandem bike ride that changed the way some think about exercise as a benefit to PwP...
2021-08-24
35 min
The Parkinson's Experience podcast
039 Parkinson's, Paint and DBS
Welcome to the 3rd episode in our 3-part series on inspirational people living their best lives with Parkinson’s. We’ve highlighted a woman who climbed Mt Kilimanjaro and biked across Iowa 6 times and a woman who took up Ping Pong and won gold. She will be defending her title next month in Berlin. Good luck Margie Alley! On this episode, we speak to an inspirational woman who took up painting after her tremor disappeared with DBS. She finds that painting is calming and helps with other symptoms. And, she has become a real student of her new...
2021-08-10
33 min
The Parkinson's Experience podcast
038 Gotta Keep Moving
The working title of this episode was "Ping Pong Phun". Instead we named it the same title as the guest's documentary which is a much better title and reflects our guest, Margie Alley's, motto. This episode is second in our summer of inspiration series. We hope you listened to the last episode featuring an inspirational woman who climbed Mt Kilimanjaro after her diagnosis and has a great way of looking at life. On this episode, we speak with a woman on the opposite coast of the U.S. and took on the challenge of learning Ping Pong...
2021-07-28
36 min
The Parkinson's Experience podcast
037 How Are You Going to Live?
We are in the middle of summer and a great time to listen to podcasts on those road trips, beach vacations and long walks. So, the Parkinson’s Experience has lined up an exciting three-part series featuring inspiring people living their lives with Parkinson’s disease. Nan Little is my first inspirational guest. She asked a great question at the end of the episode - how are you going to live? Everyone faces challenges in their life. Some face multiple challenges at once or over time. It’s what we do, how we react to these li...
2021-07-13
33 min
The Parkinson's Experience podcast
Music Therapy is Beneficial
Whether you can sing or can't hit a note. It doesn't matter to this exclusive club. You can only join if you are a Person with Parkinson's or a family member or friend. It's called Tremble Clefs and it's more than just singing. Music therapy is at the heart of this wonderful program. Parkinson’s disease tends to decrease voice volume. A monotone voice quality is another common symptom. In this episode, we learn from an expert in music therapy, different than just singing, about how we can improve voice, rhythm, movement, breathing, posture, facial expression, and me...
2021-06-29
37 min
The Parkinson's Experience podcast
Parkinson's Without Limits
In this episode, we discuss not letting Parkinson's win. There is a new, make a wish type program for Parkinson's patients founded by a passionate advocate for the community and owner of a PD gym. What do you want to do again that PD has taken from you? Exercise is the only thing proven to slow the progression of Parkinson’s disease. Regular listeners of “The Parkinson’s Experience” will know we have featured PD gyms across the country devoted to helping People with Parkinson's (PwP) fight the good fight. This episode will be different so please take a ...
2021-06-15
40 min
The Parkinson's Experience podcast
Answers in the Skin
What if a simple skin biopsy test could provide a deeper story about your health? The answers that the neurons in the skin can provide is amazing and has helped neurologists feel more confident in diagnosing a neurodegenerative disease like Parkinson’s. It certainly is less invasive than other tests used to confirm a diagnosis. Why is this important? The earlier the diagnosis, the faster you and your doctor can start planning your treatment and path to better outcomes. Also, it provides a quick, painless way to understand if a medication in clinical trials is working. That can...
2021-06-02
26 min
The Parkinson's Experience podcast
Improve Your Handwriting
How’s your handwriting? Has it worsened over time? Mine has. In fact, that was one of my first clues that I may have Parkinson’s. Small handwriting is a symptom of PD and it can be frustrating. It may also mean a decrease in hand strength. Legible handwriting is still very important skill and a source of pride. In this episode we speak with a person who is dedicated to helping PwP improve their handwriting through workshops and workbooks and a PwP who has taken the classes. In a matter of a few weeks, people will be able to re...
2021-05-18
32 min
The Parkinson's Experience podcast
Freezing Assist
People with Parkinson’s have a 2-9 times increased risk of falls than a healthy person of the same age. This can be due to freezing of gait which occurs in about 40% of patients on average. Do you experience times where you just can’t move, can’t just take the next step for short or longer periods of time? Let’s explore why and how you can help yourself without necessarily increasing or adding medications. In this episode, we will hear from the inventor of an innovative device to help with freezing and falling as well as a PD patien...
2021-05-05
34 min
The Parkinson's Experience podcast
A Device to Help You Be Heard
Do people ask you to repeat yourself frequently? Do you think you are talking loud enough for others to hear? This is not uncommon in PwP. It has been estimated that approximately 90% of all Parkinson’s patients will experience speech issues at some point in their journey with this disease. Some people don’t know they are speaking softly and/or not clearly so others can understand. This can lead to poor communication and social isolation. Speech therapy can and does help. However, now there is a new wearable device available that is proven to increase volume and clarity in y...
2021-04-21
38 min
The Parkinson's Experience podcast
Top 3 Tips for Caregivers
In this episode we tackle the extremely important topic of caregiving. Being a caregiver or care partner is often challenging and offers its own journey. It can be exhausting, frustrating, fearful, painful, as well as joyful, hopeful and rewarding. This is true for all caregiving not just for our love one’s with Parkinson’s disease. Today you’ll hear from someone who has experienced all the humanness of being a caregiver and ended up making it her life’s work to help all of us with the complex feelings that come with being a caregiver. She has written best sel...
