Shows
Not Defined by EndoHannah - Finding Hope in the Waiting | Strength Despite the PainHave you ever felt like your prayers were met with silence? Like God wasn’t listening, even when your heart ached for an answer?
Welcome to our series, 'Strength despite the pain', where we explore stories of women who went through pain and suffering in the Bible.
In today’s episode of Not Defined by Endo, we dive into the powerful story of Hannah, a woman who knew the pain of waiting, longing, and unanswered prayers. Despite years of heartbreak, she remained steadfast in faith—and God’s answer came at the perfect time.
Hannah...
2025-03-0605 min
Not Defined by EndoEndo University 001 (Lightening Podcast) - What does Endometriosis Look Like?Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis.
Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?'
Articles & References:
Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for the diagnosis and treatment of endometriosis. Hum Reprod. 2005;20:2698–704. [PubMed] [Google Scholar]
Stratton P, Winkel CA, Sinaii N, Merino MJ, Zimmer C, Nieman LK. Location, color...
2024-01-3105 min
Not Defined by EndoS6E2 - ”There isn’t even a Quality Outcome Framework for Endometriosis!” with Dr. Anita Sharma & Courtney OmrodWelcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.
Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they have both been doing and how Courtney's personal experiences with Endo have impacted every aspect of her life.
Don't forget to share, rate, and subscribe to this podcast.
If...
2023-10-3150 min
Not Defined by EndoS6E1 - The Search for Endo Biomarkers Using Urine with Barbara GuinnWelcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast.
Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull.
As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Barbara read Genetics at Aberystwyth University and received a PhD in Medicine from the University of Wales College of Medicine, Cardiff.
Following 4.5 years working at the University of Toronto in th...
2023-09-2723 min
Not Defined by EndoS5E7 - Chat with a Warrior : Tihesia BennettWelcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks, after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story.
Don't forget to share, rate, and subscribe to this podcast.
If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com.
Till...
2023-02-0131 min
Not Defined by EndoS5E6 - Chat with a Warrior : Tanya Living FreeWelcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to her organs. It was so refreshing speaking all things endo, stoma, and living our best lives with Tanya! So sit back, relax and join us in this conversation! Follow her instagram @tan...
2023-01-0439 min
Not Defined by EndoS5E5 - Chat with a Warrior : Betsy Austin & Kailey Lee (Part 2)Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so.
Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that...
2022-12-0734 min
Not Defined by EndoS5E4 - Chat with a Warrior : Betsy Austin & Kailey Lee (Part 1)Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today’s episode is with lovely Kailey Lee and Betsy Austin. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are al...
2022-11-0237 min
Not Defined by EndoS5E3 - Chat with a Warrior : Stephanie MossWelcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today’s conversation is with Stephanie Moss. Stephanie is an Endometriosis advocate, Infertility warrior, Trauma survivor, and a third-year Medical Student pursuing her Medical Doctorate (M.D.) at Rush Medical College in Chicago. She has a passion for trauma-informed care and advocating for those disenfranchised in society. She loves to share her story through writing, social media, podcasts, and presentations. Her work has been featured across various platforms including The Endometriosis Foundation, KevinMD, American Medical Women’s Association, and Survivor Revive. She has also...
2022-10-0557 min
Not Defined by EndoS5E2 - Chat with a Warrior : Amy CorfeliWelcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today’s episode is with Amy Corfeli, a powerhouse and amazing advocate in the world of Endometriosis and chronic illness. Amy has endometriosis and has also been diagnosed with IC, fibro, Mast cell activation syndrome, and Small Intestine Bacterial Overgrowth. She was diagnosed with endo at thirty-three, sixteen years after her symptoms began. She’s the content creator of the popular podcast called In Sixteen Years of Endometriosis. With her co-host Brittany, they laugh, cry, and shout about all things endometriosis. Amy is also...
2022-09-071h 16
Not Defined by EndoS5E1 - Chat with a Warrior : Nicole MarriottWelcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast.
Today's episode is with Nicole Marriott, a warrior who lives with Endometriosis, Adenomyosis, and PCOS. Nicole set up her Instagram account @endo.of.an.era to raise awareness and break the stigmas and taboos surrounding chronic conditions, infertility, and menstruating.
After a 20-year journey to diagnosis and a nearly 10-year journey with primary and secondary infertility, her aim is to connect, raise awareness and help others feel seen, heard, and free in their own truths and all aspects of their journey...
