Shows
Kindness Warrior PodcastEpisode 19 When Your Child Has Multiple Diagnoses: with DSL mom Polly BoehnleinDSL member Emily Lane and Carly sat down to talk to Polly Boehnlein, who has a child with multiple diagnoses in addition to Down syndrome. We learn how their family celebrates little victories, finding friends, and how to cope with the unknowns of life.
2022-07-251h 02Kindness Warrior PodcastEpisode 18- Preventing Exploitation: The Hard Truth with guests Loren Pilcher and James J. WilkersonTrauma Warning: in this episode we speak about sexual assault and abuse in the disability community.
We had guests James (Joey) Wilkerson and Loren Pilcher on with us to discuss abuse and sexual assault in the intellectual and developmental disability community and the importance of education and prevention.
James Wilkerson is Chief Diversity Officer/Title IX Coordinator at Indiana University Southeast, he is also an author and sexual assault advocate. His organization Greek Law has educated hundreds of college students about consent and bystander intervention. We also had Loren Pilcher, who is the COO of Sw...2021-04-071h 11Kindness Warrior PodcastEpisode 17- Covid-19 Vaccine: What You Need To Know
This episode is a recording of a Covid-19 Vaccine education webinar hosted by Special Olympics Kentucky on February 3, 2021. They had friend of the podcast Dr. Priya Chandan and Dr. Corrie Harris from Norton Children’s hospital. In this session these Louisville doctors talk all things vaccine. Self advocates from SOKY and DSL and parents submitted questions beforehand and they were able to answer most all of the questions posed. This will most likely be a regular webinar with updates as the medical and public health experts learn more.
To watch the Zoom webinar with the slideshow, click her...2021-02-041h 05Kindness Warrior PodcastEpisode 16-Aging and Down Syndrome: Positive Approach to Care Part 2This is part two of our aging and down syndrome conversation. If you haven’t had a chance to check out part one, we suggest you go back to episode 15 and give it a listen. In this conversation Carly digs a little deeper with DSL aging expert Cathy Palmer about what they discussed is episode 15.
Resources:
Watch the full PAC webinar
What is PAC?
University of Kentucky Sanders-Brown Center on Aging
Alzheimer's Disease and Down Syndrome
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If you would like to submit ideas, fee...2021-02-0226 minKindness Warrior PodcastEpisode 15- Aging and Down Syndrome: Positive Approach To CareCarly sat down with DSL’s resident aging guru Cathy Palmer to chat before an education session, Aging and Down Syndrome: Positive Approach To Care. We invited aging experts Teepa Snow and Beth Tesfay from the organization Positive Approach to Care (PAC.) PAC is a program that guides others in effectively working with people living with neurocognitive degeneration.
Resources: Watch the full PAC webinar
What is PAC?
University of Kentucky Sanders-Brown Center on Aging
Alzheimer's Disease and Down Syndrome
If you would like to submit ideas, feedback or sponsor the po...2021-02-0255 minKindness Warrior PodcastEpisode 14- Developing Responsibility with the Career Solutions TeamThis is a special episode, a recording of a virtual parent education session hosted by Down syndrome of Louisville. Led by Zac Sappenfield and Brianna Heitzman, two of our Career Solutions Specialists. In this session they break down how important it is to utilize chores in your household to ensure future success in the workplace. They also have special guests Austin and Margarita Edelen who discuss Austin’s great work ethic and how it stemmed from helping his family on their farm.
Check out the zoom video and the PowerPoint presentation here
If you would lik...2021-01-1936 minKindness Warrior PodcastEpisode 13- Career Solutions with Zac SappenfieldCarly sat down with Career Solutions Specialist Zac Sappenfield to learn all about Down Syndrome of Louisville's Career Solutions Program. Our members join Career Solutions as they begin their transition from high school and our team aids in job training, finding them individualized jobs, supporting them on the job, and how hiring individuals with disabilities is an asset to any workplace.
If you would like to submit ideas, feedback or sponsor the pod, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville or to donate, visit Downsyndromeoflouisville.org
2021-01-1242 minKindness Warrior PodcastEpisode 12- The Fortwengler FamilyDown Syndrome of Louisville member Lucas Fortwengler joins Carly in the episode to interview his dad and sister, Steve and Kaitlin. Lucas has accomplished a lot in his life... he has a great job at Cabela's, he is an Eagle Scout, a gym rat, and most recently he earned a prestigious gold medal from congress. Carly and Lucas ask Kait and Steve why they think he is so good at 'crushing his goals', and what they would say to the doctors that told his parents he wouldn't amount to much today.
This episode is dedicated in loving m...2021-01-0444 minKindness Warrior PodcastEpisode 11- Dr. Priya Chandan: Part 2Carly and co-host Ankur talk to Dr. Chandan in depth about her medical advocacy and Covid-19 in the Down syndrome community.
If you have questions for Dr. Chandan or would like to submit ideas, feedback or sponsor the pod, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville or to donate, visit Downsyndromeoflouisville.org
2020-12-0738 minKindness Warrior PodcastEpisode 10- Dr. Priya Chandan: Part 1Carly sat down with Dr. Priya Chandan and co-host Mr. Ankur Chandan. We sit down with Dr. Chandan (who happens to be Ankur's sister) to talk about family, her work in medical advocacy, and Covid-19.
