Shows
BrainStorm by UsAgainstAlzheimer'sEp 98: The Future of Alzheimer's Trials: Bringing Cutting-Edge Research to Every Community - John Dwyer, CEO of The Global Alzheimer's PlatformBrainStorm wants to hear from you! Send us a text.The quest to speed up clinical trials is personal for John Dwyer, CEO of the Global Alzheimer's Platform (GAP). A long-time UsA2 advocate, he’s been motivated by the generations of family members lost to Alzheimer's and Parkinson's disease. Dwyer shares with BrainStorm host Meryl Comer the critical challenges of NIH funding cuts by the Trump Administration, forcing many trial sites to shut down at a time of new FDA-cleared blood tests for early diagnosis. Dwyer highlights GAP's innovations in improving the participant experience through streamlining visits, per...
2025-11-1816 minBrainStorm by UsAgainstAlzheimer'sEp 97: The Right to Choose - Diane Rehm on Autonomy, Aging, and End-of-Life DignityBrainStorm wants to hear from you! Send us a text.Diane Rehm, the legendary 89-year-old NPR talk show host, discusses her passionate advocacy for medical aid in dying with BrainStorm host, Meryl Comer. Rehm’s view was shaped by her husband John's difficult death from Parkinson's disease and the experience transformed her into a fierce advocate for end-of-life autonomy. She's adamant that if diagnosed with serious illness or early signs of Alzheimer's, she would travel to Switzerland rather than undergo treatment or lose her cognitive capacity, declaring that legislators have "no right to control my decision as to...
2025-11-0525 minBrainStorm by UsAgainstAlzheimer'sEp 96: The Menopause-Alzheimer's Connection: Why Timing Matters for Women's Brain Health with Dr. Rachel Buckley (part 2)BrainStorm wants to hear from you! Send us a text.Dr. Rachel Buckley discusses the critical link between menopause and Alzheimer's risk in women with BrainStorm host Meryl Comer. Dr. Buckley explains that early menopause can be associated with faster cognitive decline and higher tau levels in the brain. She emphasizes the importance of timing for hormone replacement therapy and how estrogen plays a vital role in brain health through receptors that regulate communication between brain regions and mood. Dr. Buckley advocates for proactive conversations with doctors starting at age 40, midlife cognitive checkups around age 55, and better...
2025-10-2121 minBrainStorm by UsAgainstAlzheimer'sEp 95: Women, Menopause, and Alzheimer's Risk: Breakthrough Research on Brain Health with Dr. Rachel Buckley (part 1)BrainStorm wants to hear from you! Send us a text.Dr. Rachel Buckley of Mass General Hospital and Harvard Medical School discusses groundbreaking research revealing stark sex differences in Alzheimer's disease with BrainStorm host Meryl Comer. Her studies found that while men and women show similar levels of amyloid protein, women consistently display significantly higher levels of tau. This discovery has sparked a $50 million Welcome Leap Care grant aimed at cutting Alzheimer's lifetime risk among women by half.The episode clarifies widespread confusion about hormone replacement therapy, explaining that the problematic Women's Health Initiative study...
2025-10-0720 minBrainStorm by UsAgainstAlzheimer'sEp 94: The Unexpected Journey - Emma Heming Willis on Caregiving for Bruce WillisBrainStorm wants to hear from you! Send us a text.In this deeply moving episode of BrainStorm by UsAgainstAlzheimer’s, Emma Heming Willis shares her intimate journey as a caregiver to her husband Bruce Willis, who lives with frontotemporal dementia. Their conversation covers the progression from early warning signs to diagnosis and the complex decisions required in caregiving - including the heartbreaking but necessary choice to have Bruce live separately to better serve both his needs and their children's wellbeing.Emma's candid discussion about reframing expectations, finding permission to ask for help, and discovering unexpected be...
2025-09-2333 minBrainStorm by UsAgainstAlzheimer'sEp 93: Beyond Treatment - Dr. Rosand's Mission to Prevent Brain Disease Before It StartsBrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm by UsAgainstAlzheimer’s Dr. Jonathan Rosand, co-founder of the McCance Center for Brain Health at Harvard discusses his revolutionary approach to preventing brain diseases before they start with host Meryl Comer. Dr. Rosand explains how his work originated from his experience treating severe brain injuries, where he witnessed patients and their families developing depression, anxiety, and PTSD after surviving critical care. This led him to ultimately developing the "Brain Care Score" - a tool that measures 12 daily lifestyle choices that can substantially re...
2025-09-1125 min
Voices of Inclusive ResearchCaregivers See the Gaps That Research Misses with Stephanie Monroe“Don’t come into someone’s home for a party without bringing a gift.” – Stephanie MonroeIn this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Stephanie Monroe, advocate and community leader, for an empowering conversation about what true inclusion in clinical research really looks like.Stephanie shares her perspective on patient-centered care, and why small but vital supports like patient navigators, and trusted advocates make or break participation in clinical trials. Stephanie illustrates how cultural context and grassroots leadership drive engagement and retention in trials. She also calls out the respons...
2025-08-2036 minBrainStorm by UsAgainstAlzheimer'sEp 92 - Navigating Alzheimer's Care: When to Seek Help and How to Stay in Control with Dr. Carolyn ClevengerBrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm by UsAgainstAlzheimer’s Dr. Carolyn Clevenger, Founder and Director of Emory's innovative Integrated Memory Care Clinic continues to explore the complex realities of Alzheimer's caregiving with host Meryl Comer. Dr. Clevenger shares her expertise on recognizing when families need additional support, managing behavioral symptoms without over-medication, and ensuring families remain central to care decisions even in residential settings. The conversation covers the often-overlooked medical causes of agitation and how to navigate the challenging transition to memory care facilities while maintaining control over yo...
2025-08-1919 minBrainStorm by UsAgainstAlzheimer'sEp 91: Managing Agitation in Dementia: Expert Insights on Integrated Care and Caregiver Support with Dr. Carolyn Clevenger (part 1)BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm by UsAgainstAlzheimer's, host Meryl Comer explores the critical issue of agitation in dementia care with Dr. Carolyn Clevenger, Founder and Director of Emory's Integrated Memory Care Clinic. Dr. Clevenger provides practical advice for caregivers, emphasizing that documentation of behaviors and triggers is crucial, and that caregivers must learn to adapt. Her innovative approach to dementia care through integrated memory care which provides primary care, dementia specialist services, and family caregiver support all in one practice. This is a must listen for all c...
2025-08-0518 min
Progress, Potential, and Possibilities Podcast / ShowGeorge Vradenburg - Founding Chairman, Davos Alzheimer’s Collaborative - Advancing Brain HealthSend us a textGeorge Vradenburg is Founding Chairman of the Davos Alzheimer's Collaborative ( DAC - https://www.davosalzheimerscollaborative.org/ ), a pioneering worldwide initiative to prevent Alzheimer’s disease, seeking to mirror the success of global efforts against infectious diseases.DAC is extending global research beyond its current focus on traditional Western European ethnic populations into the highly diversified populations of the Global South, where the vast majority of those with Alzheimer’s live. By introducing lower-cost screening and diagnostic tools as well as new treatment and prevention modalities in primary care and community health sett...
