Shows
TSC NowNavigating Housing Options for Dependent Adults with TSC (sponsored by Nobelpharma America)In this episode of TSC Now host Dan Klein is joined by Bruce Hainan and Jim Kotsailidis from Nobelpharma America, LLC and Shelly Meitzler, TSC Alliance Director of Outreach and Support, and mom to Ashlin and Mason with TSC. Shelly shares her experience looking for housing for her eldest daughter Ashlin, a dependent adult with tuberous sclerosis complex (TSC). She then shares the questions parents should ask when vetting potential housing options for their children. Bruce and Jim share additional resources parents can use to help them find the options available to them and talk about the w...
2024-12-2435 min
TSC Trojan TalksTSC Trojan Talks - Episode 10TSC Trojan Talks - Episode 10 features cohost Omar Cano and freshman here at TSC David Isler-May. Hear a little bit about David's experience here on campus, some of his future plans, and more!
#ExceedExpectations
2024-04-1042 min
TSC Trojan TalksTSC Trojan Talks - Episode 8TSC Trojan Talks - Episode 8 features host Omar Cano with a great sit-down conversation with TSC Art professor Ily Reiling. Hear about the upcoming art show, as well as, past and future artist lectures that are held here on the TSC campus. Listen NOW!
#ExceedExpectations
2024-03-2947 minTSC Trojan TalksTSC Trojan Talks - Episode 5TSC Trojan Talks - Episode 5 features cohost Omar Cano and special guest Amaya Atencio. Amaya is the Student Support Services Coordinator located on our Valley Campus in Alamosa, Colo. Hear a little bit about Amaya's story of how she ended up at TSC, as well as, vital information about the Finish What You Started Program and MORE!
#ExceedExpectations
2024-03-0531 minTSC NowEpisode 45: The 2023 International TSC Research ConferenceOn this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Research Conference: Fueling the Future held September 7-9, 2023, in Washington, DC. The conference brought together over 200 researchers from around the world representing a wide array of specialties and the entire spectrum from basic science to clinical research.
The comprehensive three-day agenda included plenary sessions, breakout group discussions, a poster session and reception, as well as an Early Career Research Symposium during which early-stage investigators had the opportunity to report on their cutting-edge research, network, and learn about the diverse paths forward in the field...
2023-10-1941 min
Chip Baker- The Success ChroniclesTSC #322- Crystal QuirinoCrystal Quirino is a USC graduate student pursuing a Master of Science in Digital Media Management. But above anything else, she is a mother. Crystal has overcome many obstacles but continues her journey to success.
#usc #digitalmedia #tsc #gogetit
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2023-03-1811 min
Chip Baker- The Success ChroniclesTSC #321- Chris SemanChris Seman is the President of Strategic Franchising Systems.
#chrisseman #strategicfranchisingsystems #president #tsc #gogetit
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2023-03-1711 min
Chip Baker- The Success ChroniclesTSC #320- Kali SalehKali Saleh is a passionate educator who believes in doing whatever it takes to make a difference in children's lives, by encouraging teachers and students alike to become their very best versions of themselves. A graduate from Tarleton State and Lamar University, Saleh is serving in her 7th year in education and currently first year as acting principal at Sycamore Elementary in Crowley ISD. When not at school, you can find her cheering on the Dallas Stars or traveling with her family. @kali_saleh
#kalisaleh #principal #education #tsc #gogetit
#ka...
2023-03-1714 minTSC NowEpisode 43: The TSC-STEPS TrialIn this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more about a drug known as Sirolimus and determine if it can prevent seizures and epilepsy in children diagnosed with TSC. The study is currently enrolling infants diagnosed with TSC who are at risk of developing epilepsy. \
Dan interviews Darcy Krueger, MD, PhD, Director of the TSC Center of Excellence at Cincinnati Children’s Hospital and member of the TSC Alliance Board of Directors (0:59). Dr. Krueger provides an ov...
2023-03-1532 min
Chip Baker- The Success ChroniclesTSC #319- Carla Coleman ButlerCarla Coleman Butler is results-driven with a solid track record of strategy formulation and execution, major deal negotiations, and managing for rapid growth.She is the President of the Cypress chapter of Alpha Kappa Alpha Sorority. She is leading some amazing community initiatives. @butler.carla
#carlacolemanbutler #alphakappaalpha #aka #interview #tsc #gogetit
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2023-02-2820 min
Chip Baker- The Success ChroniclesTSC #316- Marcus D. WileyMarcus D. Wiley is a prominent stand-up comedian, broadly known for his thought provoking doctrine through comedy. He is a true example of brilliant storytelling while drawing you in for the punchline. Not only will you laugh and learn, you will also leave inspired. His charisma and wisdom landed him on the nationally syndicated radio show The Yolanda Adams Morning Show, a professor at his Alma Mater, Texas Southern University, an author of his very own book, Hustle and Faith and the Designated Driver Podcast with Marcus D. Wiley. Gospel artist Yolanda Adams refers to him as a comedic genius...
2023-02-2316 min
Chip Baker- The Success ChroniclesTSC #315- Kristina ManuelKristina Manuel is the Founder os The Lucky Foundation. She is an Agile Innovator, Collaborator and Inclusive Leader.
