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Spotlight On FASD
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Chaos im Kopf - Dein FASD Podcast
FASD und Pubertät (C83)
Die Pubertät ist turbulent – besonders für Jugendliche mit FASD und ihre Begleitpersonen. In diesem Interview spreche ich mit der Expertin Christina Heib, die uns erklärt, welche massiven hirnphysiologischen Umbauprozesse während dieser Lebensphase stattfinden und warum diese bei FASD besonders herausfordernd sind.Dies ist eine Episode in Zusammenarbeit mit dem FASD-Fachzentrum Köln.Was im Gehirn wirklich passiertChristina erläutert verständlich, welche Veränderungen – wie Neurogenese, Synaptogenese und Myelinisierung – während der Pubertät ablaufen. Du lernst, warum diese Prozesse bei Jugendlichen mit FASD beeinträchtigt sind und welche Auswirkungen das auf Verhalten und...
2025-05-22
38 min
Chaos im Kopf - Dein FASD Podcast
Anders anders – Die Kölner FASD Peergroup (80)
In dieser Episode begrüße ich Joyce, Jacqueline und die Teamerinnen Roxy und Sabine von der Kölner FASD Peer Group „Anders Anders“, einem Angebot des Kölner FASD Fachzentrums. Diese besondere Gruppe bietet jungen Menschen im Alter von 14 bis Anfang 20, die mit fetalen Alkohol-Spektrum-Störungen (FASD) leben, einen geschützten Raum für Austausch, Verständnis und gemeinschaftliche Aktivitäten.Themen der Episode:Einblicke in die Peer Group: Joyce und Jacqueline erzählen, wie sie zur Gruppe gekommen sind und welche Erfahrungen sie dort gemacht haben. Von einem freundlichen Empfang bis hin zu Aktionen wie Kletterausflügen – die Peer Group bi...
2025-03-23
33 min
Able to Care
FASD Awareness: Alison McCormack on Diagnosis, Challenges & Effective Support
In this episode of the Able to Care Podcast, host Andy Baker is joined by Alison McCormack, a leading advocate and expert in Fetal Alcohol Spectrum Disorder (FASD). Alison has spent years raising awareness, supporting families, and training professionals on the complexities of FASD and its impact on individuals and caregivers. Alison shares her personal journey into FASD advocacy, the challenges families face when seeking a diagnosis, and the misconceptions surrounding FASD. She also highlights practical strategies for supporting individuals with FASD, the importance of early intervention, and why better awareness is needed across education, healthcare, and...
2025-03-11
1h 01
The MotherToBaby Podcast
Living with FASD
In this episode, Jenn Wisdahl, Chief Operating Officer at the non-profit FASD United, and Laura Bousquet, a mother to a young adult son diagnosed with FASD in his teens, join host Chris Stallman, CGC to discuss challenges many families with lived FASD experience face. Wisdahl leads FASD United's legislative and policy agenda and trains members of the FASD community to serve as advocates. She was also an executive producer on the award-winning short film “The FASD Project,” and is a proud parent to 3 young adults with FASD. Bousquet is a passionate FASD advocate and active FASD United Board member whos...
2025-01-23
38 min
Chaos im Kopf - Dein FASD Podcast
FASD Selbsthilfegruppe Porta Westfalica (C75)
In dieser Episode des Podcasts "Chaos im Kopf" spricht Wolfgang mit Anne-Meike Südmeyer und Birte Schilling über die FASD Selbsthilfegruppe Porta Westfalica.Die Entstehung der SelbsthilfegruppeBirte Schilling gründete die Selbsthilfegruppe vor vier Jahren, nachdem bei ihrem Pflegesohn PFAS diagnostiziert wurde. Sie suchte nach Austausch mit Gleichgesinnten und fand in der Region keine passende Gruppe. Anne-Meike Südmeyer stieß später zur Gruppe und schätzt den Humor und das Verständnis, das sie dort findet.Angebote und AktivitätenNeben den regelmäßigen Treffen bietet die Gruppe Familiennachmittage, eine Spiel- und Sportgruppe...