2025-07-241h 00BrainStorm by UsAgainstAlzheimer'sEp 90: The Longevity Paradox: Health Span vs. Life Span with Paul IrvingBrainStorm wants to hear from you! Send us a text.What's the purpose of a long life if our brains can't enjoy it? Paul Irving, Senior Advisor at the Milken Institute on the Future of Longevity and Dean of Faculty at USC's Leonard Davis School of Gerontology, challenges conventional thinking about aging and longevity in a conversation with host, Meryl Comer. Together they address the critical distinction between longevity and brain health and explore why maintaining cognitive function matters more than simply extending lifespan. Paul shares insights into intergenerational collaboration and fighting ageism to create healthier, more...
2025-07-1521 minBrainStorm by UsAgainstAlzheimer'sEp 89: The Invisible Workforce with Paul Irving: Why Caregiving is a Personal and an Economic CrisisBrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm, Paul Irving discusses the PBS documentary produced by Bradley Cooper called Caregiving with host Meryl Comer. Their conversation centers on the widespread impact of caregiving in America, where over 53 million people provide unpaid care for loved ones with conditions like Alzheimer's. Irving emphasizes that caregiving is a universal human experience that creates significant economic challenges, with the Milken Institute estimating losses around $1 trillion annually. Irving advocates for developing "care-aware cultures" in workplaces and society and he stresses that human capital is any...
2025-07-0216 minBrainStorm by UsAgainstAlzheimer'sEp 88: Breaking the Silence: Jay Reinstein’s Mission to End Alzheimer's StigmaBrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm, host Meryl Comer talks with Jay Reinstein, a former assistant city manager in North Carolina, about his 12 to15-month journey involving neuropsychological testing and brain scans before being diagnosed with early-onset Alzheimer's at age 57. Rather than retreat from public life, Jay transformed his diagnosis into a platform for advocacy, serving on national boards including Voices of Alzheimer’s and lobbying Congress for more funding. The episode covers the benefits of early diagnosis, lifestyle changes, support groups, and innovative programs like the Su...
2025-06-1723 minBrainStorm by UsAgainstAlzheimer'sEp 87: Agitation and Alzheimer’s with Nancy TreasterBrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm Nancy Treaster, a certified caregiving advocate and co-host of The Caregiver's Journey podcast, shares her professional and personal experiences with host Meryl Comer. Their conversation focuses on agitation, one of the most challenging aspects of dementia care, affecting more than half of all Alzheimer’s patients in terms of quality of life while increasing caregiver burden. Treaster emphasizes the importance of being a "detective" when agitation occurs and identifying potential medical triggers before exploring other causes. They also share practical coping strategies wh...
2025-06-0324 minBrainStorm by UsAgainstAlzheimer'sEp 86: Muffy Walker, Author of "Memory Weavers"BrainStorm wants to hear from you! Send us a text.This episode of BrainStorm by UsAgainstAlzheimer's features Muffy Walker, a psychiatric nurse, and founder of the International Bipolar Foundation. Her new novel Memory Weavers is based on her professional and personal experiences caring for family members with Alzheimer's disease and issues of mental illness that inspire her advocacy work. Her novel explores how one person with fading memories from Alzheimer's and another with PTSD, who can't escape traumatic memories, find and support each other. Along With BrainStorm host Meryl Comer, Walker delves into the persistent st...
2025-05-2018 minBrainStorm by UsAgainstAlzheimer'sEp 85: Trump’s Policies and the Effect on Alzheimer's with George Vradenburg and Russ PaulsenBrainStorm wants to hear from you! Send us a text.in this episode of the "BrainStorm" by UsAgainstAlzheimer's, George Vradenburg, Co-founder and Chairman of UsAgainstAlzheimer's, and Russ Paulsen, the organization's Chief Operating Officer, discuss the impact of the Trump administration's policies on Alzheimer's research with host Meryl Comer. The conversation highlights the systematic dismantling of the National Institutes of Health (NIH) and other critical agencies, which threatens to undermine Alzheimer's research and public health. Vradenburg and Paulsen express concerns about the lack of transparency in the reorganization and the potential negative effects on drug reviews and approvals...
2025-05-0622 min
Caregiver SOSThe Policy Environment for Caregiver Supports with Jason ResendezJason Resendez joins host Ron Aaron and co-host Carol Zernial to talk about the policy environment for caregiver supports on this edition of Caregiver SOS. About Jason Jason Resendez is a nationally recognized care advocate. He currently serves as the President and CEO of the National Alliance for Caregiving, where he leads research, policy, and programmatic initiatives to build health, wealth, and equity for America’s 53 million family caregivers. In 2023, Jason was named one of the most consequential leaders in health and medicine by STAT News. Prior to joining NAC, Jason was the fo...
2025-04-2626 minBrainStorm by UsAgainstAlzheimer'sEp 84: Greg O'Brien – Advocating for Scientific Research for Alzheimer’sBrainStorm wants to hear from you! Send us a text.Journalist and author Greg O'Brien, diagnosed with early-onset Alzheimer's over a decade ago, shares with BrainStorm host Meryl his determination to be heard at the Washington D.C. rally at the Lincoln Memorial to protest proposed cuts to NIH biomedical research funding that would critically affect Alzheimer's disease research. Greg also candidly shares what it takes for him to navigate at this late stage in the disease.This episode also features a TopLine commentary by George Vradenburg, founder and chair of UsAgainstAlzheimer's, on the mobilization o...
2025-04-1619 minBrainStorm by UsAgainstAlzheimer'sEp 83: Doreen Monks – The Emotional Journey of Alzheimer’s and Dementia (part 2)BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm, host Meryl Comer continues explore the challenges of false Alzheimer's diagnosis in her interview with Doreen Monks, a former neuroscience nurse practitioner. Upon re-examination, Monks' diagnosis was revised eight years later as mixed dementia, but the stigma of Alzheimer's has already taken its toll.Part 2 highlights issues in the dementia diagnosis process, the gap between scientific advances and clinical practice, and the emotional toll of misdiagnosis. Doreen Monks' personal journey offers both practical advice and emotional support for others facing...
2025-04-0112 min
Brain Chat with the Nerdy NeurologistMemory Loss and DementiaDon’t miss the next episode of #BrainChat, where we discuss memory loss and dementia with Stephanie J. Monroe, JD. As Vice President of Health Equity at UsAgainstAlzheimer’s, Stephanie has spent her career addressing Alzheimer’s impact on communities of color and advocating for greater minority participation in clinical trials. 🧠💡
2025-03-3148 min
Diane Rehm: On My MindThe latest on Alzheimer's research -- and why it might be at riskNearly 7 million Americans are living with Alzheimer’s disease. By 2050, this number is projected to rise to nearly 13 million. For years, research into the disease remained underfunded -- and patients who received a diagnosis had few options when it came to treatment. But in recent years, that has begun to change. “There are exciting developments in the research field at each stage of our lives that affect the strength of our brain and the ability of the brain to resist brain challenges,” says George Vradenburg.Vradenburg is chairman of the non-profit UsAgainstAlzheimer's, which he co-fo...