2022-08-0359 min
Not Defined by EndoS4E7 - Hormone University: A conversation with founder, Ana HerreraToday’s episode is with Ana G. Herrera, founder of Hormone University, an educational platform with the mission to improve hormone health through accessible knowledge and to advocate for social impact in our communities. Ana suffered from stage IV Endometriosis for years and went through excruciating PMS pain, infertility, and five surgeries, the last one ending in a full hysterectomy and a colon resection, which led to surgical menopause.
Join the conversation today as Ana shares her story and her passion for what she does.
Remember that I am not a healthcare professional, so what...
2022-02-0934 min
Not Defined by EndoS4E6 - Pelvic Rehabilitation Medicine: A conversation with Dr. Allyson ShrikhandeToday’s episode is with Dr. Allyson Shrikhande, a board certified Physical Medicine and Rehabilitation specialist and the Chief Medical Officer of Pelvic Rehabilitation Medicine. Allyson is a leading expert on pelvic health who works with expert gynecologists, urologists, physiatrists, and interventional pain physicians, and also specialists in pelvic floor physical therapy, kinetics, and movement, as well as acupuncturists, nutritionists, cognitive-behavioral therapists, and functional medicine physicians. This means that even with an extensive background in mainstream clinical medicine, she also makes use of many alternatives, holistic and homeopathic approaches.
Remember that I am not a healthcare professional, so wha...
2022-01-2634 min
Not Defined by EndoS4E5 - For Those Who Bleed - A conversation with Manju Bangalore, founder of Operation PeriodWelcome to today's episode of Not Defined by Endo Podcast!
Today’s episode is with Manju Bangalore, the founder and executive director of Operation Period, a grassroots, youth-led nonprofit dedicated to creating a world where menstruation holds no one back. They fight for menstrual freedom through art, advocacy, education, community engagement, and direct aid. Manju started this organisation after experiencing severe period pains and encountering those who could not even afford their menstrual products.
If you want to get involved in any way, please visit www.operationperiod.org to learn more.
Rem...
2022-01-1222 min
Not Defined by EndoS4E4 - Be Pee Free - A conversation with Kelly Newton, creator of leak-proof incontinence knickersWelcome to today's episode of Not Defined by Endo Podcast!
Today’s episode is with Kelly Newton, who founded BP3 Underwear in 2019. Kelly founded BP3 as a result of her issues with bladder incontinence as she entered menopause. We know that many young women with Endometriosis, Interstitial cystitis, and even those in postpartum also have bladder issues, and Kelly soon realized that all of these women could use her knickers both for their periods and leaks and incontinence.
Kelly also has a fascinating story about her endometriosis and I really had so much fun getting to...
2021-08-1837 min
Not Defined by EndoS4E3 - Endometriosis: Under-funded & Under-researched - A conversation with Endometriosis South Coast Advocate and Research Student, Jodie HughesWelcome to today's episode of Not Defined by Endo Podcast!
Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph.D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating for herself and others and raising awareness about the disease.
Endometriosis is such a poorly-funded and poorly-researched disease, and Jodie is working hard to change this by devo...
2021-08-0431 min
Not Defined by EndoS4E2 - A New Daye is Here - A conversation with CBD-infused tampon founder Valentina MilanovaWelcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Valentina Milanova, founder of Daye, a female health research and development company on a mission to bridge the gender gap in product innovation. They have created pain-relieving tampons infused with CBD which are not only effective but also sustainable.
Join me today as we listen to the incredible journey of Daye and how they are raising the standards of women’s healthcare.
If you want to know more or try out their products, please go to https://yourdaye.com.
2021-07-2124 min
Not Defined by EndoS4E1 - UpCircle Beauty - A conversation with founder, Anna BrightmanWelcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Anna Brightman, founder of UpCircle Beauty.
UpCircle Beauty is a natural sustainable skincare company that repurposes would-be waste ingredients to create award-winning skincare and beauty products that are uplifting for the skin.
Anyone that knows me knows how important sustainable living is to me, especially living with Endometriosis, a condition that is hugely affected by our hormones. So you can imagine my excitement when I discovered how UpCircle is making use of leftover coffee grounds, aromatic chai spices, and even...
2021-07-0735 min
Not Defined by EndoS3E7 (Endo 101) - Final Episode and a Case Study!Welcome to episode 7 and the final episode of Endo 101! What an amazing educational few weeks it has been!