#nonprofits #nonprofitfoundation #nonprofitleadership #nonprofitmanagement #nonprofitfundraising #tsc #gogetit
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2023-01-2916 min
Chip Baker- The Success ChroniclesTSC #314- Rachel BrownRachel Brown is the president of the South Hill Aglow Community Lighthouse. They comfort, encourage, exhort, and build up those who are spiritually hungry and deprived, mentally and emotionally. @southhillaglow
aglownet.org
#rachelbrown #southhillaglow #interview #tsc #gogetit
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2023-01-2915 min
Chip Baker- The Success ChroniclesTSC #313- Frank of Baller TribeFrank Reed 4 is a video creator for Baller Tribe Sports Media. He does great work videoing and highlighting athletes and sports teams. @ballertribe @fastuniversity @fastprep @hurdlescience @recoveruniversity
#houston #ballertribe #sportsmedia #videocreator #grateful #tsc #gogetit
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2023-01-2415 min
Chip Baker- The Success ChroniclesTSC #312- Dr. Jeff SpringerDr. Jeff Springer is the former TASSP TX HS Principal of the Year, Founder Suit Up Ministries and the Founder & Executive Coach for Spring Strategies LLC. He has achieved some amazing things and made a positive impact on many. @suitupministry
#drjeffspringer #tassp #principaloftheyear #suitup #founder #executivecoach #springstrategies #tsc #gogetit
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2023-01-1926 min
Chip Baker- The Success ChroniclesTSC #309- Donovan ThompsonDonovan Thompson is a great guy doing some big things to make a positive impact. He does Player Development and is the Team Chaplain for HBU Football. @donovanjthompson
#donovanthompson #houston #westfield #angelostate #playerdevelopment #chaplain #hbu #tsc #gogetit
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2022-12-2314 min
Chip Baker- The Success ChroniclesTSC #308- Coach Deb MizeCoach Deb Mize is the Assistant Athletic Director for Fort Bend ISD. She is a Fort Bend Clements graduate and was the Head Coach for one of the Houston area’s top programs for 14 years with state tournament appearances in 2009-2010 and 2018-2019. The 2010 team reached the Class 5A state championship game. @dmize10
#debmize #fortbend #isd #hbu #coach #ad #tsc #gogetit
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2022-12-2118 minChip Baker- The Success ChroniclesTSC #307- Coach Bonifacio LuceroCoach Bonifacio Lucero is the Head Basketball Coach at Austin Westlake High School. He has had some amazing experiences and does lots to make a positive impact. @bones_lucero
#coach #uta #westlake #tsc #gogetit
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2022-12-0621 min
Chip Baker- The Success ChroniclesTSC #305- Moe HobsonMaurice "Moe" Hobson Jr, a native of Houston, Texas and a graduate of The Jack Yates Senior High School. He is an alumnus of West Texas A&M University and holds a Bachelor of Science in Criminal Justice. He is happily married to his lovely wife, Cuca Hobson and proud father to Margarita, Maurice III and McKenzie. Pooh-Paw to granddaughter Kai.
Moe is currently a Human Resource Training Specialist at Harris County Juvenile Probation Department. He has had worked in many areas of the department such as; Education Services, Personnel, Court Service and Accreditation and Quality Assurance. He...
2022-12-0212 min
Chip Baker- The Success ChroniclesTSC #302- Dr. Don StocktonDr. Stockton grew up in the town of West Chicago, Illinois, as the youngest of three boys. In high school, He was active in sports, playing football, basketball and running track.
He did not realize education would be such a large portion of his life until his junior year at Purdue University, where he found that no career in his business degree plan sounded fulfilling. He quickly switched his major from business to education.
He taught for two years in Lafayette, Indiana, and got his master’s degree. Stockton’s Conroe ISD career began at Trav...
2022-11-0915 min
Chip Baker- The Success ChroniclesTSC #301- Dr. LaQuanta NelsonDr. LaQuanta Nelson is a passionate award winning educator, keynote speaker and author. @drlmnelson
#bosseducator #leader #keynotespeaker #author #principal #tsc #gogetit
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2022-10-2918 min
Chip Baker- The Success ChroniclesTSC S2 #150- Wayne WashingtonWith over three decades of managing operations ‘in-the-trenches,’ running a successful business, and speaking, Wayne’s view of ‘operational excellence’ is radically different. Wayne has learned ‘operational excellence’ is not a destination, but an ongoing journey, in pursuit of a company’s strategic objectives.
Sometimes called, ‘The Doctor of Operations,’ Wayne is known for his skill in diagnosing ailing operations, prescribing a course of action, and serving as mentor during implementation. Wayne’s blend of real-world examples, a conversational approach, and transparency, connects Wayne with his clients and audiences in an authentic, engaging, and ‘truly unique’ way.
Wayne has managed an...
2022-09-1909 min
Chip Baker- The Success ChroniclesTSC S2 #148- Coach PJ GibbsCoach Gibbs has been a Football Coach and Educator since 2001, won state championships, conference championships, built successful defensive units. He is 3-0 as Head Coach in International Bowl, a Master Trainer for USA Football and has Built Thousands of Relationship with student-athletes all over the country. His mission is to advance the Greatest Game in the World and have the opportunity to educate the Youth of America. @coachpjgibbs
#pjgibbs #coach #usafootball #tsc #gogetit
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2022-09-1917 min
Chip Baker- The Success ChroniclesTSC S2 #147- Matthew FlippenMatthew Flippen is the President at Hartwell University. He is innovating higher education to ensure all children have a caring, prepared and amazing teacher.
#matthewflippen #hartwelluniversity #president #tsc #gogetit
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2022-09-0415 minTSC NowEpisode 39: Inspiring a World TSC CommunityIn a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part two, Dan explores the history of tuberous sclerosis complex (TSC) conferences and speaks to inspiring leaders who have shaped the TSC Alliance’s past and will continue to shape it’s future.
On Saturday, July 30, 2022, during the Blue Night Dinner at the 2022 World TSC Conference, Dr. Michael and Janie Frost were presented the TSC Champion Award. Michael and Janie Frost have both devoted their careers and lives to helping individuals and thei...
2022-09-0231 minTSC NowEpisode 38: Galvanizing a World TSC CommunityIn a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part one Dan talks to two inspiring and visionary leaders in the tuberous sclerosis complex (TSC) community.
On Thursday, July 28, during the opening of the 2022 World TSC Conference in Dallas, the Ramesh and Kalpana Bhatia Family Foundation announced a new collaboration with the TSC Alliance, working together to uncover biomarkers, test new treatments and connect researchers with families to better address TSC-associated neuropsychiatric disorders (TAND), which impact nearly everyone living with tuberous...
2022-08-2638 min
Chip Baker- The Success ChroniclesTSC Topic- Presentation Skills with Arva ThomasArva Thomas is an executive presence coach, speaker and entrepreneur. She is the founder and CEO of Blue Monarch Communications LLC, an executive presence and communications consultancy. Through her signature training programs, Arva helps high achievers and subject matter experts who are not progressing on the career ladder expand their options and achieve their ultimate career goals.
Arva is a successful government professional, award winning trainer, speaker, and content creator whose work has been featured in notable publications such as The Washington Post. She has also been featured on multiple podcasts for her work on executive presence...
2022-08-1736 min
Chip Baker- The Success ChroniclesTSC S2 #144- Brian K. Roberson IIBrian K. Roberson II is the Principal at B. F. Terry High School. Before being the principal at Terry HS he was an administrator at Northeast College Prep School and the KIPP Texas Family. Before that he spent twelve years serving i many roles supporting students and educators across Houston. He has worked in Aldine, Houston, Cy Fair and Spring ISD.
@BKRoberson2
#briankroberson2 #fbterry #haabse #administrator #principal #coach #teacher #servantleader #tsc #gogetit
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2022-07-2013 min
Chip Baker- The Success ChroniclesTSC S2 #143- Arva ThomasArva Thomas is an executive presence coach, speaker and entrepreneur. She is the founder and CEO of Blue Monarch Communications LLC, an executive presence and communications consultancy. Through her signature training programs, Arva helps high achievers and subject matter experts who are not progressing on the career ladder expand their options and achieve their ultimate career goals.