2025-03-2040 minBrainStorm by UsAgainstAlzheimer'sEp 82: Doreen Monks – The Emotional Journey of Alzheimer’s and Dementia (part 1)BrainStorm wants to hear from you! Send us a text.What if your life and career were upended with a diagnosis of Alzheimer’s only to learn eight years later that the diagnosis was wrong? In this BrainStorm episode, host Meryl Comer talks with Doreen Monks, a former neuroscience nurse practitioner, who was diagnosed with early-onset Alzheimer's at 63 years old. Doreen shares her emotional and professional experiences, the frustration of misdiagnoses, and the advice she has for others navigating similar challenges. They also discuss the crucial role physicians and caregivers have in empowering those with dementia.T...
2025-03-1916 minBrainStorm by UsAgainstAlzheimer'sEp 81: Tony Bennett's Daughters - Breaking Through the Silence of Alzheimer'sBrainStorm wants to hear from you! Send us a text.Learning about an Alzheimer’s diagnosis in your family is never easy. When you are an iconic music legend like Tony Bennet with legions of adoring fans, it is front page news. Antonia and Johanna Bennett, daughters of the late Tony Bennett, candidly discuss their emotional reactions to learning about their father's diagnosis. They share their concern for their father and fears about their own cognitive futures with BrainStorm host Meryl Comer. Hear more about the challenges faced by the family and Tony’s final performances with Lady...
2025-03-0419 minBrainStorm by UsAgainstAlzheimer'sEp 80: George Vradenburg and the Global Impact of Alzheimer's (part 1)BrainStorm wants to hear from you! Send us a text.Alzheimer’s is not just an aging issue, but a lifelong brain health challenge that has major global, economic, and societal implications. George Vradenburg, Chairman and Founder of UsAgainstAlzheimer’s, who has incubated satellite organizations globally to address these issues, debriefs BrainStorm host Meryl Comer on the recent launch of “Brain House” at the Davos World Economic Forum. Together they explore the potential role of AI in enhancing brain capacity, the fragile state of Alzheimer's research funding, and the business case for diverse representation in clinical trials. You don’...
2025-02-1922 minBrainStorm by UsAgainstAlzheimer'sEp 79: Rudy Tanzi – Alzheimer’s Updates and Developments; What’s New? (part 2)BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm host Meryl Comer continues her compelling interview with "Rockstar of Science" Dr. Rudy Tanzi, the pioneering Director of the Genetics and Aging Research Unit and Director of the McCance Center for Brain Health at Mass General Hospital. Dr. Tanzi unveils the secrets of brain health and Alzheimer's research. Exploring his innovative SHIELD framework, Dr. Tanzi offers practical strategies for cognitive wellness, from sleep and stress management to diet and lifelong learning.The episode takes an innovative turn with AI-generated questions...
2025-02-0417 minBrainStorm by UsAgainstAlzheimer'sEp 78: Dr. Rudy Tanzi - Alzheimer's Updates and Developments; What's New for 2025? (part 1)BrainStorm wants to hear from you! Send us a text.Join BrainStorm host Meryl Comer as she kicks off 2025 with "Rockstar of Science" Dr. Rudy Tanzi, the pioneering Director of Genetics and Aging Research and Director of the McCance Center for Brain Health at Mass General Hospital. Dr. Tanzi delves into the new FDA-approved drugs, early cognitive blood tests, and why treating Alzheimer's should mirror our approach to heart disease by focusing on prevention long before symptoms appear. Drawing from his decades of research, Dr. Tanzi shares his vision for the future: a simple daily pill that...
2025-01-2218 min
Working Caregivers: The Invisible EmployeesJason Resendez on Caregiver Advocacy and Workplace CultureIn this episode we welcome Jason Resendez, a leading advocate in the caregiving and Alzheimer's space, to the podcast. Together, we discuss the critical challenges facing working caregivers and how systemic changes can create supportive environments both in the workplace and in society. Jason shares his personal caregiving journey, the groundbreaking advocacy work of the National Alliance for Caregiving, and practical tips for employees and employers navigating caregiving responsibilities. From public policy changes to personal empowerment, this conversation sheds light on the invisible struggles and triumphs of working caregivers. Plus, Jason provides a sneak peek into the 2025 "Caregiving in...
2025-01-0739 minBrainStorm by UsAgainstAlzheimer'sEp 77: Rebecca Chopp, PhD - Maintaining Dignity While Living with Alzheimer’sBrainStorm wants to hear from you! Send us a text.In part 2 of BrainStorm, host Meryl Comer and Dr. Rebecca Chopp, former Chancellor of the University of Denver and Dean of Yale Divinity School, delve into maintaining dignity while living with Alzheimer's and dealing with guilt when transitioning loved ones to memory care. Dr. Chopp shares how spirituality and religious practices can help those with dementia, including the role of music and ritual in connecting with memories. The episode also stresses the importance of early conversations about care preferences and advocacy as a way...
2024-12-1814 min
Sustainable HumanEpisode 6: Brain Health: The case for a new balance sheet paradigm by Kelly O'Brien''I do think that right now, the way that the balance sheet works, humans are seen as an expense and not an asset, technically. Until that changes, and there is a movement to change that, that's what it will be seen as: an investment in a human is an expense, not an asset. There's got to be a mind shift''In this sixth episode of the Sustainable Human Podcast, our host Linda Jarnhamn and Kelly O'Brien, Lead for The Business Collaborative for Brain Health and Vice President of Prevention at USAgainstAlzheimer's, go wide and deep...
2024-04-1536 min
Public Health Review Morning EditionStates Lead Equity Initiatives, ASTHO Tunes Medicaid Parity PolicyJessica Fepelstein, ASTHO Analyst for State and Community Engagement, explains the health equity core concepts work that is happening as part of the STRETCH Initiative; Dr. Esther Muna, Chief Executive Officer and Territorial Health Official for the Northern Mariana Islands, discusses the ASTHO policy statement calling for Medicaid funding parity for the U.S. territories; Daphne Delgado, Program Director with the Center for Brain Health Equity at UsAgainstAlzheimer's, says the organization has resources for doing work in black and Latino communities; and an ASTHO webinar will help you learn new strategies to improve access to emergency contraception during.
2023-11-2905 minPublic Health Review Morning EditionNew Website Examines Public Health Priorities, Advocacy Drives Alzheimer’s PolicyDr. Marcus Plescia, ASTHO Chief Medical Officer, examines ASTHO’s new webpage with a collection of evidence-based technical packages covering key public health concerns; J.T. Lane, ASTHO Senior Vice President for Population Health and Innovation, outlines the work being facilitated by the Trusted Exchange Framework and Common Agreement or TEFCA; and Daphne Delgado, the Program Director for the Center for Brain Health Equity at UsAgainstAlzheimer's, says 2023 has been a historic and exciting year for the Alzheimer’s community. ASTHO Webpage: Evidence-Based Public Health ASTHO Blog Article: TEFCA – A Better User Experience for Exchanging Public Health...
2023-11-2704 min
Informatics in the RoundClinical Trials: Are We Whitewashing the Data?Is every clinical trial created equal? In this episode, we learn some shocking information about the proportions of populations normally included in clinical trials. We specifically cover recent treatments for Alzheimer’s disease to discuss how we may have failed to consider minority populations in our research and how we can use precision medicine to create more equitable clinical trials. We also discuss how we can redevelop trust in scientific institutions in the wake of the pandemic and how health professionals can adapt their research techniques to include data from historically underrepresented populations.