2024-11-14
24 min
Chaos im Kopf - Dein FASD Podcast
FASD Aktionswoche 2024
Vom 9. bis 16. September 2024 läuft die FASD Aktionswoche, und in dieser Episode erfährst du einiges über die geplanten Aktionen und Veranstaltungen. Freue dich auf exklusive O-Töne und spannende Events.Da ich während der Woche im Urlaub bin, habe ich diese Episode vorbereitet, um dir vorab Infos zu der Aktionswoche zu geben.Sabine Stein - FASD Fachzentrum KölnDen Anfang macht Sabine Stein vom FASD Fachzentrum Köln. Sie informiert über ein besonderes Tanztheater/Performance-Event:Event-Tipp:FASD Theaterprojekt "Ich bin Marc"Termin: Dienstag, 10. September 2024, 18 UhrOrt: Urania Theater KölnBegrenztes Kartenkontingent sichernMehr Infos: fa...
2024-08-29
10 min
The FASD Success Show
Level Up Your FASD Advocacy with Alicia Munn
Send us a textJoin us for an insightful and inspiring episode of The #FetalAlcoholSyndrome(FASD) Success Show. I'm your host, Jeff Noble. In Episode #155, we are thrilled to welcome Alicia Munn, a dedicated advocate and pioneer in the FASD community. Alicia brings a wealth of knowledge and practical experience, offering invaluable tips for creating an FASD-friendly environment and navigating the complexities of FASD advocacy.In this episode, Alicia shares her journey from working in healthcare to becoming a key figure in FASD support and education. Her story is a testament to the power of...
2024-05-19
1h 40
The FASD Success Show
Why Accepting Help...Helps! Unveiling Aaron Howlett’s Journey from Acceptance to Advocacy in FASD
Send us a textStep into Episode 151 of The FASD Success Show, where we uncover Aaron Howlett's heartfelt story, a narrative that many in our community will find intimately relatable. Witness Aaron's evolution from confronting daily FASD hurdles to stepping up as a beacon for advocacy and enlightenment within the FASD realm.Join Jeff Noble and Aaron in a conversation that delves into the trenches of living with FASD. Aaron articulates the journey from initial confusion and struggle to the empowering realization of the importance of support and self-advocacy. This episode offers an a...
2024-03-24
44 min
The FASD Success Show
#148 Discover the Impact: Transforming FASD with Peer Mentorship
Send us a textWelcome to Episode #148 of The FASD Success Show: Discover the Impact: Transforming FASD with Peer Mentorship. This week, host Jeff Noble brings you an enlightening conversation centered on the transformative effects of connection, understanding, and peer support within the FASD community. We're excited to showcase how Adopt4Life's pioneering mentorship program is making significant strides, offering new hope, and facilitating positive change.Join us for an engaging discussion with Nicole, one of the six project mentors (Christina, Connor, Monica, Nicole, Sabrina and Shelby) who shares her firsthand experience as...
2024-03-03
50 min
The FASD Success Show
Episode #142: Amanda Burley - How to Make and Keep Friends with FASD
Send us a textJoin us on a compelling journey into the heart of FASD caregiving and advocacy in Episode #142 of The FASD Success Show. I'm your host, Jeff Noble, and in this insightful episode, we welcome Amanda Burley, a dedicated Personal Support Worker trainee and a passionate advocate for the FASD community. This episode is a tapestry of personal stories, professional experiences, and the resilience required to navigate the complexities of FASD. Amanda brings her unique perspective to the show, sharing valuable lessons from her own life as someone living with FASD. We delve i...
2024-01-22
1h 08
The FASD Success Show
Episode #140: Audrey McFarlane – Pioneering Progress in FASD
Send us a textWelcome to Episode #140 of The FASD Success Show, where we're kicking off the new year with renewed energy and unwavering commitment to the FASD community. Join us as we dive into an enlightening conversation with Audrey McFarlane, Executive Director of the Canada FASD Research Network, and explore the groundbreaking developments shaping the future of FASD advocacy and support.In this episode, Audrey shares insights on the evolution of FASD discussions, emphasizing a holistic approach beyond prevention and addressing the diverse needs of individuals with FASD and their families. We unveil the...