Arva is a successful government professional, award winning trainer, speaker, and content creator whose work has been featured in notable publications such as The Washington Post. She has also been featured on multiple podcasts for her work on executive presence...
2022-07-1021 min
Chip Baker- The Success ChroniclesTSC S2 #142- Tarla MakaeffTarla is a Fashion Designer and Copywriter turned Online Entrepreneur. She is an online business and life coach for creatives and heart centered women. She has been featured in LA Weekly and NY Weekly. She has an amazing success story.
tarlamakaeff.com
@thetarlamakaeff
#tarlamakaeff #LA #fashiondesigner #copywrighter #entrepreneur #coach #tsc #gogetit
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2022-07-1016 min
Chip Baker- The Success ChroniclesTSC S2 #141- Melissa MoralesMelissa Morales is doing amazing things as an inspirational speaker, podcast creator and founder of Winning Season merch. @livewithmelso @unplugthescript
#inspirationalspeaker #winningseason #podcast #unplugthescript #tsc #gogetit
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2022-07-1017 min
Chip Baker- The Success ChroniclesTSC Hangout and Highlight with Coach Armando JacintoCoach Armando Jacinto is the Athletic Director for Spring ISD. He has been in the coaching profession for a while and does lots to give to others. He is one of the Co-Authors in the bestselling book The Impact of Influence Vol. 4. @ajacinto3
#coachjacinto #springisd #ad #coach #tsc #gogetit
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2022-06-2911 min
Chip Baker- The Success ChroniclesTSC S2 #140- Julie WestJulie West is an educator, literacy coach, published author, wife and mother of two. Her amazing book is “Teach In The Positive Circle”.
@julie_west100
teachinthepositivecircle.com
#juliewest #terrell #educator #literacycoach #author #positive #tsc #gogetit
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2022-06-2307 min
Chip Baker- The Success ChroniclesTSC S2 #139- Dayren CarlisleDayren Carlisle is the Director of Curriculum, Instruction and Professional Learning in Conroe ISD. She is doing amazing things to make a positive difference. @bileslgirl
#dayrencarlisle #cisd #director #curriculum #instruction #learning #tsc #gogetit
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2022-06-2322 min
Chip Baker- The Success ChroniclesTSC S2 #138- Jose EscobarJose Escobar was born in Washington, D.C. and resides with his family in Maryland. He is happily married to his wife Katie Escobar.
Currently, he is the Sales Director for The Educational Funding Company(EFC). Jose is the Founder and CEO of The Entrepreneur’s Bookshelf. His best-selling program, “The Morning & Evening Routine Mastery” has generated over six figures in only 5 months. He also is the Founder of The Connected Leaders Academy which is rapidly growing its members globally. @jaesco25
#joseescobar #connectedleaders #entrepreneursbookshelf #connections #networking #relationships #tsc #gogetit
...
2022-06-2317 min
Chip Baker- The Success ChroniclesTSC S2 #137- Coach Tony HullCoach Tony Hull is an Assistant Football Coach at University of Louisiana at Monroe. He is one of the most respected coaches in the state of Louisiana. He has gone from working at NASA to turning around a major high school program to coaching at some of the top colleges. He has an amazing story. @coachtonyhull
#tonyhull #louisiana #nasa #coach #hs #college #greatguy #tsc #gogetit
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2022-06-1923 min
Chip Baker- The Success ChroniclesTSC S2 #136- Josh ParnellJosh Parnell is a Director of Service Development, Trainer, Coach and USAF veteran. Reaching people and building leaders is his mission.
@thebeardedleader.ig
thebeardedleader.com
#ServiceDevelopment #christianbrothers #Trainer #Coach #USAF #Veteran #tsc #gogetit
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2022-06-1913 min
Chip Baker- The Success ChroniclesTSC S2 #135- Rhea WatsonRhea Watson, the founder of Scholarship Solutions, a premier Scholarship and College Consulting Firm. Dedicated to working with students worldwide, ages six months to 90 years young. As an international speaker, Rhea has presented to audiences in Egypt, England, Germany, Gabon, Jamaica, South Africa, and North America, teaching students of all ages how to have a debt free college experience. Having helped several hundred students enter the colleges of their dreams and win more than $200 Million Dollars in scholarships, Rhea has accepted various awards over the years, such as, Mentor of the Year and US-Africa International Women’s Day Award. ww...
2022-06-0812 min
Chip Baker- The Success ChroniclesTSC S2 #134- Jordan BuchananJordan Buchanan is doing amazing things. She is an author and recently completed her degree in social work. She does lots to serve and give to others.
#jordanbuchanan #author #serve #help #givebaback #tsc #gogetit
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2022-06-0810 minTSC NowEpisode 36: TSC Awareness MonthIn this episode of TSC Now, host Dan Klein recognizes TSC Awareness Month and the 10th Annual TSC Global Awareness Day! He starts by providing an update on the Step Forward to Cure TSC® Global Hybrid Walk-Run-Ride. Fundraising pages are open until the end of the year, help us reach our goal at stepforwardtocuretsc.org. You can watch the #StepForward4TSC Lunch and Learns on YouTube and Facebook. Be sure to also check out our event montage.
Next, Dan talks to two TSC dads who are both registered for the 2022 World TSC Conference. First, he interviews Ary Ag...
2022-06-0837 min
Chip Baker- The Success ChroniclesTSC S2 #131- D'MottD‘Mott has been surrounded by music his entire life, whether it was playing drums or singing in church or watching his father as a lead singer of a quartet gospel group, lift the spirits of church members. One thing stuck in his mind.That music is powerful, intentional and life changing. He believes that the conversations music provides, ultimately inspires and dictates our passions. So in other words, in order to carry the light that comes with having the gift of music, one must be responsible. D‘Mott is an Artist that wears many different hats of talents and...
2022-05-0513 minTSC NowEpisode 35: The Past, Present and Future of Autism Research in TSCIn this episode of TSC Now, host Dan Klein recognizes World Autism Month by taking a deep dive on the past, present and future of autism spectrum disorder (ASD) research in TSC. Dan talks to Shafali Jeste, MD, Chief of Neurology and Las Madrinas Chair at the Children’s Hospital of Los Angeles and Professor of Neurology and Pediatrics at Keck School of Medicine of USC.
Dr. Jeste shares what first sparked her interest in autism and her early work on the characterization of autism at Boston Children’s Hospital, subsequent studies looking for biomarkers of autism, and...
2022-04-3033 min
Chip Baker- The Success ChroniclesTSC S2 #130- Munira ZahabiMunira Zahabi was born and raised in Nairobi, Kenya. She lived in Dar-es-Salaam, Tanzania. She now resides and runs her business in Chicago, IL.