We had a wonderful ca...
2023-11-101h 13
Reimagining Black Relations#70 Addressing Dementia in the Black Community - Fayron EppsFayron Epps, PhD, RN, a nurse with 20+ years’ experience creating culturally relevant programs to reduce health disparities for underserved populations, highlighted significant health findings, negatively impacting the Black community. Dr. Epps passionately implored patients, their families, caregivers, and spiritual leaders to be engaged, for it is clear the status quo will be insufficient to sustain the community, and the consequences could be dire. The impending threat emphasized the urgency to adapt and collaborate on this new path that ensures the community’s survival and vitality. “I heard that by 2030, 40% of individuals in America with a diagnosis...
2023-06-1048 min
Healthcare Policy PopCMS Alzheimer's Decisions + No DataRuss Paulsen, Chief Operating Officer for UsAgainstAlzheimer’s, explains how some recent coverage decisions from CMS are affecting thousands of patients a day; ACIP’s public comment period RSV vaccines is officially open; Tony Newberne, a patient advocate from NC’s 14th congressional district, discusses his policy priorities, including QALY reforms, as he gets ready for Patients Rising Now’s Washington D.C. We The Patients Fly-In; and Patients Rising Now has submitted a letter to the Massachusetts Joint Committee on Health Care Financing supporting bill S754 which would mandate comprehensive coverage for obesity treatment. UsAgainstAlzheimer’s Webpage: N...
2023-06-0605 min
Episodes Archives - Fading Memories PodcastA Millennial Caregiver Dedication to Her Mom
Jessica and her Mother, CG.
A millennial caregivers dedication to her mom. When we think of someone caring for a loved one, our first impression isn't typically of a person in their mid-twenties. Generally, we think of an older adult spouse or middle-aged child caring for a parent. However, a rapidly growing population of caregivers are millennial caregivers, and Jessica Guthrie is a prime example.
While millennial caregivers, like Jessica, face all the same ups and downs as their older peers, they're also at a point in their lives that can compound the challenges of caregiving. They're...
2023-02-281h 10
Florida ExclusivoFlorida Exclusivo Auto caliente causa Hipertermia,Vacuna Covid embarazo o lactando, Signos para detectar el AlzheimerJosé Alberto Uclés, Portavoz de Asuntos Públicos Hispanos, Especialista en Medios y Eventos de la Administración Nacional de Seguridad del Tráfico en las Carreteras (NHTSA)Dejar a un niño en un automóvil caliente puede causar hipertermia por el calor extremo del vehículo y la muerte. En el lapso de 10 minutos, un automóvil puede calentarse 20 grados Fahrenheit, lo suficiente como para matar a un niño. La temperatura corporal de un niño aumenta de tres a cinco veces más rápido que la de un adulto. Una temperatura central de alrededor de 1...
2022-05-2035 min
Vital Health PodcastGeorge Vradenburg, USAgainstAlzheimer's, and CMS' NCDGeorge Vradenburg is the co-founder and chairman of USAgainstAlzheimer's, a patient advocacy organization founded in 2010, which has successfully worked to increase funding for Alzheimer’s and dementia research. Along with his philanthropic activities, George Vradenburg is also a very successful corporate lawyer and has been the Executive Vice President of AOL Time Warner and the Fox Broadcasting Company. The podcast discusses the current state of Alzheimer's research and the potential impact of CMS guidance requiring confirming clinical trials for new treatments targeting Amyloid plaques in its prevention. We also highlight a growing consensus of concern surrounding CMS' cu...
2022-04-0834 min
Alzheimer's SpeaksInside Stories To Shift Dementia Care by Michael Ellenbogen & George VradenburgLori La Bey talks with Michael Ellenbogen who was diagnosed with Young-Onset Alzheimer's Disease at the age of 49. He has been a mover and shaker in the industry and is interested in motivating those living with dementia to raise their voices and reduce the stigma surrounding the disease. Michael also wrote about his journey with the disease in his book entitled “From the Corner Office to Alzheimer's.”
GeorgeVradenburg and his late wife Trish, Co-founded UsAgainstAlzheimer’s in October of 2010. From the get go, they positioned themselves as a primary go to organization. They listen to the needs of the peopl...
2022-03-231h 27Alzheimer's SpeaksInside Stories To Shift Dementia Care by Michael Ellenbogen & George VradenburgLori La Bey talks with Michael Ellenbogen who was diagnosed with Young-Onset Alzheimer's Disease at the age of 49. He has been a mover and shaker in the industry and is interested in motivating those living with dementia to raise their voices and reduce the stigma surrounding the disease. Michael also wrote about his journey with the disease in his book entitled “From the Corner Office to Alzheimer's.” GeorgeVradenburg and his late wife Trish, Co-founded UsAgainstAlzheimer’s in October of 2010. From the get go, they positioned themselves as a primary go to organization. They listen to the needs of the peopl...
2022-03-231h 27
AMWA Diversity DialoguesBrainGuide: Opening The Discussion Around Brain Health The conversation about dementia and brain health can be a difficult one in different communities. BrainGuide by UsAgainstAlzheimer’s is a first-of-its-kind platform that empowers people with knowledge and resources to take the best next steps in managing their own or a loved one’s brain health. Brooks Kenny speaks with Dr. Neelum Aggarwal and host Dr. Chyanne Brown about the BrainGuide's success in the year since its creation.
Mentioned In This Episode
BrainGuide https://mybrainguide.org
UsAgainstAlzheimer's https://www.usagainstalzheimers.org
2022-03-1652 min
Empowering Professionals in AgingDisparities in Alzheimer’s DiseaseAlzheimer’s disease and other dementias disproportionately affects women, African Americans and Latinos. In fact, women are twice as likely to develop the disease as men. Twenty percent of Americans living with the disease are African Americans and Latinos are 1.5 times more likely to be diagnosed than non-Latino whites. It is important for professionals to understand the disparities that exist among these subsets of the population. Join this webinar to learn more on this topic from a guest speaker with UsAgainstAlzheimer’s who will discuss how communities and healthcare systems can work together to promote brain health equity for all...
2021-11-1859 min
Dementia MattersAccessibility and Community: Bringing Alzheimer’s and Dementia Resources to the Latinx CommunityUsAgainstAlzheimer’s newly-released tool, BrainGuide, may seem like a simple questionnaire, but the project highlights a growing movement to make Alzheimer’s disease research and resources accessible to a broader range of communities. Released in 2021, BrainGuide is a one-of-a-kind resource that provides information about Alzheimer’s disease in English and Spanish through online and telephone questionnaires. Dr. Maria Mona Pinzon, a physician-scientist at the University of Wisconsin School of Medicine and Public Health and a consultant on BrainGuide, joins the podcast to discuss the impacts this project has had on educating the Latinx community about Alzheimer’s disease. Discussing the barr...
2021-10-2824 min
Ideagen RadioUsAgainstAlzheimer's on Good Health & Well BeingSend us a textBrooks Kenny, Executive Director, WomenAgainstAlzheimer's and Director, Be Brain Powerful Campaign discusses UN SDG 3, Good Health & Well Being during Ideagen's 17 Days of Sustainability.