2024-01-08
58 min
Even Tacos Fall Apart
FASD, the FASCETS Neurobehavioral Model & Child Welfare with Patricia Kasper
Discover the groundbreaking FASCETS Neurobehavioral Model and its profound impact on understanding Fetal Alcohol Spectrum Disorder (FASD) within child welfare - essential listening for anyone passionate about improving the lives of children and families. In this episode, Patti Kasper and I delved into a profound discussion centered around the FASCETS Neurobehavioral Model, Fetal Alcohol Spectrum Disorder (FASD), and its implications in child welfare. The conversation was enlightening and touched on various critical aspects of these complex subjects. Patti began by highlighting her extensive background in child welfare and her journey through different academic disciplines, including...
2023-09-19
1h 56
Spotlight On FASD
Season 5 Episode 9 - The UK FASD Manifesto Bonus Content
With Clare Devanney Glynn and Dr. Jessica Rutherford.
2023-09-16
46 min
Spotlight On FASD
Season 5 Episode 8 - The UK FASD Manifesto
With Clare Devanney-Glynn and Dr. Jessica Rutherford
2023-09-09
59 min
'Mind the Kids': an ACAMH podcast
Fetal Alcohol Spectrum Disorder (FASD) – Understanding the Diagnosis
DOI: 10.13056/acamh.24914 In this ‘In Conversation’ podcast, Sandra Butcher, Chief Executive of National FASD, and Rachel Jackson, a member of National FASD Adult and Young Adults with FASD Advisory Committee and a lived experience perspective, provide insight into FASD (Fetal Alcohol Spectrum Disorder). In the United Kingdom, September is celebrated as FASD Awareness Month, with 9 September 2023 internationally recognised as International FASD Day. Discussion points include: What is FASD, its prevalence, and its presentation? The risks of alcohol consumption whilst pregnant. A compelling lived experience perspective of living with FASD, and the importance of u...
2023-09-08
31 min
Chaos im Kopf - Dein FASD Podcast
FASD und der Übergang in die Eingliederungshilfe (C60)
Was passiert wenn die Jugendhilfe für junge Menschen mit FASD endet?In dieser Folge des Chaos im Kopf Podcasts erfährst du, was passiert, wenn die Jugendhilfe für junge Menschen mit FASD (Fetale Alkoholspektrumstörungen) endet. Diese ist eine Episode in Zusammenarbeit mit dem Kölner FASD Fachzentrum. Mein heutiger Gast, Frauke Zottmann-Neumeister, ist eine Expertin auf dem Gebiet der sozialrechtlichen Fragen rund um FASD und teilt ihr umfangreiches Wissen mit uns. Sie gehört Zu den freien Mitarbeitern, Referenten und guten Seelen des Kölner Fachzentrums.Einflussnahme auf die GesetzgebungFrauke erzählt...
2023-06-29
48 min
Chaos im Kopf - Dein FASD Podcast
Hat mein Kind FASD? Teil II (C58)
Bist du Bezugsperson von einem Kind oder Jugendlichen und du hast die Vermutung, dein Kind könnte FASD haben?Du weißt noch nicht so genau was FASD ist?Oder du möchtest dich informieren, wie das mit der Diagnose funktioniert?Dies ist der zweite von zwei Teilen. Hier geht's zum ersten Teil: Hat mein Kind FASD? Teil I (C57)Darum geht's in dieser Episode:FASD ist eine lebenslange Beeinträchtigung und nicht heilbar.Es gibt viele Möglichkeiten, das Leben mit FASD zu erleichtern. Oft ist Ausprobieren die Devise.
2023-06-01
12 min
Chaos im Kopf - Dein FASD Podcast
Hat mein Kind FASD? Teil I (C57)
Bist du Bezugsperson von einem Kind oder Jugendlichen und du hast die Vermutung, dein Kind könnte FASD haben?Du weißt noch nicht so genau was FASD ist?Oder du möchtest dich informieren, wie das mit der Diagnose funktioniert?Dies ist der zweite von zwei Teilen.Darum geht's in dieser Episode:Späte FASD-DiagnosenWas ist FASD?Mythen über FASDSymptome/AuffälligkeitenFASD DiagnoseDie 4G-Säulen der DiagnoseLink zur schriftlichen Version: FASD Diagnose: Hat Mein Kind FASD?Mein kostenloses E-Book "Kompaktes Wissen über FASD" bietet dir in 7 Sch...
