Shows
Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric DisordersS1 E7: Dr. Tim Ubhi Talks about Treating PANDAS/PANS in the UK at his new London PANS ClinicSusan Manfull, PhD crossed the pond to speak with Dr. Tim Ubhi, consultant paediatrician and fellow of the United Kingdom’s Royal College of Paediatrics and Child Health. Dr. Tim, as his patients call him, has dedicated his life to children’s health, beginning with conducting research on using botulinum toxin to help children with cerebral palsy, work for which he was awarded the prestigious Michael Blacow prize by the Royal College of Paediatrics and Child Health to, currently, focusing on treating children with PANDAS, work that has earned him the deepest gratitude from his over 1200 patients and their famili...2024-09-291h 25
PANS/PANDAS STORIESEpisode 6 - Dr Tim Ubhi explains how to treat PANS/PANDASHello everyone
In our last podcast of our first series, Lucy speaks to Dr Tim Ubhi. He is well-known here in the UK as a passionate advocate for PANS/PANDAS, and has played a large part in many people's recovery. He has one of the largest cohorts of PANS/PANDAS patients and in this episode he talks about how he believes Strep is the trigger - even in PANS, a course of action for treatment, and the growth of his clinic to include Cognitive Behavioural Therapy for OCD and EMG for treating tics.
Below are...2023-11-1356 min
PANS/PANDAS STORIESEpisode 5- PANDAS mum, Helen Huitson charts her daughter's illnessIn our fifth PANS/PANDAS Stories, Lucy McDonald chats with Helen Huitson, a PANS/PANDAS mother and campaigner from the NE of England. She is the mother of the wonderful Jessica, Lucy spoke to in Episode 2. In the podcast, we discuss the terrifying progression of Jessica's illness, what has helped Helen survive it and fight for others to get support. Helen can rarely leave Jessica's side, except when she is at school, as her fits and tics are so frequent. Hers is a story of courage and hope. Hope it helps.
Lucy x
If your c...2023-11-0639 min
PANS/PANDAS STORIESEpisode 4 - Jo Joyner talks to Lucinda Miller about how to heal the immune system naturallyJo Joyner talks to naturopath Lucinda Miller about the healing power of food. Lucinda has helped hundreds of families, including Jo's, and focuses on feeding the brain, the immune system and the gut microbiome.
Find out how she helps children in this week's episode of the PANS/PANDAS Stories.
Lucinda also talks about her own journey back to wellness after burnout and how her recovery inspired her new career.
**FANFARE** We celebrated 1000 listens on Friday, so a huge thank you to everyone. If you like the podcast and want friends and families to...2023-10-3045 min
PANS/PANDAS STORIESEpisode 3 - Jo chats with PANDAS dad, Gareth Costello about the relief of finding a doctor who listenedThis week, Jo Joyner talks to Gareth Costello about his daughter Rose who went from a confident, popular girl, who loved school, to a shadow of her former self almost overnight. Gareth describes this change, as a "light switch" moment.
The trigger? A sore throat. He talks about rushing home from work to a changed child, the relief of being listened to by a GP, and how he is giving something back to the PANS/PANDAS community by fundraising.
Listen to how 12-year-old Rose is doing now, in Episode 3 of PANS/PANDAS Stories....
2023-10-2353 min
NGAJI NGOPI“ Pendidikan Dimasa Pandemi, Pondok Pesantren Jadi Opsi “Pembicara :
1. Muhammad Habibi, S.Pd. ( Ketua PC RMI NU Tulungagung )
2. Ahmad Izzul Ito’, M.Si. ( KAPRODI PPKn UBHI Tulungagung )
Pada pertemuan kali ini, tim ngaji ngopi mengangkat tema ‘ Pendidikan di masa pandemi, pondok pesantren jadi opsi ‘ memang bukan hal yang aneh lagi di era pandemi ini sistem pembelajaran dibuat menjadi daring atau online. Namun, tidak semua orang setuju khususnya para orang tua wali siswa yang merasa kurang efektifnya sistem pembelajaran daring ini. Oleh karna itu, beberapa pihak dalam hal ini orang tua wali siswa memilih pondok pesantren untuk jadi salah satu opsi pendidikan di masa pandemi. Hal ini di sebabkan oleh b...2021-02-251h 53
The Children's e-HospitalPANS PANDAS - Sharing Experience between the US & UK Part 1A webinar with Dr Tim Ubhi (UK) and Amy Smith (US) to discuss difference's in approach to PANS PANDAS across the Atlantic
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-05-2643 minThe Children's e-HospitalPANS PANDAS - Sharing Experience between the US & UK Part 2Part 2 of the webinar between Dr tim Ubhi & Amy Smith
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-05-2640 minThe Children's e-HospitalPANDAS & CoronavirusThe audio feed from the recent webinar on PANDAS & Coronavirus with Dr Tim Ubhi, Lucinda Miller & Sarah Sharp. Here we talk about PANDAS, how Coronavirus (COVID-19) might affect a child with PANDAS, steps that you can take to minimise symptoms and different treatment strategies. This clip is 1 hour long so you might want to get a cup of tea by your side!
The webinar itself can be viewed via The Children's e-Hospital website
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-04-181h 00The Children's e-HospitalPANDAS - Sub-groupsIn this episode Dr Tim Ubhi looks at the different sub-groups of PANDAS patients.
www.e-Hospital.co.uk
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-01-1804 minThe Children's e-HospitalPANDAS - TreatmentIn this episode Dr Tim Ubhi looks at the different treatment options available for patients with PANDAS.
www.e-hospital.co.uk
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-01-1804 minThe Children's e-HospitalPANDAS - InvestigationsIn this episode Dr Tim Ubhi explains the rationale behind the different investigations that are carried out in patients with PANDAS.
www.e-hospital.co.uk
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-01-1804 minThe Children's e-HospitalPANDAS - Signs & SymptomsDr Tim Ubhi discusses the common signs & symptoms that we see in children with PANDAS and what causes them.
www.e-hospital.co.uk
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-01-1803 minThe Children's e-HospitalPANDAS - Paediatric Autoimmune Neuropsychiatric Disorder Associated with StreptococcusThis is an introduction to PANDAS which stands for Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. The Podcast is narrated by Dr Tim Ubhi from the Children's e-Hospital and is the first in this series which will go on to look at the signs and symptoms of PANDAS together with treatment.
---
Support this podcast: https://podcasters.spotify.com/pod/show/tim-ubhi/support2020-01-1703 min