Today, we are going to discuss a case study on a woman who was diagnosed with Endometriosis and the treatment route that her doctors took, all hypothetical. We want you to know that even if you or someone you know has been diagnosed with Endometriosis, you do not remain without hope. There are many treatment approaches that your doctors can take, considering your individual case and you can regain your quality of life back. Most importantly, please never forget...
2021-03-3149 min
Not Defined by EndoS3E6 (Endo 101) - Endometriosis Myths and How They EvolvedWelcome to episode 6 of Endo 101!
Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
Today’s episode will be about the myths that have plagued this dis...
2021-03-2441 min
Not Defined by EndoS3E5 (Endo 101) - Endometriosis and FertilityWelcome to episode 5 of Endo 101!
Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
Last episode we discussed the surgical treatments for Endometriosis, and why the g...
2021-03-1740 min
Not Defined by EndoS3E4 (Endo 101) - Surgical Treatment of EndometriosisWelcome to episode 4 of Endo 101!
Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
The last episode we discussed the path from symptoms to diagnosis and r...
2021-03-1053 min
Not Defined by EndoS3E3 (Endo 101) - Diagnosis and Treatments of EndometriosisWelcome to episode 3 of Endo 101.
Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
Today, we are talking about the path from symptoms to diagnosis and t...
2021-03-0343 min
Not Defined by EndoS3E2 (Endo 101) - Colours, Stages and Sites of EndometriosisWelcome to episode 2 of Endo 101.
Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
Today we are talking about the colours, the stages, and the sites w...
2021-02-2458 min
Not Defined by EndoS3E1 (Endo 101) - What is Endometriosis? Symptoms, Causes, Theory, and PathophysiologyEndo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.
In this first episode, we are asking, what is Endometriosis? How and why does it happen?
If y...
2021-02-1757 min
Not Defined by EndoS2E18 - The Challenges of Treating Endometriosis in Nigeria, with Dr. Olajuwon AlabiToday's episode is with Dr. Olajuwon Alabi. Dr. Juwon is a Consultant Gynaecologist and Obstetrician, the founder and Medical Director of Southshore Women’s and Children’s Hospital in Lagos Nigeria. Southshore is run both in Victoria Island and GRA Ikeja in Lagos. Dr. Juwon trained in Nigeria and also in Manchester and Leeds in the United Kingdom. He was trained in Minimal Access Surgery and developed interest in this subspecialty, and there got involved in a lot of Endometriosis cases. On his return to Nigeria, he realised the skills gap in laparoscopic surgery and decided in 2012 to start Sout...
2020-11-0454 min
Not Defined by EndoS2E17 -The Bittersweet Early Diagnosis of Endometriosis, with Lily AveryToday’s episode is with Lily Jane Avery, a 19-year Endometriosis warrior, and advocate. Lily was diagnosed with endometriosis at the very young age of 14, and she is one of the few who have had to carry this burden of a chronic disease at such a young age. Despite her early diagnosis, Lily was once told by her doctor to buy a colouring book to colour away her pain. This only made her fight even harder to be heard. Lily is not a victim, oh no! Instead, she has embarked on the very important cause of advocating for and ed...
2020-09-3025 min
Not Defined by EndoS2E16 - The Art.. or Science of Cycle Tracking with Melissa BuchanCycle charting. Is it the same as period tracking?
We are speaking today with Melissa Buchan, an integrative health coach and a neo fertility advisor.
Melissa is the founder of Virtus Fertility Centre in Texas USA, and she provides her clients, many of whom are endometriosis and PCOS patients, with the tools to monitor and track their fertility cycles. Melissa provides cycle-targeted diagnostic testing to optimize fertility treatment plans.
Melissa also developed a fertility app called Chart Neo which acts as a powerful tool for charting your cycle and assessing your health.
Re...
2020-09-1643 min
Not Defined by EndoS2E15 - Racial Bias in Healthcare“None of us alone can save the nation or the world. But each of us can make a positive difference if we commit ourselves to do so.” - Cornel West
Today's episode is with Amy, an amazing advocate for Endometriosis, and founder of 'In Sixteen Years of Endometriosis' Podcast, where she and her co-host Brittany give us incredibly uplifting accounts of their experiences dealing with Endometriosis for over 16 years. Amy is very active on social media, specifically Instagram, through her page ‘in16yearsofendo’, where she thoroughly educates the community on Endometriosis and the scientific research available and provides...
2020-09-0256 min
Not Defined by EndoS2E14 - Yoga Practice for Chronic Illness, with Lara HeimannToday’s conversation is all about Yoga with Lara Heimann, a physical therapist and Yogi with over 20 years of experience under her belt. Yoga’s practise is in Princeton, New Jersey.
