Shows
MS Michigan Man 64Episode 58 Interview with Karen (MS WARRIOR)Karen is an MS warrior from England that experienced fatigue from the age of 16 throughout the early part of her life. When Karen was 31 she had her first child and felt even more fatigued and started to question how she was feeling with her doctors and they dismissed her fatigue as being a new mother and and having to run around after a little one. In 2019 Karen experienced an symptom of passing out and falling to the floor that her friend told her she was pushing too hard and to go home and rest. The next day when Karen woke...
2025-05-2637 min
MS is CHRONICSeason 2 - Episode 5: The MS Guide aka Dominic ShadboltWelcome to the latest episode of MS is Chronic.
I have had the great pleasure of being joined by TheMSGuide - Dominic Shadbolt.
Dominic has been prolific in the MS Community for many years. Diagnosed 33 years ago and has many strings to his bow. His achievements include securing the right for all people with MS in the UK to access a Disabled Persons Railcard, leading a global project for a leading MS charity during the pandemic, and completing a remarkable four-day, 100-mile, self-supported fundraising hike along the South Downs Way.
Now Dominic is i...
2025-03-0949 min
theMSguide podcastTesting the use of AI in MRI for MSThe use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time.Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know...
2024-08-1922 min
theMSguide podcastAnother New AI Tool That Will Transform Your MS CareAll the promised trial details are here:Boston, USBrigham and Women's HospitalPrincipal Investigator: Tanuja Chitnis, MDtchitnis@bwh.harvard.eduOttawa, CanadaThe Ottawa HospitalPrincipal Investigator: Gauruv Bose, MDgabose@toh.caLondon, UKThe Royal London HospitalPrincipal Investigator: Sharmilee Gnanapavan, Dr.s.gnanapavan@qmul.ac.ukInclusion criteria:Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range...
2024-05-2632 min
theMSguide podcastSex in MS : the things you need to know from Dr Brownex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.Here are the promised resources we discussed.https://mstrust.org.uk/a-z/sexual-problems-women-mshttps://mstrust.org.uk/a-z/sexual-problems-men-mshttps://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationshipshttps://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-workhttps...
2024-05-0526 min
theMSguide podcastSex in MS : the things you need to know from Dr BrownSex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.Here are the promised resources we discussed.https://mstrust.org.uk/a-z/sexual-problems-women-mshttps://mstrust.org.uk/a-z/sexual-problems-men-mshttps://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationshipshttps://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-workhttps...
2024-04-2818 min
theMSguide podcastDigital and Social changed the MS world. Meet the man behind it and hear his incredible story.If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources. If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is...
2024-04-2135 min
theMSguide podcastMen get better MS treatment than women.Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers.Learn more about Vicky here:https://mr.research.columbia.edu/content/victoria-m-leavittand delve into her vast amount of research here:https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=enIf you'd like a copy of the paper please email me asking for it. dominic@theMSguide.com
2024-04-0634 min
theMSguide podcastJoe Bush is running the London Marathon and Raising £££ for MS ResearchJoe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine.Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebushFollow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1 Read more about the research support from the MS Society here: https://www.mssociety...
2024-04-0105 min
theMSguide podcastThe Amazing MS Charity That Few People Have Heard Of MS-UKPlease check out the incredible resources at https://ms-uk.org Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have...
2024-03-2121 min
theMSguide podcastHow patients benefit when their Neurologist/Nurse attends medical conferencesHave you ever wondered what your doctor does when they flit off to exotic (and not so exotic) locations for medical conferences? They are important and you can benefit tremendously from having a doctor who works hard to stay up to date with the latest ideas in the field. Ask your doctor what the last conference they attended was and what they learned that affected your treatment and why.Contrary to what some thing it isn't a ski/Beach trip funded by the drug manufacturers. Really, the rules on pharma are extremely restrictive...
2024-03-0820 min
theMSguide podcastChanging your Neurologist is easier than you may think - your referral rights in the NHS - how to go about itThis podcast deals with changing your neurologist (in the UK) but also has a ton of good tips that are generally useful. Wendy is a senior manager in the NHS (we can't say where!) and really understands the system.Since recording this episode Wendy has been to see her new neurologist and has been bowled over by how good a good MS neurologist can be. We'll follow-up soon. An NHS leaflet detailing your right to choose: https://www.england.nhs.uk/wp-content/uploads/2017/03/patient-leaflet-digital.pdf www.nhs.uk/patientchoice
2024-02-2434 min
theMSguide podcastCoping with mobility loss caused by Multiple SclerosisPlease Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work...
2024-02-1758 min
theMSguide podcastNerve Remyelination & Regeneration in Multiple SclerosisProfessor Stefano Plucino - a leader in this field who is a working MS Neurologist and researcher at the University of Cambridge in the UK helps us understand what is coming, when it will be here and how you can get involved with Clinical trial of these amazing new therapies.Always ask your doctor - press them on this - what6 trials are running and how you might get involved. As ever, much of the burden falls to us but don't be disheartened. Go to www.clinicaltrials.gov and you can search by...
2024-02-0333 min
theMSguide podcastLet's Talk About Sex - in MSPlease Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work...
