Shows
Living With Cystic FibrosisMilestones, Medicine, and the CF Community with Siri VaethCFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend.We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an advocate for her daughter Tess, who has CF, and is an incredible advocate for the CF community. If you need legislation explained to you, Siri can help you. She can put it in a way you'd understand.In this insightful conversation, we explore the evolving landscap...2025-04-0753 min
Living With Cystic FibrosisCF Mom TribeLaura Bonnell (Detroit), Kat Porco (Montana), Jen Caruso (Delaware) and Siri Vaeth (California) have have 5 children with cystic fibrosis between them. The kids are ages 14 to 25 years old. This CF Tribe of Moms has seen a lot. All of us have almost lost our kids to the disease. We're all going through the same challenges and joys. We wanted to share our hopes, fears, realities and plans for the future with all of you.
Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonn...2020-05-1548 min
Living With Cystic FibrosisCF Foundations: from California to Michigan working togetherI am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF Foundation) we do our individual work with our respective CF Foundations and come together as part of the CF Engagement Network (CFEN). CFEN focuses on issues that impact our entire CF communities. Our thanks to Ryan Gough for getting us together.We had candid conversations in this podcast. It is from the perspective of three people with CF (Emily Schaller; 38 years old, Brian C...2020-05-0846 min