2021-10-0523 min
On the Pulse PodcastEpisode 7: Alzheimer’s Disease Among the Latinx PopulationIn the United States, Latinos are 1.5 times more likely than non-Latino whites to develop Alzheimer’s disease. Right now, the Latino population makes up the country’s youngest racial or ethnic group, and as this population ages, a dramatic increase in cases of Alzheimer’s disease could follow.What are health care professionals doing to prepare for this increase? What other factors might be contributing to their increased risk for the disease? And what can Latinos do to protect their brain health?In honor of National Hispanic Heritage Month, Dr. Melissa Hladek and Jason Resendez join t...
2021-09-2122 min
Move to Live®MoreLinking Movement and Brain Health - UsAgainstAlzheimer'sAn interview with Kelly O'Brien, Executive Director of the UsAgainstAlzheimer’s Brain Health Partnership.And so physical activity, I think, is one of the most important. It's also one of the most scientifically backed and researched interventions. Dozens and dozens and dozens of studies have confirmed over and over and over again, that consistent and increased physical activity can actually reduce your risk of dementia and improve your cognitive performance.Kelly O'BrienPreventing and treating Alzheimer’s diseaseEmpowering people to reduce risk Linking movement and brain healthPhysical activ...
2021-09-1431 min
The Caregiver Dave ShowBrooks Kenny Alzheimer's - Explaining "Brainguide"New First-of-its-kind Platform to Address Consumer Needs for Information about Brain Health, Cognitive Impairment and Alzheimer’s Washington, D.C. – On Wednesday, March 31, UsAgainstAlzheimer’s will officially launch BrainGuide, a first-of-its-kind platform to address consumer needs for information about brain health, mild cognitive impairment (MCI) and Alzheimer’s Disease, with a press briefing call at 11:00 am EDT. This official launch follows the exclusive platform preview broadcast on ABC News’ Good Morning America on Friday, March 26. With BrainGuide, millions of Americans who worry about memory or brain health will now have a powerful platform to help them find their way to helpful re...
2021-09-0243 minCaregiverDave.comBrooks Kenny Alzheimer's - Explaining "Brainguide"New First-of-its-kind Platform to Address Consumer Needs for Information about Brain Health, Cognitive Impairment and Alzheimer’s Washington, D.C. – On Wednesday, March 31, UsAgainstAlzheimer’s will officially launch BrainGuide, a first-of-its-kind platform to address consumer needs for information about brain health, mild cognitive impairment (MCI) and Alzheimer’s Disease, with a press briefing call at 11:00 am EDT. This official launch follows the exclusive platform preview broadcast on ABC News’ Good Morning America on Friday, March 26. With BrainGuide, millions of Americans who worry about memory or brain health will now have a powerful platform to help them find their way to helpful re...
2021-09-0243 min
Alzheimer's SpeaksBrainGuide A New Tool To Help Alzheimer's Patients/CaregiversLori La Bey talks with Brooks Kenny the Executive Director of the Women’s Network at UsAgainstAlzheimer’s. Brook's is also the General Manager for BrainGuide, UsAgainstAlzheimer’s newest initiative. It focuses on bringing state-of-the-art technology to consumers across the country that are worried about their or a loved one’s brain health. Lori can't wait to have this discussion as we raise awareness of this fantasitc new program. Call in and talk with our Lori and Brooks at (323) 870-4602. Contact Brooks Kenny My Brain Guide Website: www.mybrainguide.org Phone:855-BRAIN-411 (855-272-4641) UsAgainstAlzheimer’s W...
2021-08-0358 minAlzheimer's SpeaksBrainGuide A New Tool To Help Alzheimer's Patients/CaregiversLori La Bey talks with Brooks Kenny the Executive Director of the Women’s Network at UsAgainstAlzheimer’s. Brook's is also the General Manager for BrainGuide, UsAgainstAlzheimer’s newest initiative. It focuses on bringing state-of-the-art technology to consumers across the country that are worried about their or a loved one’s brain health. Lori can't wait to have this discussion as we raise awareness of this fantasitc new program. Call in and talk with our Lori and Brooks at (323) 870-4602.
Contact Brooks Kenny
My Brain Guide Website: www.mybrainguide.org Phone:855-BRAIN-411 (855-272-4641)
UsAgainstAlzheimer’s W...
2021-08-0358 min
This is Growing Old30. UsAgainstAlzheimer's Chairman and Co-Founder George VradenburgAlliance for Aging Research President and CEO Sue Peschin talks with George Vradenburg, Chairman and Co-Founder of UsAgainstAlzheimer’s, about the recent aducanumab announcement, the UsAgainstAlzheimer's Brain Guide program, and the importance of the Medicare annual wellness visit for detection of cognitive impairment.
2021-07-2818 min
This is Growing Old30. UsAgainstAlzheimer's Chairman and Co-Founder George VradenburgAlliance for Aging Research President and CEO Sue Peschin talks with George Vradenburg, Chairman and Co-Founder of UsAgainstAlzheimer’s, about the recent aducanumab announcement, the UsAgainstAlzheimer's Brain Guide program, and the importance of the Medicare annual wellness visit for detection of cognitive impairment.
2021-07-2818 min
Fix This#39 - UsAgainstAlzheimer’s promotes brain health educationMay is Mental Health Awareness month. To explore the topic, the Fix This team sat down with Brooks Kenny, executive director of WomenAgainstAlzheimer’s and director of the Be Brain Powerful Campaign at UsAgainstAlzheimer’s. Brooks talks about the recently launched BrainGuide, made in collaboration with Amazon Web Services (AWS) and Biogen who provided in-kind and financial support. From an assessment to resources, UsAgainstAlzheimer’s aims to reduce the stigma associated with Alzheimer’s disease and deliver information that sparks conversation about brain health.
2021-05-2715 min
LeverAGEA Call for a National Dementia Prevention GoalAlzheimer’s disease and related dementias impact more than 6 million families, with 15 million projected to be affected by 2050. Although we’re learning that it is possible to reduce the risk of dementia and slow the rate of cognitive decline, we do not yet have a national effort focused on prevention. Kelly O’Brien from UsAgainstAlzheimer’s and Dr. David Hoffman of Maria College and the National Association of Chronic Disease Directors talk about why we need a national dementia prevention goal, and how public-private partnerships can advance the fight against Alzheimer’s and related dementias.Hosted by: Leanne C...
2021-05-1947 min
Rodger ThatAlzheimer’s Is Not Just A Memory Problem :: Brooks KennyBrooks Kenny serves as executive director of the Women’s Network at UsAgainstAlzheimer’s. She also directs the organization’s consumer–facing brain health education and engagement programs as the general manager for BrainGuide, the organization’s newest initiative focusing on bringing state-of-the-art technology to consumers across the country. Brooks has spent her career applying marketing and business know-how to social causes and has become a national speaker on women’s brain health, Alzheimer’s disease, and caregiving. “We know the tsunami is coming, and it's time to start a new conversation, which...
2021-05-1435 minRodger ThatAlzheimer’s Is Not Just A Memory Problem :: Brooks Kennyoks Kenny serves as executive director of the Women’s Network at UsAgainstAlzheimer’s. She also directs the organization’s consumer–facing brain health education and engagement programs as the general manager for BrainGuide, the organization’s newest initiative focusing on bringing state-of-the-art technology to consumers across the country. Brooks has spent her career applying marketing and business know-how to social causes and has become a national speaker on women’s brain health, Alzheimer’s disease, and caregiving. “We know the tsunami is coming, and it's time to start a new conversation, which...