2023-05-25
17 min
Chaos im Kopf - Dein FASD Podcast
FASD und die Lebenshilfe Essen (C56)
Vor etwa 1 Jahr (2022) habe ich eine Email bekommen, in der sich das FASD-Zentrum der Lebenshilfe Essen vorstellt. Von der Leiterin dieser Abteilung, Lena Meister, werden wir erfahren, was sich in diesem Jahr getan hat.Was ist die Lebenshilfe?Die Lebenshilfe setzt sich für Menschen mit Behinderungen ein und ermutigt und unterstützt sie dabei, am Leben teilhaben zu können. Die Lebenshilfe ist als Verein zur Selbsthilfe gestartet und ist zu einem großen Sozialträger gewachsen.Was sind die Aufgaben des FASD-Zentrums Essen?Die Lebenshilfe Essen hat unterschiedliche Unterstüzungsangebote, z.B. Fa...
2023-04-06
25 min
Spotlight On FASD
Season 5 Episode 6 - Oshay's Brain Domains
This week Jessica is joined by Maryelen Mcphail, the founder of Oshay's Brain Domains, whose mission is to raise awareness and provide support to families affected by FASD. With Clare Devanney Glynn and Jessica Rutherford.
2023-03-31
53 min
Spotlight On FASD
Season 5 Episode 5 - Encounters with the Criminal Justice System: A Research Study
We end our criminal justice mini series chatting with David Junior Gilbert, Doctoral Researcher at the Univeristy of Salford. Gilbert's research looks into the encounters of individuals with FASD in the Criminal Justice system, listen now to hear about it from Gilbert himself! With Clare Devanney-Glynn and Jessica Rutherford.
2023-03-24
30 min
Spotlight On FASD
Season 5 Episode 4 - Vulnerability and Victimisation With Jerrod Brown
Vulnerability and Victimization, two very important considerations when FASD and the criminal justice system collide, and the focus of this weeks discussion with Jerrod Brown. With Jessica Rutherford and Clare Devanney-Glynn.
2023-03-17
36 min
Spotlight On FASD
Season 5 Episode 2 - FASD Ireland
This week Clare and Jessica are chatting with Tris Casson-Rennie, CEO of FASD Ireland! With such a busy year ahead, we caught up with Tris in the very early days of the organisation so be sure to check out their website and follow on social media to see all they've been up to since! With Clare Devanney Glynn and Jessica Rutherford.
2023-03-03
54 min
Chaos im Kopf - Dein FASD Podcast
FASD-Arbeitskreis: Hilfe in schwierigen Situationen (C54)
In dieser Podcastfolge geht es um das Thema FASD und wie Familien damit umgehen können. Im Rahmen einer Zusammenarbeit mit dem FASD-Fachzentrum Köln habe ich Anne Görgen interviewt. Anne ist Mitglied eines FASD-Arbeitskreises und erzählt uns von ihren Erfahrungen.FASD-Fachzentrum KölnDas FASD-Fachzentrum Köln bietet Unterstützung für Familien und Bezugspersonen von Menschen mit FASD an. Neben Beratungsangeboten gibt es auch Arbeitskreise, in denen sich Betroffene und Angehörige austauschen können.FASD-ArbeitskreisAnne erzählt, dass sie nach der Diagnose ihrer Pflegekinder in einer sehr schwierigen Situation w...
2023-03-02
35 min
FASD Family Life
FASD World Tour: New Zealand Research on Caregiver Stress and Resilience
Send us a textFASD is a significant global health issue that needs attention which is why I decided to go on a WORLD TOUR to highlight the issue of FASD around the world as well as the tremendous work being done to re-educate society of the risks of consuming alcohol during pregnancy, to advocate for systemic changes that would recognize FASD as a permanent disability, and provide support for individuals, and their families, impacted by prenatal alcohol exposure.Kia Ora and welcome to the FASD Family Life Podcast. This is the only...