Lara is the creator of the LYT Yoga Method and can be found on Instagram @lara.heimann and on the website https://lytyoga.com/
If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.
Don't forget to share, rate, and subsc...
2020-08-1945 min
Not Defined by EndoS2E13 - Understanding the Assisted Fertility Process, with KristenUp to 50% of women with Endometriosis experience infertility issues. This means that many eventually choose to go through the process of assisted fertility. Over the years, the success rates of assisted fertility methods have increased, and 1 in 4 treatment cycles are said to be successful. For those less than 35 years old, the success rates increase to 1 in 3.
In vitro fertilisation (IVF) is when eggs are collected from the ovaries and then combined with the sperm in a laboratory dish, and any fertilised embryos are then implanted into the womb.
Today’s conversation is wit...
2020-07-2230 min
Not Defined by EndoS2E12 - Navigating an Endometriosis Diagnosis, with Dr. Shaheen KhazaliThis episode, we will be talking about how to navigate an endo diagnosis, and the process, especially for those that are resident in the UK.
Dr. Shaheen Khazali is an internationally renowned expert in advanced endometriosis surgery. His practice, both on the NHS and privately, is almost exclusively dedicated to looking after women with the most severe forms of endometriosis when the disease has affected other organs such as the bowel, bladder, ureters and pelvic nerves.
He also sees and treats women with other benign gynaecological conditions such as heavy menstrual bleeding, ovarian cysts and men...
2020-07-0841 min
Not Defined by EndoS2E11 - Understanding Endometriosis Healthcare Challenges, with Dr. Tayyaba AhmedToday's conversation is with Dr. Tayyaba Ahmed. Dr. Tayyaba is a doctor of physical medicine and rehabilitation, was trained at the New York College of Osteopathic Medicine, Northwell Health Plainview Hospital, and the NYU Langone Medical Center/RUSK Institute for Rehabilitation.
A board-certified Physical Medicine and Rehabilitation physician, Dr. Ahmed is also a fellow of the Academy of Physical Medicine and Rehabilitation and a member of the International Pelvic Pain Society.
After spending the last five years honing her skills in outpatient care, Dr. Ahmed is ready to focus on her passion for treating pelvic pain. Dr. Ahmed h...
2020-06-2337 min
Not Defined by EndoS2E10 - Unlearn Your Pain, with Dr. Howard SchubinerPain is no stranger to chronic illness sufferers, in fact, sometimes it feels like we don’t remember what it feels like to be without pain.
Many of us have been told that the pain is only in our heads, which only serves to unfairly invalidate what we are going through.
But what exactly is pain? Is it caused by strange endometriosis implants in our bodies? Is it caused by inflammation? Is it caused by structural abnormalities within our organs, muscles, or bones? How are pain signals transmitted from the brain? These are all very import...
2020-06-0325 min
Not Defined by EndoS2E9 - Understanding PCOS with Angela GrassiMany Endometriosis sufferers have either also been diagnosed with PCOS, or suspect that they have PCOS. Some of the symptoms suffered are similar and some of the deficiencies overlap. That's why we will be talking to a PCOS Expert today.
Angela Grassi, MS, RDN, LDN, has spent 20 years as an internationally known nutrition and health expert on PCOS. She suffers from the disease herself and knows how frustrating it is to live with the disease. She provides help to people with PCOS to improve their health through evidence-based nutrition.
There's so much to take away...
2020-05-2026 min
Not Defined by EndoS2E8 - The Psychology of Sex, with Dr Lauren Fogel MersyToday, we will be discussing the psychology of sex. This is a topic that makes many uncomfortable. There is a stigma when it comes to speaking about any difficulties one is experiencing with sex. However, many endometriosis sufferers are silently experiencing painful sex as a symptom of their disease. I will be speaking today to Dr. Lauren Fogel Mersy. Dr. Lauren is a psychologist, relationship therapist, and certified sex therapist. She specialises in sexual difficulties such as low libido, problems with arousal, orgasm difficulties, and sexual relationship problems. She is currently writing her first book about libido. Her practice i...
2020-04-2949 min
Not Defined by EndoS2E7 - Heal Endo with Katie EdmondsToday’s conversation is with Katie Edmonds, a Certified Nutritional Therapist certified through the Nutritional Therapy Association and a Paleo Autoimmune Protocol certified coach. She founded Heal Endo, a diet and lifestyle approach to aid the body in healing from the worst symptoms of Endometriosis. Katie wrote a 100-page evidence-based book on the dreaded endo-belly, and has also authored the 4-Week Endometriosis Meal Plan.
