Shows
Real Mother FuckersScotti Taylor + Smith-Magenis SyndromeScotti Taylor gives us a glimpse on what Smith-Magenis Syndrome (SMS) is, a rare genetic disorder caused by a mutation or deletion on the 17th chromosome. She discusses the challenges of raising a child with SMS, including sleep issues, behavioral problems, and anxiety. Scotti emphasizes the importance of having a support system and being proactive in managing her daughter's symptoms.
Scotti also highlights the need for more awareness and understanding of SMS in society. Scotti Taylor shares her experience raising a child with Smith-Magenis Syndrome (SMS) and the challenges and joys that come with it. She discusses...2024-09-171h 01
Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2018-05-1424 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2018-03-0626 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2017-11-2054 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2017-06-1500 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2016-11-1848 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2016-09-1222 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2016-05-291h 08Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2016-03-291h 02Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-11-241h 00Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-08-1356 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-06-031h 13Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-04-1700 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-04-1357 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-04-1348 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-04-1321 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-04-1357 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-02-2558 minRare Genomics / RareShare Podcast Series: Ask the Expert & Patient NavigationRare Genomics/RareShare Podcast Series: Ask the Expert & Patient Navigation (Deepask1)Rare Genomics Institute RareShare Ask the Expert:Podcast Series, Disease Specific Q&A Sessions, For feedbacks contact, Scientific Director, Rare Genomics Institute: Deepa Kushwaha, deepa.kushwaha@raregenomics.org (Music credit: www.bensound.com)2015-02-1347 min