2023-02-17
55 min
FASD Family Life
FASD WORLD TOUR: New Zealand Care Action Network (FAS-CAN)
Send us a textKia Ora and welcome to Season 4, episode 18 of the FASD Family Life Podcast. This is the only show about FASD hosted by an FASD Specialist and parent with 30 years lived experience. I am Robbie Seale, your host and mom to five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. As an FASD Specialist it is my passion to help families thrive. To learn more about me and my work check out my website, https://fasdfamilylife.ca/I started this podcast to be the friend I wished I h...
2023-02-10
32 min
Chaos im Kopf - Dein FASD Podcast
Mobile FASD Beratung im Hunsrück (C52)
Meine Gäste in dieser Episode sind Christina Heib und Ulli Mai. Sie bringen uns heute eine Region näher, die ich bisher so gut wie nicht kenne. Sie sind dabei, eine mobile FASD Beratung für den Hunsrück, sogar für Rheinland-Pfalz und das Saarland aufzubauen.Langjährige Erfahrungen in der Kinder- und JugendhilfeChristina und Ulli haben Jahrzehnte lange Erfahrungen in der Kinder- und Jugendhilfe sammeln können. Bei dem relativ kleinen Träger "Live Soziale Chancen" hat man schon länger die Auffassung, die Jugendlichen nicht fallen zu lassen, wenn's mal schwierig wird. Das...
2023-02-02
33 min
Chaos im Kopf - Dein FASD Podcast
FASD in 360 Sekunden (C51)
Was ist FASD?Wenn ein Mensch vorgeburtlich Alkohol ausgesetzt war, hat das oft gravierende Entwicklungsstörungen zur Folge. Insbesondere ist das Gehirn davon betroffen.FASD DiagnoseFASD ist die Abkürzung für Fetale Alkoholspektrumstörungen. FASD ist der Sammelbegriff - das Spektrum - von drei verschiedenen Diagnosen:FAS (Fetales Alkoholsyndrom), pFAS (partielles Fetales Alkoholsyndrom), ARND (Alkoholbedingte EntwicklungsNeurologische Störungen)Mit FASD lebenWir haben es hier mit sehr unterschiedliche Menschen zu tun. Und es gibt unterschiedliche Ausprägungen von Störungen. Menschen mit FASD haben nicht nur Defizit...
2023-01-26
05 min
FASD Family Life
Parkland School Shooter Nikolas Cruz: FASD, Facts, Fiction, and Stigma
Send us a textWelcome to Season 4, episode of the FASD Family Life Podcast. the show for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.I am thrilled to be with you today! Thanks for taking me along with y...
2022-11-04
55 min
FASD Family Life
WORLD TOUR: First Stop - FASD Ireland
Send us a textWelcome to Season 4, episode 7 of the FASD Family Life Podcast. the show for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.I am thrilled to be with you today! Thanks for taking me along with...
2022-10-14
1h 01
FASD Family Life
Life with FASD & 428 Comorbid Health Conditions
Send us a textWelcome to Season 4 of the FASD Family Life Podcast. the show for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.This podcast is supported by listeners like you! Click here to Support the s...
2022-09-30
1h 11
FASD Family Life
Daring To Dream Big; My Life With FASD
Send us a textWelcome to Season 4 of the FASD Family Life Podcast. the show for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.Enjoy listening to FASD Family Life Podcast while you are walking, running errands, as part of...
2022-09-23
29 min
FASD Family Life
Build a Life You Can Be Proud of; My Life With FASD
Send us a textWelcome to Season 4 of the FASD Family Life Podcast. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.SEASON 4 of the FASD Family Life Podcast kicks off with FASD Awareness month, before I embark on my VIRTUAL World Tour in October to speak with FASD Researchers, Service Providers, and Individuals...
2022-09-19
37 min
FASD Family Life
All About FASD Q & A - A Panel Discussion with Dr. Jerrod Brown
Send us a textWelcome to the FASD Family Life Podcast. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. I know the the struggle is real and so is success.This podcast is supposed by listeners like you Support the show SUBSCRIBE so you never miss an episode. SEASON 4 of the FASD Family Life Podcast kicks off with FASD Awa...
