Shows
In PursuitEthical Use of Pediatric Genetic Data with Sara Huston, MSGenetic testing has been transformative in many areas of pediatrics, such as diagnosing rare conditions and syndromes. But in other cases, such as the processing of immigrants at the border or of children separated from families during war, genetic testing and the collection of biometric data in children can lead to an overreach of the government or law enforcement in criminal or humanitarian cases. Sara Huston, MS, Principal Investigator of the Genetics and Justice Laboratory at the Stanley Manne Research Institute, is an expert in genetic testing and the legal and ethical questions that often arise with its application...2024-07-2519 min
Living With Cystic FibrosisDr. Susanna McColley talks health equityI am excited that all of you will get to meet Dr. Susanna McColley!!!! I was so impressed with her commitment to CF and her incredible medical and life knowledge. Dr. McColley works to promote equitable diagnosis and treatment in cystic fibrosis. As a white person, Dr. McColley talks about all that white privilege brings, and what we must remember along the way. "Privilege allows you to go through the world without additional scrutiny". She goes on to say, people who differ, who are not white, are still treated differently. Dr. McColley discusses this in today's podcast.Dr...2024-01-2254 minIn PursuitExploring Neonatal Health DisparitiesIn this episode of In Pursuit, host Patrick Seed, MD, PhD, talks with James W. Collins Jr., MD, MPH about his research career dedicated to understanding factors that affect the health outcomes of newborns, including a particular focus on how race and other social influencers of health are tied to birth outcomes in the U.S. and globally. Host: Patrick C. Seed, MD, PhD, FIDSA, Attending Physician, Infectious Disease; President & Chief Research Officer, Stanley Manne Children’s Research Institute; Children’s Research Fund Chair in Basic Science; Professor of Pediatrics (Infectious Disease) and Microbiology-Immunology, Northwestern University Feinberg Scho...2023-12-1119 minIn PursuitResearching the Barriers to Swim Safety in the CityIn the latest episode of In Pursuit, host Patrick Seed, MD, PhD, discusses with Michelle Macy, MD, the genesis of her research into child water safety and injury prevention, as well as the risk factors that contribute to accidental drowning. Dr. Macy also explores the deep-rooted, historical barriers to swim safety in Chicago, and shares how research can guide our response to this alarming public health and safety issue. Host: Patrick C. Seed, MD, PhD, FIDSA, Attending Physician, Infectious Disease, Ann & Robert H. Lurie Children's Hospital of Chicago; President & Chief Research Officer, Stanley Manne Children’s Research Instit...2023-10-1820 min
The CFRI CF Community Voices PodcastFrom Defining Health Disparities to Improving Health Equity in CF - Susanna McColley, MD, FAAP, ATSF (Video)Dr. Susanna McColley, Scientific Director for Interdisciplinary Research Partnerships at Stanley Manne Children’s Research Institute, Ann & Robert H. Lurie Children’s Hospital of Chicago, and Professor of Pediatrics in Pulmonary and Sleep Medicine at Northwestern University Feinberg School of Medicine, explains how CF clinical trial enrollment, newborn screening, and global availability create inequities. She also discusses how policies and practice must advance so that every person with CF has a fair and just opportunity to attain their highest level of health. This presentation was part of CFRI's 36th National CF Education Conference on July 29, 2023.
CFRI's 36th Nati...2023-09-2744 min
The CFRI CF Community Voices PodcastFrom Defining Health Disparities to Improving Health Equity in CF - Susanna McColley, MD, FAAP, ATSF (Audio)Dr. Susanna McColley, Scientific Director for Interdisciplinary Research Partnerships at Stanley Manne Children’s Research Institute, Ann & Robert H. Lurie Children’s Hospital of Chicago, and Professor of Pediatrics in Pulmonary and Sleep Medicine at Northwestern University Feinberg School of Medicine, explains how CF clinical trial enrollment, newborn screening, and global availability create inequities. She also discusses how policies and practice must advance so that every person with CF has a fair and just opportunity to attain their highest level of health. This presentation was part of CFRI's 36th National CF Education Conference on July 29, 2023.
CFRI's 36th Nati...2023-09-2744 min
Science in TranslationUsing Data to Improve the Lives and Health of People Through Their Lifespan with Juan Espinoza, MDAs a new faculty member and leader at NUCATS, Juan Espinoza, MD, is bringing a fresh perspective and expertise in the oversight of research informatics and analytics as applied to basic, translational, clinical, and population health sciences. In his roles as associate director of the Center for Biomedical Informatics and Data Science, which spans NUCATS and the Institute for Augmented Intelligence and Medicine at Northwestern University, and the inaugural chief research informatics officer for Stanley Manne Children's Research Institute at the Ann and Robert H. Lurie Children's Hospital of Chicago, he has big goals to improve the lives and...2023-08-1024 minIn PursuitHow Scientists Help Keep Kids Safe During PandemicsOn the inaugural episode of In Pursuit, host Patrick Seed, MD, PhD, tackles the topic of infectious diseases with Larry Kociolek, MD. Kociolek is a Chicago-born and raised physician scientist at Stanley Manne Research Institute at the Ann & Robert H. Lurie Children’s Hospital of Chicago. He is dedicated to understanding the spread of microbes in community and healthcare settings and tackling the big research questions that might change how we keep patients safer in the hospital from infectious complications. Host: Patrick C. Seed, MD, PhD, FIDSA Attending Physician, Infectious Disease; Children’s Research Fund Chai...2023-07-2523 min
Wetenschap Vandaag | BNRNanodeeltje maakt genetisch aanpassingen mogelijk in cellen in de wand van bloedvatenOnderzoekers hebben een nieuw nanodeeltje ontwikkeld waarmee het voor het eerst mogelijk wordt om cellen in de binnenwand van bloedvaten genetisch aan te passen. Voorheen lukte het niet om bijvoorbeeld het CRISPR-Cas-instrument in deze cellen af te leveren, omdat de gebruikelijke route met een virus als transportmiddel bij deze cellen niet werkt. In muizen hebben ze nu laten zien dat het met dit nieuwe nanodeeltje wel lukt. Nu kunnen ze in de toekomst ook in deze cellen - die betrokken zijn bij hart- en vaatziektes, de uitzaaiing van kanker en ernstige covid - genen aanpassen...2022-01-1304 min
OPENPediatricsImproving Outcomes: Lessons Learned from Pediatric Sepsis by T. Shanley | OPENPediatricsIn this podcast, Dr. Thomas P. Shanley, Chairman of Pediatrics at Lurie Children’s Hospital, and Chief Research Officer at the Stanley Manne Research Institute, analyzes his experiences treating pediatric septic patients in the PICU and provides his strategy for successfully undertaking clinical challenges and improving patient outcomes.
Please visit: http://www.openpediatrics.orgOPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critic...2018-08-2946 min