If you've battled with endo for years or are newly diagnosed, this may be the holistic lifestyle approach to endo you have been missing. Based on a whole-foods, whole-movement, and whole-lifestyle approach to recl...
2020-04-0840 min
Not Defined by EndoS2E6 - Coronavirus Fears Vs Endometriosis FlaresIt is hard enough that many of us have been going through pain and ill-health for so many years. Now we are told that most of our appointments have been canceled because of the Coronavirus (Covid19) pandemic. We fear that our ill-health could make us more susceptible to the virus. And all of these fears, stress, and worries result in endometriosis pain flares, to make matters even worse.
So, the question is, are we at any more risk than other people?
Listen to my thoughts on the matter.
Remember that I am not...
2020-04-0107 min
Not Defined by EndoS2E5 - Turning Your Pain into Passion with Jessica Drummond of IWHIToday’s conversation is with Jessica Drummond of Integrative Women’s Health Institute.
Jessica equips thousands of clients to start their own health coaching practices and regularly lectures on topics such as integrative pelvic pain management, natural fertility options, optimal hormone health, and functional and integrative nutrition for rehabilitation, nutrition, wellness, fitness, and medical professionals.
If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.
Don't forget to share...
2020-03-1136 min
Not Defined by EndoS2E4 - Conversations with an Endo Warrior, Alexandra from YellowbowsxoToday's conversation is with a warrior. A warrior in name and deed.
Alex has been through a lot with her endometriosis. The common myth to take out your uterus was debunked in her case as she presented with thoracic endometriosis even after her hysterectomy. Excision surgery was what gave Alex a chance to enjoy life once again and be present for her husband and her two sons.
Alex is a voice and an advocate for women with endometriosis all over the world and it was great to have her on the show.
If...
2020-02-2643 min
Not Defined by EndoS2E3 - From Surviving to Thriving with MendüMy guests today are from Mendu, a community created for women and by women.
Mendü is a Woman-of-Colour founded company. A space that helps you do wellness in a way that works for you. They teach you to take out all the unappealing parts of therapy and keep only the parts that make you feel good. Their goal is to make investing in mental & emotional wellbeing as vibrant and fun as the women they engage.
Mendü are hosting a wellness event teaching people how to go from surviving to thriving on the 21st of February at 6.30pm at...
2020-02-1328 min
Not Defined by EndoS2E2 - Finding Hormonal Harmony with Stacey FoatToday, we are chatting to Stacey Foat, Naturopathic Doctor who found herself at menopause at age 27, and worked on her body and mind to achieve hormonal balance and wellness. Stacey is passionate about helping women with Endometriosis add tools to their arsenal that helps them fight the disease. She shares her 7 steps to achieving hormonal balance.
To find Stacey and work with her, visit her website www.balancedbabes.net. She also has supplementary products to help you on your journey to wellness.
If you enjoyed this episode, I would love to know. Join me on Ins...
2020-02-0540 min
Not Defined by EndoS2E1 - Nancy's Nook for Endometriosis Education“Endometriosis is not a fatal disease, but despair can be” – Nancy Petersen of Nancy’s Nook.
Today’s conversation is with phenomenal pioneer Endo warrior, Nancy Petersen. She is the brain behind the Facebook Group, Nancy’s Nook that has helped thousands of women with Endometriosis. She is a retired Nurse who also battled with Endometriosis for years and got a hysterectomy, which of course did not eliminate the Endo.
Nancy shares her knowledge on Endo, the resistance of doctors when it comes to this disease, the Lupron and Orilissa band-aids and all the work she does behind th...
2020-01-2251 min
Not Defined by EndoS1E8 - Joyful Living with Chronic Illness"Live like the disease isn't there" - Cam Williams
Living with chronic illness is a huge burden, one that sometimes feels too heavy to carry. How do we keep our smile? How do we rise above sickness and remember that there is more to life than just pain and more pain?
Speaking with lovely Endo Warrior / Boss / Badass Cam Williams definitely reminded me to choose joy. Cam’s joy is contagious, and you wouldn’t believe everything she has been through.
She refuses to let illness define her life, and she is here to s...
2019-11-0640 min
Not Defined by EndoS1E7 - Using Nutrition to fight Endometriosis with Kristy Dishmon (NTP)This week’s episode is all about nutrition and how we can use it as a tool to fight endometriosis. Eating right is one of the hardest things to do in life, period! Whether you have endometriosis or not.