2021-04-07
38 min
The Parkinson's Experience podcast
Super Smellers
As of today, there is still no objective test to diagnose Parkinson’s disease. While we wait for researchers to find a biomarker, there is an organization using dogs to sniff out and detect an odor associated with PD. Yep, you heard it right. The dogs are super smellers and can detect PD with a 90% or better accuracy. To learn more about this and what this means for diagnosis and treatment of PD, we talked with the program director and one of the dog handlers. You won’t want to miss this conversation.
2021-03-17
37 min
The Parkinson's Experience podcast
Education and Advocacy - a 1-2 Punch
There are numerous opportunities around the country to get educated on Parkinson’s disease. There are books, videos, webinars, websites, and educational classes offered by clinics and outreach centers, as well as national foundations and organizations. It is very important to start your education very soon after diagnosis and continue to learn the rest of your life. Today, I want to highlight two not-for-profit groups offering free educational classes to the newly diagnosed but with a twist – how to advocate for yourself along with educating yourself throughout your life. This is an innovative approach and an important combination. It’s the...
2021-03-02
40 min
The Parkinson's Experience podcast
COVID PwP Experiences
In this episode we speak with Dr. Shill again to get an update on the COVID -19 pandemic, the vaccines and how this all relates to Parkinson’s disease. Dr. Shill gave us a fantastic overview in August 2020 in episode 11 if you want to revisit that one. Also, we are trying something new on this podcast. Listeners recorded and sent in their stories of how using Zoom has helped them through these isolating times. Their stories are included in this episode. Enjoy.
2021-02-17
25 min
The Parkinson's Experience podcast
Parkinson's Fighters
There is a special place in Portland, OR where an enthusiastic, trained fitness coach built a gym dedicated to helping people with Parkinson’s. She calls the people she trains – Fighters. That is very appropriate and sets the tone for what she expects from them. In one building they can take classes in drumming, singing, dancing, boxing, Tai Chi, yoga and more. 350 people take advantage of this opportunity to work on their physical and mental well being. Listen in as Kimberly Berg describes how she does it and one of her Fighters tells of her experience attending in person and no...
2021-02-05
36 min
The Parkinson's Experience podcast
Answers in Your Genes
In this episode we discuss the genetic connection to Parkinson’s. It doesn’t matter if you know you have a genetic mutual, if you know you don’t have one or you don’t know and don’t want to know, you will learn a lot about how the research into the genetic mutations linked to PD is leading to science better understanding of the origins of the disease and eventually a cure. We talk to a leading researcher at NYU about the connection. Also, we hear from a family who has a deep connection to the LRRK2 mutation a...
2021-01-21
36 min
The Parkinson's Experience podcast
PwPs Best Friend
Did you know that a dog can be trained to help People with Parkinson’s? It’s true and amazing to learn about. When trained to service PD patients, the dogs can help with freezing, mobility, exercise, get help, fetch medications, push a wheelchair, protect and provide comfort. Most of all they help restore dignity, confidence and independence. Stay tuned to learn more about these special animals. Warning: this is a tear jerker.
2021-01-07
33 min
The Parkinson's Experience podcast
Long Term Care 0 To Buy or Not to Buy
We have been tackling the decisions that people need to make for their healthcare insurance choices in our first series of episodes on a topic. Next up, long term care insurance options. There are 3 broad choices people can make. Which one depends on your situation. This is another very important, yet confusing life choice. Learn all about this important option in this episode.
2020-12-21
33 min
The Parkinson's Experience podcast
Making Sense of Medicare Choices
Continuing our series on healthcare insurance options. Next up, Medicare. There are more choices than when your parents became eligible. In this episode, we learn from an expert on what option is the best one for your situation and when and if you can change your choice when your circumstances change. No matter what age you are, this is an important topic to understand. It can be very confusing. We break it down and make sense of the confusion.
2020-12-14
43 min
The Parkinson's Experience podcast
Saving Money on Medications
This is the second episode in our series on healthcare choices and picking the best options for you. Next up – online pharmacies. Where do you get your medications? The ones you need to treat an ongoing condition. Most people use the corner pharmacy. It’s convenient. Have you wondered about switching to an online pharmacy? One that can source drugs from Canada and other countries with lower costs for their medications? Thousands of people use them and save a lot of money. Is it safe? How does it work? Stay tuned and find out.
2020-12-07
29 min
The Parkinson's Experience podcast
Healthcare Insurance Explained Part 1 Individual Marketplace
Healthcare in the US and, more specifically, healthcare insurance is a very difficult, confusing and frustrating industry to navigate and understand. It can also be expensive. Yet, it is so important to our wellbeing. How do you make the best choices of you and your family? Even if this doesn’t affect you so much now, it will. Therefore, the Parkinson’s Experience will be producing its first series of episodes on one topic – understanding your healthcare insurance options. I guarantee you will learn at least one thing in each episode. First up, the individual marketplace for healthcare insurance.
2020-11-30
27 min