2022-09-09
1h 13
Spotlight On FASD
Season 5 Episode 1 - Celebrating The Launch Of The NICE Quality Standards
Season 5 launches with a wonderful celebration for the FASD community in England. We celebrate in this episode with Prof Raja Mukherjee and Sandy Butcher about the creation and launch of our very first NICE Quality standards for FASD. With Clare Devanney Glynn and Jessica Rutherford.
2022-09-09
1h 07
FASD Family Life
It's Ok To Be You: Living Well With FASD & Other Disabilities, special guest Kenny LaJoy
Send us a textWelcome to back to Season 3 of the FASD Family Life Podcast. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is, that the struggle is real and so is success.Love the FASD Family Life podcast? Click the link below to show me some love and buy me a coffee. Support the showWhether you enjoy listening to...
2022-08-24
36 min
FASD Family Life
MomTalk with Shana Mohr of the FASD Network of Saskatchewan
Send us a textWelcome to Season 3 of the FASD Family Life Podcast. I am your host, Robbie Seale. I am an FASD educator, advocate and mom of five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder. If my 30 years of parenting has taught me anything it is that the struggle is real and so is success.Love the FASD Family Life podcast? Click the link below to show me some love and buy me a coffee. Support the showThis third season of the FASD Family Li...
2022-08-12
57 min
Pflegefamilien Deutschland
Hat mein Pflegekind FASD? Ein Gespräch zur Diagnostik und mehr...
Wir freuen uns sehr, wenn Sie unseren Podcast bewerten und vielleicht sogar dazu schreiben, was Ihnen besonders gut gefällt! Das steigert unser Rating und hilft mehr Menschen, die sich für unsere Themen interessieren, unseren Podcast zu finden - Herzlichen Dank!Interview mit: Frau Mirjam LandgrafThema: Heute begrüße ich Dr. Mirjam Landgraf. Herzlich willkommen, Frau Landgraf. Sie sind eine der führenden Expert:innen für die Diagnostik von FASD und leiten das Deutsche FASD Zentrum Bayern und haben mit Ihrem Team maßgeblich an den wissenschaftlichen Standards der sogenannten S3 Leitlinie Diagnosti...
2022-07-01
45 min
FASD Family Life
Rearch & Resource Edition: Together for FASD - An Atlantic Canada Conference with Audrey McFarlane
Send us a textWelcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success. Whether this is your first episode, or your 75th, I invite you to settle in and join me for a cup of coffee. Research & Resource Editions of the FASD Family Life podcast are designed to giv...
2022-05-23
38 min
FASD Family Life
Research & Resources Edition: Together for FASD - An Atlantic Canada Conference with Alicia Munn
Send us a textWelcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success. Whether this is your first episode, or your 60th, I invite you to settle in and join me for a cup of coffee. Research & Resource Editions of the FASD Family Life podcast are designed to giv...
2022-05-17
20 min
FASD Family Life
Let's Talk About Adulting with FASD, Research, FASD App and more with CJ Lutke & Kat Griffin
Send us a textWelcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success.I am grateful to be spending this time with you! Please join me with a hot cup of coffee, or two, as we learn about adulting with FASD from two extraordinary women, CJ Lutke and Kat Griffin of the Adult Lead...
2022-04-29
43 min
Spotlight On FASD
Season 4 Episode 10 - FASD Family Life and FASD Hope
Todays episode is a lovely chat that Clare enjoyed on the FASD Family Life Podcast with our friends, the Women of FASD Podcasting, Robbie Seale host of FASD Family Life and Natalie Vecchione host of FASD Hope. We talk about real life as mother’s raising children with Fetal Alcohol Spectrum Disorders. With Clare Devanney Glynn and Jessica Rutherford.