2021-05-1235 min
Rodger ThatAlzheimer’s Is Not Just A Memory Problem : Brooks KennyBrooks Kenny serves as executive director of the Women’s Network at UsAgainstAlzheimer’s. She also directs the organization’s consumer–facing brain health education and engagement programs as the general manager for BrainGuide, the organization’s newest initiative focusing on bringing state-of-the-art technology to consumers across the country. Brooks has spent her career applying marketing and business know-how to social causes and has become a national speaker on women’s brain health, Alzheimer’s disease, and caregiving. “We know the tsunami is coming, and it's time to start a new conversation, which...
2021-05-1134 min
Alzheimer's SpeaksDementia-friendly Worship - A First of it's Kind GuideLori La Bey host of Alzheimer's Speaks Radio talks with Lynda Everman and Don Wendorf about a new book they are involved with to help address the spiritual needs of those living with dementia. The book Dementia-friendly Worship: A Multi-faith Handbook for Chaplains, Clergy and Faith Communities is the first-of-its-kind handbook which enables congregations and faith communities to better serve those living with dementia. Join us for a great conversion and learn about this initiative and others they are involved in, like UsAgainstAlzheimer's. Contact Information for Lynda Everman & Don Wendorf Lynda Everman Email Don Wend...
2019-06-2756 minAlzheimer's SpeaksDementia-friendly Worship - A First of it's Kind GuideLori La Bey host of Alzheimer's Speaks Radio talks with Lynda Everman and Don Wendorf about a new book they are involved with to help address the spiritual needs of those living with dementia. The book Dementia-friendly Worship: A Multi-faith Handbook for Chaplains, Clergy and Faith Communities is the first-of-its-kind handbook which enables congregations and faith communities to better serve those living with dementia. Join us for a great conversion and learn about this initiative and others they are involved in, like UsAgainstAlzheimer's.
Contact Information for Lynda Everman & Don Wendorf
Lynda Everman Email
Don Wend...
2019-06-2756 min
Alzheimer's SpeaksDementia - Research - Advocacy & FamiliesHost Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer's Patient/Caregiver Powered Research Network (AD-PCPRN) and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the convervsation on research and support.
Joan M Griffin Email A-LIST on UsAgainstAlzheimer's A-LIST Facebook A-List YouTube Join the A-List
For Additional Resources from Alzheimer’s Speaks Speaking, Training and ConsultingSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.
2019-02-051h 00Alzheimer's SpeaksDementia - Research - Advocacy & FamiliesHost Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer's Patient/Caregiver Powered Research Network (AD-PCPRN) and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the convervsation on research and support. Joan M Griffin Email A-LIST on UsAgainstAlzheimer's A-LIST Facebook A-List YouTube Join the A-List For Additional Resources from Alzheimer’s Speaks Speaking, Training and ConsultingSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.
2019-02-051h 00
On PlutoSonsGreg’s son, Conor, says despite the progression of his dad’s Alzheimer’s, they still have a lot of fun times together.
How has this disease affected the children in your family?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-08-2206 minOn PlutoGreatest FearGreg talks about the memory he fears losing the most.
What memories do you fear losing most?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-08-1503 minOn PlutoSlowing the ProgressionUsAgainstAlzheimer’s Co-Founder George Vradenburg asks Greg what matters most to him when it comes to treating Alzheimer’s.
What are your hopes for a treatment or cure for Alzheimer’s and other dementias?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-08-0803 minOn PlutoDaughtersGreg’s daughter Colleen talks with UsAgainstAlzheimer’s co-founder Trish Vrandenburg, who lost her mother to Alzheimer’s.
Has this disease brought your family closer or pushed them apart?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-08-0109 minOn PlutoGoing to PlutoGreg explains where “Pluto” comes from.
What image would you use to describe to describe your journey with this disease?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-07-2503 minOn PlutoThe Question of SuicideThere is no treatment, prevention or cure for Alzheimer’s. Because of that, Greg says there have been moments when he has contemplated suicide.
How do you work through the dark times as you fight this disease?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-07-1809 minOn PlutoFaithGreg says he couldn’t survive without his faith..
Does faith sustain you in your journey?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-07-1105 minOn PlutoDay to Day StrategiesGreg describes his day to day strategies for fighting back as his memory falters.
What coping strategies work best for you?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-07-0403 minOn PlutoChallenges to a MarriageAn Alzheimer’s diagnosis is one of the greatest challenges that a couple can face. Greg says for his wife, Mary Catherine, it was terrifying.
What are the challenges you face in relationships with loved ones?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: https://twitter.com/usagainstalz
2018-06-2707 minOn PlutoThe Assignment of His LifeJournalist Greg O'Brien talks about the assignment of his life - as a reporter embedded inside the mind of Alzheimer’s disease. In this first episode of On Pluto, Greg introduces us to his experience and encourages people to poke the demon and never give up fighting the disease.
What challenges do you face trying to keep life normal in the face of Alzheimer’s?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz
Twitter: http...
2018-06-1303 minOn PlutoTelling Brendan the TruthGreg O'Brien recalls the painful moment when he finally told his oldest son, Brendan, the truth about his diagnosis.
How did you and your family respond to your diagnosis or your loved one’s diagnosis?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz/
Twitter: https://twitter.com/usagainstalz
2018-06-1305 minOn PlutoUnmasking a Disease in the MakingGreg describes the serious head injury that revealed a disease in the making. At that time, he had already experienced symptoms associated with Alzheimer’s.
What symptoms and behaviors do you now recognize as the early signs of Alzheimer’s or another dementia?
To learn more about UsAgainstAlzheimer's, visit our website at https://www.usagainstalzheimers.org or check out our socials below.
Facebook: https://www.facebook.com/UsAgainstAlz/
Twitter: https://twitter.com/usagainstalz
2018-06-1306 min
2018-05-2253 min
The Agewyz PodcastMillennial Caregiver Lisette CarbajalLisette Carbajal was sitting in her dorm room at the University of Virginia when her mother called, crying as she told her Lisette’s father had been diagnosed with Alzheimer’s disease. In that moment Lisette—the daughter of Peruvian immigrants who speak little English—knew her future would be very different from that of most of her fellow students. In today’s show, Lisette talks about how her career and first big job working for former VA Governor Terry McAuliffe were shaped by her caregiving responsibilities and sense of obligation to her hard-working parents. She tells us what she’s lear...
2018-03-2943 min
Tech Policy LeadersJason Resendez: How Tech Can Help Latinos with Alzheimer's Bio Jason Resendez (@jason_r_dc) directs the LatinosAgainstAlzheimer’s Network. LatinosAgainstAlzheimer's is the nation’s first-ever coalition of Latino organizations focused on raising awareness of Alzheimer’s disease within the Latino community. Previously, Jason served as senior manager of strategic partnerships at the National Council of La Raza (NCLR). NCLR is the nation's largest Latino advocacy organization. Prior to NCLR, he served as the director of corporate relations and development at LULAC National Educational Service Centers Inc. (LNESC). LULAC is the nation’s oldest Latino civil rights organization. Jason has written about Latino issues for national and region...