So we are catching up with lovely Kristy Dishmon, a Nutritional Therapist, who will be dishing out lots of advice on the power of nutrition, how to read food ingredient labels, how to begin to choose the right foods when you have chronic illness and more.
For more information about Kristy and the services she provides, vi...
2019-10-3044 min
Not Defined by EndoS1E6 - Mastering your fertility with Dr Haylee & Kristin (NTP)Endometriosis is a beast. With it comes lots of challenges, a major one being infertility. 1 in 4 pregnancies result in miscarriage, and 1 in 8 women struggle with fertility. But up to 40-50% of women with endometriosis struggle with fertility. While the statistics look grim, we must do all in our power to improve our chances even with endometriosis.
Today, we are speaking with Dr Haylee and Kristin, a Nutritional Therapy Practitioner. Haylee and Kristin both founded Tiny Feet, with the aim to help struggling women with their fertility struggles, and help them realise their dream of a healthy life...
2019-10-2356 min
Not Defined by EndoS1E5 - Endometriosis and Infertility, an Endo Sister's StoryStatistics say 1 in 4 pregnancies result in miscarriage, and 1 in 8 women experience infertility.
So even if you are not experiencing infertility, someone you know might.
With Endometriosis, the ante is raised even higher. Join me today as we follow Kunbi's story.
Kunbi is an Attorney and Founder of lifestyle publication Perfête! She is a recent founder of TTFC- a community for those trying to freaking conceive. Kunbi is also an Endo sister who finally got her big fat positive after multiple cycles of IVF.
If you enjoyed this episode, I would lo...
2019-10-1652 min
Not Defined by EndoS1E4 - Beating Endo - The missing link between Endometriosis and Pelvic Pain with Amy Stein DPTWhat exactly is an ILU Massage? Why is pelvic health the missing link between Endometriosis and Pelvic Pain?
Today's episode is with Amy Stein DPT.
Amy is a Doctor of Physical Therapy, a leading expert on the treatment of pelvic floor dysfunction, pelvic pain, women’s health and functional therapy for men, women and children. She is the founder of Beyond Basics Physical Therapy in NYC.
Amy is the author of the award winning book, ‘Heal Pelvic Pain’, an easy-read self-help book and she created a video, ‘Healing Pelvic and Abdominal Pain: The ultimate h...
2019-10-0938 min
Not Defined by EndoS1E3 - Beating Endo - An Endometriosis Specialist's PerspectiveDoes an Ultra-sound detect Endometriosis? Why do I still have so much pain after my surgery? Does pregnancy really cure Endometriosis? What are my options?
Many Endometriosis sufferers have all these questions, but feel like no one, not even the medical professionals who we trust so much, can answer them. This is why I am so excited to be speaking to Dr Iris Orbuch in today's episode.
Iris is an Endo Excision specialist and the Director of the Advanced Gynecologic Laparoscopy Center in Los Angeles and New York City. She operates at Lenox Hill Hospital, M...
2019-10-0259 min
Not Defined by EndoS1E2 - "You can have pain-free Sex with Endo" - Guiding you towards Pelvic Health with Dr Nicole Cozean DPTEndometriosis and pelvic pain. Painful sex. Painful urination. Painful bowel movement. These are just some of the symptoms many of us experience, both during and outside of our menstrual periods. Many say endometriosis causes pelvic floor dysfunction.
But what exactly is the pelvic floor? What are the signs that I have a pelvic floor dysfunction? And how does Endometriosis affect this? How can I improve my pelvic health?
Today's episode is with amazing Nicole Cozean DPT, a Physical Therapist I had the honor of meeting a while ago. Nicole has a private practice, called Pelvic...
2019-09-2551 min
Not Defined by EndoS1E1 - My Endometriosis StoryWelcome to Not Defined by Endo Podcast, Season 1 - Episode 1.
Our first full episode this season tells my endometriosis story. How it all began, and where I am on my journey now.
As many chronic illness sufferers know, there never seems to be an end to the journey. But we each have a unique, though familiar story, and we need to embrace every aspect of our journey. Healing is never linear, so we take it one day at at time.
My story is by no means done, and I would love for you t...
2019-09-1815 min
Not Defined by EndoNot Defined by Endometriosis - TrailerNot Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis, or who suffer from symptoms that they suspect to be caused by endometriosis.
Every week, Teniola shares her own experiences, interviews health professionals and Endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.
2019-08-1803 min