For the last 15 years, Munira has leveraged her expertise as a Business Analyst and Certified Scrum Master to help teach entrepreneurs how to build and scale their online businesses through courses and trainings like her signature program, Step into Your Niche, as well as many other business-building trainings inside of Munira’s abundant course library.
Munira believes that anything is possible with effective and confident communication.
When Munira isn't wo...
2022-04-3006 min
Chip Baker- The Success ChroniclesTSC S2 #129- Alicia DavonAlicia Davon and her husband Erwan have successfully taught over 12,000 singles and couples how to have exceptional relationships. They have become the go-to experts for those seeking a higher level of relationship support.
#aliciadavon #relationship #coach #tsc #gogetit
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2022-04-3008 min
Chip Baker- The Success ChroniclesTSC Hangout and Highlight- Olaolu Ogunyemi and Jesse IwujiOlaolu Ogunyemi is a U.S. Marine Corps Captain. He is a graduate of Grambling State, a mentor and best-selling author.
@captaino06
Jesse Iwuji is a U.S. Navy Lieutenant. Jesse went from competing at the top level of Division-1A college football to rising the ranks of the military as a Lieutenant Commander, and is now the only current driver in all of NASCAR at the national levels that actively serves his country as a US Military member.
@jesse_iwuji
#olaoluogunyemi #marine #jessiwuji #navy #tsc #gogetit
2022-04-2027 min
Chip Baker- The Success ChroniclesTSC S2 #126- Henry McDavidHenry McDavid is a successful entrepreneur and co-founder of Kikifers Entrepreneurial Academy. I had a blast interviewing him and can not wait to share his interview. It is full of gems!
@kikifersacademy @ceobrohenry
#brohenry #kikifers #academy #entrepreneur #tsc #gogetit
2022-03-0718 min
Chip Baker- The Success ChroniclesTSC #123- Dr. Mario McCoyDr. Mario McCoy is the Founder and CEO of NCMPRBL Watches. Handcrafting limited edition collections that feature a minimalist design, their timepieces can be found all over the globe. With a core focus of creating the ultimate fashion accessory to be a unique feeling and look for the modern minimalist, each collection is a limited release. Find out more at ncmprblwatches.com
#drmariomccoy #watches #ncmprbl #timepiece #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
2022-02-1209 minTSC NowEpisode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSCIn a very special early episode of TSC Now, host Dan Klein recognizes International #EpilepsyDay and the kickoff of the second annual Seizure Action Plan Awareness Week. In November 2020, a collaboration of three non-profit organizations, the TSC Alliance, Dravet Syndrome Foundation and Lennox-Gastaut Syndrome (LGS) Foundation, launched the Seizure Action Plan (SAP) Coalition to educate people with epilepsy, their caregivers and healthcare professionals about seizure emergency rescue protocols and the importance of personalized seizure action plans. As part of this effort the group is recognizing Seizure Action Plan Awareness Week (#SAPAW2022) to coincide with International Epilepsy Awareness Day on Febru...
2022-02-0717 minTSC NowEpisode 32: The 2022 World TSC Conference
In the first episode of TSC Now in 2022, host Dan Klein provides an overview of the upcoming 2022 World TSC Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), which will be held July 28-31, 2022 and will bring together 1,000 participants from around the globe, including families and individuals with TSC, caregivers, healthcare professionals, researchers, a wide array of exhibitors, and others. Thank you to Title Sponsor Jazz Pharmaceuticals and Presenting Sponsor Nobelpharma for making this incredible conference possible.
Dan interviews Shelly Meitzler, Director, Community Education & Resources at the TSC Alliance® and Co-Chair of the conference about how t...
2022-01-2817 min
Chip Baker- The Success ChroniclesTSC S2 #118- Dr. Stephen PetterutiStephen Petteruti, DO, is a longtime Warwick, Rhode Island, physician who maintained a family private practice with a large client base until 2014. Since he established his new practice Intellectual Medicine 120, Dr. Stephen Petteruti has focused on providing tailored care that helps delay the aging process.
Stephen Petteruti, DO, hosts the weekly radio program Intellectual Medicine with Dr. Petteruti, which has a mission of enabling people to achieve 120 youthful years of life.
Also a fiction writer, he authored The Cancer Machine about a medical student who discovers a cancer cure and must navigate corrupt executives and...
2022-01-0917 minTSC NowEpisode 31: The Present and Future of TSC & LAM ResearchIn the final episode of TSC Now in 2021, host Dan Klein recaps the 2021 Virtual International TSC & LAM Research Conference: Driving Discoveries Beyond Boundaries, presented by Greenwich Biosciences and the Rothberg Institute of Childhood Diseases and co-hosted by the TSC Alliance® and The LAM Foundation. The conference brought together 179 people from 18 countries including researchers with a wide array of specialties and representing everything from basic to clinical science, who took part in plenary sessions, oral presentations, posters, and discussions around cross-cutting topics, including big data and clinical translation.
Dan chats with conference co-chairs Nishant Gupta, MD, Assistant Professor of...
2021-12-2231 min
Chip Baker- The Success ChroniclesTSC Topic: Actions with Vanessa CoppolaVanessa Coppola is a life coach at The Handel Group. In this topic session she discusses taking the proper actions.
@vanessa_hgcoach @handelgroup
#lifecoach #thehandelgroup #vanessacoppola #tsc #gogetit #interviews #topic #relationships
$50 off of Inner.U Life, using coupon code “SUCCESSCHRONICLES”
https://iu.coach/SUCCESS-IU
Inner.U LIFE is a 12 session online course that gives you the tools to hack into your own life, hone your dreams, and have every last thing you want in the areas that matter most to you: CAREER, MONEY, LOVE, TIME, FAMILY, and HEALTH.
Do...
2021-12-1527 min
Chip Baker- The Success ChroniclesTSC Topic: Relationships with Vanessa CoppolaVanessa Coppola is a life coach at The Handel Group. In this topic session she discusses relationships.
@vanessa_hgcoach @handelgroup
#lifecoach #thehandelgroup #vanessacoppola #tsc #gogetit #interviews #topic #relationships
$50 off of Inner.U Life, using coupon code “SUCCESSCHRONICLES”
https://iu.coach/SUCCESS-IU
Inner.U LIFE is a 12 session online course that gives you the tools to hack into your own life, hone your dreams, and have every last thing you want in the areas that matter most to you: CAREER, MONEY, LOVE, TIME, FAMILY, and HEALTH.
Do this life...
2021-12-1525 min
Chip Baker- The Success ChroniclesTSC Topic: Experiences with Vanessa CoppolaVanessa Coppola is a life coach at The Handel Group. In this topic session she discusses experiences.