2017-10-1727 minUsAgainstAlzheimer'sAlzheimer’s Economic and Social Impact on America’s Families - 2017 UsAgainstAlzheimer's SummitThis panel discusses the major economic and social impacts of Alzheimer’s disease at both the micro (family) and macro (society) levels, delivering a comprehensive and holistic view of the ballooning cost of caring for and treating Alzheimer’s. Panelists reflect on their stories and the personal impact of the disease, characterizing the disease’s financial effect on family members and caregivers representing multiple generations and diverse communities.
Moderator: Jill Lesser, Chief Strategy Officer, UsAgainstAlzheimer’s; President, WomenAgainstAlzheimer’s; Board Member, UsAgainstAlzheimer’s
Nicholas Eberstadt, PhD, Henry Wendt Chair in Political Economy, American Enterprise Institute (AEI) ...
2017-10-131h 03UsAgainstAlzheimer'sUtilizing Media and the Creative Arts to Connect Communities, Reduce Stigma and Advance Alzheimer’s Research - 2017 UsAgainstAlzheimer's Disparities SymposiumThis panel at UsAgainstAlzheimer's 2017 Disparities Symposium explores how media and the creative arts can be effectively leveraged to break down barriers, reduce stigma, and bring Alzheimer’s out of the shadows in communities of color. The panel will highlight the power of embracing culture to connect with communities. Attendees will come away with a better understanding of how to leverage the media and the arts in their respective work to educate communities, support caregivers, and give voice to the voiceless about Alzheimer’s and the need for greater participation in research.
Moderator: Stephanie Monroe, Executive Director, AfricanAmericansAgainstAlzheimer’s Netw...
2017-10-1340 minUsAgainstAlzheimer'sThe Role of Technology, Data, and Mapping in Understanding and Addressing Health Disparities - 2017 UsAgainstAlzheimer's Disparities SymposiumThis panel at the UsAgainstAlzheimer's 2017 Disparities Symposium highlights the innovative efforts of researchers and the private sector to leverage technology to educate diverse communities about diseases like Alzheimer’s, to support caregivers and to increase access to research. The panel also explores the role of data mapping and visualization in helping public health practitioners and policymakers better understand and address health disparities impacting communities of color.
Moderator: Sarah Hoit, CEO & Co-Founder, Connected Living, Inc.
Madeleine Shea, Ph.D., Deputy Director of Office of Minority Health, Centers for Medicare & Medicaid Services
Vis Naidoo, Chief Ed...
2017-10-1356 minUsAgainstAlzheimer'sCaregiver & Patient Reflections Across Cultures & Generations - 2017 UsAgainstAlzheimer's Disparities SymposiumThis discussion at the UsAgainstAlzheimer's 2017 Disparities Symposium features the varied experiences of Alzheimer’s and dementia care partners and patients from different cultures, generations and geographies—with the aim of better understanding their needs around support, training and research.
Opening Remarks: Nii-Quartelai Quartey, EdD, Senior Advisor, Multicultural Leadership, AARP
MODERATOR/PANELISTS:
Moderator: Meryl Comer, President and CEO of Geoffrey Beene Foundation Alzheimer's Initiative; Board Member, UsAgainstAlzheimer’s
Lisette Carbajal, Family Caregiver; LatinosAgainstAlzheimer's Advocate; Featured, Crowd and the Cloud Series
Kamaria Moore-Hollis, Family Caregiver, featured by The Genius of Caring
...
2017-10-1354 minUsAgainstAlzheimer'sKickoff Session: Uniting Communities for a Cure - 2017 UsAgainstAlzheimer's SummitFraming the day, this opening session of the 2017 UsAgainstAlzheimer's Summit enumerates policy priorities, as well as the core UsAgainstAlzheimer’s goals and theories of change to drive progress towards a cure. The introduction will reflect the inspirational quote from UsAgainstAlzheimer’s late Co-Founder and Vice-Chair, Trish Vradenburg: “A cure for Alzheimer’s: a fantasy, a wish, an impossible dream; the same words that were said to Galileo, Edison, Curie, Salk and whoever dreamed up the internet. Yesterday’s dream is today’s reality.”
FACILITATORS:
George Vradenburg, Co-Founder and Chairman, UsAgainstAlzheimer’s
John Dwyer, President, Globa...
2017-10-1341 minUsAgainstAlzheimer'sGrowing the Alzheimer’s Movement: Learning from Others - 2017 UsAgainstAlzheimer's SummitThis panel at UsAgainstAlzheimer's 2017 Summit draws insights and key learnings from leaders from influential movements and successful social-change efforts, such as teen pregnancy prevention, HIV, and breast cancer. The session includes perspectives on how the Alzheimer’s movement may evolve or learn from other movements. Ultimately it will help answer the question: how can Alzheimer’s advocates and leaders motivate policy makers and other stakeholders to work together to effect transformational change?
Moderator: Mike McCurry, Former White House Press Secretary; Distinguished Professor and Director, Center for Public Theology, Wesley Theological Seminary
Nancy Brinker, Founder and Boar...
2017-10-1339 minUsAgainstAlzheimer'sWhere Are We on the Path to 2025? Part I: The Alzheimer’s Drug Pipeline and Industry Trends - 2017 UsAgainstAlzheimer's SummitThis panel is a sequel to last year’s highly regarded session featuring insights from industry, academia, government and researchers on progress made in drug development, and highlighting updates on promising drugs and innovations in the pipeline. This year, the panel integrates commentary on the need for the modernization of Alzheimer’s drug approval standards, as well as emphasize robust participation in clinical trials, offering solutions to help increase enrollment and educate audiences about the impact and importance of clinical trials, and addresses issues relating to access to diagnostics and treatments.
Moderator: Debra Lappin, JD, Principal, Faegre Bake...
2017-10-131h 05UsAgainstAlzheimer'sThe Movement to Conquer Alzheimer’s: Creating the Tipping Point - 2017 UsAgainstAlzheimer's SummitKeynote Speaker: Bill Novelli, Professor and Founder, Global Social Enterprise Initiative, McDonough School of Business, Georgetown University; Former CEO, AARP; Founder, Campaign for Tobacco-Free Kids
2017-10-1331 minUsAgainstAlzheimer'sWhere Are We on the Path to 2025? Part II: Early and Accurate Detection and Diagnosis - 2017 UsAgainstAlzheimer's SummitThis panel tackles the issues of enhancing brain health and diagnosing Alzheimer’s early and accurately, allowing patients and caregivers the opportunity to adjust their lifestyle, to manage related co-occurring conditions, to plan their care support networks and to afford physicians the means to track the progression of a person’s brain health over time. The presentation discusses strategies in prevention and early detection, emphasizing the need to train clinicians, utilize technology and data, and transform payment and reimbursement practices.
Moderator: Ronald C. Petersen, MD, PhD, Professor of Neurology, Cora Kanow Professor of Alzheimer’s Disease Research and Di...
2017-10-131h 04UsAgainstAlzheimer'sBrain Health and Alzheimer’s Prevention - 2017 UsAgainstAlzheimer's SummitThis panel focuses on risk-reduction strategies and lifestyle interventions, as well as raising issues of brain health with providers and prevention steps that may improve brain health. We explore the idea that what is good for the heart is good for the brain. How can a focus on brain health translate to clinical trials and increased interest in medical research? What can we each do to reduce dementia risk?