2022-04-23
38 min
FASD Family Life
Research & Resources Edition: DiG FASD Study
Send us a textThe FASD Family Life podcast is the podcast for parents and caregivers who want to learn more about Fetal Alcohol Spectrum Disorder. I am your host, Robbie Seale, FASD educator and mom of four individuals with FASD. I know the struggle is real and so is succes. SUBSCRIBE NOW to make sure you never miss an episode!In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with Aby, Janine and Leah of the DiG FASD study. DiG FASD is a fe...
2022-04-18
46 min
FASD Family Life
Resources & Research Edition: Innovative FASD Support Groups with Nancy Lockwood and Pascal Gagne
Send us a textWelcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success. Whether this is your first episode, or your 60th, I invite you to settle in and join me for a cup of coffee. Research & Resource Editions of the FASD Family Life podcast are designed to giv...
2022-04-11
50 min
HER HOME & HEART / Simplifying Routines for Overwhelmed Christian Homeschool Moms Seeking Peace and Joy
Special Needs Spotlight: Part 2 of Help and Hope in FASD, with Natalie Vecchione
In this episode our hosts, Steve and Katie Keene, speak with Natalie Vecchione who is a FASD parent advocate, podcaster, author…..and most importantly a wife and homeschool mom of two. Natalie and her husband, John, built their family through domestic adoption. Their son, who is 19, lives with an FASD (Fetal Alcohol Spectrum Disorder). He has graduated from homeschool as an aspiring, carpentry apprentice. He lives “interdependently” in an apartment with two roommates and he works part time at a home improvement store.. Their daughter is almost 7 and Natalie & John have a much different adoption journey with her daughter, as the...
2022-04-08
30 min
HER HOME & HEART / Simplifying Routines for Overwhelmed Christian Homeschool Moms Seeking Peace and Joy
Special Needs Spotlight: Help and Hope in FASD, with Natalie Vecchione
In this episode our hosts, Steve and Katie Keene, speak with Natalie Vecchione who is a FASD parent advocate, podcaster, author…..and most importantly a wife and homeschool mom of two. Natalie and her husband, John, built their family through domestic adoption. Their son, who is 19, lives with an FASD (Fetal Alcohol Spectrum Disorder). He has graduated from homeschool as an aspiring, carpentry apprentice. He lives “interdependently” in an apartment with two roommates and he works part time at a home improvement store.. Their daughter is almost 7 and Natalie & John have a much different adoption journey with her daughter, as the...
2022-04-06
31 min
FASD Family Life
Research & Resources Edition: A Conversation with Dan Dubovsky, FASD Specialst & Parent (part one)
Send us a textWith more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community and bring you Research & Resource Editions of the FASD Family Life podcast. These Research & Resource Editions of the FASD Family Life Podcast will give you information on a variety of FASD networks, r...
2022-03-21
42 min
FASD Family Life
Celebrating ONE Year of FASD Family Life Podcast with the Women of FASD Podcasting
Send us a textWelcome here! I am so glad you are with me today to celebrate the ONE YEAR anniversary of the FASD Family Life Pocast with my friends the Women of FASD Podcasting! Joining me today are Clare Devanney-Glynn, co-host of Spotlight on FASD podcast and Natalie Vecchione, host of FASD Hope podcast to talk about real life as mom's raising children with Fetal Alcohol Spectrum Disorder. Unfortunately, Clare's co-host, Jessica Rutherford was unable to join us for this conversation, but we all look forward to her joining us in the f...
2022-03-18
44 min
FASD Family Life
Research & Resources Edition: WRaP 2.0 - FASD Coaching Partnership Project with Cathy Cross
Send us a textWith more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community and bring you Research & Resource Editions of the FASD Family Life podcast. These Research & Resource Editions of the FASD Family Life Podcast will give you information on a variety of FASD networks, r...
2022-03-02
23 min
Spotlight On FASD
Season 4, Episode 9 - Genetics & FASD
This week we are joined by Researchers from Indiana University's School of Medicine, whose work seeks to understand more about how genetics play a role in the impact and presentation of FASD. The study seeks to recruit participants from around the world, and the more individuals who are involved, the greater the understanding they can gain around this very important topic. To get involved, visit: https://digfasd.org/ and follow @FASDResearch for more information and to keep up to date with the study! With Clare Devanney Glynn and Jessica Rutherford.