@vanessa_hgcoach @handelgroup
#lifecoach #thehandelgroup #vanessacoppola #tsc #gogetit #interviews #topic #experiences
$50 off of Inner.U Life, using coupon code “SUCCESSCHRONICLES”
https://iu.coach/SUCCESS-IU
Inner.U LIFE is a 12 session online course that gives you the tools to hack into your own life, hone your dreams, and have every last thing you want in the areas that matter most to you: CAREER, MONEY, LOVE, TIME, FAMILY, and HEALTH.
Do this life...
2021-12-1519 min
Chip Baker- The Success ChroniclesTSC Topic: Clarity with Vanessa CoppolaVanessa Coppola is a life coach at The Handel Group. In this topic session she discusses how to find clarity.
@vanessa_hgcoach @handelgroup
#lifecoach #thehandelgroup #vanessacoppola #tsc #gogetit #interviews #topic #clarity
$50 off of Inner.U Life, using coupon code “SUCCESSCHRONICLES”
https://iu.coach/SUCCESS-IU
Inner.U LIFE is a 12 session online course that gives you the tools to hack into your own life, hone your dreams, and have every last thing you want in the areas that matter most to you: CAREER, MONEY, LOVE, TIME, FAMILY, and HEALTH.
Do...
2021-12-1515 min
Chip Baker- The Success ChroniclesTSC S2 #116- Ashley MooreAshley Moore is a successful business owner. She is doing big things with her So Unique Hair company. @souniquehair
#ashleymoore #souniquehair #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
Facebook
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@chipbaker19
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http://chip-baker-the-success-chronicles.square...
2021-12-1315 min
Chip Baker- The Success ChroniclesTSC S2 #115- Pat and Conner CombsThis father and son duo have both done amazing things in baseball with their careers. They are the owners of Combs Capital Partners. They help families grow and use their wealth in a way that impacts the world for generations to come. @combscapitalpartners
#combs #combscapitalpartners #familyimpact #tsc #gogetit #interviews
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
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https://www.instagram.com/chipbakertsc/
2021-12-1322 min
Chip Baker- The Success ChroniclesTSC S2 #114- Ricki GarzaRicki Garza is a Business Transformation Consultant. She specializes in Strategic Business Process Improvement, System Migration, Software Implementation, Product Management, Operations, and Mentoring.
#RickiGarza #leadership #leadershipmindset #breakingdownbarriers #womensupportingwomen #tsc #gogetit
Chip Baker Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
Facebook
https://www.facebook.com/profile.php?id=100014641035295
Instagram
https://www.instagram.com/chipbakertsc/
Twitter
@chipbaker19
Linktree
https://linktr.ee/ChipBakerTSC
2021-12-0212 min
Chip Baker- The Success ChroniclesTSC S2 #112- Christian CephusChristian Cephus is the athletic coordinator at York JH. He does many things in the community and in church to make a positive difference. @ccephus1
#coachcephus #yorkjh #conroeisd #tsc #gogetit
Social Media Links
Youtube Channel youtube.com/c/ChipBakerTheSuccessChronicles LinkedIn http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161 Facebook https://www.facebook.com/profile.php?id=100014641035295 Instagram https://www.instagram.com/chipbakertsc/ Twitter @chipbaker19 Linktree https://linktr.ee/ChipBakerTSC Online Store http://chip-baker-the-success-chronicles.square.site/ Chip Baker- The Success Chronicles Podcast https://anchor.fm/chip-baker
2021-11-2711 minTSC NowEpisode 29: The TSC NavigatorIn Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis complex (TSC) across the lifespan, proactively manage their care and live their fullest lives. TSC Navigator was launched in October 2021 and includes sections on “Beginning Your Journey,” “Stories of Hope,” “Medical Challenges,” “Support Navigators” and “Resources.” Users can access information based on the age of one’s TSC diagnosis, such as prenatal, childhood or adult, to help determine which steps will help empower them throughout their individual journeys. You can learn more about the TSC Navi...
2021-10-2924 min
Chip Baker- The Success ChroniclesTSC S2 #111- Annie KoshyAnnie Koshy is a Branding Strategist, Author, Global Speaker, ARTographer, Radio Host and Actress. She encourages individuals to be true to their personal story and branding. As an award winning model, actress, photographer, media professional and emcee with a flair for community leadership, Annie uses her vast experience to help individuals and companies develop their brand strategy.
@anniejkoshy
#annijkoshy #BrandingStrategist #Author #Global Speaker #ARTographer #RadioHost #Actress #tsc #gogetit
2021-10-0120 min
Chip Baker- The Success ChroniclesTSC S2 #109- Tony MartignettiTony Martignetti is a leadership coach, entrepreneur, idea generator, people connector, and a curious adventurer. He brings together practical experience, formal training, and extreme curiosity, to elevate leaders and equip them with the tools to navigate through change.
He loves helping people find clarity in their lives, so they are energized, fully present, and unstoppable. He is the host of the Virtual Campfire Podcast.
@inspiredpurposecoach
inspiredpurposecoach.com
#tonymatignetti #inspired #purpose #coach #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
2021-09-0909 min
Chip Baker- The Success ChroniclesTSC S2 #107- Steven ToliverSteven Toliver is an author, minister and experienced administrator with a demonstrated history of working in the primary/secondary education industry. He is the author of “We Wear The Mask”. @steven_toliver
#author #minister #administrator #education #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
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https://www.facebook.com/profile.php?id=100014641035295
Instagram
https://www.instagram.com/chipbakertsc/
Twitter
@chipbaker19
Linktree
2021-09-0725 min
Chip Baker- The Success ChroniclesTSC S2 #105- Coach Lewis CarallaCoach Caralla is the Head Football Strength and Conditioning Coach at Georgia Tech University. @lewcaralla @lewiscaralla @georgiatechfb
#coach #lewiscaralla #georgiatech #strengthandconditioning #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
Facebook
https://www.facebook.com/profile.php?id=100014641035295
Instagram
https://www.instagram.com/chipbakertsc/
Twitter
@chipbaker19
Linktree
https://linktr.ee/ChipBakerTSC
Online Store
http://chip-baker-the-success-chronicles.square...
2021-08-1519 min
Chip Baker- The Success ChroniclesTSC S2 #104- Donnie HenryDonnie Henry is a visual artist that turns memories into reality through industrial pop medium. He also performs with his band Remedy. @donniehenryart
hotelregina.mtme.com
#donniehenry #houston #art #artist #hotelregina #tsc #gogetit
Social Media Links
Youtube Channel
youtube.com/c/ChipBakerTheSuccessChronicles
LinkedIn
http://linkedin.com/in/chip-baker-thesuccesschronicles-825887161
Facebook
https://www.facebook.com/profile.php?id=100014641035295
Instagram
https://www.instagram.com/chipbakertsc/
Twitter
@chipbaker19
Linktree
https...