Moderator: Susan Spencer, Editor in Chief, Woman’s Day
Laura Baker, PhD, Associate Director, NIA Wake Forest Alzheimer’s Disease Core Center
Sandra Bond Chap...
2017-10-131h 00UsAgainstAlzheimer'sInnovations in Care and Support of Those Living with Alzheimer’s and Care Partners - 2017 UsAgainstAlzheimer's SummitThis session explores how caregiving for those with Alzheimer’s and dementia can be supported and improved through innovations in technology. Panelists provide insights on various technology-based tools and applications that can support both the individual living with Alzheimer’s and their care partner, including access to clinical research, transportation and care management.
Moderator: Meryl Comer, UsAgainstAlzheimer’s Board Member; Co-Founder, WomenAgainstAlzheimer’s; President and CEO, Geoffrey Beene Foundation Alzheimer’s Initiative
Kim Campbell, Founder, CareLiving.org; Wife of Glen Campbell
Joe Cuticelli, CEO, Seniors, North America, Sodexo
Karen Garner, Caregiver and Author...
2017-10-131h 08UsAgainstAlzheimer'sThe Alzheimer’s Challenge: Where are we in the fight against Alzheimer’s? - 2017 UsAgainstAlzheimer's Disparities SymposiumOpening remarks to the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure and Care by by George Vradenburg, Co-Founder and Chairman, UsAgainstAlzheimer’s.
The Diversifying the Race for a Cure Symposium increased awareness, understanding and action related to Alzheimer’s disease among communities of color. This full-day program brought together disparities-focused health, policy and minority community stakeholders with caregivers, researchers and industry leaders to address the growing impact of Alzheimer’s on communities of color. Attendees contributed to the development of brain health promotion strategies, catalyzed research collaborations, and advanced patient and community-centered solutions to our nation...
2017-10-1314 minUsAgainstAlzheimer'sInnovative Models for Navigating the Alzheimer’s Journey - 2017 UsAgainstAlzheimer's Disparities SymposiumThis panel at the UsAgainstAlzheimer's 2017 Disparities Symposium explored a first-of-its-kind certificate program that will train individuals in Camden, New Jersey, to support individuals with Alzheimer’s disease, providing navigation services to individuals, families and caregivers managing the disease.
Moderator: Mary Michael, VP, Congress Stakeholder Management and Patient Advocacy, Otsuka America Pharmaceutical, Inc.
Michellene Davis, Esq., Executive Vice President and Chief Corporate Affairs Officer, RWJ Barnabas Health
Kris Kolluri, Chief Executive Officer, Rowan University/Rutgers-Camden Board of Governors
2017-10-1324 minUsAgainstAlzheimer'sWhat Matters Most? The Role of Patient Centered Research in Addressing - 2017 UsAgainstAlzheimer's Disparities SymposiumThis panel at the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure & Care explored how patient and community-engaged research can advance our understanding of brain health disparities. Panelists highlighted strategies for engaging patients and caregivers in research, identifying community research priorities, and for developing community-anchored research partnerships to address brain health disparities impacting communities of color.
Moderator: Goldie Byrd, PhD, Founding Director, Center for Outreach in Alzheimer’s, Aging, and Community Health; Professor of Biology, North Carolina A&T State University
Joyce (Joy) E. Balls-Berry, PhD, Assistant Professor of Epidemiology; Program Manager, Office for Co...
2017-10-1349 minUsAgainstAlzheimer'sWelcome and Introductions - 2017 UsAgainstAlzheimer's Disparities SymposiumWelcome and Introductions to the 2017 UsAgainstAlzheimer's Disparities Symposium: Diversifying the Race for a Cure and Care by Jason Resendez, Executive Director, LatinosAgainstAlzheimer’s Network and Coalition and Stephanie Monroe, Executive Director, AfricanAmericansAgainstAlzheimer’s Network
The Diversifying the Race for a Cure Symposium increased awareness, understanding and action related to Alzheimer’s disease among communities of color. This full-day program brought together disparities-focused health, policy and minority community stakeholders with caregivers, researchers and industry leaders to address the growing impact of Alzheimer’s on communities of color. Attendees contributed to the development of brain health promotion strategies, catalyzed research...
2017-10-1306 minUsAgainstAlzheimer'sLet’s Talk about Alzheimer’s: Messages and Tools for Promoting Brain Health and Research Opportunities in Diverse Communities - 2017 UsAgainstAlzheimer's Disparities SymposiumThis panel discussion at the 2017 UsAgainstAlzheimer's 2017 Disparities Symposium provides an overview of the latest efforts by researchers, government agencies and community organizations to promote brain health, research opportunities and healthy aging in communities of color. Presenters share actionable insights for mobilizing and educating diverse communities through tailored messaging and community outreach campaigns that resonate, change behavior and drive action. Attendees will gain lessons and messages to apply in their own work.
Moderator: Debra Jones, President, Tequity
Gwen Gates, Sr. Community Health Programs Representative, Alzheimer’s Disease Center, University of California, Davis
David Marquez Ph...
2017-10-131h 09
Alzheimer's SpeaksNew Initiatives Making Great Head Way In DementiaToday we will talk to the Founders of UsAgainstAlzheimer’s. During the first hour we will talk with George and Trish Vradenburg and learn the “why” behind the organization and what their goals are.
The second hour we will be talking with some of their subgroup leaders who are making a big impact around the globe:
Jason Resendez directs the LatinosAgainstAlzheimer’s Network & Coalition,
Drew Holzapfel serves as the Executive Director of The Global CEO Initiative on Alzheimer's Disease,
Jill Lesser is President of WomenAgainstAlzheimer’s and
Ginny Biggar directs the Patient-Caregiver and Faith Initiative...
2016-04-262h 04Alzheimer's SpeaksNew Initiatives Making Great Head Way In DementiaToday we will talk to the Founders of UsAgainstAlzheimer’s. During the first hour we will talk with George and Trish Vradenburg and learn the “why” behind the organization and what their goals are. The second hour we will be talking with some of their subgroup leaders who are making a big impact around the globe: Jason Resendez directs the LatinosAgainstAlzheimer’s Network & Coalition, Drew Holzapfel serves as the Executive Director of The Global CEO Initiative on Alzheimer's Disease, Jill Lesser is President of WomenAgainstAlzheimer’s and Ginny Biggar directs the Patient-Caregiver and Faith Initiative...
2016-04-262h 04
Caregiver SOS On AirGuest Jill Lesser, Women Against Alzheimer’s 4-26-15Jill is also a Board Member for USAgainstAlzheimer's. Jill is an intergenerational caregiver; she helps care for her mother who has Alzheimer’s while also raising her school age children.
The WomenAgainstAlzheimer’s Network (WA2) is the powerful, united voice of women who bear the major burden of the Alzheimer’s crisis. We arm women with the information and easy-to-use connections needed to be heard in Washington, in state capitals, and to communicate with industry leaders and the research community. Our goal is to facilitate a network of women who inspire and learn from each other and to steer the energy...
2015-06-1651 min