2022-02-10
41 min
Spotlight On FASD
Season 4, Episode 8 - Stronger Together: The Women of FASD Podcasting
Jessica joins Natalie Vecchione of FASD Hope and Robbie Seale of FASD Family Life for this very special episode bringing together the women of FASD Podcasting. They share reflections of 2021and their hopes and dreams for 2022, along with some of their own thoughts and experiences on FASD and where their journey stands today.
2022-01-21
1h 11
Chaos im Kopf - Dein FASD Podcast
Vom Verdacht zur FASD Diagnose (C33)
Was tun wenn es einen Verdacht auf FASD gibt? Bei welchen Anzeichen sollte man an FASD denken? Wo wird eine Diagnostik durchgeführt? Wie läuft das ab? Dr. Mirjam Landgraf Dr. Mirjam Landgraf ist eine der führenden Expert:innen für die Diagnostik von FASD. Sie ist Privat-Dozentin, Dr. med, Diplom-Psychologin, Kinder- und Jugendärztin, Neuropädiaterin und führt eine Arbeitsgruppe, die die Diagnostik von FASD auf solide wissenschaftliche Beine stellt, die S3 Diagnose. FASD Diagnose In dieser Episode skizzieren wir einen Weg von dem Verdacht bis zur...
2022-01-20
30 min
Spotlight On FASD
Season 4, Episode 7 - Prevalence of FASD in the UK
This week we're chatting with Professor Penny Cook from Salford University, Principal Investigator of the UK's first FASD prevalence study. Penny shares with us how the study evolved, the challenges faced along the way and what the findings mean for the future of FASD in the UK. With Clare Devanney Glynn and Jessica Rutherford.
2022-01-14
52 min
Spotlight On FASD
Season 4, Episode 6 - FASD and Sexualised Behaviours
Continuing our series of conversations with Jerrod Brown, this time we're exploring FASD and Sexualised Behaviours. With Clare Devanney Glynn and Jessica Rutherford.
2021-12-31
23 min
Spotlight On FASD
Season 4, Episode 5 - FASD and Firesetting Behaviours
We're back in conversation with Jerrod Brown, exploring FASD and Firesetting Behaviours. With Clare Devanney Glynn and Jessica Rutherford.
2021-12-23
28 min
Pregnancy, Alcohol and FASD: The Surprising Reality
#25 The FASD Podcasters
In this last episode of the year, Kurt is joined by FASD Podcasters from around the globe. Natalie Vecchione from FASD Hope, Jeff Noble from the FASD Success Show, Clare Devanney-Glynn and Jessica Rutherford from Spotlight on FASD and Robbie Seale from FASD Family Life. They chat about their podcasting journey, the positive developments in FASD research and programs going on in each of their countries. They also share knowledge and research aimed to help people with FASD and their parents/carers. For more information about FASD, please go to: https://www.nofasd...
2021-12-16
50 min
FASD Family Life
FASD & Cognitive Supports with Nate Sheets
Send us a textWelcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD. With more than 20 years lived experience I know it can be a struggle to f...
2021-12-13
54 min
Chaos im Kopf - Dein FASD Podcast
5) Mit FASD Leben (C30)
Es geht im fünfte Teil einer Serie zu FASD um das Leben mit FASD. Bei meinen Vorbereitungen habe ich gemerkt, dass hier fast jedes Thema der bisherigen Folgen reinpassen könnte. Ich muss mich also beschränken. Ich erzähle vom Sams und Herrn Taschenbier. Prinzipien im Umgang mit FASD Die Kommunikation sollte einfach, klar, eindeutig und konkret sein. Das hängt mit der Störung der exekutiven Funktionen im Gehirn zusammen. Die exekutiven Funktionen sind wichtig für die Orientierung in komplexen Situationen. Weitere Prinzipien, die sic...
2021-11-24
07 min
FASD Family Life
Research & Resources Edition: South Alberta FASD Network, Debbie Deak
Send us a textWelcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD. I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD. With more than 20 years lived experience I know it can be a struggle to f...
2021-11-22
1h 04