2021-08-1538 min
Chip Baker- The Success ChroniclesTSC S2 #102- Andrea BitnerAndrea Bitner is an ELL Teacher, Reading Specialist, Author, Speaker and Encourager. She has worked with students in grades K-12 through her twenty years in public education from all around the world. Her work as an ESL Instructor, Reading Specialist, Literacy Coach, Presenter, and English Teacher inspired her to continue to share the great news: Learning a second language is an asset, not a handicap! She hopes to inform, influence, and inspire all readers and leaders to accept, respect, and admire any ELL student that crosses their path. She recently released her book “Take Me Home”. @andreabitnerbooks
#andr...
2021-08-0614 min
Chip Baker- The Success ChroniclesTSC S2 #101- Jeff MartinJeff Martin is the Executive Director of Creative Partnerships for The Fellowship of Christian Athletes. He has worked for FCA for 29 years and created and started Fields of Faith in 2004. He is the author of “Empower: The 4 Keys to Leading a Volunteer Movement”.
#jeffmartin #fca #tsc #fieldsoffaith #empower
2021-07-2915 minTSC NowEpisode 26: The Road to Newborn Screening in TSCIn Episode 26 of TSC Now, host Dan Klein takes a deep dive into one of the newer and exciting frontiers in TSC research: Newborn Screening. Last Fall, the TSC Alliance hosted an Innovation Workshop that brought together TSC researchers, newborn screening experts and other nonprofits with experience advocating for other diseases to be included in the newborn screening panel to start to set the road map forward. From that meeting the TSC Alliance put a call out to our community for dried blood spots from infants with TSC in certain states to help eventually validate an assay and earlier...
2021-07-2945 min
Chip Baker- The Success ChroniclesTSC S2 #100- Art BerlangaArt Berlanga is an educator, football coach, and speaker, who teaches and coaches young people and adults to achieve both personal and professional goals. He believes the key to accomplishing goals and success is no different from the every day teenager to adult, or from school campuses to major corporations. Success occurs when belief, vision, and persistence all work together.
@coachaberlanga
winwithcoachb.com
#coach #educator #speaker #mindsetcoach #semperfi #tsc #gogetit
2021-07-1522 min
Chip Baker- The Success ChroniclesTSC S2 #99- Tamesha AllenTamesha is an author, inspirational speaker, educator, youth and young adult advocate, and scholarship strategist. She help others clarify values and passions, achieve a sense of balance, deepen their alliance with God, and grow through life transitions. @tamesha_speaks
Tameshaspeaks.com
#tameshaallen #author #speaker #advocate #tsc #gogetit
2021-07-0713 min
Chip Baker- The Success ChroniclesTSC S2 #98- Andrea FreemanAs a mindful business coach and peak performance planner Andrea works with creative entrepreneurs to support them in their evolution. She operates from the foundational principle that businesses develop alongside the individuals who run them. Meaning the higher your consciousness the greater the impact you make in the world. It’s her personal joy to work with business owners to help them align with who they are at their core - with their unique personal gifts and unstoppable power. @afreeman_insta
andreafreemanconsulting.com
#andreafreeman #consultant #clients #leadership #tsc #gogetit
2021-07-0216 min
Chip Baker- The Success ChroniclesTSC S2 #97- Shari AlyseShari is a Best-Selling Author, Motivational Speaker, and a Joy Coach. Her first book “The Little Book of SOUL HUGS” became a pocket-sized cheerleader to many, and opened the doors to her career as a writer. After a life-changing three-month solo journey to Italy, she wrote her most recent book, “Love Yourself Happy: A Journey Back to You.” It is now an international Best Seller.
Today, she is an International Motivational Speaker, known as “America’s Joy Magnet”. Through her experiences with relationships, loss, sexual abuse, self-exploration, and self-discovery, she has learned to overcome her self-imposed blocks and become who...
2021-06-1513 min
Chip Baker- The Success ChroniclesTSC S2 #95- Rachel RichardsAt age 27, former financial advisor Rachel Richards quit her job and retired. She now lives off $15,000 per month in passive income. Rachel Richards is the best-selling author of “Money Honey: A Simple 7-Step Guide for Getting Your Financial $hit Together.” She is an entrepreneur, professional speaker and investor. @moneyhoneyrachel
#rachelrichards #moneyhoney #retire #tsc #gogetit #financialadvisor
2021-06-0910 min
Chip Baker- The Success ChroniclesTSC S2 #92- Destiney JonesDestiney Jones is an educator that as achieved some very cool things throughout her career. In this episode she discusses some life lessons learned and her definition of success.
#destineyjones #tsc #gogetit
2021-05-1120 min
Chip Baker- The Success ChroniclesTSC S2 #91- Christine SmithChristine Smith is considered the Obi-Wan Kenobi of Networking, 4 to 4 Expert, Intentional Networking Coach, Process Strategy Consultant and an Idea Genie. She teaches people how to network INTENTIONALLY, coaches people to up their networking game to always have a full sales funnel, coaches people on how networking can be used as a prospecting tool and does brand building and reputational management in the 21st Century.
#christinesmith #networking #consultant #coach #tsc #gogetit
2021-05-1111 min
Chip Baker- The Success ChroniclesTSC S2 #90- Mike DiCioccioMike DiCioccio is the Founder & President of Social Chameleon, a Podcast Producer and the Host of Mike'D Up! Mike leads with a service above self mentality, seeking ways he can make a positive change within his community and in the world. He is the host of MIKE’D UP!, a podcast with a mission to help inspire people to be brave and bold in pursuit of their dreams! @mikedicioccio @socialchamelioninc
#mikedicioccio #socialchameleon #podcast #producer #host #tsc #gogetit
2021-05-0617 minTSC NowEpisode 23: Autism Spectrum Disorder in TSC and TACERNIn Episode 23 of TSC Now, host Dan Klein recognizes World Autism Month and Autism Acceptance Month by learning more about autism spectrum disorder (ASD) in tuberous sclerosis complex (TSC). ASD occurs in nearly 50% of children with TSC, significantly higher the rate in the general population (roughly 1% worldwide). Additionally, there is a very clear link between ASD and cognitive impairment in TSC.
To better understand the connection between autism and TSC, and how ongoing research can help expand our knowledge of autism not just in TSC, but more generally, Dan spoke to Mustafa Sahin, MD, PhD, (02:11) Director of...