Dr. Chandan is a huge advocate for the disability community, her impressive medical career has centered around important medical advocacy. You can find her at University of Louisville School of medicine in the Department of Neurosurgery, Division of Physical Medicine and Rehabilitation. Her list of accomplishments is vast- but most notably she serves as Project Director for the National Curriculum Initiative in...2020-12-0731 minKindness Warrior PodcastEpisode 9- Guardianship: Live PanelThis episode is a live recording* of an educational panel we held at Down Syndrome of Louisville, "Special Needs Trusts and Guardianship." This is part one, which mainly focuses on Special Needs Trusts.
The event was moderated by DSL Executive Director, Julie Torzewski. The panel of experts includes:
Richard Bush: Richard N Bush law firm, As far as an introduction, his major claim to fame is being Michael's dad...after that, he does a little legal work…
Matthew Goodin is the owner of the Goodin Law Office of Special Needs Planning. He is a Spec...2020-06-1524 minKindness Warrior PodcastEpisode 8- Special Needs Trusts: Live PanelThis episode is a live recording* of an educational panel we held at Down Syndrome of Louisville, "Special Needs Trusts and Guardianship." This is part one, which mainly focuses on Special Needs Trusts.
The event was moderated by DSL Executive Director, Julie Torzewski. The panel of experts includes:
Richard Bush: Richard N Bush law firm, As far as an introduction, his major claim to fame is being Michael's dad...after that, he does a little legal work…
Matthew Goodin is the owner of the Goodin Law Office of Special Needs Planning. He is a Sp...2020-06-1252 minKindness Warrior PodcastEpisode 7- DS Diet...Continued with Dr. Jenny Kimes & Zach KalleyWe dive deeper into the conversation about the "Down Syndrome Diet" with a special guest, Zach Kalley. Zach has been on the Ds Diet for about a year to chat with us about the diet and how it’s been going for him. This conversation ended up being a real-time look into how difficult it can be to change your diet, especially for someone who is very set in their ways. Zach is absolutely hilarious, and Dr. Jenny knocks it out of the park helping him navigate some of the roadblocks he has been facing.
If you have...2020-04-1727 minKindness Warrior PodcastEpisode 6- DS Diet with Dr. Jenny KimesDown Syndrome of Louisville's resident Psychologist Dr. Jenny Kimes sat down with Carly to talk about the "Down Syndrome Diet," which is a lifestyle she has created for her daughter, Tabitha. This is a lifestyle based on studies of the brain and how certain foods and supplements can effect behavior and brain function.
If you have questions or would like to submit ideas, feedback or sponsor the pod, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville or to donate visit Downsyndromeoflouisville.org
If you'd like to r...2020-04-1744 minKindness Warrior PodcastEpisode 5- Dawn Guy and Hannah ErtelCarly sits down with Dawn Guy and Hannah Ertel, two of Down Syndrome of Louisville's Developmental Interventionists. They take us through a typical day for a DI, share some tips and tricks for families of younger members, and share some of their favorite stories from their time at DSL.
If you have questions or would like to submit ideas, feedback or sponsor the pod, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville or to donate visit Downsyndromeoflouisville.org
Books for children about Down syndrome and inclusion
D...2020-04-0632 minKindness Warrior PodcastEpisode 4- Down Syndrome of Louisville PREPSCarly and DSL's Executive Director Julie Torzewski take a deep dive into all of the Programs, Resources, Events, Partnerships and Services Down Syndrome of Louisville has to offer.
If you have questions or would like to submit ideas or feedback, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville visit Downsyndromeoflouisville.org
To get yourself Kindness Warrior swag: https://1213apparel.com/collections/down-syndrome-of-louisville
2020-03-2747 minKindness Warrior PodcastEpisode 3- Julie TorzewskiIn this episode, Carly and Katie Croom get to know Down Syndrome of Louisville's Executive Director, Julie Torzewski. Enjoy!
If you have questions or would like to submit ideas or feedback, email us at: kindnesswarriorpod@dsoflou.org
To learn more about Down Syndrome of Louisville visit Downsyndromeoflouisville.org
To get yourself a Kindness Warrior shirt:https://1213apparel.com/collections/down-syndrome-of-louisville
2020-03-2720 minKindness Warrior PodcastEpisode 2- Al and Linda Hublar Part 2Part Two of our wonderful chat with Al and Linda Hublar. If you haven’t listened to part one, you’ll want to go back one episode and get caught up. Here, in the second half of our interview, we let Mark ask his parents some questions about what it was like to raise him. We talk about his brothers not giving him any special treatment, about being bullied and Al and Linda learned some new stories about Mark that they’d never heard before!
If you have questions or would like to submit ideas or feedback, email u...2020-03-2112 minKindness Warrior PodcastEpisode 1- Al and Linda Hublar Part 1In this episode Mark Hublar co-hosts with Carly. Mark is a celebrity in the Down syndrome community and is mostly known for his fabulous motivation speeches. He is a 55 year old college graduate who lives on his own, vacations solo, drives a moped, and drinks a cold glass of milk before bed each night. Carly and Mark sat down with his parents Al and Linda to talk about what it was like to raise Mark in the 60s and 70s when Down syndrome caused so much fear and individuals with disabilities were hidden away from view. The Hublars have...2020-03-2041 min
Kindness Warrior PodcastEpisode 0- Welcome to the Kindness Warrior PodWelcome to the Kindness Warrior podcast! We are coming to you from Louisville Kentucky at Down Syndrome of Louisville’s Lifelong Learning Center. We made this preview episode to introduce ourselves and let you know what to expect from the Kindness Warrior Pod. One of the fun elements we will have is a different special guest or co-host rockin' an extra chromosome on with us each week. For episode zero, we have Corey Morgan asking questions about our host Carly, about the podcast, about what the heck a Kindness Warrior is, and he shares some of his wisdom about ha...2020-02-1821 min