2024-01-2332 min
theMSguide podcasttheMSguide talks with Professor Bart Van Wijmeersch an MS Neurologist who is a bit differentProf Bart van Wijmeersch practices in Belgium and he has a very enlightened view on how to treat patients. I just loved talking to him and hearing how he goes about everything. Ypou are v lucky to be one of his patients.We cover the use of Evoked Potentials to aid in predicting the course of our MS and how these form part of the diagnostic and managing process. Read what the MS Trust says about Evoked Potentials: https://mstrust.org.uk/a-z/evoked-potentials#:~:text=As%20damage%20to%20the%20nerves,you%20notice%20any%20...
2024-01-2039 min
theMSguide podcastScientists crack mystery of how MS gene spread - Exclusive interview with the Lead ResearcherProf Fugger is the lead researcher on this incredibly important paper. It has been established how the 'MS Gene' came to be. Hear Lars talk in depth to theMSguide.com about his discovery and where the EBV we hear so much about fits. You#'ll be very surprised at some of the things you'll learn.Read more here: https://www.bbc.co.uk/news/health-67917294 Please Subscribe to the podcast and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon...
2024-01-1736 min
theMSguide podcast#TimeIsBrain - Brain health: time matters in multiple sclerosis.,Brain health: time matters in multiple sclerosis. Emily Stock joins us to talk about a global initiative tio ensure that MS has an appropriately rapid intervention protocol in the same way that styoke or cancer have. The sooner an MS diagnosis is acted on the more brain (function/quality of life) is saved. Hosted on Acast. See acast.com/privacy for more information.
2024-01-0521 min
theMSguide podcastClinical Trial Failure in MS: What does the big BTK trial failure mean for patients?On this patient focused podcast I get together with one of the leading MS Neurologists in the US - Aaron Boster MD - to discuss the implications of the trial failure of evobrutinib. Aaron helps break down what it all means and more importantly, what does it mean for patients?Please help support the channel by subscibing and on Patreon. patreon.com/theMSguide Thank you for your help. I appreciate it. Hosted on Acast. See acast.com/privacy for more information.
2023-12-1024 min
theMSguide podcastCathy Chester : The Doyenne of MSIn this episode Cathy (in the USA) and I (in the UK) combine our 60+y of living with Multiple Sclerosis to observe how far things have come, what the positive changes are and what still needs to be done. Please support theMSguide on Patreon at: patereon.com/theMSguide Thank You. Hosted on Acast. See acast.com/privacy for more information.
2023-12-0845 min
8:28 BROKEN TO BOLDWhat is CRAPPENING with our MS? With THE MS GUIDEDominic Shadbolt- dx 1993 Multiple Sclerosiswww.themsguide.comIG @themsguideFor more information about what Octave is doing - biomarker blood test- visit https://www.octavebio.com/ and click the GET IN TOUCH button to see if the test is available near you. How to Connect with A HOT MS:Email connect@ahotms.comWebsite https://ahotms.comIG https://www.instagram.com/ahotmsFB https://www.facebook.com/ahotmsTikTok https://www.tiktok.com/@ahotmsYouTube https://www.youtube.com/c...
2023-09-201h 00
Thriving Over Surviving Multiple SclerosisThe Golden Rule of Multiple SclerosisIs the outcome of our multiple sclerosis diagnosis all about luck? It is difficult to think that we have no control over whether or not our disease progresses. Dominic "Dom" Shadbolt believes just that though. Whatever he believes about the progression of his own MS, he lives his life by a particular rule; Treat others the way you want to be treated, period. Can't we all just be good people and be kind to one another? At least how we treat others is within our control. Let's also treat ourselves well too, please. Check out Dom's website a...
2023-08-1538 min
MS News & PerspectivesJenn talks to founder of The MS Guide Dominic ShadboltDiagnosed in 1994, Dominic went from patient to advocate, founding TheMSguide in 2021. He now hosts inspirational patient leaders and experts in the field of MS Neurology, making TheMSGuide a successful patient-to-patient YouTube channel where people across the world can share their experiences of MS.
Join Jeann and Dominic as they discuss what inspires him to educate and advocate for the MS community, the positive changes he has made for disabled Eurail passengers, and how his mindset helps him navigate life with a progressive disease.
Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
Follow us on...
2023-03-3037 min
Helping People PerformSupporting a Community, with Dominic Shadbolt: Ep 22Sometimes Helping People Perform is about guiding them through a complex and scary world that they suddenly find themselves in. This is exactly what Dominic Shadbolt does with the MS Guide; providing resources and signposting for those that find themselves impacted by Multiple Sclerosis.
Dominic has helped my family, and many others, navigate life with Multiple Sclerosis. His work helps us to perform at our best by staying up to speed with the latest research and building a community so that people can connect, learn from each others’ experiences and advocate as a community for change.
...
2023-02-2038 min
2023-01-1209 min
MS Conversations With CandiInterview with Dominic Shadbolt - The MS GuideIn this episode, Candice has a conversation with Dominic Shadbolt, host of The MS Guide YouTube Channel.Visit Dominic’s YouTube Channel: theMSguideInterested in sharing your story or suggesting a topic idea? Contact Candi at www.conversationswithcandi.com You can leave a written message or a voicemail. To support this podcast and keep the conversation going please click the link to Buy Me a Coffee or PayPal.Support the show
2021-09-0636 min