2021-05-0124 min
Chip Baker- The Success ChroniclesTSC S2 #89- Dr. Sarah ThomasDr. Sarah Thomas is a Regional Technology Coordinator in Prince Georges County, MD, and Affiliate Faculty at Loyola University. She has a passion to helping educators connect globally. This is the rationale behind the EduMatch project, which she founded in September 2014. The project belongs to all EduMatchers, and together they have grown it to include Voxer, guest blogging, and a weekly Twitter chat/podcast. @sarahdateechur
sarahjanethomas.com
#drsarahthomas #edumatch #techcoordinator #tsc #gogetit #theimpactofinfluence
2021-04-2515 min
Chip Baker- The Success ChroniclesTSC S2 #88- Max BorgesMax Borges in an entrepreneur who in 2002 founded the Max Borges Agency - A tech-focused public relations firm.
By studying the habits of business and strategy icons, he built his agency to more than 50 employees and $10 million a year in revenue.
Max is also a tech investor, author and host of the Unconventional Genius Podcast.
Max lives in Miami Beach with his wife and three children. maxborges.com
#maxborges #entrpreneur #miami #maxborgesagency #tsc #gogetit
His new book!
https://www.amazon.com/dp/0578838354/ref=cm_sw_r_fa...
2021-04-2310 min
Chip Baker- The Success ChroniclesTSC S2 #87- Samantha BurkeSamantha Burke is the founder of a non-profit, author, and motivational speaker. She harbors deep passion for giving back to the world through inspiration and motivation. Her journey has led her to the wonderful opportunity of working for the Pass the Torch for Women Foundation as the Vice President of Programming and Development. @passtorch4women
#samanthaburke #passthetorch #tsc #gogetit
2021-04-1617 min
Chip Baker- The Success ChroniclesTSC Hangout and Highlight- Mikado HinsonMikado Hinson is the Director of Player Development for the Texas A&M Aggie Football Team. He is from Olathe, Kansas and served on staff with the Fellowship of Christian Athletes (FCA) in Houston since 1998. Hinson also served at the University of Houston, where he spent 14 years (2000-14) as the Team Chaplain and Character Development Coach for the Cougar football program.
During that time, Hinson was also the Team Chaplain for the Houston Rockets from 2000-08, and served on the FCA National Chaplain’s Task Force from 2010-13. He became a licensed and ordained minister in 2005.
...
2021-04-1627 min
Chip Baker- The Success ChroniclesTSC S2 #86- Santiago MezaSantiago Meza is from California. He is an educator that does lots to spread positivity. His messages of faith are inspiring. @santiagoam115
#santiagomeza #rootedinstrengthca #tsc #gogetit #theimpactofinfluence
2021-04-0907 min
Chip Baker- The Success ChroniclesTSC S2 #84- Jeff KubiakJeff taught for ten years as an elementary school teacher in grades 4, 5, and 6 and has eight years of administrative experience. He strives to connect with students by bringing them real world experiences, getting to know them, engaging in lessons and play, and becoming a part of the learning process. Jeff has always looked at education from a different lens: as someone who hated and struggled with school. Jeff vows to always do his best to help increase opportunities for all students to feel heard, included, celebrated, challenged and safe.
Jeff works hard to push back against the ol...
2021-04-0712 min
Chip Baker- The Success ChroniclesTSC S2 #83- Wade LightheartWade Lightheart is an Author, Athlete, Nutritionist and Expert on Fixing Digestion. He is a 3-Time Canadian national All Natural Bodybuilding Champion who competed as a vegetarian, former Mr. Universe Competitor, host of The Awesome Health podcast, Wade Lightheart is one of the world’s premier authorities on Natural Nutrition and Training Methods. Having majored in Sports Science at the University of New Brunswick, he has authored numerous books on health, nutrition, and exercise which have sold in over 80 countries.
He has been in the health industry for over 25 years, coached thousands of clients, and is sought ou...
2021-04-0711 min
Chip Baker- The Success ChroniclesTSC S2 #82- Lakeasha WilliamsPrincipal Shine On Lakeasha Williams is a social justice transformational community leader with over twenty years of experience at every level in education. @principal_shineonlakeasha
#principal #flatbush #newyork #shineon #tsc #gogetit #theimpactofinfluence
2021-03-2811 min
Chip Baker- The Success ChroniclesTSC S2 #80- Tayelor SpearsTayelor Spears is a teenager that is the author of the book “Spears Makes Her Point”. It features 22 packed articles with a range of topics that give you a sneak peek into the mind of an African American teenage girl. Tayelor was raised by two educators, including an ordained minister who intentionally positioned her around different demographics her entire life to make her well rounded. Spears talks about real issues teenagers face.
#tayelorspears #author #tsc #gogetit
2021-03-2206 min
Chip Baker- The Success ChroniclesTSC S2 #78- Dr. Tim LewisDr. Tim Lewis is a Sports Strategy Consultant, Diversity and Inclusion Strategist, Business Strategy and Partnership Leader and Speaker.
@tllewis2022
#consultant #speaker #leadership #dr #tsc #gogetit #theimpactofinfluence
2021-03-1019 min
Chip Baker- The Success ChroniclesTSC S2 #76- Rich PerryRich Perry is the co-author of Bankroll Your Mind – an International #1 Best Seller in multiple business, success, and leadership categories – along with a few other titles in the personal growth space. He hosts the 10-Minute Mentor with Rich Perry weekly podcast and Daily Minute with Rich podcast and vlog, as well as a weekly Instagram Live Series.
As an entrepreneur, communicating a powerful message to connect with his audience on a deeper level is necessary for the continued success and prosperity of his business. Cultivating this relatable and authentic relationship with his audience is paramount, and it’s one...
2021-02-2509 min
Chip Baker- The Success ChroniclesTSC S2 #73- Ken WilliamsKenneth C. Williams is a former teacher, assistant principal, and principal. He shares his experience and expertise as a recognized trainer, speaker, coach, and consultant in education and leadership.
As the Founder of Unfold The Soul, he works exclusively with K-12 School Leaders and Superintendents to help them leverage the collective expertise of staff in new and more effective ways. @unfoldthesoul
#kenwilliams #speaker #trainer #coach #georgia #tsc #gogetit #theimpactofinfluence
2021-02-1312 min
Chip Baker- The Success ChroniclesTSC S2 #67- Thais GibsonThais is a personal development expert, author, and teacher who has worked with thousands of clients across the globe to help them transform their life, relationships, and overcome substantial challenges.
She is certified in over 13 different therapeutic techniques, including Cognitive Behavioural Therapy, Neuro-linguistic Programming, Hypnosis, Somatic Experiencing and more.
She has created and tested cutting-edge approaches to healing all areas of your life that are truly long-lasting and results-oriented. This is because she recognizes that for real change to exist, it must take place at the subconscious level. @ThaisGibson
#thaisgibson #personaldevelopment #expert #author...
2021-01-1517 minTSC NowUnderstanding COVID-19's Impact on Those with TSC & LAMIn episode 18 of TSC Now, host Dan Klein talks to Nishant Gupta, MD, Associate Professor in the Division of Pulmonology, Critical Care and Sleep Medicine at the University of Cincinnati where he serves as the Director of the Interstitial and Rare Lung Disease Program.
We discuss what researchers and clinicians have learned so far about how COVID-19 impacts those with TSC and LAM, what potential future vaccines mean for those affected, and how individuals with TSC and LAM who have already contracted COVID-19, confirmed by testing, can participate in an important Natural History Database study to help...
2020-11-2519 min
TSC NowEpisode 17: Gene Therapy in TSCIn episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Professor of Neurology at Harvard Medical School and a geneticist, specializing in neurology & tadiology at Massachusetts General Hospital. Dr. Breakefield’s research focuses on gene therapy in preclinical mouse models of TSC in which the TSC1 or TSC2 gene are missing. By introducing the missing gene into the bloodstream via an adeno-associated virus (AAV) vector, Dr. Breakefield has been able to normalize brain structures and extend the lifespan to almost normal length in mouse models of both TSC1 and TSC2. This research was funded in part by...
2020-10-3120 min
TSC NowTSC Global Awareness Month in the Age of COVID-19In episode 13 of TSC Now, host Dan Klein celebrates TSC Awareness Month and one full year of podcasting by once again reaching out to some of the Tuberous Sclerosis Alliance’s international partners with the help of Katie Smith, TS Alliance Director of Government and Global Affairs, to see how they are recognizing TSC Global Awareness Day on May 15 without being able to meet in person, and how they are supporting those with tuberous sclerosis complex (TSC) and their loved ones during the ongoing COVID-19 pandemic.
First, we speak to Helen Willacy (02:25), President and Co-Founder of TSC NZ...
2020-05-311h 00TSC NowEpisode 12: Living with TSC During COVID-19In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-19 crisis and its impact on the tuberous sclerosis complex (TSC) community. Throughout the episode he shares resources the Tuberous Sclerosis Alliance (TS Alliance) has developed to support the community during the pandemic, and plays clips from past webinars hosted by the TS Alliance and our partner advocacy organizations. He also interviews two guests to better understand how COVID-19 is affecting both individuals and families and TSC clinics.
First he speaks with Laura Lubbers, PhD (3:50), Chief Scientific Officer at Citizens United for...
2020-04-2641 minTSC NowEpisode 6: TSC-Associated Neuropsychiatric Disorders (TAND)In episode 6 of TSCnow, host Dan Klein talks to Petrus de Vries, MBChB, MRCPsych, PhD, Sue Struengmann Professor of Child and Adolescent Psychiatry at the University of Capetown in South Africa. They discuss tuberous sclerosis complex (TSC)-associated neuropsychiatric disorders, otherwise known as TAND. TAND refers to a whole spectrum of neurological manifestations of TSC, including aggressive behaviors, autism spectrum disorder (ASD), intellectual disabilities, psychiatric disorders, neuropsychological deficits, as well as school and occupational difficulties. Most people with TSC suffer from one or several of these manifestations and it is often one of the most impacting aspect of the...
2019-10-1533 minTSC NowEpisode 5: TSC Kidney Manifestations & Consensus Guidelines for Surveillance and TreatmentIn episode 5 of TSC Now, Dan Klein talks to Dr. John Bissler, MD, Clinic Director of the Tuberous Sclerosis Complex Center of Excellence located at Le Bonheur Children’s Hospital, Director of Pediatric Nephrology at the University of Tennessee Health Science Center, and the Medical Director of Nephrology at St. Jude’s Children’s Hospital. They discuss common kidney manifestations of tuberous sclerosis complex (TSC), including renal cysts and renal angiomyolipoma (AML). The majority of individuals (greater than 80%) with TSC will develop some form of renal disease during their lifetime and renal-related disease is the most common cause of TSC-re...
2019-09-1636 minTSC NowEpisode 4: Educational Issues in TSC and How to Advocate for Your Child in SchoolIn the fourth episode of TSC Now, host Dan Klein talks to Lilian Ansari, MS, Special Needs Advocate, Co-Chair of the TS Alliance of Northern California and Education Parent Mentor. They discuss why she volunteered as an Education Parent Mentor, what types of challenges kids with TSC face in the classroom, and what resources and benefits are available to families under the Individuals with Disabilities Education Act. She also shares what advice she gives to parents as they are preparing for an Individualized Education Program (IEP) meeting, including to record the meeting, take time to review the plan and g...
2019-08-1623 minTSC NowEpisode 3: The 2019 International TSC Research ConferenceIn the third episode of TSC Now, host Dan Klein, Director of Digital Platforms for the Tuberous Sclerosis Alliance, talks to the two co-chairs of the 2019 International TSC Research Conference: Changing the Course of TSC.
First Dan interviews Dr. Elizabeth (Lisa) Henske, MD, Professor of Medicine at Harvard Medical School and Director of the Center for LAM Research and Clinical Care at Brigham & Women’s Hospital about what she considers the most exciting outcomes from the conference, why attracting early career researchers to tuberous sclerosis complex (TSC) research is so important and what challenges exist when trying to d...
2019-07-1637 minTSC NowEpisode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel CurryIn the second episode of TSC Now host Dan Klein talks to Dr. Daniel Curry, Director of Functional Neurosurgery and Epilepsy Surgery at Texas Children’s Hospital in Houston. They discuss how he became a neurosurgeon, the development of laser ablation as a treatment for epilepsy, what parents need to know about the procedure compared to traditional brain surgery and what they should consider before making the decision to get surgery. We end by discussing what Dr. Curry expects to be the next great breakthroughs in the treatment of epilepsy both in TSC and the general public.
To...
2019-06-1557 minTSC NowEpisode 1: TSC Global Day, 45th Anniversary and the Future of TSC ResearchWelcome to the debut episode of TSC Now, a podcast from the Tuberous Sclerosis Alliance! In this episode Dan Klein, Director of Digital Platforms, talked to Jennifer Flinn from TS Canada ST, Eva Schoeters from Be-TSC in Belgium, and Rahul Vipparthi from the TS Alliance of India about the challenges they face in their countries, TSC Global Awareness Day and how they are spreading awareness of TSC. He also talked to Kari Luther Rosbeck, President and CEO of the Tuberous Sclerosis Alliance and Chief Scientific Officer Steve Roberds, PhD, about the organization’s 45th anniversary and history, how Unlock th...
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